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Episode 56: Start Lighthouse

What happens when one person answers a call? In this situation, the call was to an elementary school teacher from a concerned parent about their child. Join us to learn about what one teacher has done to inspire 5700 children to learn to read and love learning.

There is a reason and a story behind today’s guest, Rina Madhani’s mission to inspire literacy in thousands of underserved children. Join us for an incredible conversation and see why Rina was a L’Oreal Women of Worth. She is a bright light!

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what Start Lighthouse does?

Rina Madhani: Start Lighthouse is committed to addressing the literacy crisis within our community. The reality is that thousands of students are growing up illiterate in our city, or state and our nation. Zooming into the Bronx in particular, which is one of the poorest congressional districts in the entire country, 70% of students are still reading below grade level.

What Start Lighthouse does is we build robust home libraries with brand new multicultural books. We host nationally recognized award winning authors and artists so that students can see the process of creating a story. And we also rehabilitate abandoned defunct library spaces within title one public schools. We then convert them into full time literacy centers where we provide high quality literacy programming. It is also a safe space for students to gather during the day after school and throughout the summer.

Charity Matters: Did you grow up in a philanthropic family?

Rina Madhani:  My parents would allocate like weekends where we would volunteer together as a family. That was really important to my parents. It was something that they prioritized, because that was a way to always bring the family together.  I think that’s really also shaped me as an individual today, because I do believe that we’re products of our environments.

Charity Matters: What were your early memories of giving back?

Rina Madhani: As a child, I was always interested in social impact in particular.  I just remember traveling back home to India, and just trying to understand why there was disparities that existed between social classes.  And wondering why the government wasn’t doing enough to address those gaps?  That was something that I also saw back home here in the States.

When I was younger, I was always thinking about how can I make a difference in the community? Even in high school, I created my own organization where it was bringing my peers together for us to be talking about issues that were affecting the world. We talked about Haiti, learned about micro financing,  created school supply kits back for children in Iraq during the Iraqi war. So those things were always in my mind.

Charity Matters: What was the moment you knew you needed to act and Begin Start Lighthouse?

Rina Madhani:  I remember when the pandemic started to unfold, and we really had no certainty what was taking place. Then suddenly, schools and libraries closed. Certain districts struggled to get tech devices for students that needed them in low income communities. I was in the Bronx, and a lot of my students and their families were reaching out to me asking me for additional materials and resources.  When I spoke to one of my student’s parents she said, “I don’t want him to continue to fall further behind. And I’m particularly worried about his reading ability.”

That phone call inspired me to get Start Lighthouse off the ground.  It really began with just a modest goal of getting 500 brand new multicultural books in the hands of students. Creating learning materials, resources that they could leverage while they were back at home.  I started to mobilize individuals within my network.  I was cold emailing publishers reaching out to elected officials, talking to community members, inquiring about which schools were operating as meal distribution sites. Finding where were students and families gathering daily for hot meals.

 That phone call that I had with one of my student’s parents stated it all.  I realized that I have a call to answer for not only my students, but for the community.

Charity Matters: What are your biggest challenges?

Rina Madhani:  I think the most challenging part has been around fundraising. Early on, I didn’t realize how to actually go about fundraising. I had never formally pitched my organization and I didn’t have a theory of change model in place. So I didn’t know how to raise money for the work that I was doing.  I just thought I would just be going to schools and just giving our services and products just for free as they need it.

Then I realized that’s not going to be sustainable as an organization. So that’s where I had to pivot a bit and really think intentionally around how the organization was going to develop. A lot of the work has really entailed around relationship building and cultivating a community based approach. So involving not only administrators, superintendents, but also elected officials, community members, families and the work that we do. That’s really been a key aspect of it because that those are the folks that can really help mobilize resources and funding.

Charity Matters: What fuels you to keep doing this work?

Rina Madhani: I think I’m just so fueled by the students and families that I have the privilege of interacting with every day. And the fact that our students now know things around like interacting with authors and artists. They’re able to verbalize the fact that they want to become authors or artists. The fact that they’ll tell me that they have a home library and that they know what those words mean. They can actually point to it and that fact that they come up and just tell me how much they love and enjoy reading. I think those are the moments that add up to me and really help fuel the work that I do. Because, for me, everything is rooted in community.  I want to be able just to support the next generation of readers, writers, and critical thinkers.

Charity Matters: Tell us what success you have had and what your impact has been? 

Rina Madhani: Our impact is now centered around us rehabilitating these defunct library spaces and converting them into full time literacy centers. That’s where I’ve seen just how impactful our work is. Because now we have the privilege and the opportunity to serve students every single day. So we are there during the day and after school. So now students are able to have access to our programming year round. With that, we are now able to study and unpack student reading proficiency data.

 We’re able to assess attendance levels to you in terms of the frequency of them coming to the literacy hub. Also ensuring that they’re in school because chronic absenteeism is a prevailing issue within our community. So now we have the opportunity to measure these items. Beyond just thinking about the 23,000 books that we’ve delivered and students that we’ve been able to work closely with. That’s where we’ve been able to see the true trajectory of our work. It’s just that we are able to join students as early as pre k to be able to follow them through their entire journey and ensure that they’re reading proficiently by fourth grade.

Charity Matters: If you could dream any dream for your organization, what would that be?

Rina Madhani: The big dream is to become a national organization. Right now we’re course based in the Bronx. But I always tell folks that we’ve got an ask for us to expand to Harlem and to Brooklyn. So, I envision us having a New York takeover. But then for us to be able to bring this all across the country through various chapters that exist.

Charity Matters: What life lessons have you learned from this experience?

Rina Madhani: I think, for me, the biggest thing has been around putting myself out there. Even if I do receive a no, that’s absolutely fine, because I will find someone else that will also want to champion our cause. And not to get too derailed by that because of course, I’ve received my own fair share of rejections. Along the way, even when I submit a grant proposal, maybe we’re not the right fit right now. But who’s to say and won’t come back again later and thinking that we could pursue when were maybe a bit more developed. So I think for me, that’s been the biggest thing is just not letting that derail me too much. Just to keep going and really just to find your champions. Once you’ve identified folks that truly believe in you and believe in the vision, hold on to those people because those are the relationships that will continue to carry you forward

Charity Matters: How has this journey changed you?

Rina Madhani: I think I’ve evolved tremendously. Since I’ve stepped into the shoes of becoming an entrepreneur, I feel so much more confident in terms of my ability to be in a room full of strangers and to be able to advocate for myself.  I think that when I was younger I was so much more introverted. And I always thought that like speaking out, wasn’t like the best way to like go about things. And now I have no problem doing that.

 I think I’ve just become so much more sure of who I am today. And I’m just so grateful, because this journey has allowed me to really step out of my comfort zone and have conversations with individuals that I never envisioned myself having a chat with before. Now that I have the opportunity to to share it share my story, it just reminded me that I also have something to say. 

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Snowed in and the kindness of strangers

I am interrupting this regularly scheduled podcast to share a recent story of kindness. Each week we share others stories but this week I thought I would share something that happened to me a couple weeks back. As many of you have seen on the national news that recent snow storms hit our local LA mountains, the San Bernardino Mountains.

