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Episode 54: One Block UWS

Have you ever walked by litter or a pile of trash on a city sidewalk? Most of us have and keep walking, thinking it may smell or what a mess. How many of us would stop and try to figure out how to clean up their neighborhood? I haven’t but today’s guest Ann Cutbill Lenane did just that. She not only saw a growing problem but she rolled up her sleeves to do something about it.

Ann Cutbill Lenane is a very successful residential realtor in the Upper West Side of New York City and is the founder of One Block UWS.  Join us today for an inspirational conversation about one woman’s journey to clean up her neighborhood, employee people in need of jobs and revive a community One Block at a time.

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what ONE Block does?

Ann Cutbill Lenane: One Block is a nonprofit that facilitates the filling of more than 1,000 bags of trash every week on the Upper West Side of Manhattan. We coordinate group events so neighbors can connect and clean their community. In addition we employ three full time workers who were formerly homeless.

Charity Matters: What was the moment you knew you needed to act and start ONE Block?

Ann Cutbill Lenane: Back in 2020 New York City had $106 million dollar budget cut to their sanitation. As you can only imagine NYC was a very scary place to be during the pandemic. During the pandemic, on the Upper West Side where I work as a residential realtor there are three homeless shelters. Eight hundred homeless were moved into hotels during the pandemic on the Upper West Side. People were really upset.

Regardless of that situation, I saw the neighborhood begin to turn in a really bad direction. This neighborhood where I raised my kids and still work was something out of a zombie apocalypse. I saw the neighborhood going in a very bad direction.  In the 1980s, I remembered what Mayor Giulani said about cleaning up neighborhoods. He said, ” If we start by cleaning up the trash and the graffiti then people will feel better about being there and be more respectful towards their neighborhood.” So while I didn’t have a solution for the homeless problem, I figured I could find a way to get trash picked up. I can start with the garbage.

I also had three homeless shelters with people who needed work. So I thought, simple I will hire a few people who need jobs and we will go clean up some garbage. However, it wasn’t that simple. We ultimately reached out to ACE a program that trains unhoused people on the skills needed to help us. The real breakthrough happened when the local neighbors, who were upset by the homeless situation started a Facebook page. It was 2020 and we were all locked up and this Facebook page had 16,000 followers instantly. One day a neighbor on the page said,”Who wants to help sign up to clean up garbage?”

I met with my young neighbor from Texas. We all started signing up and cleaning the neighborhood. Next thing we did was hire an attorney to help us get our 501c3.

Charity Matters: What are your biggest challenges?

Ann Cutbill Lenane: Some of the early things were easier like getting help from an attorney at Gibson Dunn to help us with a 501C3. Our weekly cleanups and communication was easy because of the Facebook page and group. We had great community involvement. Most importantly, I was able to gather our neighbors emails through the Facebook page which Facebook no longer allows. Capturing our communities information was so important so that we could keep everyone informed of our progress. Those things were relatively easy.

As far as challenges, we had people leaving the route because of drugs that we had to fire. We had people selling our trash bags for money. Our employees couldn’t find restrooms in NYC. We gave employees gift cards so employees could get lunch and use the restrooms where they ate. Our employees didn’t have shoes. We went back to our newsletter and asked our neighbors for help to support the people we hired to help clean our neighborhood .

Charity Matters: What fuels you to keep doing this work?

Ann Cutbill Lenane: We have a woman named Jackie who takes care of everyone on our team. The thought that she wouldn’t have a job does fuels me. Each month we wonder if we can go on with our funding. I can’t picture these people without One Block. I want these people to be stable, to be appreciated and to have good lives.

Charity Matters: When do you know you have made a difference?

Ann Cutbill Lenane: There isn’t a block that one of our employees is working that people don’t approach them and say, “Thank you.” Putting a face and a name on a person who could easily become invisible in New York City changes that for everyone. 

Charity Matters: Tell us what success you have had and what your impact has been? 

Ann Cutbill Lenane: Sometimes you think life is supposed to go in a certain direction and it doesn’t. I can only help along the way and I know we are making an imprint on these people’s lives. You can only do what you can do. You just never know what your impact is on someones life. The Upper West Side is cleaner, our team has shoes and we keep putting good out into the universe. 

Charity Matters: If you could dream any dream for your organization, what would that be?

Ann Cutbill Lenane: The dream would be to be able to support the people that work for us. Getting them into a stable situation and lift them up. It’s not about One Block and garbage but about the people who need a leg up.

Charity Matters: What life lessons have you learned from this experience?

Ann Cutbill Lenane: I’ve learned the power of one, which becomes the power of many. The impact is huge. I am used to speaking to people everyday and connecting people. What is your super power? You have one and how will you share it? 

Charity Matters: How has this journey changed you?

Ann Cutbill Lenane: . We were blessed by something that felt like the end of the world during Covid. Something great came out of all of this. You have to start with one small act. Many people want to help. One person one block at a time.

CHARITY MATTERS.

To Support One Block UWS

www.oneblockuws.org

[email protected]

Instagram: @oneblockwestside

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Cancer

Pablove

The world is full of amazing and inspiring humans, they are all around us. When you have a moment to learn someone’s life story, it is a privilege to share it.  Since February 4th was World Cancer Day I thought we would take a look back at the fantastic conversation with Jo Ann Thrailkill, the founder of Pablove.org. Jo Ann founded Pablove to honor her son Pablo and to invest in underfunded cutting edge pediatric cancer research and improve the lives of children living with cancer through the arts.  I know she will warm your heart  and inspire you as much as she did me.

Here are some highlights from  our conversation:

Charity Matters: What was your background before starting Pablove?

JoAnn Thrailkill: In my 20s through my 40s I was a music video producer. I absolutely loved my job and was living a dream. I was a single mother with a fantastic life and career. When I met my husband Jeff, who is also in the music business, and we had our son Pablo, I decided to slow my career down a bit and focus on my family and time with my two sons.

When Pablo was diagnosed with a rare pediatric cancer in May of 2008 everything changed. I went from producing music videos to trying to Executive Produce Pablo’s treatment and care. While Pablo was sick we had so many people who wanted to help, bring food, do something. A co-worker of my husbands, started a PayPal account just so people could do something. We were so involved with Pablo we weren’t really aware of how many people were supporting us through this. 

