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I have a dream or two

“Everybody can be great because everybody can serve. You don’t have to have a college degree to serve. You don’t have to make your subject and your verb agree to serve. You only need a heart full of grace, a soul generated by love.”

Martin Luther King Jr.

On Monday, we celebrated the life of Dr. Martin Luther King Jr. with a day of service. It was a rainy day here in LA so not one that I spent volunteering, in full disclosure. Instead I spent the day thinking about dreams, vision, goals and service. All of these things are constants in my life but as the New Year starts how can I create a vision for myself and my work that continues to serve others?

These are some of the questions I have been asking myself since the New Year. I do feel incredibly grateful that I have a regular outlet to serve with Charity Matters and with my day job running a youth leadership organization.  At TACSC we talk all year to our students about being a servant leader. We teach our students that they can not lead unless they serve. When we ask these middle school students to give us examples of true servant leaders, Martin Luther King is always at the top of their list. We teach that we are never too old or too young to serve, there is always someone in need of a little help.

Most importantly, we teach our students that before they begin anything they must have a goal, vision or a dream. It sounds so simple when we are teaching this and yet, the reality is that these take time. I dream of being a messenger of service but how do I break that dream down into manageable realistic goals? How do these goals and dreams work within my life?

I think when most of us think about service, we wonder where will we find the time? Many of us think charity and we think that people are coming for our wallets. There is nothing wrong with these thoughts but how can we all shift our perspective? When I ask myself, “What things make me feel great?” The answers usually include service, helping others, being with my friends. This year, I am going to try and organize a way for my friends to join me for some sort of service. I’m not sure what that is just yet, but I promise to report back.

At 56, I’m past the halfway point of my time on this planet. There is still so much I want to accomplish with the time I have remaining. I believe the greatest gift we can give the world is a life well lived. Dr. Martin Luther King Jr.’s time on this earth was not long but the life he lived left a legacy of love and compassion. As I work on my dreams, I am thinking of his and asking myself, ” What are you doing in service for others?”

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

New Year, New Dreams and Goals

Happy New Year! It’s that time of year when we catch our breath and begin to really think about what we want in 2023. I’m guessing that you have been pondering this, consciously or subconsciously, for the past week or so. I know I have. Honestly, just getting through the holidays feels like a victory. For some of us we are too tired to think about what we are eating for lunch let alone what we want for the year ahead. If there is one thing I have learned over the years is that those list and intentions become real and it all starts with the dream.

My sons call me Dharma, like the old TV show Dharma and Greg. You know the one, where the kooky Dharma is all about manifesting and the universe. I have to admit that I do have a solid Dharma side to me. The reason isn’t just faith, although that is a part of it. The main reason is that I set goals and that I can begin to see myself making that happen. Some people think this is odd, some call it manifesting, I like to make plans and make them happen. Call it what you want.

Here is a small example, last year one of my New Year’s resolutions for 2022 was to learn to play pickle ball. I talked about it all year and even was sad that most of my friends had already formed groups. Yet, all year I didn’t do anything about it. Nothing. For Christmas my husband gave me a racquet and a membership to a pickle ball place. I played with my son the day after Christmas and am still smiling. Definitely cutting that 2022 New Year’s resolution a little close but I made it just under the wire. It took a nudge to pull the trigger and now that I am setting 2023’s goals, becoming better at pickle ball is definitely on there.

While pickle ball is one tiny example of moving something forward in my life, it gives me such joy and a sense of accomplishment. Those are the feelings that I want to bring into the New Year, joy and accomplishment. So this year, I am taking a little extra time with the 2023 goals. I am breaking them down again this year into categories. Goals for health, relationships, career, our home and travel. Will I achieve them all? Absolutely not. Looking at my 2022 goals, Christmas in Bali so didn’t happen. Not even close. Will it get pushed ahead to 2023, absolutely!

The goals for Charity Matters are also something I am really thinking about. Charity Matters, each of you and the people we  interview fill me with joy, always! What is challenging is the expectation I place on myself and our team to create content each week. More often than not, amazing nonprofit founders cross my path and it is an organic process, which I love. There’s the Dharma again:) Tracking people down, scheduling interviews, and all the time that goes into each episode is a huge commitment. Finding the right balance of posting/creating every other week or every week is challenging. I look to each of you for guidance so please let me know your thoughts?

This year I am really thinking hard on the best way to be messenger for good. We spend so much time creating but we don’t do any PR or self promotion. Trying to find a smart and authentic balance to that this year is definitely one of our goals at Charity Matters. Finding a path for good news and good stories is challenging in the negative news that our media seems to like to churn out. If any of you have suggestions, I am open to any and all ideas. Or if you have any media connections, let me know. This is not my area of expertise so I can use all the help I can get. Another 2022 resolution, ask for help more often. People are always happy to help, we just have to ask.

Thank you all for helping by being beacons of light and believing in goodness. you wouldn’t be here if you didn’t. Each of you sharing these posts, subscribing to our podcast, and sharing our work on social media validates Charity Matters mission of connecting people and causes. So thank you for cheering us on and joining in this quest to be a messenger of goodness. I am running into 2023 with my heart wide open and full of optimism, ready to serve and receive.  Wishing you a magical year ahead filled with love, joy, abundance, fun and much goodness. I know your going to achieve all of this and more with your goals!

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Merry Merry 2022

“Gifts of time and love are surely the basic ingredients of a truly Merry Christmas. “

Peg Bracken

As we round the home stretch until Christmas, I wanted to take a moment to pause. A deep breath of stillness amongst the noise. My gift to you is one I hope you can give to yourself right now. Stop and think of all of those you love. See their faces, hear their voices and feel your heart swell with joy. That is Christmas. The love we have for one another and the way we share that love.

