Category

Causes

Category

September 11th Twenty years later

We all remember where we were on September 11th, 2001. It is a moment forever burned into our memories. The people we called, the shock, the horror, and the enormity of it all was more than one could process. None of it seemed real. Tomorrow, we will honor the 20 year anniversary of that fateful day that changed the world forever.

Remembering September 11th

It was a day full of loss and unparalleled tragedy.  The 2,977 lives lost that day, the 6,000 injured, the first responders, the plane in Shanksfield, and the Pentagon. The ripple effect touched every single person in this country. However, like all losses, amazing things came out of it. That day we saw the best in humanity as people helped one another. First responders rushing up the stairs to save people and strangers helping strangers navigate their way out. Our country came together in unbelievable ways, hanging their flags, donating to causes to support the victim’s families, and coming together in an unprecedented unity showcasing to the world the best of America.

The Best of America

We as Americans didn’t stop there because we are a country of doers and action. One of the beautiful legacies of September 11th was the incredible amount of nonprofits that were created. The IRS fast-tracked over 300 charities in the wake of September 11th to serve numerous causes. According to the IRS by 2006, as many as one-third had closed. Many of the organizations that completed their missions such as The September 11th Fund and The United Way of NYC distributed more than 534 million dollars to victims, their families, and first responders.

A lasting legacy of Service

According to the Nonprofit Times, today there are still at least twenty-eight nonprofits still in existence. The 9/11 Memorial Museum an experience that every human being should have and a lasting tribute to that fateful day. Families of Freedom Scholarships have provided over $178 million dollars to over 3, 759 children of 9-11. Causes such as Tunnel to Towers which was created in memory of Stephen Siller. He was a firefighter who gave his life to save others that fateful day, along with 343 others. This year Tunnel to Towers will give 200 mortgage-free homes to our nation’s heroes. This year 9/11 Day.org  is asking all of us to come together and to do a simple good deed tomorrow. Please watch their video above.

September 11th was one of the worst days in our nation’s history but it did bring out the best in all of us. We came together in kindness, in compassion, we helped our neighbors and hung our flags. We realized that we are all Americans. Tomorrow is a new day and another chance for all of us to remember and come together once again in unity and compassion.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT, IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2021 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Episode 24: Be Perfect Foundation

I have been privileged to meet hundreds of truly remarkable humans over the years. All of them are amazing but there are always a few that are so dynamic, charismatic, passionate, and wise that you can never forget them. One of those people is the remarkable Hal Hargrave. You may remember his story from a few years back. Hal was involved in a tragic accident that left him paralyzed fourteen years ago. He used that experience to serve others suffering paralysis with his nonprofit the Be Perfect Foundation.

Join me today for a conversation that is better than caffeine. If you have read Hal’s story and not heard his passion, you need to take a listen. Trust me, this will be a gift you give yourself today. The man is pure light and inspiration.

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what the Be Perfect Foundation does?

Hal Hargrave: Be Perfect Foundation– provides direct financial and emotional aid to individuals with paralysis. The foundation approves scholarships for everyday medical necessities such as; medical supplies, wheelchairs, home, and car adaptations, medical equipment, and exercise-based therapy.

Charity Matters: What was the moment you knew you needed to act and start  Be Perfect Foundation?

Hal Hargrave:  Shortly after I got injured, I remember lying in my hospital bed and coming to the realization that with every individual that walked through my hospital room, that each individual that left my room and left the hospital took away a mindset, approach, mentality, and went about the rest of their day emotionally in a state that was directly predicated towards my mood state, mental state, and how well I was emotionally coping with my injury and circumstance.

 I came to a quick realization that I could give each and every individual a positive takeaway that could set the tone of their day for the rest of their life. Finally, I came to the consensus that each and every decision that I made about how I was going to treat, talk to, and share moments with individuals was going to directly affect them either negatively or positively.  I was not willing to be a part of the simple idea that I could negatively influence somebody’s life any longer.

Charity Matters: What fuels you to keep doing this work?

Hal Hargrave: I believe that this is meaningful and purposeful work. I’ve stopped asking “why me” and I’ve started asking “why not me?” Once I came to the realization that this happened “for me” and started looking through the lens that I “get to”  do what I’m doing in my life. I started realizing that maybe this really is a blessing. That the life that I’m living is far bigger than just me and is for me.

Charity Matters: When do you know you have made a difference?

Hal Hargrave: I know I have made a difference in this world when others see differences in their world being realized. When other’s dreams come true, their goals are achieved, and happiness is obtained. 

Charity Matters: Tell us what success you have had?

Hal Hargrave: The success that we’ve had over the past 14 years of a philanthropic mindset as a family and as a community has been nothing short of amazing. We have raised over $7 million for individuals suffering from paralysis. This does not include the resource of hope that we have built through being a physical, literal, and emotional resource to those who are in need.

Charity Matters: What has your impact been? 

Hal Hargrave: Our impact has changed lives. Over the past 14 years $7 million and well north of 500 people and families. It has changed lives in the way that people live independently. How people live without despair any longer because they see hope and much more. The financial support that we provide to individuals to seek out therapeutic options has allowed them to achieve a healthier form of themselves. Having their health has contributed towards staying out of the hospital as well as finding a network of people that they can relate to. We provide a place where they will not give up, and emotionally being in a place where they see that their contributions to society and to others are life-changing.

Charity Matters: If you could dream any dream for your organization, what would that be?

Hal Hargrave: My dream is for us to get to a place where we have an endowment. An endowment would ensure that we would be around for life. Ideally, if this endowment was established, we would be able to continue to provide scholarships. This foundation should be around forever.

Charity Matters: What life lessons have you learned from this experience?

Hal Hargrave: One of the major life lessons that I’ve learned from this experience is the things that we think limit us just might be the platform that we need to propel ourselves forward to actually helping create change.  We always think that we have it as worse.  However, maybe life gave us an opportunity, not a setback.

When we start looking at life through a lens that maybe something was preventing us from something even worse happening, we start to live with the appreciation that we have a second chance. Sometimes these circumstances that put us into a deep, dark, and physically disabling place, actually are the opportunities that give us the tools that we need to create change in others’ lives. You don’t need to create change through physical activity. You can create change through intentionality, sincerity, words, and advocacy.

Charity Matters: How has this journey changed you?

Hal Hargrave: This journey has changed everything for me. I will be honest with you, 14 years ago I did not think that my life would amount to anything. I was under the impression that my physical setbacks in life would propel me into a place of a life that was meaningless, hopeless, and unfulfilled. What has happened over the past 14 years, which has not been easy, and has not been because of the lack of tenacity, trying, and getting up with purpose, has been nothing short of a dream could true.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2021 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Episode 23: Our Wave

Last year when we were contemplating a podcast we had an incredible interview with two amazing nonprofit founders about their nonprofit, Our Wave.  As thousands of students head back to college this month it seemed like a good time to revisit our conversation with Kyle Linton and Laura Sinko on the topic of sexual assault. While never a comfortable topic, it is an important one.

There are more than 433, 638 sexual assaults in the United States each year. Join us today for an insightful conversation from two incredible perspectives about the new and exciting ways Our Wave is bringing healing to tens of thousands through their work.

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what Our Wave does?

Kyle Linton: We really started Our Wave in 2018 with the idea that we wanted to better support survivors of sexual trauma and give them a mechanism to anonymously share their stories.  What we found was that there are all these opportunities for people to share their stories, which are incredible, but they’re very public.  Survivors wanted to see other people’s stories, they wanted to share their own stories, but they didn’t necessarily want to do so publicly.

Since we’re technology design people, we wanted to create a platform where people could share their stories anonymously. We wondered if we could try to lean into the healing components and leverage research to give people resources as they’re sharing their stories and help them move past their previous instances of trauma? 

Laura Sinko: I met Kyle at a sexual violence conference.  I am a nurse by training and am also a researcher. My research was in healing after sexual violence. When I was interviewing survivors, I noticed this gap where people were really longing for community and for a place to really say and process their truth. Because I think sometimes you keep it inside and you don’t really even know how to put words what happened.

 I stumbled across Kyle and heard him saying he wanted to create this platform. His vision is to help people tell their stories and then connect them to a community. Kyle wants to help people learn from each other, what works for them and what doesn’t… really resonated with me.

Charity Matters: What was the moment you knew you needed to act and start Our Wave?

Kyle Linton:  In October 2018, someone in my life, directly experienced sexual violence. Somebody that was very close.  For me, it was a really difficult period because I was trying to figure out a bunch of different things. I wondered, how do I support this person? How do I help them?  And even as I’m feeling all of these things, I can’t even imagine what this other person is feeling who experienced it firsthand.

Then I realized that I have the opportunity and experience building companies and products. So I said, “Well, I have the capacity to do something here.” I got this idea, what if we could create a place, where somebody like this person very close to me, could go and see other survivors to get support and find healing resources?

I started just kind of pulling people from my life and saying, “I would love your support on this. If you have time?”. Then we found Laura at a conference. I said, “let’s bring it all together into this thing that can help survivors, and then let’s try to scale it like crazy.”  So, that’s really where it started. 

Charity Matters: Was there a back story that led you to this type of work?

Laura Sinko: Unfortunately, being a woman on a college campus, I felt like it was happening to so many of my friends who were experiencing these sexual violence experiences. So I got really interested in sexual violence since there are so many people in my life that were struggling to find healing. A lot of the work especially in medicine and nursing is focused on that deficit like you have trauma, you have depression, anxiety, and there’s so little focus on the healing aspect.