Charity Matters: When did you realize you were going to start a nonprofit?

Jo Ann Thrailkill: When Pablo died six days after his 6th birthday we were devastated,bereft and overcome by grief. We were also overcome by people’s kindness and generosity. People really wanted to help us in so many ways, it was overwhelming. When we went to gather pictures for his memorial service, we found so many photos that Pablo had taken with all of our devices. They were everywhere and we had no idea he was such a photographer.

A few months after his death, my husband decided to ride his bike across the country, to deal with his grief and process all that had happened. When he came back, his co-worker asked, “What do you want to do with this PayPal account and the funds?” To be honest we had forgotten about the account and didn’t think it could have had more than a couple thousand dollars. To our total surprise there was over $250,000 and in that moment we felt an overwhelming responsibility to all of these people who had supported us and Pablo.

When my husband said, “You need to executive produce this,” meaning the beginning of Pablove.org, that was the moment.

Charity Matters: Where did you start?

Jo Ann Thrailkill: I went to see Pablo’s doctor, to get a direction and he asked me, ” What would you have wanted that you didn’t have when Pablo was sick?” And my answer was a cure. So I knew we were going to need to invest in research since pediatric cancer research is so underfunded, only 4% of cancer research funding goes towards childhood cancer.

He then asked me what Pablo would have wanted and I knew it was something in the arts and Pablo loved photography. I knew that Pablo just wanted to feel like a kid when he was sick and that his photography had been a form of self-expression. So that is how we began the Shutterbugs program which teaches children and teens with cancer the art of photography.

Charity Matters: When do you know that you have made a difference?

Jo Ann Thrailkill: When the kids tell us that working with a camera and photography has been a life changing experience for them. That is when you don’t want to stop and know you need to keep going. In addition, to know that we have created an organization that is filled with optimism, joy and laughter. 

Charity Matters: Tell us the success you have had?

Jo Ann Thralkill: Our very first year in 2010, my husband did a bike ride across the country again but this time to raise funds for The Pablove Foundation and we raised over $500,000. The momentum continued and we were able to fund a grant our first year. Today, almost ten years later we have thousands of Shutterbugs in 16 cities across the country and have provided seed funding for pediatric cancer.

Since 2010, we have awarded more than two million dollars in Childhood Cancer Research Grants to over twenty institutions worldwide.

Charity Matters: What life lessons have you learned from this journey and how has it changed you?

Jo Ann Thrailkill:  This entire experience has been completely life-altering for me. I think one of the major things I took away from my own family’s cancer experience was that just when you think the world is filled with darkness and hate, you discover that it is actually filled with love.

Things don’t always end up how you hope or plan that they will, but when we were in the trenches of treatment with Pablo we discovered the most amazing support from our community and everyone around us. This gave us not only the financial support but the emotional strength that we needed to start the Pablove Foundation. The experience of starting Pablove has allowed me to always see the light. I am now reminded daily of the love that surrounded me during one of the most difficult times in my life.

charity Matters

 

Sharing is caring, if you are so moved or inspired, we would love you to share this to inspire another.

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Charity Matters Inspiration

Looking back at a Force for Good

max page, the force

This weekend  millions of us will watch the Super Bowl and of course those very pricey ads. I thought it might be worth revisiting the one of my favorite philanthropic friends, Max Page. You might remember Max from his starring Super Bowl ad as Darth Vadar, a few years back.

Max has been a patient at Childrens Hospital Los Angeles  many times in his short life for multiple heart surgeries. He was born with a congenital heart defect and over the years has had over 13 surgeries. Each year over 40,000 are born with congenital heart disease. Since February is heart month and the Super Bowl, Max has been on my mind.

I met Max and his family when we worked together to launch the Junior Ambassador Program at CHLA . The Page family are some of the most philanthropic people I know. They have used their situation and celebrity to the benefit of others time and time again.

Max continues his acting and his passion for philanthropy. His hope is that if someone is inspired to do something because of his journey, that they would consider supporting a place that has given him so much and become a second home, Children’s Hospital Los Angeles and the Heart Ambassadors program. Max said in an interview with Today, “I’m going to do whatever I can to help and do the best to bring awareness to kids like me.”  

Max’s heart may have been defected once upon a time, but today it is his heart and use of the Force that continues to inspire us all.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

 

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Charity Matters Inspiration

Season Five Premier: Susan Axelrod CURE Epilepsy

Welcome to Season Five! It is truly remarkable to believe that we launched the Charity Matters Podcast just two years ago. In that time we have introduced you to some of the brightest lights on earth, those who serve. We promise Season Five has an incredible line up of people who will inspire you, give you hope and renew your faith in humanity. These nonprofit founders are not only entrepreneurs but they are problem solvers and doers. Each story gives us hope that we can tackle any obstacle in our own lives no matter how big.

Today’s guest is a perfect example of one woman with a huge goal.  Susan Axelrod is the founder of Cure Epilepsy. She will inspire you with the remarkable story of her journey to find a cure for epilepsy to help her daughter. It is a story you don’t want to miss and the perfect way to start your year and ours.  Susan set out to achieve a goal 25 years ago. Each year Susan and her community  paved the way and ultimately raising ninety million dollars towards epilepsy research. Her work and story should inspire anyone with a goal that feels too big.

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what CURE Epilepsy does?

Susan Axelrod: Cure Epilepsy is singularly focused on funding research in epilepsy. This actually started because I am the mother of a now 41 year old daughter with epilepsy. It started in her infancy and after many sort of tortured years of trying to resolve her problems. I started to meet some other parents and recognize that there was a woeful lack of of dollars and attention to epilepsy, both federal government funds and private dollars. That’s our focus because we want to eliminate epilepsy.

Charity Matters: What was the moment you knew you needed to act and start CURE ?

Susan Axelrod:  My daughter had been happy, normal, healthy baby until she was seven months old.  And she started to have a seizure, which was terrifying to witness as many seizures are. She was she was blue, I thought she was dying. I took her to the emergency room. While waiting to be seen there, she had another one of these episodes, which I still didn’t know what it was. In 1985, I received a report on an EEG that she had had. The report said something about epileptiform activity, and I panicked. I called her doctor, and I said, “Are you telling me she now also has epilepsy?”