As we try to get all of those last minute details wrapped up, remember what matters. Those you love and the time spent with them . Treasure that because it is all that matters.

Wishing you all of the love and joy the season brings.

Merry Merry Christmas everyone…

 

CHARITY MATTERS.

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Looking back: My Hope Chest

” When you come to the edge of a forest and there is no path-make one that others will follow.”

Author unknown

I couldn’t let October come to an end without discussing Breast Cancer. You may remember a few years back,  I interviewed an amazing nonprofit founder and breast cancer survivor, Alisa Savoretti. Since that interview, I have had four friends who have undergone mastectomies. Breast Cancer isn’t something that only happens in October it is something that happens every two minutes, every day. One in eight women will develop breast cancer over the course of her lifetime according to the American Cancer Society. Breast Cancer does not discriminate from the rich or the poor. To be honest I had never thought about what happens when you get breast cancer and have no insurance? I assumed that Medicaid and Medicare covered everything. Well, I was wrong.

Nonprofit founder, Alisa Savoretti, had breast cancer, a mastectomy and no insurance for reconstructive surgery. The result was the creation of My Hope Chest, a nonprofit that helps to fund their reconstructive surgery. Alisa and I had an incredible conversation that left me feeling inspired by this amazing warrior who fights for women who truly need one. She has left such a lasting impression on me that I wanted to re-share her story.

Charity Matters: What was the moment you knew that you needed to act and start My Hope Chest?

Alisa Savoretti: Hearing you have cancer is a devastating moment. It’s one thing to hear you have cancer but it is another thing to realize you have cancer. It’s another to realize you do not have insurance and you do not qualify for Medicaid. This is what happened to me at 38 years old. I had been working in Las Vegas as a showgirl and had recently moved to Florida to begin an online furniture business, before companies like Pottery Barn existed. I had borrowed funds on credit cards to launch Retrohome.com in 1999 when I found out I had cancer. The doctor said to take care of the cancer, focus on surviving and worry about the reconstruction later. 

I survived but lived without my breast for almost three years. You have no idea what this does for you as a woman, for your mental well being. During those three years, I reached out to organizations all over the country, government, nonprofit, anyone who could help me to become whole again. I discovered that there wasn’t anywhere to go. I felt deformed, depressed, frustrated, had metal anguish and enormous financial stress.

I went to Vegas to work at The Rivera. The 1998 government law now mandated that their group policy could not decline me insurance in order to get my reconstructive surgery. I realized how my own self-esteem, confidence, and self-worth as a woman returned when I could look in the mirror and could see my whole physical being once again. It was my healing, a restoration in body mind and spirit.

While I was in Vegas, I volunteered for a NAWBO (National Association of Women’s Business Owners) event. I told the women from NAWBO my story and these women rallied around me and with their help, I was able to start My Hope Chest. Six weeks later, I  had my 501c3 on December 3rd, 2003. We will celebrate our 15th anniversary this year.

Charity Matters: What fuels you to keep doing this work?

Alisa Savoretti: Some days it feels as if I am pushing a boulder uphill with a toothpick. After fifteen years of doing this at the grassroots level, the work is very hard. What fuels me is knowing that thousands and thousands of women are missing their breast and this shouldn’t be happening in our country. Making women whole again is our mission. I think about more women are surviving breast cancer and that’s true. What about their quality of life if they are not whole?

These women are sick and often lose their jobs because they can’t work. They are now disfigured, deformed and depressed. The ripple effect of not being whole is devastating on marriages and families. This work has become my life’s mission. I am not married, cancer made children no longer an option and for the past fifteen years, this work has been my life.

Charity Matters: When do you know that you have made a DIFFERENCE?

Alisa Savoretti: We pick up where the government programs leave off. That is why we exist.  Our biggest referrals come from nonprofits such as the American Cancer Society, Susan G. Komen, and Care.org.  We get referrals from them weekly and we can not tell our clients if or when they are going to be helped. They sit on a waitlist while we try to raise the funds to make their reconstructive surgery happen. Helping women to become whole again is what fuels me and just knowing that there is always a list of women waiting for us to find the funding.

I know that we have made a difference when we can help them with whatever they have asked for and the letters they send us.

Charity Matters: Tell us what success you have had?

Alisa Savoretti: We help women every year in a small way and I feel blessed that God picked me to do this task. Every time we get the word out about our work it helps fund someone’s surgery. Shining a light on this cause is SO important. We have been able to fill a gap where other breast cancer charities leave off. If there was another organization doing our work we wouldn’t do it, but sadly there isn’t anyone else. The women we help are eternally grateful for all we have done and to me, that is the success.

Charity Matters: What is your vision for My Hope Chest going forward?

Alisa Savoretti: We will only exist until there is a cure for breast cancer. Of course, the big dream is that there is a day when our services are no longer needed. Ten years from now, I dream that we have enough resources, funding, surgical partners and angel warriors that we can help women as quickly as they are referred to us. I dream of no longer having a waitlist and being able to have a more efficient meaningful impact on these women’s lives.

Charity Matters: What life lessons have you learned from this experience? How has this changed you?

Alisa Savoretti: God had a different plan for my life. I have a quote on my desk that says,” When you come to the edge of a forest and there is no path-make one that others will follow.” I feel like that is what happened with My Hope Chest. My life’s lesson is that when you persevere you will make a difference. The fact that this even exists in 2018 and is still flying under the radar and that there are women, thousands of women in this country living without their breast.  My home has been refinanced three times to keep the funding going for My Hope Chest. I have taken extra jobs at the grocery store to fund this. The lesson I have learned is that I have to persevere to help these women in any way I can. I cannot give up on them.