I was getting my Ph.D. in nursing, smack in the middle of my program, when I had my own experience of sexual violence. It was interesting because being a quote-unquote, “expert”, right? You think oh, I’m an expert in healing after the violence. I’m gonna be set. I can do all these amazing things because I know what to do. I have all the tools and it’s different when it’s yourself. It’s a totally different beast. And so that’s why it’s really important to really build that community because you can often feel like you’re all alone if you don’t get to share your story in some way. That is that moment when you know this just isn’t okay. 

Charity Matters: What are your biggest challenges?

Kyle Linton:  I think the biggest challenge for anybody doing this kind of work is how do you stretch minimal resources to make the most impact?  The beautiful part about our organization is that because it is a technology platform, it has the potential for a massive scale. The trick for us is trying to support all these different populations and individuals who have these different levels of need.

Laura Sinko: I think funding is our biggest challenge. It would be nice for all the work that people are putting in if we could pay some of our staff for their work. And that’s not really me or Kyle, but the designers that are doing all of our content and all of these other people who are really putting in a lot of work. So that’s why my thing is it’s always about funding.

Charity Matters: What fuels you to keep doing this work?

Kyle Linton: I grew up in a household where my mom has run a nonprofit for 20 years maybe. She’s amazing. I had a household that was comfortable and it gave me the opportunity to do impactful work.  I’m incredibly thankful for growing up with that sort of motivation.  I was not encumbered with student debt and it gave me the opportunity to try to leverage my skills to help people. I’m in a position to do that, and a lot of people aren’t.

Laura Sinko:  For me, it really truly is this the survivors.  I was a mental health nurse for a while I’m now a sexual assault nurse examiner. Over the past four years, I have met just countless amazing survivors who have given me the privilege of hearing their stories and hearing their struggles. Whenever I have to write a grant or something that feels really daunting, I have this ritual where I like will light a candle and remember why I am doing this.

 It’s like bringing the survivors in the room with me, the people that are counting on me and our team to really push this forward. And I will also say that being a part of this team of eight completely volunteers, people that give their evenings to this work their weekends to this work. I think that is also incredibly important.  Not every team has that cohesion, but I think we do which was really helpful.

Charity Matters: When do you know you have made a difference?

Laura Sinko: It’s really been the FAQ Fridays. I think putting some questions that I kind of had when I first started experiencing these things, like, how do you manage triggers? Have you ever had that moment where you’re not really sure if it actually happened and you doubt your experience?  It’s like, we’re all looking for the same answers.  I think that participating in that has been really helpful to see really that we’re all are experiencing different things.

But there is some common thread between all of us, no matter how you feel. What we do is all about creating connections and community. That’s really the essence of what nonprofits do is bringing people together to help each other to solve something that’s at the core of what we do. So being able to build a big community like that in such a short time is so incredible.

Charity Matters: Tell us what success you have had? What has your impact been?

Kyle Linton:  I think that between the content and the platform that we have created we are somewhere between 100 and 200,000 survivors that we’ve been able to access and engage with and support in some capacity. Obviously, our aim is to increase that.  We’re lucky as a technology organization that the number one thing that we have to our advantage is that scale and that ability to very quickly expand our efforts and reach that many people.

Laura Sinko: I think with social media, specifically, the direct messages, I just pulled up one now because it made me feel so good. This person said,” I just wanted to say how grateful I am to have found your page. I’ve struggled with what happened to me. So I really like to say thank you. I know you don’t know me, but just existing You make me feel seen.” And I feel like that is just something that when you think of impact is so important. The thought of being seen when you feel so alone is what keeps me going. 

Charity Matters: What life lessons have you learned from this experience?

Laura Sinko:  The main thing that I learned is that it’s possible to have an idea that you think fills a need, go out and do it. I noticed this gap and thought, I’m just a nurse, I can’t do this.  That is really important no matter who you are, or where you’re at if you have an idea and you think it feels a need, and it’s really going to help people, take a chance on yourself because I feel like you can do so much good for other people.

Kyle Linton: I think internally, it’s been incredible to see how people many people want to give back and contribute to helping other people. What’s been really surprising to me, even just outside of our core team, is the number of volunteers that we have that come to us and say,” Hey, I’d love to get back and contribute in some way.  I just want to help.” It’s been really inspiring to just see how much people want to contribute. I would say it’s been really amazing to see what we can do with absolutely no resources and to figure out how to be scrappy and how to create something from absolutely nothing and to have it be so purely good. 

Charity Matters: How has this journey changed you?

Kyle Linton: I think for me, the biggest one would be understanding all of the different things that people experience at different points in their life. And then seeing how that impacts them in so many different ways that I could have never imagined really getting a much level deeper level understanding of trauma.

I think makes you more empathetic, thoughtful, and makes you want to listen to people more because this happens a lot more than you can imagine. And it affects people differently. So, really learning to be empathetic, to listen, and to understand has been really beneficial to me.

Laura Sinko:  But on the other side, I think connecting with folks like Kyle, who maybe didn’t experience it himself, but have that drive to give back. I’ve just been shocked by the people who maybe haven’t had that in their own personal life in terms of direct harm, but still feel compelled to come forward and help. People say,  look for the helpers, but seeing those wanting to help has really given me a lot of hope for the world. We do this in the hope to help other people to move the world forward a little bit,  one person at a time. That’s why we’re here.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2021 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Episode 22: Until There’s a Cure

Until this past year and a half, many of us think about disease and illness as things that affect other people and not us. COVID changed all of that for everyone. We all realized how closely we are connected and our opinions of health are forever altered. Before COVID, there was something called AIDS that many of us have forgotten about.  One person who hasn’t forgotten is our guest today, Nora Hanna, the Executive Director of Until There’s A Cure.

Join us as we discuss how the landscape has changed for AIDS and the beauty of what happens when people come together to make a difference. So often we think with nonprofits we are taking on impossible causes. This conversation was so enlightening because it really shows us that time and commitment result in positive changes. Until There’s A Cure is a wonderful example of one organization’s mission to continue to educate the world on HIV AIDS.

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about Until There’s a Cure?

Nora Hanna:  Until There’s A Cure was started in 1993 by two moms in Northern California who were really worried about what the world was going to look like for their children. They were devastated by the loss of friends to HIV and AIDS. So they came up with the idea to sell a bracelet to raise funds and awareness. It was a simple idea that has had a huge impact. We were the first nonprofit of any kind to celebrate it.

We started working with small artisan groups around the world, mostly in Africa. The goal was to find women who are true artists and giving them a vehicle to sell their merchandise. What it’s enabled them to do is really take what they’ve been doing for generations. We buy it from them, help them market it and then we sell it. Then with the funds that they have raised, they have started school for their daughters, they have been able to feed their children, they have been able to buy their own medication. So it’s really embracing, educating, and empowering villages of women. And when you change the life of one woman, you change the life of an entire village.

Charity Matters: What is the Back sTory of Until There’s a Cure?

Nora Hanna: In 1993, when they actually named the foundation Until There’s a Cure,  there was a lot of backlash. People didn’t want to talk about a cure, they wanted to talk about therapeutics to keep people alive. The foundation has always worried about today, direct care services, education prevention, and then the future vaccine research and development. So it is, and always has been today, tomorrow, and 10 years from now. So it is quite fascinating to look at what has come down the pike.

Charity Matters: What are your biggest challenges?

Nora Hanna:  Trying to raise funds during another pandemic has been a huge challenge. And complacency. People really do believe that AIDS, HIV has been cured. Because we don’t talk about it as a society, it’s not at the forefront. HIV doesn’t directly impact people like cancer,  autism, and all the other well-funded organizations out there.  We just need to keep talking about that HIV is still here. Yes, you can live a very long productive life. But just like any chronic illness, you don’t want to have to take medication for the rest of your life.

Charity Matters: What fuels you to keep doing this work?

Nora Hanna:  I grew up in the fashion industry and had my own jewelry company. In the 80s, in the 90s, our industry was hit so hard. I lived in New York then and I took care of two of my best friends until they passed on.  I carry that with me every day.  I’ve known so many people whose lives were cut short, in their 30s and it just makes me want to work twice as hard.

Charity Matters: When do you know you have made a difference?

Nora Hanna: Last year, at the beginning of the pandemic, three of our organizations had gotten very large orders for their merchandise. We were really hurrying to get everything from Zambia and South Africa to us.  I was very worried and I didn’t know what to do next. Eventually, I received a couple of messages from our partners in South Africa thanking me for the money. The funds saved their entire village for five weeks and allowed their children to eat. That is when you have to say, I need to work twice as hard.

Charity Matters: Tell us what success you have had? What has your impact been?

Nora Hanna: We have been able to provide seed money for the International AIDS vaccine initiative and we have helped fund, UCSF aids Institute. We work with Food for Thought up in Sonoma, California,  feeding people living with HIV and AIDS for 30 years. Since 1993 we have worked closely with the San Francisco Giants, which allows us to present our foundation to a packed stadium. So there are certain big chunks that you can look at and say we did that.

Through our internship program, we’ve worked with over 100 high school and college children. When our interns come in, I always say HIV is my passion. You need to find your passion. Whatever level you can give back, whether it’s volunteering once a year, or going to work for an organization, find it.

Charity Matters: If you could dream any dream for your organization, what would that be?

Nora Hanna:  The dream is that we would find a vaccine that can be given away around the world for free.

Charity Matters: What life lessons have you learned from this experience?