I had started to meet some other parents with epilepsy through a support group, which I got wind of waiting in a doctor’s office, which we spent hours waiting in doctors offices and saw notice for a support group and met a few parents who fast forward a little bit ended up being some of my co founders of cure with.

Lauren, my daughter, had a surgical procedure to try to determine whether there was an area in her brain that they could resect that might help. There was indication for the first time that maybe they’d actually localized the focal point.  So we put her through a pretty horrific and barbaric procedure. They literally bored holes in her skull and  implanted electrodes and the  procedure ended up with nothing.

I sat there with my husband and we didn’t know what to do.  Later that evening, I thought to myself, you know, I can either cry for the rest of my life, or I can just slap myself in the face and do something. That is a really clear memory for me,  just saying that’s it, I’m done. I’m done waiting for anybody to provide answers. It just felt like I had to right this wrong and t was just wrong. 

Charity Matters: When did you know you were on the right path?

Susan Axelrod: We knew we had to raise dollars and that was critical. We were very fortunate in that my husband had done some work with Hillary Clinton when she was First Lady. Towards the end of 1998, he was meeting with her and she asked how Lauren was doing. She said, “Is there anything I can do to help from my position?” 

She agreed to to be the keynote speaker at our first fundraiser in Chicago. January of 1998.  I’ve never put on an event in my life. The First Lady spent the afternoon visiting our hospital and learning about epilepsy.  Then she came and did the event. She spoke just eloquently about epilepsy and about what she learned that day.  Well, we had a lot of people that were there for her, who were just blown away by her. That was a big aha moment. Three months after we founded the organization  people were writing notes and were calling they were telling me that night I had no idea about epilepsy. We thought, okay, if people don’t know about epilepsy, they’re not going to give money to epilepsy. 

photo via: Boston Globe

Charity Matters: What were some of your earlier challenges?

Susan Axelrod: My daughter used to miss about a third of every school year just because of seizures. So there were times when I couldn’t get out of the house. The internet was relatively new at the time and email was like a brand new thing. We were working together and we loved each other. And we loved the work and it gave us hope. If we had an event or mailing to do, we all gathered for a long weekend, and stuffed envelopes and licked stamps. Epilepsy is a pretty lonely diagnosis and this gave us a community.

Charity Matters: Tell us what success you have had and what your impact has been? 

Susan Axelod:  I think the very first thing that we did that was huge and life altering for the epilepsy community was to change the conversation. And that was both between patients, families, and researchers and doctors.  I wanted to know, along with my co founders and other people who were working with Cure Epilepsy, why? Why did I have this seven month old baby, that was fine one day and not fine the next day? Nobody to this day yet has been able to answer that. 

I think we’ve, we’ve really gotten the community away from thinking, let’s just create another drug that’s going to maybe reduce the seizures  50% of the time. In our book, that’s not okay. It’s great. I should say that my daughter responded to a one of these new medications in April of 2000.

We’ve we have funded over 280 research grants around the country.  We have opened up new areas of exploration in terms of what they’re looking at and how it affects epilepsy and the development of epilepsy. Those are areas that we were willing to take risks. So I think that’s another thing that all nonprofit can do because who’s else is going to do it? 

Charity Matters: If you could dream any dream for your organization, what would that be?

Susan Axelrod: The happiest day of my life would be shutting down the office, closing the door, locking it up, because mission accomplished, right? That would be that would be amazing.

Charity Matters: What life lessons have you learned from this experience?

Susan Axelod: I’ve learned the importance of community, the importance of being inclusive, the importance of bringing all players with any sort of potential interest  in your cause together. And that it’s very grounding. It’s very humbling. But I think  it’s been one of the more amazing life lessons and it translates beyond my work with CURE.

Everybody has some value and something to contribute.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Inspiration

Chasing the Insights

If the past twelve days are any indication of what 2023 is going to be like then I think its time to buckle up! Our 2022 ended on New Year’s Eve with our TCU Horned Frogs beating Michigan at the Fiesta Bowl. It was an unexpected win and crazy game that brought our small school from Fort Worth onto a National Stage. The game and experience brought so much more than football.

Our New Year began with a crew of our youngest son’s fellow TCU students as house guests. Each counting the days until the National championship game, that was earlier this week. The odds of TCU even getting to this place were 250 to one. So to say that the journey has been a crazy one would be an understatement. It had all of the making of a Hollywood movie with small town boy as quarterback at small Texas school making it to the National Championship. Except perhaps the ending. It wasn’t the big Hollywood finish but the opposite.

Life isn’t Hollywood. Nor is life about a singular destination, it is about the insights and lessons learned along the way. Life is about the journey and not the destination. The journey in these past two weeks has been a brilliant reminder that we are all here to learn and enjoy the ride. We are here to chase the insights and gather lessons from each experience in order to grow and evolve as the best versions of ourselves.

You may remember that last week I wrote about New Year’s goals, about being open to receiving, asking for help and promoting the message of goodness that is Charity Matters. Well, ask and you shall receive. My plea to the universe was answered from across the globe. An extremely popular podcaster, Vince Warnock invited me to be a guest on his show, Chasing the Insights. Vince has a huge international audience and it’s pretty obvious why.

He is bursting with positive energy, kindness and goodness on his quest to help entrepreneurs launch their business. We talked about ways to bring good and philanthropy into everything you do. His message is that we are all here to learn from each other and help one another.  Our conversation, which you can listen to below, was a terrific reminder of just that.

So as we wrap up the second week of 2023, I hear the universe speaking loud and clearly. Life  isn’t about the destination but the journey. TCU had an incredible journey and took all of us on it. We didn’t win but we met so many incredible people along the way and learned so much. Thank you Vince Warnock for reminding us that this is what matters. Chase the insights and leave a path of kindness along the way.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Holidays and Holiday Giving

Raising Philanthropic Children

Raising philanthropic children 2014

I am always so amazed that is the same time each year that I find people asking for suggestions on raising philanthropic children. Once again, it’s worth sharing.