My husband’s family has had a home there for years and it is a very special place for us. We don’t spend much time at the lake in the winter but it is always a treat to get away. When we had a call that there was water left on in the house, we decide to make a quick trip up. The thought of bursting pipes with freezing temperatures and a pending storm was big motivation.

Our plan was to go up early Friday morning and head back down on Sunday. We both had flights in opposite directions scheduled for Tuesday. So we wanted to make sure we had time to get ready for our upcoming business trips.  So we grabbed two days of food and put chains on our four wheel drive and hit the road.

The previous storm had left a couple of feet of snow that had yet to be plowed. When we got to the house we were surprised by how much snow we hadn’t been plowed. We were sure that the plows were just backed up and would eventually get to us. So we enjoyed our home, the fire, the s’mores, secured the house and settled in.

However, on Sunday morning when we hadn’t seen the plows and the snow kept piling up at a rapid pace, we got a little nervous. I called our local Fire Department which is about a mile away.  When I asked if they had seen any plows. The fireman said, “ No we haven’t seen them in a few days.  We heard that all of the plowing equipment was sent off the mountain to open the Cajon Pass.”  That’s when we became nervous. If the Fire Department can’t get out to help people then things were worse than we realized.

We shoveled snow off the dock, from around the house and quickly realized we had used up most of our food. That wasn’t our big concern. Rather it was getting down the next day to make our flights. We began reading the local Facebook post with people that were much worse off than we were. People without heat, power, firewood, food, medicine and the list went on and on.

So Monday morning when we had eaten the last of our food we thought we would try to shovel our way out. Well, that didn’t go so well and we got stuck. Once we dug the car out and had it back in the garage, my husband had an idea. He went onto the local Facebook group and asked if anyone had plowed roads within a mile of our home. In addition, he asked, if anyone was going down the mountain and could we get a ride?

That is when this story took a very different turn. Strangers named Debbie and Dustin replied to our online plea. They said that they were leaving in less than an hour if we could get to their home. So we turned off that water, grabbed our computers, our dog and left. We left behind our clothes, our car and hiked out about a mile in hip deep snow towards total strangers.

The second storm had now hit and snow was dumping down. When we got to their car we were told they were taking two cars down in order to pick up family friends coming into LAX the next day. They loaded us in, put a dog bed out for our dog and drove us down the hill and off the mountain. We passed tons of abandoned cars on our way down and saw the carnage from the past week’s storm on the roads.

When we got to the bottom of the hill, in two cars, we saw news crews and so many people detained trying to get back up the mountain. Police had closed the road back up due to the danger. We filled up our new friends car with gas and asked where they were going to stay for the night? They didn’t have a plan for their family that included two teenage boys and two chocolate labs. So we invited them to stay with us and they accepted.

It isn’t every day that you Facebook hitch hike and meet strangers who blindly take you into their cars. Alternatively, I don’t think we have ever invited strangers to sleep over at our house but we did. This experience left such an impact on us both. There is such power in the kindness. We are all so afraid and so nervous to open ourselves up. I am the biggest fraidy cat of them all!  However, this experience made me realize just how walled off we all are and how easy it  can be to open up.

It wasn’t just our situation that brought out the best in everyone, it happened all over the mountain. Neighbors checking on neighbors. People bringing others into their homes, shoveling snow for their elderly neighbors, delivering food and so much more. I’m not sure why it takes the worst situations to bring our the best in all of us, but it does.

We are incredibly grateful for Debbie and Dustin for their extraordinary kindness. If we could all be little more open and loving like our new friends the world would be a much better place.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

 

Episode 55: Grass Roots Grocery

If you have been to the grocery store recently you know how insane food prices are these days. When eggs are $8.99 something isn’t right! When one New York school teacher realized that his students were going without food he decided to step up in a very big way. It turns out that 1 in 4 New Yorkers who are experiencing a food emergency can even access a food pantry.

Join us today to hear the inspirational conversation of one man’s journey from the classroom to major food distribution to serve thousands of meals to his neighborhood. Dan Zauderer is an inspiration for us all in his mission to get all of us to be neighbors helping neighbors.

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what Grass Roots Grocery does?

Dan Zauderer:  Our mission statement is to advance food justice by cultivating a community of neighbors helping neighbors. What that means in action, is it means neighbors coming together, in grassroots service.  Making sure that their fellow neighbors have enough food to eat.

There are two different programs that we do that do but it’s really just founded upon the notion that we all need to come together to to take a bite out of food insecurity. This is not something that big food pantries can do alone. It’s not something that we can just leave up to the policymakers. The  problem is so big, that the only way to really shift it is for everybody to be involved.

Whether it’s by people roping in their corporate workplace, reaching out to their local girl scout troops, taking a couple of hours out of their week  to help make sure that their neighbors are nourished and fed. That’s what this is about. It’s kind of a narrative shift focusing on on bottom up direct action from the people. it’s just basically about operationalizing this notion of neighbors helping neighbors and applying it specifically to the realm of food justice.

Charity Matters: What was the moment you knew you needed to act and start Grass Roots Grocery?

Dan Zauderer:  It kind of begins with me having a career in the startup world, doing sales in New York.  So I set off into the startup world and I loved the element that involves working with people but I just hated the things that I was selling. I decided that I was going to stop everything, move out to Costa Rica, take a life break and teach English. I fell in love with teaching.

So I went back to Columbia University to get my Master’s in teaching English to Speakers of Other Languages. I started working at a school called the American Dream School, in the South Bronx. The student  population is the children of mostly undocumented Central American and Mexican immigrants.  One day, I am walking home and I see one of my students on the sidewalk. Next to my students, I see that there’s this elderly woman who’s digging through trash can dumpster diving.

So, I reached out to my student the next day and I asked him to share about what I saw. He told me that the woman was his grandmother and then this was something  that was a normal activity. When Covid hit, I thought  how can I rally my family and friends around something that would be helpful to my student community?  I decided that we should just raise a bunch of money because I knew it wasn’t just this one student and there were other families who had to deal with food insecurity. We then found out that one out of every four families were cutting down on meals a few times every week in my school community.

Then I learned about community refrigerators, the idea is literally a fridge on the sidewalk put down by an organizer. You place a refrigerator into a local store and you get people to donate food that have extra. Then we rallied together staff, my own family and friends and said, “Alright, let’s start a community fridge in Mott Haven”. That’s the way that this was started  as a teacher’s passion project that ultimately was renamed Grass Roots Grocery.

Charity Matters: What are your biggest challenges?

Dan Zauderer: Funding is was a huge challenge.

Charity Matters: What fuels you to keep doing this work?

Dan Zauderer:  A couple of things, one is my amazing girlfriend, my mom, my dad and family.  Having great people in my life is one thing. Another is the amazing community of volunteers. We’ve recruited over almost 3000 volunteers to help out  with this work and they light me up.  Whether it’s little kids, or high schoolers engaging in some kind of direct action to support their neighbors with food justice.