Nora Hanna: I’ve always wanted to give back on a bigger scale than I’ve done in my past.  This work has really given me the opportunity to feel part of something so much bigger than myself. Really just to be grateful, every day that I’m allowed to do this work.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2021 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Season Two Episode 20: Once Upon a Room

In full disclosure, there is nothing more fun than talking to your friends about their nonprofit work. Especially when their work involves creating magic for very sick kids with extreme hospital room makeovers.  Think of your favorite HGTV show with the recipient being a sick child and the makeover being a hospital room. Many of you may remember the incredible story of the nonprofit Once Upon a Room that I shared a few years back?

Ford and Heidi Johnson, Jennifer Hull, daughter Josie and Sienna Dancsecs

Join us today for a fantastic conversation with the three Once Upon Room founders; Jenny Hull, her daughter Josie Hull and Josie’s best friend Sienna Dancsecs. Where we will learn about Jenny Hull’s incredible journey from being a celebrity assistant to an adoptive mother and nonprofit founder. These three remarkable humans will inspire you with their friendship, love, and beautiful work helping thousands of children and families each year.

Here are a few highlights from our conversation:

Charity Matters: Can you share Your journey with Josie prior to beginning Once Upon a Room?

Jenny Hull:  I was with an amazing family in Malibu that I worked for and they were very involved in an organization called Healing the Children. Subsequently, I became involved with them too.  What we did there was bring kids here to the United States for surgeries, and then we’d send them back home after they were healed.  Long story short, we got this request for these two adorable high conjoined twin little girls.

It was kind of our mission to bring these babies( Josie and Teresa) here to America and they were conjoined at the head. They were separated at UCLA Medical Center and had a 23-hour surgery. Our girls were the first successful girls to be separated successfully.  Long story short, I am now the very, very proud adoptive mother of Josie, one of the twins. Josie’s other twin is with another amazing family in Valencia and we’re really close together.  The birth parents are really the heroes in the story, selflessly allowing their children to be in America because that’s the only way they would have survived. They really are the unsung heroes in this, we are so grateful to them.  

Charity Matters: What was the moment you knew you needed to act and start  Once Upon a Room?

Jenny Hull: We spent we have spent over the years, I can’t even count the number of days and surgeries there have been too many!  We did we personalized Josie’s room every single time. Everybody would walk in with and they would look at it and say, “Oh my gosh Josie you love pink!” Then they would recognize her as a person instead of her what she was in there for and it really touched our hearts.

We realized it was especially important in a teaching hospital when you have so many new residents, for them to recognize the person is so important. So at 11 years old, we were laying in bed one night and I vividly remember this and Josie leaned over and says,  “Mom, I really really need to be doing something for someone else. I want to help other kids in the hospital.” I said, “That’s a great idea!” We called Sienna who was the same age, 11 years old, and told her the idea. Sienna said, “Let’s go in and decorate these hospital rooms.” Then Sienna came up with the name.

Charity Matters: What are your biggest challenges?

Jenny Hull: Definitely fundraising is a big challenge. In all honesty, we thought when we started we’ll do 50 rooms a year at CHLA. Period. We thought this is great and it’s something that will inspire the girls and they can inspire other people. We didn’t think much of it and we ended up doing 102 or 105 rooms our first year. Our town is so supportive, and they really rallied behind what we were doing and really supported the effort and we were so grateful for that.

Then we started expanding, all of a sudden, it was like the universe opened.  It’s really kind of because the girls took this on. People see the greatness and what it does for the hospital’s families and especially patients.

Charity Matters: What fuels you to keep doing this work?

Jenny Hull: What really keeps me going is these two amazing faces next to me. Literally, there are times that I don’t think I can do this anymore. I’m exhausted and fundraising is so hard. We just want to change the lives of these families and these patients so much. Every room is our heart and soul goes into.

Before COVID, we were at anywhere between 40 and 70 rooms a week. There’ll be nights I’m like, we’re done and then I look at Josie and Sienna.  It’s their dream, journey, and vision.  I feel like I cannot let down for a second if we just need to keep going.

Charity Matters: Tell us what success you have had and the impact of Once Upon a Room?

Sienna Dancsecs:  In terms of impact, we started in one hospital at CHLA in Southern California. Since we began we’re now in 12 hospitals across the country. We have had three new people and new states and new hospitals reach out in the past five days, about opening.  It continues to grow, we’ve done over 4000 rooms.

  I also think one of the things when it comes to impact is the impact we have on the kids and their families with their hospitals days and medical journeys. More than that we have such an impact on the volunteers, the hospital staff, and our donors.  I have had friends that have come to the hospital to volunteer, in high school and college, not knowing what they want to do when they grow up and leave saying, “Oh, I know, I want to be a nurse or I want to be a child by specialists.” One volunteer is now working in the foster care system because she met people through her work with us at the hospital. So I think it’s everybody around that really is affected by it, not just the patient or family. It’s everybody involved.

Charity Matters: How has this journey changed you?

Jenny Hull:  I’ve definitely learned so much about human compassion. To walk into rooms and the life lessons that we’ve just learned from our patients.  Watching their journeys being able to sympathize and empathize with what they’re going through and just to look at the world with such love, and try to figure it out.  There are people you walk by every single day that you just know are fighting some battle. It’s how to appreciate the people you are asked to be with on a daily basis. The greatest gift I’ve been blessed with of all the people we’ve been surrounded with, Josie and Sienna. Literally, truly the best gift we could have ever asked for. So, gosh, I’ve learned so much and I’m so incredibly grateful that we’ve been led down this road. You know, we didn’t we didn’t pick it. It picked us.

Charity Matters: What life lessons have you learned from this experience?

Sienna Dancsecs:  I learned a lot about the business of nonprofits and how all these things work. Walking into kids’ rooms, every day who were super sick, or they were at the end of life made me realize how lucky I am just to be healthy.  I think it’s something that we all take for granted. So that’s something that I quickly learned,  talking to these kids, watching them fight for their lives, watching them lose their battles to cancer, it was really hard to watch. But it made me so grateful for everything that I have.

It also taught me from a young age, how important it is to give back and to help other people. I feel like it’s a really great gift that I got from Jenny and Josie that I learned that this was something that made me feel so good and made me feel like I was doing something to help other people. And it’s something that I continue to do. I know, I’ll take it with me wherever I go. Prioritizing, helping other people giving back, brightening somebody’s day, even if it’s something small. You never know what kind of difference that you can make.

 

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2021 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Season Two Episode 18: Distance for Difference

Welcome to Season Two of the Charity Matters Podcast! For the past decade, I have focused all of my attention on organizations based in the United States that help people. With over 1.5 million nonprofits in the United
States alone, it seemed like a reasonable perimeter. Like I mentioned last week, people often come into your path for a  reason. When a mutual friend connected me with today’s guest I knew that rules were meant to be bent every now and then.

Stéphan Pieterse is the founder of the South African nonprofit Distance for Difference. His story of challenge, faith, and resilience is one for us all regardless of our country of origin. Stéphan and I  spoke a few months back and he referenced the corruption and social unrest that they were experiencing at the time. This week’s news has more violence in South Africa and is a perfect time to share Stéphan’s message of hope, love, and goodness.

Here are a few highlights from our conversation:

Stéphan PieterseWhat an honor and privilege to be with you today. And you know, hopefully, I’m the first of many stories you can start to share worldwide, there are so many feel-good stories in South Africa as well. And I’m just one person out of 1000s that can tell amazing stories. So it’s for me, it’s an honor to almost represent South Africa today,  with your program.

Heidi Johnson:  At the end of the day, people are good. And it doesn’t matter where they are on the globe, there are amazing things happening all around the world. And sharing those stories, just makes us closer and makes us realize how small our planet has become. And the fact that we’re even having this conversation is a perfect example of it.

Charity Matters: Tell us a little about what Distance For Difference does?

Stéphan Pieterse: Our main objective is really just to positively impact the lives of children in need. We do this by raising funds for children’s charities, or individuals caring for abandoned or abused children. And we basically raise these funds in two main ways. We have two sporting events,  the gratitude run and then we also have a 24-hour 301-mile cycling endurance event and we call that 500.

Then we also support individual athletes doing something challenging, like swimming across the sea, doing extreme cycling events, ultra marathons and we were even running marathons around their houses like we had to do during the lockdown in South Africa. We set up campaigns for these athletes to help them to market these fundraisers amongst their colleagues and families and friends and so on. We are very serious about the wise and very thoughtful distribution of these funds that are entrusted to us to become a beneficiary of Distance for Difference. 

Charity Matters: What was the moment you knew you needed to act and start  Distance for Difference?

Stéphan Pieterse:  Perhaps the earliest experience of charity was at the age of five when I lost my father in a vehicle accident. And he was only 37 years old at the time was a pastor. My mother was left with four children, the youngest was only eight months old, I was five.  I think it was during those early years that I experienced how it was to be on the receiving end of charity, and so many people really gave me hope for the future. 

My entire outlook on life, and especially doing things for others, changed dramatically during the last few weeks of 1996. We went on a three-week mission trip to India. it was really during those weeks experiencing,  both physical and spiritual sort of poverty of the people of India, that my entire outlook on material things in life really changed. I returned to South Africa, with a totally different outlook. I just had this burning desire to really reach out and help other human beings. And it didn’t all start then, it took another decade after that experience.

Charity Matters: What are your biggest challenges?

Stéphan Pieterse: One of the biggest things is at times losing hope. There’s so much corruption in this world, also in South Africa. The staggering the figures that they mentioned, in terms of how much corruption costs countries in South Africa. We talk about a figure of 68 billion US dollars. For me, that’s a staggering amount of money. When I use those figures, it sometimes takes the wind out of my sails.  I then think about Distance for Difference and our 10 years of hard work and toil and long hours.  We raised this minuscule little amount in comparison to that figure and that sometimes makes me want to cry. Then I think if we could just take 1% of that amount and distribute that to children in India and South Africa? What impact that would have been? 