While my sons are far from the poster children for philanthropy, they certainly do a lot to help others. I am proud that each of our sons has found different ways to give back and share the gifts that they have been given. Now in their twenties their giving is changing yet again. Time is now a rare gift so the older two are giving funds while our youngest is still involved in volunteering for his favorite cause.

Each year at Thanksgiving, we sit down as a family and decide what our family will do this season to help others. We have adopted soldiers for a year, adopted families over the holidays that could not have Christmas, we have wrapped gifts at local Childrens Hospitals and voted on which non-profits we want to support. Each person trying to convince the others why their cause is most worthy.

The reality is that there is no simple answer to this question and that raising charitable children is an ongoing process. A study from the Women’s Philanthropy Institute at Indiana University said, “the research showed that talking to children about giving increased by 20 percent the likelihood that children would give.”

Here are a few tips to remember as we approach the season of giving:

Six Tips for Raising charitable children:

  1. Start early, as early as 4 or 5 years old. Giving becomes a habit.
  2. Talk to your children about what causes interest them and bring causes to their attention.
  3. Be intentional by involving your children in your own charity endeavors.
  4. Use online tools to research organizations to involve your children
  5. Be consistent. Make charity a part of your traditions, the holidays and birthdays.
  6. Emphasize the joy because giving feels great.

Benefits of raising charitable children:

  1. Opens children’s eyes to the fact that others are not as fortunate as they are
  2. Develops empathetic thinking
  3. Fosters an appreciation for what they have
  4. Enhances self-esteem
  5. Correlates to improved performance in school

While this topic is relevant for the holidays, it is important to remember that giving does not just happen once a year. Teaching the gifts you receive from giving should become a way of life not seasonal. Once your children feel how great it is to give, their lives will forever be altered in wonderful ways.

Charity Matters.

 

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

 

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Causes

Episode 51: Free Wheelchair Mission

Did you know that there are 75 million people on this planet in need of a wheelchair? Can you imagine being disabled  and not having access to get around? That is only one of the amazing insights I learned from today’s guest, Don Schoendorfer. Don is the founder of Free Wheelchair Mission. His story is incredible, as is his work in providing over one million wheelchairs to people in need.

Join us today to learn how a MIT Biomedical engineer changed his life and millions of others. You won’t want to miss this amazing conversation. Don Schoendorfer is a truly special human who is an inspiration for all with his journey of service.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Free WheelChair Mission does?

Don Schoendorfer: We’ve designed and learned how to manufacture an inexpensive, durable functional wheelchair that we provide for free to people in developing countries who need a wheelchair. World Health Organization’s estimates that there are 75 million people in need of a wheelchair around the world.

Charity Matters: What was the moment you knew you needed to act and start Free Wheelchair Mission?

Don Schoendorfer: My father worked in a railroad for 49 years as a machinist. One of my older brothers was a chemical engineer and the other one’s a civil engineer.  I just knew from the way we operated at home, always taking things apart and putting them back together, that I would be an engineer. I always knew I was going to do something to help people.

About twenty years ago, we went on a vacation to Morocco.  The first day we were in a very old part of the city, Toronto, probably built during the Crusades. There were dirt roads, buildings close to each other just wide enough for a wagon and donkey to get by. Between the legs of people commuting back and forth on foot, we saw a woman drag herself across the dirt road. She was using her fingernails for traction. And she’s looking at her hands. She’s not looking at anything else but her hands and she’s very careful about how she places them. Her feet were just dragging behind her. Like, they’re just connected to her and they’re not functioning in any way.  She was  bleeding, very filthy and her clothes are torn.

 It was our first trip in a developing country and we were shocked. Shocked at her appearance, but also shocked at the fact that people were just basically just stepping over her. Like she was some kind of garbage and not helping her. We went home and got on with our lives. That’s what I did for 20 more years. Every now and then something would remind me or in the middle of the night. I  would wake up and I’d be thinking about that woman and the struggle she had just to keep alive. 

Charity Matters: What Happened 20 years after you saw that woman?

Don Schoendorfer: A call from God in the middle of the night, in 2001.  He said, “I need to talk to you”  What about? He said, ” Why are you wasting your time? “And I said, “What do you mean?” God said,”Why don’t you use the gifts I gave you to do something for the Kingdom?”   I don’t want anybody to misinterpret, I do not have that kind of relationship with communicating with God. But if I summed up what was going through this was really what I came up with, “Hey, I’m an engineer, I’m an inventor, I can do this stuff.”

I thought, where do I focus my energy?  All of a sudden, there’s this woman crawling across the dirt road. What’s the need, what does she need? I go to Toys R Us and I get some bicycles.  Then I go to Home Depot and I get some white resin lawn chairs.  Then I spend five or six months trying to figure out how to effectively connect them together. And, it’s a white resin lawn chair with mountain bike tires. It doesn’t, it doesn’t look like a wheelchair. But I’m thinking that woman probably would have loved to have something like this. 

Charity Matters: When do you know you have made a difference?

Don Schoendorfer: When I saw this family change.  Can you imagine if you were carrying your 11 year old son with cerebral palsy?  Can you imagine that this boy’s parents had carried him every day of his life. His parents can’t work, and therefore they can’t make enough money to live on.

When they got their son a wheelchair it changed their life. The parents could work and  take their son with them. They could move him to the shade of the rice paddies where they worked. Now, they could both work and they can make enough money to advance a little bit in their economy. Even better they now have the freedom.

Of course, they didn’t know what was going to happen after we put their son in the chair. They probably thought we’re going to take take some pictures and then take it away from him. Instead, we drove away at the end and left that chair to them. We didn’t come back and take the chair. 

These people are already happy. When you give them a wheelchair, it’s so profound. You can just see how hard it is for men to express their gratitude, some are just choked up and they can’t get the words out. They’re just crying and smiling at the same time. The whole family  doesn’t have to carry anyone anymore. He can go by himself. 

Charity Matters: Tell us what success you have had and what your impact has been? 

Don Schoendorfer: Over these last 22 years, we’ve given out over 1.3 million wheelchairs in 94 different countries, developing countries. We don’t give them away in developed countries because there’s usually options for a wheelchair. In the developing world, there’s no option.  If we don’t give him a wheelchair, they’re going to live their life without one. We’ve got partners who actually give the wheelchairs away for us.