I think that changing even one life is important. Things are bigger than us, this mission is bigger than me and I have tied my life to making a difference. For me, I am grateful I was chosen for this journey. I am grateful to keep doing this work and I pray the Lord that My Hope Chest gets to leave a legacy on this earth until there is no longer a need for our services. That is my utmost prayer.

In the end,  I know that I have done my very best.

 

Charity Matters

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Effective Altruism

Last week I was asked to be a part of an interesting conversation from an East Coast Think Tank. One of the topics that came up was Effective Altruism. Today, I thought we would jump into the topic. There has been a lot of recent talk about the term Effective Altruism. What is exactly is effective altruism?

What is Effective ALTRUISM?

The simplest way to define it is to answer the question, “How do we use our resources to help others? ” In 2011, philosopher Peter Singer began asking these questions of the global community. Since that time there have been a number of books and the movement has grown.

Some of the key leaders in this global movement are Give Well and the organization 80,000 Hours. These two groups are asking questions such as, “Which charities improve global health the most per dollar?” Other questions such as, “How can I use my career to make a difference?”

The 80,000 hours Philosophy

The 80,000 hours philosophy is this: You have about 80,000 hours in your career: 40 hours per week, 50 weeks per year, for 40 years. That’s more time than you’ll spend eating, socializing, and watching Netflix put together. And it means that time is the biggest resource you have to help others. So if you can increase the overall impact of your career by just a tiny amount, it will likely do more good than changes you could make to other parts of your life.

The Give Well Philosophy

The Give Well Organization wants to help guide you and your dollars towards global issues such as malaria and a host of global issues where your dollar is stretched farther. They are willing to guide you in investing your giving as well. Here are a few of their thoughts: We take zero fees and use our most up-to-date research to grant your gift where we believe it will help the most. We typically grant this pool of funds to one or more of our recommended charities each quarter. Once we grant your donation, we’ll email you to let you know which charity or charities we selected and what we expect your donation will accomplish.

While Effective Altruism is not one organization but rather a global movement with many groups coming together trying to change the way we look at our world’s problems. There is also a large group of people that are trying to get us back to our roots which is taking care of our own communities at home. Another grass roots movement where going local, supporting small business and your local nonprofits versus the global movement presented by effective altruism. The local movement believes that if we each take care of our own communities we will not have to worry about those around the globe. Almost a shift back to the primitive days of tribes when no one in the tribe went hungry.

Both groups want the same thing, and that is to make our world better. Each side of this argument has their own ideas and beliefs. No matter how we help our fellow man, as long as we are helping, well that is good enough for me!

Charity Matters.

 

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Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Episode 47: Drink Local Drink Tap

One of the questions I always love asking our guest is did you grow up helping others? It is always fascinating to see where and when the seed of compassion took root in all the incredible people who do nonprofit work. Today’s guest, Erin Huber has an incredible life experience of serving others that started at age 12, founded her first nonprofit at 16 and continues to this day with her award winning nonprofit, Drink Local Drink Tap.

Join us for an inspirational conversation about what one person can really do to change the world. Erin Huber has been changing it for decades. Her work ethic, passion for helping others and amazing life journey is an inspiration for us all.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Drink Local Drink Tap does?

Erin Huber: Well, some people think it’s about beer.  We actually work locally and globally to solve water quality and equity issues. In the States, specifically, mostly in Northeast Ohio, and in the North American Great Lakes region, we do water education and activism and engagement activities. Globally in East Africa in the other Great Lakes region of the world. We build water and sanitation projects in rural Uganda, and we’re solving water equity issues, they’re in a different way.

Charity Matters: What was the moment you knew you needed to act and start Drink Local Drink Tap?

Erin Huber: One thing that I always remember was my father teaching me to root for the underdog. He wanted me to help people or things that maybe didn’t have a voice that couldn’t speak up. That always stuck with me and he passed when I was 12. And just an awesome guy.

Right after my father passed, I was like, “How can I solve every problem in the world?” I went vegan, I didn’t want to hurt animals. I was picking up trash, I didn’t want to hurt the environment. As a teenager, I was protesting  against drilling in the Arctic Refuge. And I was just trying to do everything from helping soup kitchens, to Big Brothers Big Sisters. When I was 16, I started volunteering at Habitat for Humanity. I was doing all kinds of soup kitchens on Sundays and holidays. And all of this happening, I ended up founding my first nonprofit when I was 16. It was called Covering Cleveland to help the homeless.

I was working three jobs and stayed in schools getting good grades. But then as I’m working three jobs and figuring out my life, I realized, Oh, I’m not going to have money for college. So I didn’t start college until I was 21 and I used those years to save up. By the time I reached Cleveland State, that’s when I kind of closed out Covering Cleveland. It had been such an awesome journey.

I knew that water was a thread for me. Water could help me touch the human and environmental issues that I cared about. Also, I knew I wanted to work in water. My first week of grad school, I went to this sustainable Cleveland summit and a bunch of people got together and decided we wanted to solve all the issues of the Great Lakes.  Then the 10 of us came up with this drink local drink tap campaign. We said we can’t solve all the issues of our Great Lakes, but we can maybe get people not to  drink out of plastic bottles. So we started this campaign, which accidentally became our name.

In 2010, I started an NGO (nonprofit) that’s now an international NGO. I never saw myself just working locally, I always saw myself working locally and globally. I had no clue how that was going to happen.

Charity Matters: What fuels you to keep doing this work?