Charity Matters: Do you have a favorite motto or phrase?

Stéphan Pieterse: I love the quote by Gandhi,” Be the change you want to see in his world.” You know, that became my catchphrase because there’s so much negativity, especially in our country right now. What is it that I can do to make a small difference? It doesn’t need to be starting an organization like this, just maybe joining some way. This world will be a better place.

How has this journey changed you?

Stéphan Pieterse:  This journey changed me from a self-centered individual who did things for others to feel good and to be recognized into somebody that doesn’t want recognition at all. It made me realize how blessed I am. We all have to think loud and clear about why are we being blessed?  Why are we in such a really fortunate situation?  What do we do with those blessings?

It really just changed me to have an eternal outlook and to know that life on earth is finite.  We are not going to be here forever. What are we doing with the time that we’ve been given? And are we really collecting treasures in heaven? Maybe you have one individual who’s listening right now who thinks that they want to do something? Just go out and start something small. It doesn’t have to be big. Get your family members involved. Start communicating about your desire. Get in contact with us, if you want advice.  Don’t sit and wonder anymore, go out and do and have an impact and make a change. 

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2021 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

It just isn’t summer without camp

Monday marked the first official week of summer. This year, post-COVID, the world is ready for all the fun that summer brings and that many of us were denied last year….travel, beach, lakes, backyard barbeques, and summer camp. Over six million American children participate in some sort of day or overnight camp each year. Many of these camps are nonprofit organizations. Last year, while many children were quarantined in their homes camp did not happen for these kids. Now more than ever these children need to reconnect, have fun, and learn.

While Charity Matters is my passion, my day job is running a non-profit leadership organization, which also has a summer camp program. We have incredible high school and college students volunteering to serve as camp counselors and mentors. Many counselors are alumni of our program and want to give back to an organization that changed their lives.  Students teaching students to be the best of themselves. Showing one another respect, how to learn from different opinions, and how to work together towards a resolution. Ultimately, teaching students how to lead.

Last year, we sent camp in a box and sold out our online program. Tomorrow, I will happily be greeting hundreds of smiling faces as our 6th, 7th, and 8th graders arrive with their nervous parents. For some, it will be their first time away from home.  All of these children have been isolated in some way this year. It is such a great feeling to bring everyone together. There is no greater joy than knowing that you are part of something bigger than yourself and that your work makes a difference. This video below from one of our students a few years back, pretty much says it all.

Nothing brings greater joy than planting the seeds of compassion in these incredible students year after year.  When the world seems to get a bit crazier, these students give me hope. I can’t help believe that our children will be better than we were, they will learn, listen, come together to lead us all. These children are our hope. As one of our students said, “It is an eyeopener to learn that you can do something to change the world...”

Charity Matters.

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2021 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

The Heroes of 2020

If ever there was a year that turned our planet upside is has been this one. Last year we all began 2020 with such hope. A new decade and such expectation that was to come crashing down three short months later. Now we are all counting down the days until 2020 is behind us. As someone who tries to find the silver lining in everything when I look back at 2020 I smile thinking of the amazing humans we met this year. Each of these people gives selflessly to make our world better. I thought today we would look back at some of the remarkable conversations of 2020. And a few highlights.

The Kindness Campaign: Andra Liemandt

We began 2020 by talking to the founder of the Kindness Campaign to learn about their mission to serve the socio-emotional needs of children. This year their work was more important than ever. You can revisit the full conversation, here.

CHARITY MATTERS: WHAT WAS THE MOMENT YOU KNEW YOU NEEDED TO ACT AND START  THE KINDNESS CAMPAIGN?

Andra Liemandt: Suicide is the second leading cause of death among teens. Several years ago this touched my life in a very powerful and profound way when a dear friend of ours took her own life and she was just 12 years old and it was a direct result of bullying.  There was no path for me to start a nonprofit or any inkling that I would be sitting here five years later talking to you about this. That event changed my life forever and was the catalyst for an ongoing healing process with my daughters.

Homelessness:

There are so many incredible organizations trying to help the homeless. This year we met more than a few. These two women especially stand out for their incredible compassion and dedication to serving the homeless.  Heather Carmichael has been working with homeless youth for almost two decades at My Friends Place and  Caitlin Adler works to ensure that the homeless have proper clothing through her nonprofit Project Ropa.

 My Friends Place: Heather CArmichael

Charity Matters: What are your biggest challenges?

Heather Carmichael: There are so many. The landscape around addressing homelessness is under such dynamic change. For years, no one spoke about homelessness and now we have an epidemic crisis. Communities are overwhelmed and LA is in such pain about this. How do we continue to engage communities in meaningful ways so that we maintain momentum towards a solution? 

I feel very grateful to be doing the work at My Friend’s Place, where our main priority is to resolve these young people’s homelessness while continuing to create meaningful opportunities to see the impact and to feel involved. How do we scale to that in a meaningful way? A multitude of things got us here and it will take a multitude of things to fix this. We need to create meaningful opportunities to get our community and supporters involved in understanding and being a part of the solution.

Project Ropa: Caitlin Adler

Caitlin Adler created Project Ropa in 2015 to address the challenges that homeless people face in obtaining and keeping clean clothes. Though homelessness is accompanied by many things, one of its greatest indignities comes from the absence of hygiene services.

Charity Matters: Tell us a little about what Project Ropa does?

Caitlin Adler:  Most homeless people literally have only the clothes on their backs. Access to clean clothing is essential to the overall well-being of a person and can be the key to opening doors to employment and housing. How you look affects how you feel about yourself and how others treat you. Now, because of the health threats posed by the coronavirus, the need to overcome those challenges has become ever greater.

Health:

Claire Marie Foundation: Marianne Banister

When former LA reporter Marianne Banister lost her 17-year-old daughter, Claire to melanoma. She and her husband went to work to get the word out about this cancer and created the Claire Marie Foundation.

Charity Matters: Tell us a little about what THE Claire Marie Foundation does?

Marianne Banister Wagonhurst: When this happened to our family, to our daughter, Claire, we were blindsided. And because even the medical profession did not realize kids could get melanoma at this age. It looked different than adult melanoma and it was more aggressive and more invasive. according to pediatricians. Melanoma is the number two, cancer in adolescence from 10 to 19 and the number one cancer in young adults from 20 to 29. This cancer is the number one cause of cancer death and young women 25 to 30. In young people, this disease is more aggressive and invasive than in older people.

Charity Matters: What fuels you to keep doing this work?

Marianne Banister Wagonhurst:  Claire. There’s never anything that’s going to make it right that we lost her. There’s never any sense to it. But I truly believe this is her purpose. And if I don’t keep this foundation going and do the work that needs to be done, and I’m not fulfilling her purpose, and we would have lost her for no reason.

Brave Gowns: Summer Germann

Summer Germann is no stranger to hospitals, illness, tragedy, or adversity. What is remarkable about Summer is that she uses all of this adversity, including COVID, as fuel for good. She is a bright light who started a nonprofit Brave Gowns and when COVID hit she reached out to her team to begin manufacturing PPE (personal protective gear) in the form of masks for thousands of health care workers across the country. A modern-day hero.

Charity Matters: How did you decide to get into the PPE (Personal Protection Equipment) for COVID?

Summer Germann:  Friday, March 13th  I called my designer and I knew we had to figure out a way to help. We had talked about making masks and families have asked us for years. I knew we could make them fun. I called my factory and told them what I wanted to do and they had already started a prototype three weeks before. I said you have to give me a product that I believe in and this isn’t about money. They sent over the prototype and I said, “Okay, I just launched.” By Monday we had 11,000 orders.

Scarlet C of COVID

I hate to end this year with this story but COVID was the defining story of 2020. This article was reprinted by a number of magazines and publications and had more views than any piece I wrote in 2020 so it was worth an honorable mention on the list.

 While I didn’t interview any specific health care workers but rather organizations that support them, it is worth mentioning that our front line workers were THE true superheroes of 2020.

There are so many remarkable humans on this planet and these are just a few. As 2020 comes to a close and we look to a New Year ahead I think there are so many qualities to emulate that each of these heroes possesses. Tony Robbins sums up these heroes perfectly when he said, “The people who are most alive, driven and fulfilled are those that seek to lead a life of contribution and service. To something greater than themselves.”  Thank you, Andra, Heather, Caitlin, Marianne, and Summer for showing us by example what true service and living a life of contribution looks like. At the end of the day isn’t that what we are all striving for?

Wishing all of you blessings for a most joyous and Happy New Year!

 

CHARITY MATTERS

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2020 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

D’Veal Youth and Family Services

The world has been enduring mental health challenges since COVID began last March. A recent study by the CDC claims that from March to October, the proportion of emergency department visits related to mental health increased 24 percent for children aged 5-11. While teenagers’ (ages 12-17) ER visits spiked 31 percent compared to the same period the previous year. So when a friend reached out to introduce me to John McCall, the founder of D’Veal Youth and Family Services, a nonprofit that has been helping children and families with mental health for decades, I was excited to learn more.

Charity Matters: Tell us a little about what D’Veal does?

John McCall: D’Veal Youth and Family Services is a community based mental health agency that provides outstanding services to children and families. Our motto is to balance children’s lives because children come from families and families come first.

Charity Matters: What was the moment you knew you needed to act and start  D’Vray?