So we work through these distribution partners, and we ship them to the closest ocean port, and then they take it from there. At first I was focusing on just the individual, the woman crawling across the road in Morocco, right? And I didn’t see her family, but she probably has one because there’s no way she could keep alive without having a family. After you’ve given away a few wheelchairs you see how it impacts the family because they are the wheelchair.


Photo credit: Ralph Alswang

Charity Matters: How has this journey changed you?

Don Schoendorfer:  The people I associate with changed. I’m more associated with people that are in this field of humanitarian efforts.  Most of my best friends are in developing countries and I rarely get the chance to see them.  I always think about them. These are the people that totally live on faith. They don’t know where the next meal is gonna come from. Yet, if they met somebody who needed a shirt, they would take their shirt off and give it to him. And that’s the way they live.

Charity Matters: What life lessons have you learned from this experience?

Don Schoendorfer: There’s so many other things we can do. Think about what you’re good at. Maybe you get the call from God. Or maybe you don’t. Ask yourself,  what am I really good at? And is that what I’m doing to help people? Am I using those tools to help people?  

CHARITY MATTERS.

 

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Episode 49: Free to Thrive

In our litigious society, attorneys are rarely the heroes, rather they are usually the villains. However, in this story, the attorney is the hero. Her name is Jamie Beck and she is an attorney whose career took an unexpected turn when she decided to do some pro-bono (free) work for a victim of human trafficking. What happened next is a remarkable journey of service and compassion.

Join us today for an inspirational conversation with Jamie Beck, the Founder of the nonprofit Free to Thrive. Jamie shares with us an insight into human tracking and remarkable work she and her team are doing to help so many.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Free to Thrive does?

Jamie Beck:  Free to Thrive helps human trafficking survivors with their legal needs. We also do policy advocacy, training and education. A big part of our training is to help educate the community about this issue through kind of more traditional trainings. We also produced two films to help the community learn about this issue.  I’m so often surprised about how steep the learning curve is with human trafficking. This is not an issue we talk about as a community and most people don’t even know the basics of human trafficking.

Charity Matters: Tell us a little about what Human Trafficking is?

Jamie Beck:  Human trafficking is essentially  exploiting another person. Generally speaking, it’s exploiting them for sex or labor. It can be other things as well. Really, it’s just taking advantage of someone and using them as a source of free labor.  When we’re talking about retracting, it involves force, fraud, or coercion. When we’re talking about labor trafficking, or sex trafficking, it is any minor involved in the commercial sex. That’s human trafficking, regardless of force, fraud, or coercion. And an adult involved in any sort of commercial sex act requires force, fraud or coercion is human tracking.

Charity Matters: What was the moment you knew you needed to act and start Free to Thrive?

Jamie Beck:  I was always very involved in the community growing up, helping out in ways big and small. And that’s something that I grew up with, that mentality of giving back.  I really thought I would do that as a lawyer and that’s a huge part of why I went to law school.

I went to law school wanting to be a public interest lawyer.  Like most law students, I had student debt but got a great opportunity law firm. I said, “I’ll work there for a couple of years, and pay down my student loans, and then I’ll figure out my path from there.” While I was there, the way that I filled my cup of this need to give back and to do some good in my community was through volunteer work and pro bono work at my law firm. That was actually the very beginning of what put me on this path. 

I was really involved in Lawyers Club of San Diego, and taking pro bono cases from local legal nonprofits. I first learned about human trafficking there and discovered there’s a huge need for lawyers to help survivors. And I was like, Okay, well, I’m a lawyer, I can help survivors. So, I took a pro bono case with a survivor who she had some criminal charges related to her trafficking. She came from a loving two parent home. She was very close with her middle class family, a very good student, and was just a normal teenager.  Then she fell in love with an older guy and it was actually him and his family that exploited her. 

There’s so much shame that happens, that she didn’t tell her family was going on. It just kept kind of pulling her further and further into this world. By the time she turned 18, he had complete control over her. She had been kidnapped at that point, and was  no longer able to talk to her family. After I got  to know her story, I helped her with these criminal charges. Essentially,  the ultimate outcome of her criminal case was was an expungement. As a result, we were able to erase her record, or so we thought.

Charity Matters: What are your biggest challenges?

Jamie Beck: One of our challenges is legislative advocacy. In the case above the law and expungement didn’t clear her record. The girl went on to college and she’s trying to get a job and she couldn’t get a job because of her background. They were were running it and her record still showed. We learned there are these laws called vacatur laws that California didn’t have.  So we we had this legislative roundtable where we pitch ideas to elected officials for new bills that will help survivors. Just two months later, in December, we pitched this a local state Senator who took up the bill. He said, “We’re going to pass a vacatures laws.” They did.

Shortly after, a request for proposal or a contract with the County of San Diego for somebody to provide free legal services to trafficking survivors presented itself. This really happened because there was a huge unmet need. Nobody was doing this work in San Diego.  I definitely can’t take all the cases of all the survivors that need this help. We now have this new law. So we have all these survivors who not only need it now, but survivors for years who’ve needed this help, but never get it. So a  huge backlog of cases. At this point, I’ve been involved in anti trafficking work for two or three years and this is now my passion.

 I applied for this funding. I had a name of a nonprofit, I filed articles of incorporation. I’ve created this nonprofit but I don’t have a board, I  just have a name. I had a vision and I understood what the services that we’d offer and how we deliver them. We just didn’t have the funding to do it or the organizational structure to do it.

There was not enough time in the day, I was doing this by myself. We had no staff, we had some pro bono lawyers, and I had some volunteers, but it was just me. So I’m trying to do this by myself and try to get it started with enough very little funding. It was like drinking from a firehose. I think one of the hardest things about being a nonprofit is that there the need for your services. If you are doing something that is having an impact on the community, the need for your services almost always will outpace your capacity to fill it. 

Charity Matters: What fuels you to keep doing this work?