Every Saturday, we have what I call it produce party.  Where we come together with over 100 volunteers in a parking lot in the South Bronx. We unload a truck filled with excess surplus produce that we’ve picked up from the Hunts Point produce market, which is the biggest produce market in the country. Then every Saturday, we work together as volunteers to unload that truck and  to sort through all the food. After that, we load it up into the vehicles of our volunteer drivers. The drivers who come and bring it to our network of community liaisons.  

This past Saturday, I think we had 36 volunteer drivers. Wow. Over 100 people I want to say, and we delivered to I think it was 32 or 34. communities. So far, with not everybody reporting their numbers, we reached over 1000 families in that one Saturday. And I mean, that fuels me.

Charity Matters: Tell us what success you have had and what your impact has been? 

Dan Zauderer:  For example, all of our volunteers that came out this past Saturday, they got an email saying that you moved about 10,000 pounds of excess produce to 34 different communities throughout Harlem, the Bronx, and reached over 1000 families through community leader liaisons. Those liaisons  gave out that food to their neighbors in need in the way that they thought best. So that’s something that every volunteer received. That happens every weekend. 

 This crew of community leaders, I call them grassroots grocers and they all have stories of their own. They’re all doing this work for free because they’re leaders in their community. They want to give food to their people in need and so they’re volunteers.

Charity Matters: If you could dream any dream for your organization, what would that be?

Dan Zauderer: The real dream is to end food insecurity. But that’s not going to be in my lifetime,  although it would be amazing. My dream is for this mindset of neighbors helping neighbors to promote food justice becomes ingrained into the the habit of people’s lives. And it’s already happening. We have families that are that are making sandwiches or that are taking leftover meals and putting them into Tupperware containers and filling the community fridges. People  taking time out of their Saturday once a month to join us in a produce party.

If it just became commonplace, right? It’s this idea that we all need to come together. We can’t just rely on these big food rescue trucks, big nonprofits and the policymakers.  It’s up to all of us, even if it’s just a couple hours a month. That’s really my dream is for that mentality to just wash over the world. 

Charity Matters: What life lessons have you learned from this experience?

Dan Zauderer: The life lesson that I learned and that is just so important is to have meaning in the work that I do.  It’s really important for me to do something that this that that feels meaningful.  I’ve been sober for 12 years, and you know, starting a nonprofit is even harder than getting sober. 

I’m just so lucky that I created that this amazing community of neighbors helping neighbors. The fact that I can do this work and light people up and get people’s kids involved and spread this message. It is just what fills my cup. Centering on meaning and finding a way to remember all of the blessings of the work that you’re doing is what it’s all about.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Episode 54: One Block UWS

Have you ever walked by litter or a pile of trash on a city sidewalk? Most of us have and keep walking, thinking it may smell or what a mess. How many of us would stop and try to figure out how to clean up their neighborhood? I haven’t but today’s guest Ann Cutbill Lenane did just that. She not only saw a growing problem but she rolled up her sleeves to do something about it.

Ann Cutbill Lenane is a very successful residential realtor in the Upper West Side of New York City and is the founder of One Block UWS.  Join us today for an inspirational conversation about one woman’s journey to clean up her neighborhood, employee people in need of jobs and revive a community One Block at a time.

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what ONE Block does?

Ann Cutbill Lenane: One Block is a nonprofit that facilitates the filling of more than 1,000 bags of trash every week on the Upper West Side of Manhattan. We coordinate group events so neighbors can connect and clean their community. In addition we employ three full time workers who were formerly homeless.

Charity Matters: What was the moment you knew you needed to act and start ONE Block?

Ann Cutbill Lenane: Back in 2020 New York City had $106 million dollar budget cut to their sanitation. As you can only imagine NYC was a very scary place to be during the pandemic. During the pandemic, on the Upper West Side where I work as a residential realtor there are three homeless shelters. Eight hundred homeless were moved into hotels during the pandemic on the Upper West Side. People were really upset.

Regardless of that situation, I saw the neighborhood begin to turn in a really bad direction. This neighborhood where I raised my kids and still work was something out of a zombie apocalypse. I saw the neighborhood going in a very bad direction.  In the 1980s, I remembered what Mayor Giulani said about cleaning up neighborhoods. He said, ” If we start by cleaning up the trash and the graffiti then people will feel better about being there and be more respectful towards their neighborhood.” So while I didn’t have a solution for the homeless problem, I figured I could find a way to get trash picked up. I can start with the garbage.

I also had three homeless shelters with people who needed work. So I thought, simple I will hire a few people who need jobs and we will go clean up some garbage. However, it wasn’t that simple. We ultimately reached out to ACE a program that trains unhoused people on the skills needed to help us. The real breakthrough happened when the local neighbors, who were upset by the homeless situation started a Facebook page. It was 2020 and we were all locked up and this Facebook page had 16,000 followers instantly. One day a neighbor on the page said,”Who wants to help sign up to clean up garbage?”

I met with my young neighbor from Texas. We all started signing up and cleaning the neighborhood. Next thing we did was hire an attorney to help us get our 501c3.

Charity Matters: What are your biggest challenges?

Ann Cutbill Lenane: Some of the early things were easier like getting help from an attorney at Gibson Dunn to help us with a 501C3. Our weekly cleanups and communication was easy because of the Facebook page and group. We had great community involvement. Most importantly, I was able to gather our neighbors emails through the Facebook page which Facebook no longer allows. Capturing our communities information was so important so that we could keep everyone informed of our progress. Those things were relatively easy.

As far as challenges, we had people leaving the route because of drugs that we had to fire. We had people selling our trash bags for money. Our employees couldn’t find restrooms in NYC. We gave employees gift cards so employees could get lunch and use the restrooms where they ate. Our employees didn’t have shoes. We went back to our newsletter and asked our neighbors for help to support the people we hired to help clean our neighborhood .

Charity Matters: What fuels you to keep doing this work?

Ann Cutbill Lenane: We have a woman named Jackie who takes care of everyone on our team. The thought that she wouldn’t have a job does fuels me. Each month we wonder if we can go on with our funding. I can’t picture these people without One Block. I want these people to be stable, to be appreciated and to have good lives.

Charity Matters: When do you know you have made a difference?

Ann Cutbill Lenane: There isn’t a block that one of our employees is working that people don’t approach them and say, “Thank you.” Putting a face and a name on a person who could easily become invisible in New York City changes that for everyone. 

Charity Matters: Tell us what success you have had and what your impact has been? 

Ann Cutbill Lenane: Sometimes you think life is supposed to go in a certain direction and it doesn’t. I can only help along the way and I know we are making an imprint on these people’s lives. You can only do what you can do. You just never know what your impact is on someones life. The Upper West Side is cleaner, our team has shoes and we keep putting good out into the universe. 

Charity Matters: If you could dream any dream for your organization, what would that be?

Ann Cutbill Lenane: The dream would be to be able to support the people that work for us. Getting them into a stable situation and lift them up. It’s not about One Block and garbage but about the people who need a leg up.

Charity Matters: What life lessons have you learned from this experience?

Ann Cutbill Lenane: I’ve learned the power of one, which becomes the power of many. The impact is huge. I am used to speaking to people everyday and connecting people. What is your super power? You have one and how will you share it? 