John McCall: I’m from Louisiana. In my senior year of high school, I did an internship at the VA hospital. I thought I wanted to become a physical therapist. My boss came to me one day and she said, “John,  I know you want to be a physical therapist, but I see that you’re writing letters for other patients.  That’s not what a physical therapist does, that’s what a social worker does.  Would you consider spending the remainder of the year interning as a social worker?   I discovered as a senior in high school, I wanted to be a social worker.

I went to Northwestern Louisiana and the University of Houston for grad school. Then headed to California to stay with my sister and I began working at Five Acres. I was promoted from a youth social worker to the Chief social worker, Director of social work, and co-director of the whole treatment program. We were doing these heroic efforts to reunite families dealing with trauma and abuse. I just loved it. One day, and it just hit me. Why isn’t someone doing early intervention and prevention?

In the early 80s and 90s, the intervention was not on anybody’s radar screen. Five Acres gave me free rein to do some of the most innovative things.  And I just kept saying, more needs to be done. If there’s more on the prevention side, you can prevent these things from happening. But there was no money back then for that. And so I had an idea and as fate would have it, I met the right people at the right time to make the idea happen for D’Veal Youth and Family Services. Leaving Five Acres was really hard.

Charity Matters: What do you think makes D’Veal different and sets you apart from other organizations?

John McCall: Our philosophy of mental health has always been different. Mental health is about how you think, how you feel, how you behave. If you don’t think well and don’t feel well. You can’t behave well.  Help is about how you think, how you feel, and how you behave.

So our approach to understanding has always been different. We’ve carved out our niche among the largest number of agencies, and we discovered what we do well and we stick to what we know we can do well.

Charity Matters: What are your biggest challenges?

John McCall: The challenge for us has always been funding. We’ve relied on our contracts and being able to stretch a dollar as far as we could. I would like to leave D’Veal better off than when I founded it.  Historically when the founding director retires the outcomes haven’t been good. And so I’m mentoring someone now who I think is a good fit.

Stress has never bothered me and I’ve always worked two jobs.  Long hours have never bothered me, I just got accustomed to it growing up working hard. But other people don’t have that same kind of stamina. Oh, here’s the other part of my story. I’m a pastor as well. I pastor at a local Baptist Church in Pasadena. And people ask me if it is tiring? The answer is no because I see it as one. Let me understand the people I’m pastoring and trying to get them to grow and help them to lead by themselves.

Charity Matters: You are a true servant leader! What fuels you to keep doing this work?

John McCall: Do you remember the TV show the A-Team? Well, I love it when a plan comes together! If one kid gets better, if one family gets better, then it’s worth the effort. To me growing up in the south, one of my internships was at the state hospital there. I got to see the room where they actually did electric shock treatment. Ah, geez. And when you look at how far we’ve come, just a short time of understanding behavior, understand health, and particularly in the minority community. 

Charity Matters: Tell us what success you have had? What has your impact been?

John McCall:  In 1992 when we began we only had two after-school contracts to service students. Each year the number of kids that we serve increases. When we began our budget was $280,000 and today it is close to seven million dollars. We have seen a 68% growth in the number of clients served in the past five years. Last year we received the Gold seal standard which is the highest rating in our industry.

 Probably one of our most successful models is that we have staff who are trained in multidimensional family therapy. It’s an intense model of therapists’ evidence-based practice model that’s geared for primarily minority families and kids who have substance abuse. Very intense. The kids who complete that program are 80% less likely to come back into therapy.

 In our Family Preservation program (a total of 261 family members)  the overall success rate for keeping families together was 89%, which has been consistent over the last few years. In addition, we are feeding about 20 families per week since COVID started. Those are just a few of our impacts.

Charity Matters: If you could dream any dream for your organization, what would that be?

John McCall: I would dream for us to be the premium model and leader of what to do for community-based mental health, of what community-based mental health should look like. And that D’Veal Youth and Family Services would be the leaders in that and it wouldn’t be based on politics. It would just be based on a service delivery model that we think works. That’d be my dream.

Charity Matters: What life lessons have you learned from this experience?

John McCall: People are people everywhere. People are people and understanding people or human behavior makes a difference. Being a minority leader brings with it its own set of stressors. As a CEO,  I’ve never forgotten the bridges that crossed me over. I’ve never forgotten the people who played the role in my life to help me learn and accomplish.  You know, because of friendships, camaraderie, and collaboration I learned what I know now.

Charity Matters: How has this journey changed you?

John McCall:  I used to be intense and now I am much more mellow. I’ve led protests in community protests. I’ve gone to the city council to advocate for things. And now you look at the bigger picture and I’m now more systematic and bigger picture.  I’ve learned to say no, in 100 different ways. I’ve learned how to be nice about it. I know where I am, where I’m headed, and what I shouldn’t be doing.  I can’t get sidetracked from things that don’t edify or benefit my purpose now.

So close out strong. To know, you can’t control stuff and to do my best while I’m here. And when I go, I want to be gone. I want to release it and appreciate the journey.  

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2020 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Honoring our Veterans

“It is the soldier, not the reporter, Who has given us freedom of the press.

It is the soldier, not the poet, Who has given us freedom of speech.

It is the soldier, not the organizer, Who gave us the freedom to demonstrate

It is the soldier, Who salutes the flag, Who serves beneath the flag.

And whose coffin is draped by the flag, Who allows the protester to burn the flag.”

Father Dennis Edward O’Brien, USMC

I have to confess that I have needed to do a little digital detox since the election. The news has been draining and taken a toll on many of us, regardless of your politics. One thing that I hope our country can agree on is our veterans and today is Veterans Day. We have 22 million Veterans in the United States.  When I think of the men and women who have served our country, I am humbled. The sacrifice, bravery, and commitment are like no other form of service. Today, I wanted to look back at a few of the people and organizations we have met that honor our veterans.

Team Rubicon

In 2013 we profiled Team Rubicon that was founded by two Marines who met in sniper school.  Jacob Wood and Clay Hunt returned from tours in Iraq and Afghanistan, along with other Veterans who were no longer sure of their purpose. That all changed when an earthquake struck Haiti in 2010. Jacob Wood, Clay Hunt, and a host of other Veterans decided to deploy to heal others in need and in the process began to heal themselves. Today they have over 130,000 veterans helping people with disasters around the world.

American Women Veterans

When we think of our soldiers, the image that comes to mind is usually of a man. I remember interviewing Genevieve Chase in 2016 when she told me, “Not every GI is a Joe.” Genevieve is the founder of the nonprofit American Women VeteransAt only 38, she has served two tours in Afghanistan is the recipient of the Bronze Star, the Purple Heart, and the Combat Action Badge.

Genevieve had trained for two years as a counterintelligence agent and was in Afghanistan for only two months, in April 2006, when a car bomb detonated and changed her life forever. At the end of 2007, Genevieve came home, depressed, unsure about her purpose, and began volunteering for another military non-profit. She began to realize that women veterans were not being heard, served, or listened to. More importantly, she discovered that there are 2.2 million women veterans in the United States. She has devoted her life to serving and honoring the women in our military.

Veteran’s Career xchange

In 1967 at 19 years old, Mark Brenner served in Vietnam. When he came home from Vietnam, they threw rocks at him as he stepped foot in the U.S. for the first time in a year from being away. He said, “The way I was treated coming back from Vietnam, I knew I didn’t want anyone else to ever go through that.”

Mark had learned recent statistics on Veteran unemployment  and thought, “Now this is something I can help with, I know how to get people jobs.” Mark spent his career in job recruitment and decided instead of retirement to create a  non-profit called Veterans Career XchangeHis mission to coach veterans to get full-time employment and to retain their jobs.

photo via: Womensconference.org

Operation Gratitude

One of my first Charity Matters interviews was with a woman named Carolyn Blashek. On September 11th, 2001  she was sure that her parents were in the World Trade Center. Thankfully they were not. Out of gratitude for her parents being spared, she tried to join the military, all branches sent her home. Instead, she began sending care packages to troops deployed all over the world to thank them for their service.

Today, Operation Gratitude annually sends 150,000+ care packages filled with snacks, entertainment, hygiene, and hand-made items, plus personal letters of appreciation, to Veterans, First Responders, Wounded Warriors, Care Givers and to individually named U.S. Service Members deployed overseas. Their mission is to lift the spirits and provide volunteer opportunities for all Americans to express their appreciation to members of our Military. Since its inception in 2003, Operation Gratitude volunteers have shipped more than One Million Care Packages.

We have interviewed organizations from Soaring Valor that honors children of fallen Navy Seals to Higher Ground a program that helps Veterans deal with their PTSD and so many more incredible nonprofits serving those who serve. Today let’s come together to honor and thank our veterans for their service.

 

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2020 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Creating the Change

“Sometimes when we are generous in small, barely detectable ways, it can change someone else’s life forever.”  Margaret Cho

Rather than focus on the election today, I wanted to focus on what makes me happy. Honestly, nothing makes me happier than planting the seeds of compassion in our children. A few years ago, that common thread connected me to the nonprofit founder, Molly Yuska of Project Giving Kids. We met when I interviewed her for Charity Matters.  Project​ ​Giving​ ​Kids​ ​(PGK)​ ​is​ ​a​ ​nonprofit​ ​organization​  that cultivates empathy in youth by connecting them to meaningful and age-appropriate service activities.  Their mottos is,“connecting kids to causes.”