Erin Huber:  I think, two things. So with our local work, what I’ve loved seeing our WaveMaker program with youth grow over time.  So I mean, just building curriculum to support teachers, hiring educators on our staff to be in classrooms teaching, zooming.  While I’m in Africa, drilling a well,  explaining the drilling process, showing them the village, having the kids talk to each other, that is awesome. And then we just published this book for teens to help them make an action plan to impact the problem they care about. So creating,

Charity Matters: When do you know you have made a difference?

Erin Huber:  On the Uganda side of our work, just knowing every day that our projects are supplying 40,000 people with clean water every day and 16,000 people have toilets. It just keeps me going. I have a goal of helping 100,000 people with water and sanitation by 2030. 

Charity Matters: If you could dream any dream for your organization, what would that be?

Erin Huber: I would love to see our curriculum and or this Make Waves for Change book for teens, everywhere in the US. I feel like young people today need an outlet to impact the problems that are so in front of them. It’s so different from when I was worried about solving all the world’s problems. I needed this book when I was a teen I can’t imagine the pressure and the stress that’s on teenagers today.

Globally. I would love to see rural water issues in Uganda go away. I think as countries develop what I’ve heard and seen in the water and sanitation sectors that cities are getting a lot of help rule water is a lot more difficult to prioritize. There’s less people, less voters, rest, money, money being put there. And so we really work from the bottom up with people who are probably not going to get helped by bigger, outside impact going on.  I would love to see rural water, get the attention it deserves. Allow people to stay in their family’s land and be productive, healthy citizens of their communities.

Charity Matters: What life lessons have you learned from this experience?

Erin Huber: Oh, there’s, there’s so much. I guess what I’ve appreciated is that people are so complicated.  I’m still trying to get better and learn from others.  When I originally went to Africa, I thought I was bringing this thing to the table.  I’m there a couple times a year and I just come back completely changed. Every time I learn so much about myself. I get humbled by the complexity of the world, the awesomeness of the world and the problems of the world. One big lesson is just to always be open to learning and changing and growing. Allowing your opinions to change and what you think you know, to change.

Charity Matters: How has this journey changed you?

Erin Huber: I’m very appreciative to be doing what I’m doing and to be focused on helping to solve some issues in the world. I think as a teenager, I was very overwhelmed. And I’m happy to be focused and water equity and quality issues.  I think honestly, Drink Local Drink Tap probably saved my life. Otherwise I would have  gone crazy from trying to solve all the worlds problems.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.
New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

The wait is almost over

The days are long and the years are short. That is exactly how I feel about summer. There are moments that the long hot days feel never ending and yet in the blink of an eye summer is practically gone. Some  schools are actually back in session! It truly is a wonder.

Summer is a crazy time for me, especially with TACSC. Our summer youth leadership programs are the pinnacle of our year.  As a result, Charity Matters takes a brief vacation. So thank you all for your patience. We are excited to launch Season Four of our Podcast next week and we have been busy these past few weeks gathering some amazing stories for you.

It’s hard to believe that we already have four seasons under our belt. We are so grateful for all of you who have subscribed  and left reviews, we are grateful for every last one! We had thought about launching Season Four today because it is National Nonprofit Day. 

What is National Nonprofit Day? It is a day set aside to recognize the immense effort nonprofits put into impacting their communities across the globe. We decided to give everyone another week to get settled and back to school. New episodes of Charity Matters  celebrating all the incredible humans who work tirelessly everyday to make your world better through the nonprofit organizations they create. It is all cause for celebration. So happy end of summer, happy back to school and Happy National Nonprofit Day!

CHARITY MATTERS.

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Love Your City

It is always so nice when the tables are turned, being a guest is always much easier than being a host. So when Bob Dalton, the founder of Love Your City, podcast reached out it was an easy yes. Bob is an amazing entrepreneur who founded the socially conscious company Sackcloth and Ash. His business follows the Tom’s Shoes model that you buy a blanket and give a blanket to the homeless. His mission is to blanket America.

In addition to Sackcloth and Ash, he has launched a new venture called Love Your City. His goal is to connect people to their  local grassroots nonprofits to get them to donate, volunteer and advocate for their communities.  He is highlighting this work  by interviewing nonprofit founders across the country who are doing great work. Sound familiar? If you like Charity Matters than you will most definitely enjoy Love Your City. 

Here is the link to our fantastic conversation. It was so fun chatting charity, good people and our mutual journey of finding them. Take a listen and make sure to check out Love Your City.

Thank you again for continuing to join us on the journey for good people doing amazing work.

CHARITY MATTERS.

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Melanoma, looking twice

Summer is in full swing and that means the sun is strong. I was recently at the dermatologist getting checked out. My visit reminded me of this conversation a couple years back. So I thought I would re-share it again today for all you sun lovers.

Growing up in LA, Marianne Banister was a familiar face on daily on our local ABC news station. She was always reporting from a storm, a flood, a fire…some sort of disaster. When a friend suggested that I reach out to interview Marianne, who now lives in Baltimore, I was a bit intimidated. Marianne and her husband lost their 17-year-old daughter Claire to melanoma.

Their family was determined to fulfill  Claire’s vision to provide clarity and hope in the fight against adolescent and young adult melanoma through their work at the Claire Marie Foundation. They are on a mission to ensure awareness, education, and prevention of cancer that has increased 250% in the last forty years.

Charity Matters: Tell us a little about what THE Claire Marie Foundation does?

Marianne Banister Wagonhurst: When this happened to our family, to our daughter, Claire, we were blindsided. The medical profession did not realize kids could get melanoma at this age. It looked different than adult melanoma and it was more aggressive and more invasive. According to pediatricians, melanoma is the number two, cancer in adolescence from 10 to 19 and the number one cancer in young adults from 20 to 29. This cancer is the number one cause of cancer deaths in young women 25 to 30. For young people, this disease is more aggressive and invasive than in older people.