Charity Matters: How has this journey changed you?

Ann Cutbill Lenane: . We were blessed by something that felt like the end of the world during Covid. Something great came out of all of this. You have to start with one small act. Many people want to help. One person one block at a time.

CHARITY MATTERS.

To Support One Block UWS

www.oneblockuws.org

[email protected]

Instagram: @oneblockwestside

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Episode 53: Hearts of Gold

Since this week is all about love and Valentines, it seems only fitting that today our guest is all about love. Her name is Deborah Koenigsberger and she is the founder of the nonprofit Hearts of Gold. So many of us pass the homeless in our cities and keep on walking. Not because we don’t care but because we are afraid and often feel helpless.

Not Deborah! As a young mother, she didn’t pass a homeless woman and child i the park, she stopped. When you hear here remarkable story about the impact one person can make, it will make you think differently. So join us for a remarkable conversation about love and action. Think of this as a belated Valentines Day gift to yourself!

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what Hearts of Gold does?

Deborah Koenigsberger: Hearts of Gold is a 28 year old nonprofit organization that supports homeless mothers and the children in shelters. We do that by what we call adopting shelters that house this demographic. So the shelters already exists. They are run by their city shelters or whomever entity owns the shelters and we go in with all the frills.

When we started it was really about making sure the moms and kids had something in their lives that would give them a good memory. So many of them coming out of domestic violence. We have programs with moms, and we have programs for the kids. Our goal is to basically help them get out of shelter life transition into housing and into permanent housing. We want them to just have a chance at what we all have, which is a normal life.

Charity Matters: What was the moment you knew you needed to act and start  Hearts of Gold?

Deborah Koenigsberger: There isn’t one moment but three that all built on one another. The first, I would say is a Stevie Wonder song that started it all.  Peace sign is the name of the album and the song is take the time out. the lyrics are, ” take the time out to love someone reach your arms out and touch someone, the king or some homeless one. We are one underneath the sun.” I was 12 when I heard it and it left a huge impact on me. 

What I get from that song is that these people who are homeless on the streets, somebody gave birth to them. One day, there was a joy. Somewhere along the line, life took a left turn. And it doesn’t mean that it couldn’t happen to any of us. It just means that it didn’t happen to us, right? It happened to those people. So if we are not a part of the solution, if we don’t attempt to be a part of the solution, then we really are a part of the problem.

The second thing was on my way between work and home was a woman and her three year old daughter. They were sleeping in a cardboard box in the park. I walked through park and my boys were babies at the time. This was our neighborhood park. I finally approached her and had a conversation with her a few times. She told me that the shelter wasn’t safe and she’d rather take her chances on the streets. This went on for just a couple of weeks. And then she was gone.  She disappeared but she motivates me every night.  She powers my narrative because I know that out there. 

The third part of the trifecta was when my oldest son was a baby, we met Bobby Brown. This was just before Bobby became Bobby Brown THE makeup artists.  She was telling me that she did this volunteer work in a shelter where she would apply makeup to the moms teach them how to do makeup and give them product.  I went with her to the shelter. I did styling Image Consulting so Bobby said, ” Why don’t you talk to the moms about just what to how to put themselves together. and I will do my makeup there.”  So we did this workshop together and she would provide makeup artists.. But in that workshop, the moms came with their kids.

I decided that  Christmas  I literally went out and bought all these gifts for each child. At the time it was just me and that was 1994. I became a nonprofit, because when I approached the shelter saying I wanted to raise money for you to do these events. They said, “We can’t guarantee that that money will do that, which I appreciate it very much. Our challenge is that we have so many emergency things that happen we can’t guarantee the funds will go to your program.”  So I said, “Okay, then I’m gonna do it myself.” 

Charity Matters: What were some of your biggest challenges when you started out?

Deborah Koenigsberger: It’s particularly hard when you realize the problem that you are trying to solve is not solvable.  And you certainly are not going to be the one to fix it.  I believe in the starfish story. Although you couldn’t save every starfish on the beach, the one you threw back today got saved.  That’s what saves me when I would fall down and feel that this is so frustrating.  Then I would look at one of my moms, or get a phone call or a text from somebody, and they will say this happened today. And for me it’s just like joy.  

You’re also realizing the best thing that we can realize as founders is that you have to get help. And you have to accept help to bring in people.  So there are all these learning curves.

Charity Matters: What fuels you to keep doing this work?

Deborah Koenigsberger:  There’s so many ways to educate people out of darkness. Darkness is ignorance. I’m an immigrant, from an immigrant family. The only thing that we know as immigrants is you gotta work. That’s the only reason why you’re here because work is gonna provide something better and different for you. So I know that it’s the American way. Work was what this country was built on.

Charity Matters: When do you know you have made a difference?

Deborah Koenigsberger:   When I met Stevie Wonder in 2001, he said something to me, because I told him why started Hearts of Gold. Stevie said, ” My little song made you do all of that.” Like, do you have any idea? Oh world, and I just thought, that little song wasn’t just words on paper. It was such an invitation to open your heart and see something besides yourself. 

Charity Matters: Tell us what success you have had and what your impact has been? 

Deborah Koenigsberger: Over 37,500 moms and kids helped her impacted children who were the first one in their entire family line to go to college. This Christmas we bought, wrapped and distributed over 5000 toys. I think we should understand that what we’re doing is bigger than all of us and call in our communities.

If you are blessed enough, if you are given the gift of sharing yourself with somebody else in a way that will have impact and change something, you’re blessed.

Charity Matters: How has this journey changed you?

Deborah Koenigsberger: I’ve matured a lot.  I have found and met incredible people along the way who have taught me invaluable lessons. And I’ve learned invaluable lessons from people who weren’t really trying to teach me anything, but I learned it anyway. 

Charity Matters: What life lessons have you learned from this experience?

Deborah Koenigsberger: I learned that a single human being can really affect major change and it all starts with an idea.  I think of myself as a vessel. And I think that I am just there because I have that kind of energy.  We don’t all have the same energy or the same way of thinking about things. Some people have the talent to help you create something, and that’s magical, some people have treasure and that  is immeasurable. Now you have time, talent, treasure, and everybody has a different one of those that they can bring to your to your cause. One of the lessons that I think is really important that I’ve learned is that there are so many kind people out there in the world.  

When we lift one we lift all.

What I’ve learned is that you can’t save all the starfishes  even if you have all the resources in the world because it’s just not possible. But what you can do is get a whole bunch of more people on that beach.  God of the things I’ve learned a lot, there’s so many ways to love people.

 If you’re at the end of your story and you could write that one person’s life was significantly impacted by your being here, walking the earth leaving a footprint.. Then for me, I am full. I am full. 

CHARITY MATTERS.

 

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I have a dream or two

“Everybody can be great because everybody can serve. You don’t have to have a college degree to serve. You don’t have to make your subject and your verb agree to serve. You only need a heart full of grace, a soul generated by love.”

Martin Luther King Jr.

On Monday, we celebrated the life of Dr. Martin Luther King Jr. with a day of service. It was a rainy day here in LA so not one that I spent volunteering, in full disclosure. Instead I spent the day thinking about dreams, vision, goals and service. All of these things are constants in my life but as the New Year starts how can I create a vision for myself and my work that continues to serve others?