 Project Giving Kids was initially launched ​in​ Boston in ​November​ ​2013 after realizing there was no source for families to find age-appropriate service projects for their children. Molly saw clearly that there was a need to leverage technology to make it easier for kids to​ ​be​ ​powerful​ ​agents​ ​of​ ​positive​ ​change​ ​in our​ ​world.​ ​

Project Giving Kids reaches out to nonprofit partners to find volunteer opportunities for a multitude of ages. Four years ago Project Giving Kids hosted their first Create​ ​the​ ​Change​ ​Day​ ​. These days across the country provided a chance to come together as a community to help the amazing nonprofits in our own backyards. More importantly, Create The Change Days teach our children about the importance of service and the power we each have to make a difference.  There is nothing better than combining nonprofit partners and families wanting to instill empathy and kindness in their children. 

However, this year COVID put a damper on this annual tradition. PGK was committed to ensuring that Create the Change Day went on so they will be hosting Create the Change Week. An entire week of free virtual service opportunities for kids and teens. Next week from Saturday, November 7th until Saturday, November 14th  your children can volunteer and participate in amazing virtual service opportunities.

PGK will offer a series of free virtual service activities via Zoom tied to the eight causes on their website. Everything from helping isolated seniors to protecting the environment to helping other kids and fighting hunger.
They will also have a special Teen Track for older youth, so there really is something for everyone.

As Molly said, “We are hopeful we can catalyze a small army to commit themselves to join us in the simple acts of goodness that add up and truly make a difference”  Create​ ​the​ ​Change​ ​Week ​is ​the​ ​perfect way​ ​to introduce young children to the joy of service to others.” 

With all the craziness happening in our world right now, doing something positive to help someone seems like a good idea. So register your children for Create the Change Week . 

As Margaret Cho said, “Sometimes when we are generous in small, barely detectable ways, it can change someone else’s life forever.”

Charity Matters

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2020 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

 

 

 

Breast Cancer Research Foundation

This October, I wanted to begin with a throwback conversation to honor those who began what we now recognize as Breast Cancer Awareness Month. In my world, the more people you have helped the bigger the celebrity you are. So two years ago when I had the privilege to talk to Myra Biblowit, the President and CEO of the Breast Cancer Research Foundation (BCRF) I was everything you would be when meeting your hero…nervous, anxious, excited, and truly thrilled to share her remarkable journey to change the lives of millions of women around the globe.

Our conversation was timely because just two days before we spoke, a friend of mine had a mastectomy. Myra was beyond lovely, compassionate, soulful, and truly inspirational in her commitment to prevent and cure breast cancer (the second most common cancer) by advancing the world’s most promising research. Although October is Breast Cancer Awareness month, this disease doesn’t care what day or month it is. Every 2 minutes a woman is diagnosed with breast cancer. Myra, her team, and a remarkable group of people are all changing the game and after our conversation, I can see that cancer doesn’t stand a chance with this beautiful lady starring it down.

Charity Matters: Tell us a little about what BCRF does?

Myra Biblowit: We want to put an end to breast cancer and our goal is to have no more fear, no more hospital visits, no more side effects, no more needless suffering, and no more loved ones lost to breast cancer and the only way to achieve our goal to prevent and cure breast cancer is through research. 

Charity Matters: What was the moment that The Breast Cancer Research Foundation began?

Myra Biblowit: BCRF started in 1993 but I met Evelyn Lauder in 1985 and we forged an incredible friendship. Evelyn called me and said that she had an idea to create a foundation that focused on breast cancer research after seeing the pace at which breast cancer research was moving. Evelyn had looked around the country and there was not one organization that was doing research with a laser-sharp focus.  Evelyn said, “I can do this and if I can do it and I don’t it, it would be a sin. Will you help me?” Evelyn had a soul and a heart that was enormous. She was working on the pink ribbon symbol and knew she could make this an ubiquitous symbol of the cause and get this issue out of the closet.

The story doesn’t end with creating awareness, it extends to harnessing dollars towards research to change the future. I told Evelyn, I would help her find an Executive Director and help her get BCRF off the ground. I was working at the Museum of Natural History at the time. In 1993, BCRF began at Evelyn Lauder’s kitchen table with our dear friend Dr. Larry Norton of Memorial Sloan Kettering Cancer Center.  Seven years later when I was working at NYU, I had had a few job opportunities arise and I reached out to Evelyn and Leonard Lauder for their advice as friends and Evelyn said, “Well this is a slam dunk, this is bashert (Yiddish for meant to be)….last night the Executive Director told us she wanted to stop working.”

By Monday, I was the President of BCRF. Evelyn gave up the Presidency and became Chairman and Founder and I went to work for my darling friend. I started April 1st, 2001, and I told her I would take the organization international, I would raise a lot more money and I would create a strategic thoughtful grant program to ensure that the dollars we are raising are wisely meeting the organization’s targets.

Charity Matters: What fuels you to keep doing this work?

Myra Biblowit: We lost Evelyn in 2011, and I do what I do in her memory and in her honor. BCRF is her legacy and I work hard to make sure that we are the gold standard. Our work stands as a tribute to her vision. Today we are the largest global funder of breast cancer research. We are the most highly rated breast cancer organization in the country. Evelyn had such vision and clairvoyance, breast cancer was in the closet when we started and thanks to pioneers like Evelyn breast cancer and women across the globe, it is out there now.

The dollars that we are investing at BCRF are not only answering questions about breast cancer today but a multiplicity of other cancers as well. Evelyn would not have envisioned the relevance that BCRF would have.

Myra Biblowit and Dr. Larry Norton, photo credit Suzanne DeChillo

Charity Matters: When do you know you have made a difference?

Myra Biblowit: Since BCRF was founded there has been a 40% decline in breast cancer deaths worldwide. The proof is in the pudding and truly we can tell you that BCRF has had a role in every major break thru breast cancer prevention, diagnosis, treatment, and survivorship as well as an advancing knowledge about other metastatic diseases. 

When Evelyn and I were working together we were mainly talking about diagnosis and treatment. We knew then and know even more now that research is THE reason.  Today that continuum begins with prevention and extends with survivorship. The connector is that research is THE reason, it is the glue.

Charity Matters: Tell us what success you have had at BCRF?

Myra Biblowit: I think it is important for people to know that breast cancer is rapidly transitioning to a manageable chronic disease. People need to not be fearful of the stories of the past from their mothers and grandmothers. Treatments are much more targeted. When a woman is diagnosed today they can try to find what type of tumor she has and then find the right treatment for that tumor type, which is huge.

We now know that breast cancer is not one disease but made up of four or five different diseases in terms of tumor types and each one has more in common with other forms of cancer than with each other. Today’s treatment has a far greater likelihood of success and they are far less toxic.

One study that BCRF was involved with was the TAILORx, a major multi-year and multi-country study to determine what women needed chemo who had early-stage estrogen-positive breast cancer. We knew women who had a high score needed chemo and women who had a low score did not need it. We didn’t know for the 70,000-100,000 women in the middle range if they needed chemo or not. Today we now know that those women do NOT need chemotherapy.  This study proved the power of research. These are the advances that change the future for our mothers, our daughters, and our friends.

Charity Matters: What is your vision for the Breast Cancer Research Foundation going forward?

Myra Biblowit: In the current year we raised $80 million dollars and we awarded grants of $63 million dollars to over 300 researchers across 14 countries. We could have funded more had we had more funds. We are one of the few engines that give resources to cutting edge researchers. We are the engine that tells researchers to take that chance. We are a rare funder in our flex-ability taking research down the path of greatest opportunity because the stakes are so high.

We devoted a fund to metastatic disease when Evelyn died by creating a Founder’s Fund. We want to use that fund to find more about metastatic disease, we want to invest in young researchers, and the more dollars we can give to our researchers the more breakthroughs we can make.

Charity Matters: What life lessons have you learned from this experience? How has this journey changed you?

Myra Biblowit: You know Evelyn gave me an opportunity to do something professionally that touches people’s lives profoundly. How lucky am I? Evelyn was grateful for everything that came her way. She was a child of the Holocaust and her family fled when she was an infant. Everything that she and Leonard achieved was a partnership. She was magnetic and wonderful and when we lost her, Leonard stepped in. I am filled with gratitude every day and for the opportunity to learn from the extraordinary Lauder family. What fed their soul was to make the world a better place and it was infectious. 

 

Charity Matters

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2018 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Claire Marie Foundation

Growing up in LA, Marianne Banister was a familiar face on daily on our local ABC news station. She was always reporting from a storm, a flood, a fire…some sort of disaster. When a friend suggested that I reach out to interview Marianne, who now lives in Baltimore, I was a bit intimidated. Marianne and her husband lost their 17-year-old daughter Claire to melanoma.

Their family was determined to fulfill  Claire’s vision to provide clarity and hope in the fight against adolescent and young adult melanoma through their work at the Claire Marie Foundation. They are on a mission to ensure awareness, education, and prevention of cancer that has increased 250% in the last forty years.

Charity Matters: Tell us a little about what THE Claire Marie Foundation does?

Marianne Banister Wagonhurst: When this happened to our family, to our daughter, Claire, we were blindsided. And because even the medical profession did not realize kids could get melanoma at this age. It looked different than adult melanoma and it was more aggressive and more invasive. according to pediatricians. Melanoma is the number two, cancer in adolescence from 10 to 19 and the number one cancer in young adults from 20 to 29. This cancer is the number one cause of cancer death and young women 25 to 30. In young people, this disease is more aggressive and invasive than in older people.

We’re the only nonprofit in the country that focuses on preventing melanoma specifically in adolescents and young adults. We are not trying to treat it and we’re not doing research to find an answer to find the new drug or the therapy. Please, I pray to God we find that tomorrow.  Nobody’s helping to prevent it and that’s our job.

CMF Five Year Retrospective 2019 from Claire Marie Foundation on Vimeo.

Charity Matters: Can you tell us what the risk factors of Melanoma are?