We’re the only nonprofit in the country that focuses on preventing melanoma specifically in adolescents and young adults. We are not trying to treat it and we’re not doing research to find an answer to find the new drug or the therapy. Nobody’s helping to prevent it and that’s our job.

CMF Five Year Retrospective 2019 from Claire Marie Foundation on Vimeo.

Charity Matters: Can you tell us what the risk factors of Melanoma are?

Marianne Banister Wagonhurst:  If you wear sunscreen, if you wear up 50 SPF clothing,  if you don’t go to a tanning booth and if you advocate for yourself. That’s it, then you’re good. I want to add empower yourself to advocate and get at the front of it. Our whole goal is to get people in and connect them with a dermatologist. If you don’t already have a patient relationship with a dermatologist, it can take three to five months to get your first appointment. 

Charity Matters: Can you share some of Claire’s Journey?

Marianne Banister WagonhurstClaire got a routine skin exam at 13.  Every year we had them checked and had no history in the family. We had lived in Southern California and being a reporter I was aware of it. We went back six months later for her yearly exam. About a week before that the mole on her ankle that she was born with started to change. However, it didn’t look like what we’re educated to look at for melanoma. It wasn’t thick, it wasn’t dark. The borders were not irregular, none of that it just looked a little dusty gray in color. Unfortunately, it was a melanoma. 

About her junior year when we thought we were well past Claire said, “Mom, why do you think this happened to us?” I said, “Maybe being who you are because you’re so positive and energized. And being what I do professionally, you know, maybe we can do this together when you’re ready?” Claire said, “Yeah, when I’m a senior, then it won’t matter. And I can advocate.”  

She still was not quite there yet wanting to share her story. So we knew down the road, that’s what she would want to do. The bottom line is I just couldn’t sit here with this information and not warn other parents. If someone had raised the flag of awareness before us, then maybe she’d still be here.

Charity Matters: What was the moment you knew you needed to act and start Claire Marie Foundation?

Marianne Banister Wagonhurst:  We started with community support and  launched in October 2014.   Claire’s friends from her school wanted to help and do something.  One of her best buddies since childhood called me and said,” Hey, Miss Marion, do you have a logo?”  I was like, Why? I mean, we knew we were going to do something, but we are just trying to get through the grief and to deal with things.

Claire’s friends did this dance a THON and raised $24,000 called Moves for Claire. I didn’t know how many people my daughter knew.  There were 500 kids there and they had sponsorships. We realized they’re listening and paying attention now, so we need to take advantage of this. If we wanted to do this in her memory, we had to do it quickly. Her friends have been our biggest force.

So because of them we then went forward. We have collegiate ambassadors, who started the program.  They were in the high school class of 2015 and the college class of 2019. Almost one hundred of them are now  on 46 campuses. Each of them are doing peer to peer education, mentoring and awareness programs.

My husband cycled 620 miles to symbolically take her to college. Claire was accepted to college just a couple of days before she passed. So she got accepted to Georgia, Southern University, Alabama. So he cycled from Charleston to Georgia Southern into Bama. We did this big media raising campaign and because it was a football game that she promised her dad he could go with her. It was a way of him to process it and honor her. In addition, it was a way for us to raise awareness. 

The kids came up with a lot of these ideas. Today, we have partnerships with US lacrosse and we work with the Melanoma Research Foundation. Our organization has been to Capitol Hill to campaign for funding and support for research. We are developing a partnership with Teen Cancer America. If a young person is going through cancer, guess what that puts them at elevated risk for melanoma.

Charity Matters: What fuels you to keep doing this work?

Marianne Banister Wagonhurst:  Claire. There’s never anything that’s going to make it right that we lost her. There’s never any sense to it. But I truly believe this is her purpose. If I don’t keep this foundation going and do the work that needs to be done, then I’m not fulfilling her purpose.  That means we would have lost her for no reason.

She has changed lives and she has saved lives. We have had a number of young people who have found melanomas early and they always tell me,” You know, I thought of Claire, and I went and got it checked and it was a melanoma.”

Charity Matters: When do you know you have made a difference?

Marianne Banister Wagonhurst: My husband always says if we save one kid, we’ve done our work. We’ve done that many times over. I think what I’m most proud of is we’re changing the narrative.  Because of us, many organizations are now creating a Young Adult adolescent melanoma focus.  In six years, we’re starting conversations, and making people understand that it’s just not a matter of putting on sunscreen, and calling it a day.  It’s elevating the importance and value that young people are getting this disease to the rate they are and that it is not rare.

Charity Matters: If you could dream any dream for your organization, what would that be?

Marianne Banister Wagonhurst:  The dream would be that every young person from two-years-old on should incorporate full-body dermoscopy-based skin screenings every year, as part of their WellCare. When they go to their pediatrician and their eye doctor and their dentist, they see the dermatologist, they get checked, that becomes part of their routine.

 We just don’t want anybody else to go through what we did, because it’s so darn preventable. When you think about it, melanoma is one of the cancers that you have the best odds of seen visually externally on your body. A screening takes 10 minutes.  You don’t have to drink anything, don’t have to get an MRI and you don’t have to get a CAT scan. All you need is 10 minutes with a dermatologist with a scope. 

Charity Matters: How has this journey changed you?

Marianne Banister Wagonhurst: I think one of the changes that surprised me is you get a different identity. You realize that you cannot go back to life as it was because it’s no longer there. So you have to recreate yourself. I’m in a different world.  So I’ve expanded the people in my life.

 I’ve had a lot of loss in my life.  I’ve always lived my life as you have to thoroughly embrace it each day as it is. My faith is stronger than ever because I know she’s fine. I know she’s okay. 