These are some of the questions I have been asking myself since the New Year. I do feel incredibly grateful that I have a regular outlet to serve with Charity Matters and with my day job running a youth leadership organization.  At TACSC we talk all year to our students about being a servant leader. We teach our students that they can not lead unless they serve. When we ask these middle school students to give us examples of true servant leaders, Martin Luther King is always at the top of their list. We teach that we are never too old or too young to serve, there is always someone in need of a little help.

Most importantly, we teach our students that before they begin anything they must have a goal, vision or a dream. It sounds so simple when we are teaching this and yet, the reality is that these take time. I dream of being a messenger of service but how do I break that dream down into manageable realistic goals? How do these goals and dreams work within my life?

I think when most of us think about service, we wonder where will we find the time? Many of us think charity and we think that people are coming for our wallets. There is nothing wrong with these thoughts but how can we all shift our perspective? When I ask myself, “What things make me feel great?” The answers usually include service, helping others, being with my friends. This year, I am going to try and organize a way for my friends to join me for some sort of service. I’m not sure what that is just yet, but I promise to report back.

At 56, I’m past the halfway point of my time on this planet. There is still so much I want to accomplish with the time I have remaining. I believe the greatest gift we can give the world is a life well lived. Dr. Martin Luther King Jr.’s time on this earth was not long but the life he lived left a legacy of love and compassion. As I work on my dreams, I am thinking of his and asking myself, ” What are you doing in service for others?”

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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New Year, New Dreams and Goals

Happy New Year! It’s that time of year when we catch our breath and begin to really think about what we want in 2023. I’m guessing that you have been pondering this, consciously or subconsciously, for the past week or so. I know I have. Honestly, just getting through the holidays feels like a victory. For some of us we are too tired to think about what we are eating for lunch let alone what we want for the year ahead. If there is one thing I have learned over the years is that those list and intentions become real and it all starts with the dream.

My sons call me Dharma, like the old TV show Dharma and Greg. You know the one, where the kooky Dharma is all about manifesting and the universe. I have to admit that I do have a solid Dharma side to me. The reason isn’t just faith, although that is a part of it. The main reason is that I set goals and that I can begin to see myself making that happen. Some people think this is odd, some call it manifesting, I like to make plans and make them happen. Call it what you want.

Here is a small example, last year one of my New Year’s resolutions for 2022 was to learn to play pickle ball. I talked about it all year and even was sad that most of my friends had already formed groups. Yet, all year I didn’t do anything about it. Nothing. For Christmas my husband gave me a racquet and a membership to a pickle ball place. I played with my son the day after Christmas and am still smiling. Definitely cutting that 2022 New Year’s resolution a little close but I made it just under the wire. It took a nudge to pull the trigger and now that I am setting 2023’s goals, becoming better at pickle ball is definitely on there.

While pickle ball is one tiny example of moving something forward in my life, it gives me such joy and a sense of accomplishment. Those are the feelings that I want to bring into the New Year, joy and accomplishment. So this year, I am taking a little extra time with the 2023 goals. I am breaking them down again this year into categories. Goals for health, relationships, career, our home and travel. Will I achieve them all? Absolutely not. Looking at my 2022 goals, Christmas in Bali so didn’t happen. Not even close. Will it get pushed ahead to 2023, absolutely!

The goals for Charity Matters are also something I am really thinking about. Charity Matters, each of you and the people we  interview fill me with joy, always! What is challenging is the expectation I place on myself and our team to create content each week. More often than not, amazing nonprofit founders cross my path and it is an organic process, which I love. There’s the Dharma again:) Tracking people down, scheduling interviews, and all the time that goes into each episode is a huge commitment. Finding the right balance of posting/creating every other week or every week is challenging. I look to each of you for guidance so please let me know your thoughts?

This year I am really thinking hard on the best way to be messenger for good. We spend so much time creating but we don’t do any PR or self promotion. Trying to find a smart and authentic balance to that this year is definitely one of our goals at Charity Matters. Finding a path for good news and good stories is challenging in the negative news that our media seems to like to churn out. If any of you have suggestions, I am open to any and all ideas. Or if you have any media connections, let me know. This is not my area of expertise so I can use all the help I can get. Another 2022 resolution, ask for help more often. People are always happy to help, we just have to ask.

Thank you all for helping by being beacons of light and believing in goodness. you wouldn’t be here if you didn’t. Each of you sharing these posts, subscribing to our podcast, and sharing our work on social media validates Charity Matters mission of connecting people and causes. So thank you for cheering us on and joining in this quest to be a messenger of goodness. I am running into 2023 with my heart wide open and full of optimism, ready to serve and receive.  Wishing you a magical year ahead filled with love, joy, abundance, fun and much goodness. I know your going to achieve all of this and more with your goals!

CHARITY MATTERS.

 

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Merry Merry 2022

“Gifts of time and love are surely the basic ingredients of a truly Merry Christmas. “

Peg Bracken

As we round the home stretch until Christmas, I wanted to take a moment to pause. A deep breath of stillness amongst the noise. My gift to you is one I hope you can give to yourself right now. Stop and think of all of those you love. See their faces, hear their voices and feel your heart swell with joy. That is Christmas. The love we have for one another and the way we share that love.

As we try to get all of those last minute details wrapped up, remember what matters. Those you love and the time spent with them . Treasure that because it is all that matters.

Wishing you all of the love and joy the season brings.

Merry Merry Christmas everyone…

 

CHARITY MATTERS.

 

 

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Looking back: My Hope Chest

” When you come to the edge of a forest and there is no path-make one that others will follow.”

Author unknown

I couldn’t let October come to an end without discussing Breast Cancer. You may remember a few years back,  I interviewed an amazing nonprofit founder and breast cancer survivor, Alisa Savoretti. Since that interview, I have had four friends who have undergone mastectomies. Breast Cancer isn’t something that only happens in October it is something that happens every two minutes, every day. One in eight women will develop breast cancer over the course of her lifetime according to the American Cancer Society. Breast Cancer does not discriminate from the rich or the poor. To be honest I had never thought about what happens when you get breast cancer and have no insurance? I assumed that Medicaid and Medicare covered everything. Well, I was wrong.

Nonprofit founder, Alisa Savoretti, had breast cancer, a mastectomy and no insurance for reconstructive surgery. The result was the creation of My Hope Chest, a nonprofit that helps to fund their reconstructive surgery. Alisa and I had an incredible conversation that left me feeling inspired by this amazing warrior who fights for women who truly need one. She has left such a lasting impression on me that I wanted to re-share her story.

Charity Matters: What was the moment you knew that you needed to act and start My Hope Chest?

Alisa Savoretti: Hearing you have cancer is a devastating moment. It’s one thing to hear you have cancer but it is another thing to realize you have cancer. It’s another to realize you do not have insurance and you do not qualify for Medicaid. This is what happened to me at 38 years old. I had been working in Las Vegas as a showgirl and had recently moved to Florida to begin an online furniture business, before companies like Pottery Barn existed. I had borrowed funds on credit cards to launch Retrohome.com in 1999 when I found out I had cancer. The doctor said to take care of the cancer, focus on surviving and worry about the reconstruction later. 