Jamie Beck: What fuels me is truly our clients. I mean, they are so incredible. When I think about both their stories and what they’ve overcome pales in comparison to what I’ve experienced. So like on any hard day,  I think about my clients and their strength and their resilience.  I also think about the wins.  We spend a lot of time at Free to Thrive, we have a lot of hard days, and we talk a lot about the wins because they’re so powerful. When we think about what does it mean to have this client’s record completely cleared?  Or what does it mean for her to have a restraining order custody of her child?  These are things that you just can’t quantify the impact on that person’s life, on their children’s life and  on breaking generational cycles. It’s just it’s incredibly powerful.

Charity Matters: Tell us what success you have had and what your impact has been? 

Jamie Beck: So we we’ve been a nonprofit for six years serving clients for five years. You know, the first couple years are our numbers were so small because we’re  trying to get up and running and learning how to do the work. We’re about to hit a huge milestone and just completed our 500th legal matter.

Charity Matters: If you could dream any dream for your organization, what would that be?

Jamie Beck: I have lots of dreams for Free to Thrive both big and small,  short and long term. So the kind of big visionary dream is to be a global organization. To work on this issue, not just locally or regionally but on a on a global level because human trafficking is a global issue. I would love Free to Thrive to be to have a global footprint, and help survivors everywhere.  You know, there’s such a huge unmet need for services for survivors 

Charity Matters: What life lessons have you learned from this experience?

Jamie Beck:  I’m learning my own strengths and weaknesses and growing as a leader.  It’s one thing to run an organization and it’s another thing to have a staff of people, to be able to have a vision, lead them forward and support them.

Charity Matters: How has this journey changed you?

Jamie Beck: I’m just constantly learning and growing and finding  how to how to be better and do better.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Effective Altruism

Last week I was asked to be a part of an interesting conversation from an East Coast Think Tank. One of the topics that came up was Effective Altruism. Today, I thought we would jump into the topic. There has been a lot of recent talk about the term Effective Altruism. What is exactly is effective altruism?

What is Effective ALTRUISM?

The simplest way to define it is to answer the question, “How do we use our resources to help others? ” In 2011, philosopher Peter Singer began asking these questions of the global community. Since that time there have been a number of books and the movement has grown.

Some of the key leaders in this global movement are Give Well and the organization 80,000 Hours. These two groups are asking questions such as, “Which charities improve global health the most per dollar?” Other questions such as, “How can I use my career to make a difference?”

The 80,000 hours Philosophy

The 80,000 hours philosophy is this: You have about 80,000 hours in your career: 40 hours per week, 50 weeks per year, for 40 years. That’s more time than you’ll spend eating, socializing, and watching Netflix put together. And it means that time is the biggest resource you have to help others. So if you can increase the overall impact of your career by just a tiny amount, it will likely do more good than changes you could make to other parts of your life.

The Give Well Philosophy

The Give Well Organization wants to help guide you and your dollars towards global issues such as malaria and a host of global issues where your dollar is stretched farther. They are willing to guide you in investing your giving as well. Here are a few of their thoughts: We take zero fees and use our most up-to-date research to grant your gift where we believe it will help the most. We typically grant this pool of funds to one or more of our recommended charities each quarter. Once we grant your donation, we’ll email you to let you know which charity or charities we selected and what we expect your donation will accomplish.

While Effective Altruism is not one organization but rather a global movement with many groups coming together trying to change the way we look at our world’s problems. There is also a large group of people that are trying to get us back to our roots which is taking care of our own communities at home. Another grass roots movement where going local, supporting small business and your local nonprofits versus the global movement presented by effective altruism. The local movement believes that if we each take care of our own communities we will not have to worry about those around the globe. Almost a shift back to the primitive days of tribes when no one in the tribe went hungry.

Both groups want the same thing, and that is to make our world better. Each side of this argument has their own ideas and beliefs. No matter how we help our fellow man, as long as we are helping, well that is good enough for me!

Charity Matters.

 

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Charity Profile

Episode 48: Jimmy Miller Memorial Foundation

Growing up in LA the surf culture is a huge part of many of our lives. For those families that live on the water the connection between community, family and ocean is a very special one. Today’s guest, Nancy Miller, raised her family in a beach community where surfing was a huge part of their lives. When an unexpected tragedy happened to their son Jimmy they knew their lives were forever changed.

Join us today for an inspirational story about the power of one family’s love and the incredible legacy Jimmy Miller has left on thousands with the Jimmy Miller Memorial Foundation. An organization that uses adaptive surfing, to help  children with disabilities, veterans, health care workers and so many more heal through their amazing work and the power of the ocean.

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what THE Jimmy Miller Memorial Foundation does?

Nancy Miller: The Jimmy Miller Memorial Foundation uses surfing and a form of adaptive surfing, that we created, to help those with mental and physical disabilities feel the healing power of the ocean.  Knowing that what we know about how people react to being in the ocean, whether it’s the chemistry of their bodies, their joy,  their happiness, and the complete giddiness of changing their whole mental well being when they go to the beach. So that’s that’s the basis of the Jimmy Miller Foundation. Teaching people to surf using an adaptive form of surfing and combining it with group therapy. The result is letting the healing begin for youth and adults all over the country.

Charity Matters: Did you have a philanthropic BACK-ROUND?

Nancy Miller: Prior to Jimmy Miller foundation, I was a wife, a mom, student, and my jobs have been everything to prepare me for what I’m doing now. I never thought that what I did in the past would so well prepare me for what I’m doing now.  I worked with the Elton John AIDS Foundation when it very first got going, so we’re talking 1994.  And I was lucky enough to be part of a incredible staff there and I did special projects for the Elton John AIDS Foundation, which is a foundation that deals with helping those with HIV and AIDS. 

After I left the Elton John AIDs Foundation, my husband came home saying he had met an amazing man from a board that he was on. His name was Jean-Michel Cousteau.  Everybody knows his father, Jacques Cousteau and the Cousteau Society. Well, Jean-Michel had started his own foundation called Ocean Future Society. And after spending a week with him I signed on to help. 

It was such a joy to work with Ocean Futures and Jean-Michel.  All the people I met that were so they were absolutely consumed with making the world, especially our water world,  safer and better for humans. One of the things that I loved best about Jean-Michel is that he was so non-proprietary. He wanted all the nonprofits in the ocean world to join together. They weren’t in competition to raise funds but they were there to help the world. The way they could help the world was by joining forces. So to me, that was a huge lesson in collaboration on a global scale that I was able to absorb.  I just feel so lucky to have worked with these such exceptional people who have changed our world so much.