Charity Matters: What life lessons have you learned from this experience?

Marianne Banister Wagonhurst: We’ve been asked this by other parents often how we dealt with the grief. We just had to dig down to this just horrendous feeling and we had to feel but then able to come out the other side. And it seems like to me that at some point of grief you have to process this pain. I think for me because I always remembered that conversation we had about Claire helping others, I know she would be proud of this.  

It’s not that you ever want this to happen, but if it does, to know that something has been inspired by her in a positive way. That’s what we look at.  Our daughter is having a great impact because of what we’re doing and that’s the best we can do for those we love.

 

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Voluntourism in 2022

It’s summertime and with that means travel and family trips. It seems that summer gets shorter every year and that means a very small windows for travel. I’m not letting that slow me down but rather am already beginning to plan for next year.

Our youngest will be graduating from college and it seems like the perfect time for a family trip that involves voluntourism or volunteering and travel. Since I have begun my research I thought I would share it with you. My first stop was a web-site chock full of information called Voluntourism.Org where you can learn about hundreds of opportunities and how to plan your trip.

Pre-planning check list:

A few things to keep in mind in the planning stages of your trip.

1. Do your homework

2. Ask yourself and your family what do you really want to achieve from this experience? Help others? Bond with your family? Get into a great college?

3. Choose a reputable organization to partner with

4. Involve your family in all the pre-planning process.

5. Document the experience with video, photos and journals.

There are thousands of online sources promising you and your family amazing experiences but finding reputable ones can be overwhelming. Here are a few volunteer programs that had some great endorsements:

Volunteer Programs to consider:

1. Global Volunteer Network

2. Cross Cultural Solutions

3. Rebuilding Together U.S. based program that builds homes across the country

4.  Pack for a Purpose

5.  Peace Jam

6.  Projects Abroad

There are also organizations that would love to have you visit learn about their mission, and volunteer to help further a given cause.  The downside is that you will have to do the investigation yourself by reaching out to organizations individually.  This can be a daunting task and challenging from a booking perspective. It can also be rewarding if you have a charity, organization, or cause you want to devote your time and efforts too.

Ecotourism is incredibly popular so if you are looking for a trip that involves working to save the planet or a species here are a few suggestions:

Ideas for Ecotourism travel:

1.  GoNomad

2.  Transitions Abroad

3.  GoAbroad 

4.  GoVoluntouring

5.  GoEco.org

So whether you go now or next year, travel near or far….know that your time is your greatest gift. Think about sharing that precious resource with your family in helping another. Those are the moments that make an impact on all involved.

CHARITY MATTERS.

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Happy 11th Birthday Charity Matters!

It seems like yesterday…..over eleven years ago I had a dream. A dream to tell the story of my heroes, remarkable people who take their pain and turn it into incredible organizations making a difference for others by creating non-profits. That dream became Charity Matters.

Like most dreams it wasn’t crystal clear where it would lead or why it appeared. This dream was loud and clear that this was what I was supposed to do. So, the journey began. Like all journeys, there have been challenges along the way, most of them technology based. Facing fears head on is what founders do. While technology and I are certainly not a dynamic duo, we are getting along much better these days.

From the hundreds of  heroes we have met here there have been so many life lessons.  I have learned the power of love, kindness, tenacity, passion, commitment and sacrifice. Every story shared about these remarkable humans has the same common denominator and each time I am inspired all over again.

Most importantly, you have been my greatest teachers.  I am humbled by your dedication, thrilled when you suggest a favorite cause and always so touched to know that you are here on this journey and for that I am so grateful.

Birthdays are for celebrating and I am happy to continue celebrating Charity Matters birthdays  with you. So thank you for all the gifts you have given us. Receiving our weekly emails, subscribing to our podcast, leaving podcast reviews, sharing a post that touched you with friends or just telling me what action you have taken to make Charity Matter in your life. You are all remarkable and each life you touch through kindness matters.

Thank you for touching mine so profoundly.

CHARITY MATTERS.

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Looking back at Miracle Messages

I have had some pretty amazing conversations in the past ten years. Conversations that really made me think and look at the world around me in a totally different way. The conversation I had earlier this year with Kevin Adler, the founder of Miracle Messages was game-changing for me. It’s my hope that it is for you as well. I will never look at the homeless the same after this eye-opening exchange.

Join us as Kevin shares the story of his uncle who lived on the streets and how his uncle’s death inspired the creation of Miracle Messages. A nonprofit that not only reconnects the homeless to their loved ones but also provides a social connection through a phone buddy system and provides cash for rent once the unhoused person is ready.

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what Miracle Messages does?

Kevin Adler: We help our unhoused neighbors rebuild their social support systems and financial security, primarily through family reunifications, a phone buddy system, and direct cash transfers.

Charity Matters: What was the moment you knew you needed to act and start  Miracle Messages?

Kevin Adler: This work begins really with my own family. I had an uncle, who was very beloved to me. Uncle Mark was his name and he suffered from schizophrenia. He lived on and off the streets of Santa Cruz for 30 years. One day I was in college and I got a phone call from my dad telling me that Uncle Mark was found deceased at a halfway house at the age of 50.

I never thought about the life he was living on the streets. It wasn’t until years later that I was in San Francisco, that I found myself walking by our neighbors experiencing homelessness. I said, Gosh, everyone I’m walking by that’s someone’s son or daughter, brother, sister. So it got me thinking, what would it look like to help neighbors experiencing homelessness, people like my Uncle Mark, maybe share their stories, the stories that I didn’t know.