I survived but lived without my breast for almost three years. You have no idea what this does for you as a woman, for your mental well being. During those three years, I reached out to organizations all over the country, government, nonprofit, anyone who could help me to become whole again. I discovered that there wasn’t anywhere to go. I felt deformed, depressed, frustrated, had metal anguish and enormous financial stress.

I went to Vegas to work at The Rivera. The 1998 government law now mandated that their group policy could not decline me insurance in order to get my reconstructive surgery. I realized how my own self-esteem, confidence, and self-worth as a woman returned when I could look in the mirror and could see my whole physical being once again. It was my healing, a restoration in body mind and spirit.

While I was in Vegas, I volunteered for a NAWBO (National Association of Women’s Business Owners) event. I told the women from NAWBO my story and these women rallied around me and with their help, I was able to start My Hope Chest. Six weeks later, I  had my 501c3 on December 3rd, 2003. We will celebrate our 15th anniversary this year.

Charity Matters: What fuels you to keep doing this work?

Alisa Savoretti: Some days it feels as if I am pushing a boulder uphill with a toothpick. After fifteen years of doing this at the grassroots level, the work is very hard. What fuels me is knowing that thousands and thousands of women are missing their breast and this shouldn’t be happening in our country. Making women whole again is our mission. I think about more women are surviving breast cancer and that’s true. What about their quality of life if they are not whole?

These women are sick and often lose their jobs because they can’t work. They are now disfigured, deformed and depressed. The ripple effect of not being whole is devastating on marriages and families. This work has become my life’s mission. I am not married, cancer made children no longer an option and for the past fifteen years, this work has been my life.

Charity Matters: When do you know that you have made a DIFFERENCE?

Alisa Savoretti: We pick up where the government programs leave off. That is why we exist.  Our biggest referrals come from nonprofits such as the American Cancer Society, Susan G. Komen, and Care.org.  We get referrals from them weekly and we can not tell our clients if or when they are going to be helped. They sit on a waitlist while we try to raise the funds to make their reconstructive surgery happen. Helping women to become whole again is what fuels me and just knowing that there is always a list of women waiting for us to find the funding.

I know that we have made a difference when we can help them with whatever they have asked for and the letters they send us.

Charity Matters: Tell us what success you have had?

Alisa Savoretti: We help women every year in a small way and I feel blessed that God picked me to do this task. Every time we get the word out about our work it helps fund someone’s surgery. Shining a light on this cause is SO important. We have been able to fill a gap where other breast cancer charities leave off. If there was another organization doing our work we wouldn’t do it, but sadly there isn’t anyone else. The women we help are eternally grateful for all we have done and to me, that is the success.

Charity Matters: What is your vision for My Hope Chest going forward?

Alisa Savoretti: We will only exist until there is a cure for breast cancer. Of course, the big dream is that there is a day when our services are no longer needed. Ten years from now, I dream that we have enough resources, funding, surgical partners and angel warriors that we can help women as quickly as they are referred to us. I dream of no longer having a waitlist and being able to have a more efficient meaningful impact on these women’s lives.

Charity Matters: What life lessons have you learned from this experience? How has this changed you?

Alisa Savoretti: God had a different plan for my life. I have a quote on my desk that says,” When you come to the edge of a forest and there is no path-make one that others will follow.” I feel like that is what happened with My Hope Chest. My life’s lesson is that when you persevere you will make a difference. The fact that this even exists in 2018 and is still flying under the radar and that there are women, thousands of women in this country living without their breast.  My home has been refinanced three times to keep the funding going for My Hope Chest. I have taken extra jobs at the grocery store to fund this. The lesson I have learned is that I have to persevere to help these women in any way I can. I cannot give up on them.

I think that changing even one life is important. Things are bigger than us, this mission is bigger than me and I have tied my life to making a difference. For me, I am grateful I was chosen for this journey. I am grateful to keep doing this work and I pray the Lord that My Hope Chest gets to leave a legacy on this earth until there is no longer a need for our services. That is my utmost prayer.

In the end,  I know that I have done my very best.

 

Charity Matters

 

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Effective Altruism

Last week I was asked to be a part of an interesting conversation from an East Coast Think Tank. One of the topics that came up was Effective Altruism. Today, I thought we would jump into the topic. There has been a lot of recent talk about the term Effective Altruism. What is exactly is effective altruism?

What is Effective ALTRUISM?

The simplest way to define it is to answer the question, “How do we use our resources to help others? ” In 2011, philosopher Peter Singer began asking these questions of the global community. Since that time there have been a number of books and the movement has grown.

Some of the key leaders in this global movement are Give Well and the organization 80,000 Hours. These two groups are asking questions such as, “Which charities improve global health the most per dollar?” Other questions such as, “How can I use my career to make a difference?”

The 80,000 hours Philosophy

The 80,000 hours philosophy is this: You have about 80,000 hours in your career: 40 hours per week, 50 weeks per year, for 40 years. That’s more time than you’ll spend eating, socializing, and watching Netflix put together. And it means that time is the biggest resource you have to help others. So if you can increase the overall impact of your career by just a tiny amount, it will likely do more good than changes you could make to other parts of your life.

The Give Well Philosophy

The Give Well Organization wants to help guide you and your dollars towards global issues such as malaria and a host of global issues where your dollar is stretched farther. They are willing to guide you in investing your giving as well. Here are a few of their thoughts: We take zero fees and use our most up-to-date research to grant your gift where we believe it will help the most. We typically grant this pool of funds to one or more of our recommended charities each quarter. Once we grant your donation, we’ll email you to let you know which charity or charities we selected and what we expect your donation will accomplish.

While Effective Altruism is not one organization but rather a global movement with many groups coming together trying to change the way we look at our world’s problems. There is also a large group of people that are trying to get us back to our roots which is taking care of our own communities at home. Another grass roots movement where going local, supporting small business and your local nonprofits versus the global movement presented by effective altruism. The local movement believes that if we each take care of our own communities we will not have to worry about those around the globe. Almost a shift back to the primitive days of tribes when no one in the tribe went hungry.

Both groups want the same thing, and that is to make our world better. Each side of this argument has their own ideas and beliefs. No matter how we help our fellow man, as long as we are helping, well that is good enough for me!

Charity Matters.

 

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Episode 47: Drink Local Drink Tap

One of the questions I always love asking our guest is did you grow up helping others? It is always fascinating to see where and when the seed of compassion took root in all the incredible people who do nonprofit work. Today’s guest, Erin Huber has an incredible life experience of serving others that started at age 12, founded her first nonprofit at 16 and continues to this day with her award winning nonprofit, Drink Local Drink Tap.

Join us for an inspirational conversation about what one person can really do to change the world. Erin Huber has been changing it for decades. Her work ethic, passion for helping others and amazing life journey is an inspiration for us all.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Drink Local Drink Tap does?