Charity Matters: What was the moment you knew you needed to act and start The Foundation?

Nancy Miller: We were pretty normal Manhattan Beach family. My kids grew up in Manhattan Beach, California. And most of our family activities were all centered around going to the beach. Jimmy fell in love with surfing when he was seven. He knew from that age on that that’s where he wanted to be in that in that water space. That’s how he lived his life. So by the time he was 10, he was surfing in contests. After high school,  before he went to Cal, he passed the Los Angeles County lifeguard test. So he became in Los Angeles lifeguard which was ultimately a life changing occupation for him. Jimmy was a scholar athlete. He got into Berkeley and started the first surf club it Cal ever had. 

After he graduated, he started his company called Pure Surfing Experience. When he started it he wanted to bring surfing to everyone. He was running this company and he met and married a young model.  Unfortunately, they separated after a few years. At this time, Jimmy had grown his company, traveled all over the world, teaching lessons, and he was writing newspaper articles. He tore his labrum in his shoulder and was going through this very difficult separation. And he had been the joy of everyone’s life and a golden light in the world, all of a sudden, he became very anxious and concerned.

There  wasn’t any prior evidence of any mental illness in our family.  With this injury, he couldn’t go in the water. When he wasn’t able to go in the water, it totally changed his body chemistry and his brain chemistry. Wow, it threw him into a real tailspin. In May of 2004, he had a psychotic break. 

On August 7, 2004, he took his life and changed all of our lives. He changed the lives of everyone who loved him, the surf community and the lifeguard community. The community of Manhattan Beach all came together, along with friends all over the world, in disbelief that Jimmy had had this undiagnosed mental illness.  Within six months of Jimmy’s death we began to plan a way to use surfing to provide self efficacy. A combination of a guided surfing adaptive surfing and talking about it or talk therapy.

Charity Matters: What are your biggest challenges?

Nancy Miller: For us, the challenges became finding enough volunteers.  Those first five or six years, we really didn’t not have that problem.  Being a being able to make sure there  was an occupational therapist in part of the program.  It’s not just about surfing, it’s about that talk therapy. It’s about having a therapist on on site at every single session. As we grew, and the numbers changed it was a matter of working overtime to find the qualified people to actually give the surf lessons.

Charity Matters: Tell us what success you have had and what your impact has been? 

Nancy Miller: We’ve had four major studies about surfing and depression published in journals. We have served 5000 at risk children and over 150 Marines and veterans with PTSD. There are about 120 surf therapy organizations worldwide who all use our technique and process. So what our impact is right now is unbelievable. What started as a family foundation is now worldwide. When people talk about Ocean Therapy, surf therapy, the Jimmy Miller Memorial Foundation is where everyone got the basics.

We have now added Health Care Workers from the front lines of Covid who suffer from PTSD, depressions and suicidal ideation.  Two hospitals are participating and their staffs have experienced significant anxiety reduction by surfing with JMMF. Our newest group is young adults with Special Needs from the Friendship Foundation.  Their ages ranged from 18-35, and included non-verbals, on the spectrum, Downs Syndrome and more.  Everyone surfed, rode a board on their tummy’s or standing up, and were able to share their experiences with exuberance and joy.

Charity Matters: What life lessons have you learned from this experience?

Nancy Miller: I think as I said, it takes a village. You cannot do something alone. It takes all it takes all of those inner people that are intertwined. And you need to be able to reach out and ask for help. It doesn’t just happen to you. Have faith in the process and being able to surround yourself with people who understand.

Charity Matters: How has this journey changed you?

Nancy Miller: I really have. As I mentioned before, for the first five years, it was just too painful to talk about Jimmy.  For me, it wasn’t how he died but how he lived. The big difference now is that I can talk about how he lived and what a difference his life made. So I think in terms of my biggest change is that I couldn’t have had this conversation with you. I just couldn’t have, it wouldn’t have worked. Now, I’m so happy to share his stories. And if I shed some tears while I’m talking, it is just part of the story. It is part of my mother’s story and this is a family story.

CHARITY MATTERS.

 

To learn more about The Jimmy Miller Memorial Foundation view their video Here
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Episode 45: Happy Community Builders

Over the years in all of my conversations, the story of founding a nonprofit usually involves a tragedy. Today’s conversation all began with one man who was going to become a grandparent and didn’t like the world his future grandchild would inherit. So, he got to work in trying to create a better world with kindness through his nonprofit The Happy Community Builders.

Join us today for an inspiring conversation that will confirm that one person can make a difference. Our guest, Barry Braun, shares his motivation and very clear ways that each of us can become Happy Community Builders in our own communities across the globe. His message of getting back to taking care of our local communities as the world always has is truly inspiring. You won’t want to miss this.

Here are a few highlights from our conversation:

 

Charity Matters: What was the moment you knew you needed to act and start Happy community Builders?

Barry Braun: Well, it started when I was becoming a grandfather. I was reflecting on my grandchildren’s future. At that time, there was only one granddaughter, but now there’s four. The picture that was forming in my mind looked troubled to me, it didn’t look like a happy picture. So I decided I wanted to do something about that. And it has been a journey to get from there to here. I started off by thinking who’s making all the problems in the world? 

It evolved into thinking, okay, so communities are foundational to our well being, we have always been in community. And, it’s only been in the last 40 plus years or so that we started to devalue the importance of community. Where we started to place greater emphasis on self reliance, and personal gratification and that sort of stuff. We started to lose our sense of responsibility to the community.

Today, it’s more of the government that should fix all my problems and make me happy. All I need is a place to live,  a shopping center close by and everything’s good. Right?  Take care of me.  I don’t think that’s the future I want for my grandkids.

Charity Matters: Tell us a little about what Happy community Builders does?

Barry Braun: The idea of Happy Community Builders, is that community builders, connect, share and CO -create in a sandbox of ideas so that they can be more effective at what they’re actually doing now, but more importantly, empowered to take on a new vision for the future.