It wasn’t trying to solve a problem and create an organization.  I started a side project storytelling project called The Homeless GoPro. For one year, I invited 24 individuals experiencing homelessness to wear wearable cameras around their chests and narrate their experience of what life is like. When I got the footage back I was just shocked by what I heard and saw. One quote really stood out. It was,” I never realized I was homeless when I lost my housing. Only when I lost my family and friends.”

Long story short, I approached everyone I saw who was experiencing homelessness and asked, “Do you have any loved ones you’d like to reconnect with?” That’s how I met a man named Jeffery. He told me he hadn’t seen his family in 12 years. Jeffery recorded a video with his niece and nephew, his sister, and his dad. I went home and I got on Facebook and found a Facebook group connected to his hometown.

So I posted the video there and within one hour, that video got shared hundreds of times. It made the local news that night the leading story. Classmates started commenting, I went to high school with Jeffrey, I work in construction. Does he need a job? And in the first 20 minutes of the post, his sister got tagged. We got on the phone the next day and it turned out Jeffrey had been a missing person for 12 years.

The starting point of Miracle Messages was when Jeffrey reconnected with his family. I asked sister Jennifer, “This thing that seems to be bigger than just Jeffrey and your relationship. There seems there might be others, who are experiencing this issue. What should we call this, this initiative?” She said, “Well, we’re in this small town and people have referred to it the story as the miracle of Montoursville. And it’s Christmas, maybe it’s called the Miracle message.”

That’s the name and the vision from day one, which no one should go through homelessness alone. Hard to believe that was December 2014.

Charity Matters: Tell us what success you have had and what your impact has been? 

Kevin Adler: An impact is a person who’s experiencing homelessness, potentially getting off the streets. About 20% of the reunions lead to housing. Impact involves the cost savings that generates. When it costs us thousands of dollars compared to cities spending between $40,000 to $60,000 per unhoused person per year to maintain them on the streets for one year. The impact can be measured in the lives and the perspectives of the volunteers, who say, “I never knew I could do anything on the issue of homelessness, I felt a very low sense of personal efficacy in making an impact. But now I feel empowered.”

An impact can also be measured in the fact that we’ve received over 100 million views on our videos on Facebook. We’ve had over a million shares, and over 700 articles written about us. These all change the hearts and minds of people. When you see a video about a person experiencing homelessness, reconnecting with a loved one or being in a phone Buddy Program, or getting $500 a month towards rent then it changes your perspective.

So you know, we take impact seriously. I also think anyone who listens to their unhoused neighbors and or volunteers and has their heart or mind shifted or opened as a result, that’s an immeasurable impact that we’re very proud of as well.

Charity Matters: If you could dream any dream for your organization, what would that be?

Kevin Adler: For us, that dream is that no one goes through homelessness alone. I would love to end that sentence one word early. No one goes through homelessness. People generally have the knowledge and wherewithal of what is best for them but they just aren’t given the agency. They are not afforded the same opportunities that we all expect in this country. So just giving people the financial support, they need to make ends meet, and the social support, they need to get through tough times and be celebrated at good times. That’s really what we’re committed to at Miracle Messages.

Charity Matters: How has this journey changed you?

Kevin Adler: My values are the same. What drives me as a person, my faith, and how I look at people have not changed.  I think I’ve grown a lot. I’ve realized that my story is about one story and the importance of really hearing other stories.  I’ve realized how much harder this work can be, but also how it’s so so important to keep the core foundation in mind to keep the perspective. So yes, I think I’ve grown a ton as a person. But I also think fundamentally, I’m still the precocious kid who was just comfortable walking around the neighborhood talking to my neighbors.

 

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
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Where are the heroes?

Photo by Joey Nicotra on Unsplash

When I was growing up heroes were everywhere. All our movies had heroes whether they were cowboys, astronauts, war heroes or Superheroes. Our television shows were full of people doing good. The TV shows were families that were working it out whether The Brady Bunch, The Cosbys or Roseann. Even those family shows depicted parents as heroes helping their families overcome. Even sitcoms like Cheers where people supported one another at the local watering hole, the bartender was somehow the hero. Our athletes were heroes for overcoming obstacles and showing us all what happens when you perservere. Where are the heroes today?

Where are the people doing good anywhere in the media? The only place I see any good, and its not much,  is the last five minutes of the Nightly News, if I can even stomach the news. Whether the media is showing the heroes or not, I refuse to believe they went away. I actually know for a fact they didn’t because I interview them each week. Real Heroes.

What is a real hero? A real hero is someone who overcomes adversity and then decides to help others do the same. That is what every single person I have ever had the privilege of interviewing does. Real heroes are in front of us everyday as doctors, nurses, firefighters, policemen and women, teachers, parents and yes, even nonprofit founders.

When I heard last week that the new Top Gun film (which I have not seen yet) was a box office smash, I knew it was because of the hero. We love them for so many reasons. Maybe, its nice to think of being rescued from time to time but I don’t think that’s the real reason we love them. I think we love them because they sacrifice for others and ultimately they show us who we can be. Heroes are good and we always want the good guys to win. I hope Tom Cruise brings back the heroes in our films.

Until then, Charity Matters will keep bringing you stories of everyday heroes. I challenge you all to continue to look for the heroes all around you because they are there, helping, sacrificing, doing good and showing all of us who we can be.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Episode 41: Sow Good Now

Sports teach all of us so many lessons. We learn as children how to get along, how to work together, and physical fitness. When we think of youth sports we don’t usually think about philanthropy. That is until Mary Fischer Nassib and her friends came along to change all of that.

Mary and her friends were all college athletes and mothers of athletes. They had seen teams of kids that had too much and they had seen those with too little. They decided they could change all that with their nonprofit Sow Good Now. Join us for an uplifting conversation about a new way to teach philanthropy, leadership, and service to others with this amazing organization.