Erin Huber: Well, some people think it’s about beer.  We actually work locally and globally to solve water quality and equity issues. In the States, specifically, mostly in Northeast Ohio, and in the North American Great Lakes region, we do water education and activism and engagement activities. Globally in East Africa in the other Great Lakes region of the world. We build water and sanitation projects in rural Uganda, and we’re solving water equity issues, they’re in a different way.

Charity Matters: What was the moment you knew you needed to act and start Drink Local Drink Tap?

Erin Huber: One thing that I always remember was my father teaching me to root for the underdog. He wanted me to help people or things that maybe didn’t have a voice that couldn’t speak up. That always stuck with me and he passed when I was 12. And just an awesome guy.

Right after my father passed, I was like, “How can I solve every problem in the world?” I went vegan, I didn’t want to hurt animals. I was picking up trash, I didn’t want to hurt the environment. As a teenager, I was protesting  against drilling in the Arctic Refuge. And I was just trying to do everything from helping soup kitchens, to Big Brothers Big Sisters. When I was 16, I started volunteering at Habitat for Humanity. I was doing all kinds of soup kitchens on Sundays and holidays. And all of this happening, I ended up founding my first nonprofit when I was 16. It was called Covering Cleveland to help the homeless.

I was working three jobs and stayed in schools getting good grades. But then as I’m working three jobs and figuring out my life, I realized, Oh, I’m not going to have money for college. So I didn’t start college until I was 21 and I used those years to save up. By the time I reached Cleveland State, that’s when I kind of closed out Covering Cleveland. It had been such an awesome journey.

I knew that water was a thread for me. Water could help me touch the human and environmental issues that I cared about. Also, I knew I wanted to work in water. My first week of grad school, I went to this sustainable Cleveland summit and a bunch of people got together and decided we wanted to solve all the issues of the Great Lakes.  Then the 10 of us came up with this drink local drink tap campaign. We said we can’t solve all the issues of our Great Lakes, but we can maybe get people not to  drink out of plastic bottles. So we started this campaign, which accidentally became our name.

In 2010, I started an NGO (nonprofit) that’s now an international NGO. I never saw myself just working locally, I always saw myself working locally and globally. I had no clue how that was going to happen.

Charity Matters: What fuels you to keep doing this work?

Erin Huber:  I think, two things. So with our local work, what I’ve loved seeing our WaveMaker program with youth grow over time.  So I mean, just building curriculum to support teachers, hiring educators on our staff to be in classrooms teaching, zooming.  While I’m in Africa, drilling a well,  explaining the drilling process, showing them the village, having the kids talk to each other, that is awesome. And then we just published this book for teens to help them make an action plan to impact the problem they care about. So creating,

Charity Matters: When do you know you have made a difference?

Erin Huber:  On the Uganda side of our work, just knowing every day that our projects are supplying 40,000 people with clean water every day and 16,000 people have toilets. It just keeps me going. I have a goal of helping 100,000 people with water and sanitation by 2030. 

Charity Matters: If you could dream any dream for your organization, what would that be?

Erin Huber: I would love to see our curriculum and or this Make Waves for Change book for teens, everywhere in the US. I feel like young people today need an outlet to impact the problems that are so in front of them. It’s so different from when I was worried about solving all the world’s problems. I needed this book when I was a teen I can’t imagine the pressure and the stress that’s on teenagers today.

Globally. I would love to see rural water issues in Uganda go away. I think as countries develop what I’ve heard and seen in the water and sanitation sectors that cities are getting a lot of help rule water is a lot more difficult to prioritize. There’s less people, less voters, rest, money, money being put there. And so we really work from the bottom up with people who are probably not going to get helped by bigger, outside impact going on.  I would love to see rural water, get the attention it deserves. Allow people to stay in their family’s land and be productive, healthy citizens of their communities.

Charity Matters: What life lessons have you learned from this experience?

Erin Huber: Oh, there’s, there’s so much. I guess what I’ve appreciated is that people are so complicated.  I’m still trying to get better and learn from others.  When I originally went to Africa, I thought I was bringing this thing to the table.  I’m there a couple times a year and I just come back completely changed. Every time I learn so much about myself. I get humbled by the complexity of the world, the awesomeness of the world and the problems of the world. One big lesson is just to always be open to learning and changing and growing. Allowing your opinions to change and what you think you know, to change.

Charity Matters: How has this journey changed you?

Erin Huber: I’m very appreciative to be doing what I’m doing and to be focused on helping to solve some issues in the world. I think as a teenager, I was very overwhelmed. And I’m happy to be focused and water equity and quality issues.  I think honestly, Drink Local Drink Tap probably saved my life. Otherwise I would have  gone crazy from trying to solve all the worlds problems.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.
New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:

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The wait is almost over

The days are long and the years are short. That is exactly how I feel about summer. There are moments that the long hot days feel never ending and yet in the blink of an eye summer is practically gone. Some  schools are actually back in session! It truly is a wonder.

Summer is a crazy time for me, especially with TACSC. Our summer youth leadership programs are the pinnacle of our year.  As a result, Charity Matters takes a brief vacation. So thank you all for your patience. We are excited to launch Season Four of our Podcast next week and we have been busy these past few weeks gathering some amazing stories for you.

It’s hard to believe that we already have four seasons under our belt. We are so grateful for all of you who have subscribed  and left reviews, we are grateful for every last one! We had thought about launching Season Four today because it is National Nonprofit Day. 

What is National Nonprofit Day? It is a day set aside to recognize the immense effort nonprofits put into impacting their communities across the globe. We decided to give everyone another week to get settled and back to school. New episodes of Charity Matters  celebrating all the incredible humans who work tirelessly everyday to make your world better through the nonprofit organizations they create. It is all cause for celebration. So happy end of summer, happy back to school and Happy National Nonprofit Day!

CHARITY MATTERS.

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Love Your City

It is always so nice when the tables are turned, being a guest is always much easier than being a host. So when Bob Dalton, the founder of Love Your City, podcast reached out it was an easy yes. Bob is an amazing entrepreneur who founded the socially conscious company Sackcloth and Ash. His business follows the Tom’s Shoes model that you buy a blanket and give a blanket to the homeless. His mission is to blanket America.

In addition to Sackcloth and Ash, he has launched a new venture called Love Your City. His goal is to connect people to their  local grassroots nonprofits to get them to donate, volunteer and advocate for their communities.  He is highlighting this work  by interviewing nonprofit founders across the country who are doing great work. Sound familiar? If you like Charity Matters than you will most definitely enjoy Love Your City. 

Here is the link to our fantastic conversation. It was so fun chatting charity, good people and our mutual journey of finding them. Take a listen and make sure to check out Love Your City.

Thank you again for continuing to join us on the journey for good people doing amazing work.

CHARITY MATTERS.

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Melanoma, looking twice

Summer is in full swing and that means the sun is strong. I was recently at the dermatologist getting checked out. My visit reminded me of this conversation a couple years back. So I thought I would re-share it again today for all you sun lovers.

Growing up in LA, Marianne Banister was a familiar face on daily on our local ABC news station. She was always reporting from a storm, a flood, a fire…some sort of disaster. When a friend suggested that I reach out to interview Marianne, who now lives in Baltimore, I was a bit intimidated. Marianne and her husband lost their 17-year-old daughter Claire to melanoma.