Marianne Banister Wagonhurst:  If you wear sunscreen if you wear up 50 SPF clothing if you don’t go to a tanning booth and if you advocate for yourself. That’s it, then you’re good. I want to add empower yourself to advocate and get at the front of it. Our whole goal is to get people in and connect them with a dermatologist. If you don’t already have a patient relationship with a dermatologist, it can take three to five months to get your first appointment. 

Charity Matters: Can you share some of Claire’s Journey?

Marianne Banister WagonhurstClaire got a routine skin exam at 13, it was November. We had them checked every year, no history in the family, just having lived in Southern California being a reporter being aware of it. We go back in June for her yearly exam and about a week before that the mole on her ankle that she was born with started to change. But it didn’t look like what we’re educated to look at for melanoma. It wasn’t thick, it wasn’t dark. The borders were not irregular, none of that it just looked a little dusty gray in color.

Claire kept it very quiet and to herself because she didn’t want to be put on a shelf with her friends. She didn’t want to have gossip and didn’t want to engage. Claire wanted to deal with it and went out and lived her life. We were very fortunate to live where we do, where we had renowned medical support 10 minutes away.

About her junior year when we thought we were well past it, her oncologist, Dr. Sharma asked her if she would mentor another young girl who had come in the month that Claire was diagnosed.  As we were discussing his request for her to help this other young person coming through it. She said, “Mom, why do you think this happened to us?”

I said, “Maybe being who you are because you’re so positive and energized. And being what I do professionally, you know, maybe we can do this together when you’re ready?” Claire said, “Yeah, when I’m a senior, then it won’t matter. And I can tell people, and I can advocate.”  She still was not quite there yet wanting to share her story. So we knew down the road, that’s what she would want to do. The bottom line is I just couldn’t sit here with this information and not warn other parents. If someone had raised the flag of awareness before us, then maybe she’d still be here.

Charity Matters: What was the moment you knew you needed to act and start Claire Marie Foundation?

Marianne Banister Wagonhurst:  We started with community support. We got launched in October 2014, it will be six years ago this month. Claire’s friends from her school wanted to help and do something.  One of her best buddies since childhood called me and said,” Hey, Miss Marion, do you have a logo?” And I was like, Why? I mean, we knew we were going to do something, but we are just trying to get through the grief and to deal with things.

Claire’s friends did this dance a THON and raised $24,000 called Moves for Claire. I didn’t know how many people my daughter knew. And then friends of other friends and her story carried. There were 500 kids there. And they had sponsorships, and I mean, they went all out. We realized they’re listening and paying attention now. So we need to take advantage of this. If we want to do this in her memory, we have to do it while they want to engage. And they have been our biggest force.

So through them, we then went forward, we have collegiate ambassadors, and they started the program for so they were in the high school class of 2015, college class of 2019. We’ve had just short of 100 kids on 46 campuses. And they do peer to peer education and mentoring and awareness programs.

My husband cycled 620 miles to symbolically take her to college. Claire was accepted to college just a couple of days before she passed. So she got accepted to Georgia, Southern University, Alabama. So he cycled from Charleston to Georgia Southern into Bama. We did this big media raising campaign and because it was a football game that she promised her dad he could go with her. So you know, it was a way of him to process it and honor her, but it was a way for us to raise awareness. We started doing that and running fast.

The kids came up with a lot of these ideas,  they’re all young adults now. We have partnerships since with US lacrosse and we work with the Melanoma Research Foundation, as one of their advocacy partners. We go to Capitol Hill and campaign for funding and support for research. We are developing a relationship and a partnership with Teen Cancer America out in LA. we want to bring our screening program out there, if a young person is going through cancer, guess what that puts you at elevated risk for melanoma.

Charity Matters: What are your biggest challenges?

Marianne Banister Wagonhurst: The biggest challenge for all this is that we’re the only ones out here doing it. We’ve screened 1000 young people, we found 16% have A typical moles that need a biopsy. Funding is still a big issue. We could use a staff of two full people, two full-time people. You know, it’s just me and my husband and the volunteers that pop in and out and help us out.

Secondly is getting our information out there. Awareness education, like this event we’re doing October 3rd, we always try to reach young people in the way that they’ll hear us.  It’s a two-hour Music Festival, with performers from LA Nashville, Baltimore, and Charleston. It’s really it’s a lot of fun. Then of course within that, we’ll have the melanoma prevention messaging built within it.

Charity Matters: What fuels you to keep doing this work?

Marianne Banister Wagonhurst:  Claire. There’s never anything that’s going to make it right that we lost her. There’s never any sense to it. But I truly believe this is her purpose. And if I don’t keep this foundation going and do the work that needs to be done, and I’m not fulfilling her purpose, and we would have lost her for no reason.

When people ask me how many children do you have, although it will be followed by an awkward moment. I just say well, I have two girls, one watches out for me from heaven and the other one is with me here.  I’m not going to say only have one daughter, that’s not going to happen because she existed and she had a purpose. She has changed lives and she has saved lives. We have had a number of young people who have found melanomas early and they always tell me,” You know, I thought of Claire, and I went and got it checked and it was a melanoma.”

Charity Matters: When do you know you have made a difference?

Marianne Banister Wagonhurst: My husband always says if we save one kid, we’ve done our work. And we’ve done that many times over. I think what I’m most proud of is we’re changing the narrative. We’re changing the focus, Claire was overlooked, she was a victim of the system. The system is not broken, but it needs to be tweaked.

Because of us, many organizations are now creating a Young Adult adolescent melanoma focus, in terms of research, and in terms of treatment and support. I know specifically within the melanoma world, we’ve changed that narrative. I think that is what I am most proud of in six years, we’re starting conversations, and making people understand that it’s just not a matter of putting on sunscreen, and calling it a day.  I think it’s changing the narrative of the conversation and elevating the importance and value that young people are getting this disease to the rate they are and that it is not rare.

Charity Matters: If you could dream any dream for your organization, what would that be?

Marianne Banister Wagonhurst:  The dream would be that every young person from two-years-old on should incorporate full-body dermoscopy-based skin screenings every year, as part of their WellCare. When they go to their pediatrician and their eye doctor and their dentist, they see the dermatologist, they get checked, that becomes part of their routine.

 We just don’t want anybody else to go through what we did, because it’s so darn preventable. When you think about it, melanoma is one of the cancers that you have the best odds of seen visually externally on your body. And a screening takes 10 minutes, and you don’t have to drink anything, and you don’t have to get an MRI and you don’t have to get a CAT scan, you just go in a robe, 10 minutes, a dermatologist with a scope. So we just need to it’s a system that’s broken, it needs to be readapted so that would be my dream.

Charity Matters: How has this journey changed you?

Marianne Banister Wagonhurst: I think one of the changes that surprised me is you get a different identity, you realize that life is you cannot go back to life as it was because it’s no longer there. So you have to recreate yourself. I’m in a different world.  So I’ve expanded the people in my life.

 I’ve had a lot of loss in my life and I’ve always lived my life as you have to thoroughly embrace it each day as it is. My faith is stronger than ever because I know she’s fine. I know she’s okay. I absolutely know because I’m telling you as smart as I like to think I am. I am not that brilliant.

This foundation has a life of its own. And as my older daughter says,” Claire will be done with it when she’s tired of Claire show.” Until then, it’ll just keep happening things that just drop in our lap. Opportunities that come up or people we meet that just really like jumpstart us into a new phase. And it’s just like, okay, she’s not done with the Claire show just yet. 

Charity Matters: What life lessons have you learned from this experience?

Marianne Banister Wagonhurst: We’ve been asked this by other parents often how we dealt with the grief. We just had to dig down to this just horrendous feeling and we had to feel but then able to come out the other side. And it seems like to me that at some point of grief you have to process this pain. I think for me because I always remembered that conversation we had about Claire helping others, I know she would be proud of this.  

It’s not that you ever want this to happen, but if it does, to know that something has been inspired by her in a positive way. That’s what we look at.  There was nothing she could have done to control this or affect it and so when that happens, it’s kind of like well, what do we do with this now? Our daughter is having a great impact because of what we’re doing and that’s the best we can do for those we love.

 

 

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2020 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Our Wave

I have to confess that I have a love-hate relationship with technology. I love being able to share these stories with you every week and I do not always care for some of the social media platforms needed to broadcast this work. However, when I heard about the nonprofit, Our Wave, and their commitment to use technology to build a community of people affected by sexual violence I needed to know more. It is an uncomfortable topic for sure but when you hear the amazing and inspiring stories of these founders, it is truly a story of hope.

Charity Matters: Tell us a little about what Our Wave does?

Kyle Linton: We really started Our Wave in 2018 with the idea that we wanted to better support survivors of sexual trauma and give them a mechanism to anonymously share their stories.  What we found was that there are all these opportunities for people to share their stories, which are incredible, but they’re very public.  Survivors wanted to see other people’s stories, they wanted to share their own story, but they didn’t necessarily want to do so publicly.

Since we’re technology design people,  couldn’t we create a platform where people could share their stories anonymously, but more so than just sharing?  Could we try to lean into the healing components and leverage research to give people resources as they’re sharing their stories and finding the things that they need so that they can move past their previous instances of trauma? 

Laura Sinko:I had met Kyle at a sexual violence conference because unlike Kyle being tech and design, I am a nurse by training. I’m also a researcher. And so my research was in healing after sexual violence. When I was interviewing survivors, I noticed this gap where people were really longing for community and really longing for a place to really say their truth and also just process their truth. Because I think sometimes you keep it inside and you don’t really even know how to put words what happened.