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what SOW Good Now does?

Mary Fischer Nassib: There are 45 million youth that are involved in organized sports in the United States every year. In contrast, there are only 500 youth philanthropy programs.  So I thought, philanthropy is good for youth, it’s leadership development, and finding your passion. We know that it’s good for you, that’s good for communities, you lift diverse voices, the communities get the benefit of it, and the young people not only become beneficiaries but become active agents for philanthropy programs.

The kids come together, and they play sports to raise money for other kids. The teams are not only where the volunteers share their skills with youth from underserved areas but fundraise for them in the process. Let’s say there are 30 kids on a high school soccer team and they bring 30 kids from the Boys and Girls Club seven miles away.  That high school soccer team plans the match, arranges it, and coordinates a fundraising event, which we call a GiveBack,  to make it happen.

In the process, the high school team learns leadership skills, event planning, and service learning or doing it in its activity-based philanthropic education. Why we’re so unique is that we give the team ownership. You do the fundraising, you do the planning and you decide what organization you want to grant to. There’s a kid on your team that has a special cause you can help. Not only do you have the power to run this give back, but you’re organized and if someone else needed help, you’d be able to do that too.

The part that Sow Good Now does that work is we bridge the relationship between the team and the underserved youth. We set up a donor-advised fund with three or four players or the coaches, sometimes we even invite the program director from the youth group, whether it be the Boys and Girls Club or another organization. We want the students to understand that they do have tools that can maximize their personal lifetime impact. The fund is named by the team and they will grant out some and keep some in the fund.

Charity Matters: What was the moment you knew you needed to act and start  Sow Good Now?

Mary Fischer Nassib:  We named it Sow Good Now because we want young people to start sowing their seeds of goodness, today. Most philanthropy starts near retirement age and by the time philanthropists get into their stride, they’re facing the end of their life. So, as a mother of five athletes, I noticed that there was great disparity in a lot of the players in their access to sports.  That was symbolic of the great disparity that we have in our country. And I always thought, “Well, gosh, there’s so much excess here. And so much need there? How can we build bridges?

In July of 2018, the three of us founders (also former college athletes, and mothers of athletes) got our kids and their friends together, and we told them about philanthropy. We invited kids from the Middle School in an elementary school to a football Give Back.  As a mother, and a former financial advisor I know my way around the financial services industry, as well as the sports industry. I studied philanthropy and decided that I would bring others along with me, ie, the athletes.  They’re already primed, they already understand the value of teamwork and diversity, right.  You can’t win if you’re thinking about yourself and that is the same with athletes.

Charity Matters: What are your biggest challenges?

Mary Fischer Nassib:  That first year, everywhere we went, everything played out the way we hoped.  We got into high gear, gained some traction had a good fundraiser.  Then COVID in February of 2020 was the biggest obstacle.

Charity Matters: What fuels you to keep doing this work?

Mary Fischer Nassib:  I’m really trying hard to bridge these long-term relationships and I think it’s through relationships, that we will ultimately build confidence.  We are taking those geographically adjacent kids but socioeconomically diverse, putting them together, and then connecting them at a higher level.   I’m passionate about that, and I know I can help them.

Charity Matters: Tell us what success you have had and what your impact has been? 

Mary Fischer Nassib:  As far as Impact Reporting, we measure volunteer hours. We also say have you volunteered in the past X number of years, so we can report out on the volunteer rates. The other impact report, which is really a byproduct of the work we do is college campuses are reporting that 86% of their athletes are saying that mental health is an issue for them. The work we do at Sow Good Now reverses those two numbers. By volunteering all the research shows that you feel better, and you’re more connected.

We say we shift the focus from achievement to service, that’s really our goal.  Service to others is a way to pause that is a way to let them glimpse that there is life outside of achievement. The two impact pieces are the improvement of mental health and the increase in volunteerism.

One of our softball players did her first Give Back and engaged her team during the pandemic.  She got her players to do virtual videos for kids. She developed leadership skills by building her Give Back and has now been hired by a nonprofit. So those are very measurable results. In a very short time, we’re not four years old yet, and one and a half of those years were COVID. So I have no doubt what we can do. And we’re trying to get work so that we can do more and meet the demand. Everybody is one huge energetic team.

Charity Matters: If you could dream any dream for your organization, what would that be?

Mary Fischer Nassib:  That dream to me is that every team has its own identity. I dream that there are teams of philanthropic athletes who share the same passion, the same level of skills, and give back as they do in their sport. That the number of 500 youth philanthropy programs grow and the financial services industry makes charitable giving one of its priorities to make giving more effective, more inclusive, and more diverse. That’s my dream. The athletes are making it happen, and I’m honored to serve them when I look at them. I think of the potential that they have to do good.

Charity Matters: What life lessons have you learned from this experience?

Mary Fischer Nassib:  I think  I really focus on what’s in front of me. The saying is to work with what you have.  Everybody’s striving for whatever else is out there, I wish I figured that out earlier than I did.

Charity Matters: How has this journey changed you?

Mary Fischer Nassib:  I’ve changed a lot. I am definitely more fulfilled, I’m happier, I feel closer to where I should be and I am proud of myself for being a role model. There are a lot of risks, I’m from a family that really doesn’t understand the nonprofit world.

One day, I got a note from my goddaughter and she said,” Happy Birthday, and thanks for being a great role model.” I’m hoping that not only am I changing the world for the good in the sports world, but others are able to see that piece of themselves. I hope that they want to give back and that they say, “Well if Mary can do it, I can do it.” And that’s what I’m I’m kind of hoping for because that’s what makes me happy.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.