Their family was determined to fulfill  Claire’s vision to provide clarity and hope in the fight against adolescent and young adult melanoma through their work at the Claire Marie Foundation. They are on a mission to ensure awareness, education, and prevention of cancer that has increased 250% in the last forty years.

Charity Matters: Tell us a little about what THE Claire Marie Foundation does?

Marianne Banister Wagonhurst: When this happened to our family, to our daughter, Claire, we were blindsided. The medical profession did not realize kids could get melanoma at this age. It looked different than adult melanoma and it was more aggressive and more invasive. According to pediatricians, melanoma is the number two, cancer in adolescence from 10 to 19 and the number one cancer in young adults from 20 to 29. This cancer is the number one cause of cancer deaths in young women 25 to 30. For young people, this disease is more aggressive and invasive than in older people.

We’re the only nonprofit in the country that focuses on preventing melanoma specifically in adolescents and young adults. We are not trying to treat it and we’re not doing research to find an answer to find the new drug or the therapy. Nobody’s helping to prevent it and that’s our job.

CMF Five Year Retrospective 2019 from Claire Marie Foundation on Vimeo.

Charity Matters: Can you tell us what the risk factors of Melanoma are?

Marianne Banister Wagonhurst:  If you wear sunscreen, if you wear up 50 SPF clothing,  if you don’t go to a tanning booth and if you advocate for yourself. That’s it, then you’re good. I want to add empower yourself to advocate and get at the front of it. Our whole goal is to get people in and connect them with a dermatologist. If you don’t already have a patient relationship with a dermatologist, it can take three to five months to get your first appointment. 

Charity Matters: Can you share some of Claire’s Journey?

Marianne Banister WagonhurstClaire got a routine skin exam at 13.  Every year we had them checked and had no history in the family. We had lived in Southern California and being a reporter I was aware of it. We went back six months later for her yearly exam. About a week before that the mole on her ankle that she was born with started to change. However, it didn’t look like what we’re educated to look at for melanoma. It wasn’t thick, it wasn’t dark. The borders were not irregular, none of that it just looked a little dusty gray in color. Unfortunately, it was a melanoma. 

About her junior year when we thought we were well past Claire said, “Mom, why do you think this happened to us?” I said, “Maybe being who you are because you’re so positive and energized. And being what I do professionally, you know, maybe we can do this together when you’re ready?” Claire said, “Yeah, when I’m a senior, then it won’t matter. And I can advocate.”  

She still was not quite there yet wanting to share her story. So we knew down the road, that’s what she would want to do. The bottom line is I just couldn’t sit here with this information and not warn other parents. If someone had raised the flag of awareness before us, then maybe she’d still be here.

Charity Matters: What was the moment you knew you needed to act and start Claire Marie Foundation?

Marianne Banister Wagonhurst:  We started with community support and  launched in October 2014.   Claire’s friends from her school wanted to help and do something.  One of her best buddies since childhood called me and said,” Hey, Miss Marion, do you have a logo?”  I was like, Why? I mean, we knew we were going to do something, but we are just trying to get through the grief and to deal with things.

Claire’s friends did this dance a THON and raised $24,000 called Moves for Claire. I didn’t know how many people my daughter knew.  There were 500 kids there and they had sponsorships. We realized they’re listening and paying attention now, so we need to take advantage of this. If we wanted to do this in her memory, we had to do it quickly. Her friends have been our biggest force.

So because of them we then went forward. We have collegiate ambassadors, who started the program.  They were in the high school class of 2015 and the college class of 2019. Almost one hundred of them are now  on 46 campuses. Each of them are doing peer to peer education, mentoring and awareness programs.

My husband cycled 620 miles to symbolically take her to college. Claire was accepted to college just a couple of days before she passed. So she got accepted to Georgia, Southern University, Alabama. So he cycled from Charleston to Georgia Southern into Bama. We did this big media raising campaign and because it was a football game that she promised her dad he could go with her. It was a way of him to process it and honor her. In addition, it was a way for us to raise awareness. 

The kids came up with a lot of these ideas. Today, we have partnerships with US lacrosse and we work with the Melanoma Research Foundation. Our organization has been to Capitol Hill to campaign for funding and support for research. We are developing a partnership with Teen Cancer America. If a young person is going through cancer, guess what that puts them at elevated risk for melanoma.

Charity Matters: What fuels you to keep doing this work?

Marianne Banister Wagonhurst:  Claire. There’s never anything that’s going to make it right that we lost her. There’s never any sense to it. But I truly believe this is her purpose. If I don’t keep this foundation going and do the work that needs to be done, then I’m not fulfilling her purpose.  That means we would have lost her for no reason.

She has changed lives and she has saved lives. We have had a number of young people who have found melanomas early and they always tell me,” You know, I thought of Claire, and I went and got it checked and it was a melanoma.”

Charity Matters: When do you know you have made a difference?

Marianne Banister Wagonhurst: My husband always says if we save one kid, we’ve done our work. We’ve done that many times over. I think what I’m most proud of is we’re changing the narrative.  Because of us, many organizations are now creating a Young Adult adolescent melanoma focus.  In six years, we’re starting conversations, and making people understand that it’s just not a matter of putting on sunscreen, and calling it a day.  It’s elevating the importance and value that young people are getting this disease to the rate they are and that it is not rare.

Charity Matters: If you could dream any dream for your organization, what would that be?

Marianne Banister Wagonhurst:  The dream would be that every young person from two-years-old on should incorporate full-body dermoscopy-based skin screenings every year, as part of their WellCare. When they go to their pediatrician and their eye doctor and their dentist, they see the dermatologist, they get checked, that becomes part of their routine.

 We just don’t want anybody else to go through what we did, because it’s so darn preventable. When you think about it, melanoma is one of the cancers that you have the best odds of seen visually externally on your body. A screening takes 10 minutes.  You don’t have to drink anything, don’t have to get an MRI and you don’t have to get a CAT scan. All you need is 10 minutes with a dermatologist with a scope. 

Charity Matters: How has this journey changed you?

Marianne Banister Wagonhurst: I think one of the changes that surprised me is you get a different identity. You realize that you cannot go back to life as it was because it’s no longer there. So you have to recreate yourself. I’m in a different world.  So I’ve expanded the people in my life.

 I’ve had a lot of loss in my life.  I’ve always lived my life as you have to thoroughly embrace it each day as it is. My faith is stronger than ever because I know she’s fine. I know she’s okay. 

Charity Matters: What life lessons have you learned from this experience?

Marianne Banister Wagonhurst: We’ve been asked this by other parents often how we dealt with the grief. We just had to dig down to this just horrendous feeling and we had to feel but then able to come out the other side. And it seems like to me that at some point of grief you have to process this pain. I think for me because I always remembered that conversation we had about Claire helping others, I know she would be proud of this.  

It’s not that you ever want this to happen, but if it does, to know that something has been inspired by her in a positive way. That’s what we look at.  Our daughter is having a great impact because of what we’re doing and that’s the best we can do for those we love.

 

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.