So I had stumbled across them on a table and they were saying, we want to create this platform. And I was like, me too, but I have no skills and design or tech. I would say that the vision is really to help people tell their stories and then connect them to a community, help people learn from each other, what works for them and what doesn’t.

Charity Matters: What was the moment you knew you needed to act and start Our Wave?

Kyle Linton:  In October 2018, someone in my life, directly experienced sexual violence. Somebody that was very close with and,  for me, it was a really difficult period. Because I was trying to figure out a bunch of different things. I was like, how do I support this person? How do I help them?  And even as I’m feeling all of these things, I can’t even imagine what this other person is feeling who experienced it firsthand.

Then I realized that I am privileged enough that I have the opportunity and experience building companies and products. So I said, “Well, I have the capacity to do something here.” So, I kind of got this idea of, what if we could create a place where somebody like this person very close to me could go and see other survivors and get support and find healing resources?

I started just kind of pulling people from my life and in saying, “I would love your support on this. If you have time?”. Then we found Laura at a conference. I said, “let’s bring it all together into this thing that can help survivors, and then let’s try to scale it like crazy?”  So, that’s really where it started. 

Charity Matters: Was there a back story that led you to this type of work?

Laura Sinko: Unfortunately, being a woman on a college campus, I felt like it was happening to so many of my friends were experiencing these sexual violence experiences. So I got really interested in sexual violence since there are so many people in my life that were struggling to find healing. A lot of the work especially in medicine and nursing is focused on that deficit, like you have trauma, you have depression, anxiety, and there’s so little focus on the healing aspect.

I was getting my Ph.D. in nursing, smack in the middle of my program, when I had my own experience of sexual violence. It was interesting because being a quote-unquote, “expert”, right? You think oh, I’m an expert in healing after the violence. I’m gonna be set. I can do all these amazing things because I know what to do. I have all the tools and it’s different when it’s yourself. It’s a totally different beast.

And so that’s why, for me, it’s really important to really build that community because you can often feel like you’re all alone if you don’t get to share your story in some way. That is that moment when you know this isn’t okay. This just isn’t okay.

Charity Matters: What are your biggest challenges?

Kyle Linton:  I think the biggest challenge for anybody doing this kind of work is how do you stretch, you know, minimal resources to make the most impact?  The beautiful part about our organization is that because it is a technology platform, it has the potential for a massive scale. The trick for us is trying to support all these different populations and individuals who have these different levels of need.

Laura Sinko: For me, being the grant writer of the group, I think funding is our biggest challenge. I mean, it’d be nice for all the work that people are putting in if we could pay some of our staff for their work. And that’s not really me or Kyle, but the designers that are doing all of our content and all of these other people who are really putting in a lot of work. So that’s why my thing is the funding, it’s always about funding.

Charity Matters: What fuels you to keep doing this work?

Kyle Linton: I grew up in a household where my mom has run a nonprofit for 20 years maybe. She’s amazing. I grew up in a household that was comfortable and it gave me the opportunity to do impactful work.

 I’m incredibly thankful for growing up with that sort of motivation.  I was not encumbered with student debt and it gave me the opportunity to try to leverage my skills to help people. I’m in a position to do that, and a lot of people aren’t.

Laura Sinko: So for me, it really it truly is this the survivors.  I was a mental health nurse for a while I’m now a sexual assault nurse examiner. Over the past four years, I have met just countless amazing survivors who have given me the privilege of hearing their stories and hearing their struggle. Whenever I have to write a grant or something that feels really daunting, I have this ritual where I like will light a candle and remember why I am doing this.

 It’s like bringing the survivors in the room with me, the people that are counting on me to and our team to really push this forward. And I will also say that being a part of this team of eight completely volunteers, people that give their evenings to this work their weekends to this work. I think that is also incredibly important.  Not every team has that cohesion, but I think we do which was really helpful.

Charity Matters: When do you know you have made a difference?

Kyle Linton: One of those moments is we ended up developing a presentation that we shared with USA Gymnastics. Obviously, everybody’s depressed and seeing things that are going on and we were able to share seeing the silent signs of sexual abuse. I remember I was in the zoom call helping moderate and support and a survivor of Larry Nasser popped in.

That moment made it clear and sort of brought to life, all the things that we’ve heard and the ability to sort of support individuals who have gone through unbelievably traumatic and difficult things. That moment sort of just brought that to the forefront of our minds and was pretty incredible that we as a tiny nonprofit have the opportunity to potentially impact somebody like that.

Another moment for me was really, this campaign we have been doing with this Instagram account called Unapologetically Surviving.  It is an account that’s grown from 60,000 to like, 140,000. The account specifically talks about healing, supporting survivors, and just being a light at the end of the dark tunnel.

We did a partnership with them where our team takes these questions that survivors have.  And we’ve seen like 10,000 people liking some of these posts and engaging. It’s just crazy to see that a simple cold email that said, “Hey, we’d love to work together. Can we share some of our work with y’all?”  So it’s just been a very just beautiful example of the potential impact we have. 

Laura Sinko: It’s really been the FAQ Fridays. I think putting some questions that I kind of had when I first started experiencing these things, like, how do you manage triggers? Have you ever had that moment where you’re not really sure if it actually happened and you doubt your experience?  It’s like, we’re all looking for the same answers.  I think that participating in that has been really helpful to see really that we’re all are experiencing different things.

But there is some common thread between all of us, no matter how you feel. What we do is all about creating connections and community. That’s really the essence of what nonprofits do is bringing people together to help each other to solve something that’s at the core of what we do. So being able to build a big community like that in such a short time is so incredible.

Charity Matters: Tell us what success you have had? What has your impact been?

Kyle Linton:  I think that between the content and the platform that we have created we are somewhere between 100 and 200,000 survivors that we’ve been able to access and engage with and support in some capacity. Obviously, our aim is to increase that.  We’re lucky as a technology organization that the number one thing that we have to our advantages is that scale and that ability to very quickly expand our efforts and reach that many people.

Laura Sinko: I think with social media, specifically, the direct messages, I just pulled up one now because it made me feel so good. This person said,” I just wanted to say how grateful I am to have found your page. I’ve struggled with what happened to me. So I really like to say thank you. I know you don’t know me, but just existing You make me feel seen.” And I feel like that is just something that when you think of impact is so important. The thought of being seen when you feel so alone is what keeps me going. 

Charity Matters: If you could dream any dream for your organization, what would that be?

Kyle Linton:  My dream would be to have a full-time staff that can run it this all day every day.  We could increase our outreach efforts and scale this thing. Our vision really long term is what if we could create this online platform where I’m a survivor and I come to tell my story, and I could be at all kinds of different stages of my healing process.

Laura Sinko:  I think really, for me, it’s creating a place basically a virtual healing space. I think so often we rely on people to find their own therapist the battle with their own insurance and all of this is really important to healing. But I noticed more and more particularly young people they’re looking for things online they’re craving that online community for that self-exploration from home. So if there’s a way we could increase access to healing opportunities, I think that that would be my grand vision. 

Charity Matters: What life lessons have you learned from this experience?

Laura Sinko:  The main thing that I learned is that it’s possible to have an idea that you think fills a need and to and to go out and do it. I think for me, in the clinician role I noticed this gap and I was like,  I’m just a nurse, I can’t do this.  That is really important for to like, no matter who you are, or where you’re at if you have an idea and you think it feels a need, and it’s really going to help people, take a chance on yourself because I feel like you can do so much good for other people.

Kyle Linton: I think internally, it’s been incredible to see how people many people want to give back and contribute to helping other people. I think that’s been really surprising to me. I mean, even just outside of our core team, the number of volunteers that we have that come to us and say,” Hey, I’d love to get back and contribute in some way.  I just want to help.” It’s been, it’s been really inspiring to just see how much people want to contribute.

 I would say just from a purely like, execution, and team standpoint, it’s been really amazing to see what we can do with absolutely no resources and to figure out how to be scrappy and how to create something from absolutely nothing and to have it be so purely good. 

Charity Matters: How has this journey changed you?

Kyle Linton: I think for me, the biggest one would be understanding all of the different things that people experience at different points in their life. And then seeing how that impacts them in so many different ways that I could have never imagined really getting a much level deeper level understanding of trauma.

I think makes you more empathetic, thoughtful, and makes you want to listen to people more because this happens a lot more than you can imagine. And it affects people differently. So, really learning to be empathetic, to listen, and to understand has been really beneficial to me.

Laura Sinko:  I think for me, there’s like two things that it has helped. One is I think more internal and I think one is more external. For me, being a nurse, a teacher, researcher, I’ve been in mostly spaces where I’m holding someone else’s trauma. I try to really detach and it’s not about me, it’s about you. This opportunity has really allowed me to look inward in myself and think about if I’m going to be like leading this effort, I got to really do my own internal work to make sure I’m in the right place.  I’m telling everyone else being a survivor is not something you should be ashamed of. I have to practice what I preach here.

So the fact that I’m even like saying this, that it happened to me and it doesn’t make right weaker, it doesn’t make me any less competent. It doesn’t make me a worse researcher, a worse nurse. In fact, I think that there’s a myth that actually helps me understand in a serious way. So I think that piece for me personally has been really beautiful.

But on the other side, I think connecting with folks like Kyle, who maybe didn’t experience it himself, but have that drive to give back. I’ve just been shocked by the people who maybe haven’t had that in their own personal life in terms of direct harm, but still feel compelled to come forward and help. People say,  look for the helpers, but like seeing those wanting to help has really given me a lot of hope for the world. We do this for hope to help other people to move the world forward a little bit,  one person at a time. That’s why we’re here.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2020 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.