The research says there’s over 200 variables that affect communities but they all come down to a commonality. That commonality is that people know each other. People have a sense of belonging with each other. And they look out and care for each other. How do you rebuild that kind of community? So I had developed a process. My background is coaching and cultural change.

We enable citizens in a community to follow a prescribed process, where the shift the story of their community. So one of the things that I’ve learned is that, like you, and I, we each have our own personal story. And that personal story, pretty much defines our behavior. And we act according to our story. But community communities also have a story. So if you ask a half a dozen people where you live, tell me what’s the story of our community here? Then you’ll start seeing a commonality show up.

If you wanted to shift a community, what I learned was you have to change the story of the community. So we developed a process that was able that ordinary citizens were able to actually take this process into their community. And over an 18 month, 24 month period, the story shifted, and the community’s attitude towards themselves shifted. And wow.

Charity Matters: What are your biggest challenges?

Barry Braun: There’s a lot of blind faith that I could actually do this. And the first first couple of tries, it’s semi work, but not really worked. But as we went through more communities, we got it down pretty solid as being able to work. When COVID happened, we kind of went on a hiatus for a while.  That gave me time to sort of reflect on my goal in changing this world for the benefit of my grandchildren and my grandchildren aren’t going to live where I live.

So how’s it get scalable? And from there, that’s where Happy Community Builders started showing up.

Charity Matters: Tell us what success you have had and what your impact has been? 

Barry Braun: We have representatives from six countries at this point in time. The Happy Community Builders actually only got launched in March of this year. Our predecessor launched in 2013. So we’re making pretty good progress. 

We started off the principle of the happy community process, if you start with one, expanded to five, five grows to fifty and fifty grows to 500, etc,. It grows more or less organically and that’s what’s happening right now with Happy Community Builders. There are people joining pretty much every day. And they’re joining because other people have talked about what is going on at the Happy Community Builders and that they should be there too.

Charity Matters: So if I want to make my community better, what would I need to do?

Barry Braun: So it’s really simple, you go to Happy Community Builders.com and register. So that’s the first step. you’ll find that there’s a pile of resources that you can use today to help you with what you’re doing. Happy Community Builders is filled up with professionals like yourself who are working in community to try and make it better. And they each know things that are special. They have expertise so they share their expertise in workshops, and we record those workshops.

There’s a library of their workshops on how to do this and how to do that community, there’s also a library of ideas. So in a library of inspiration or, or brain food, where you can go and see what other community builders are finding in their reading lists that they find helpful. We’re just setting up a library of forms. So at Happy Community Builder you don’t have to invent it all over again, it’s going to be there.

Charity Matters: If you could dream any dream for your organization, what would that be?

Barry Braun: That our governments, our business, and our citizenry would all put community well being at the first of their list of things that are important.

Charity Matters: How has this journey changed you?

Barry Braun: Well, I have hope. But it’s probably got a pessimistic side to it. Because  I’m watching people in the United States. And I don’t see that going in a happy direction from where I can tell. I really, really hope and I believe it’s possible.  I really, really hope that the citizenry of the United States can want a different future than the way that their politicians are building for them right now.

Charity Matters: What life lessons have you learned from this experience?

Barry Braun: What I’ve learned is that it can happen at the community level. We’ve taken a community of 20,000 people and completely changed the mindset of the 20,000 people.  People now reach out to each other when they would be hesitant to reach out to somebody and now they actually look out for each other. They actually look for somebody else’s problems to see how they might help, rather than looking the other way, which is what they used to do. So if we can do that on that scale, then why can’t we do it on a much bigger scale? And that’s one of the biggest lessons I think I’ve learned.

 I’ve also learned that people actually want a different world. The only thing that’s keeping them from having that different world is their own fear. If we can tap into the people who want the world different, which is actually most people, and keep them safe, they will become a very powerful force to make our world a better place.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
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Childrens' Causes

Welcome to Season 4!

Welcome to Season 4 of the Charity Matters Podcast. We are thrilled to continue bringing the best humans on earth to share their journeys in service to others. So grateful for your continued belief in good.

Since we are at that crazy time of year when summer blends into back to school we thought today’s guest would be the perfect person to launch our new season. Natalie Silverstein is a nonprofit founder and the author of a new book inspiring the next generation of philanthropist. We are thrilled to have her share her journey in philanthropy and in raising philanthropic children.

Join us for a terrific conversation about her journey starting a nonprofit for Parkinsons to writing a book to inspire others to serve.  Natalie is pure sunshine in a bottle and just what we need to get inspired for a new school year. More importantly, her new book, Simple Acts: The Busy Teen’s Guide to Making a Difference is inspiration for the entire family.

 

Here are a few highlights from our conversation:

 

Charity Matters: Growing up did you have a philanthropic family?

Natalie Silverstein: My parents were immigrants from Ukraine, they actually met in a displaced persons camp, which is what we would call a refugee camp today. They both came over to the United States after the war, in 1949, and they married in 1950.  I’m a first generation American, I’m very much a Ukrainian American.

As immigrants without very much education,  they gave back to their church. They gave to other Ukrainians who were coming over to get settled. They very much volunteered and participated by giving so much to their church community because that was really foundational for them.

Charity Matters: Tell us about the journey from growing up to starting a nonprofit?

Natalie Silverstein: I think I always wanted to do something where I was helping people. So as I was coming up through high school and into college, I decided to study health policy and administration. I wanted to work in a healthcare environment where I could help people. After getting my Masters Degree, I had a 15 year career in health care, hospitals and managed care companies. That sort of thing was sort of foundational to this other work that I’m doing. 

I decided to stay home and focus on raising my kids and all of that. And at some point in those years, this work of becoming sort of an expert/resource for people who want to do service in their community  really started to develop. Then simultaneously, we found out that my young husband was diagnosed with Parkinson’s disease.

Charity Matters: What was the moment you knew you needed to act and start the Silverstein Foundation?

Natalie Silverstein: My husband has a particularly unique sort of genetic form of Parkinson’s. He said to me, “You know what, I have all of these friends in research and in science and in venture capital, I think we should start a foundation.”  I have a background in running health care companies and I worked for nonprofits  which was sort of a funny synergy. You know, it was sort of like two people that had this terrible thing happen. Yet, we decided to turn that around and try and make something positive out of it. So we founded this foundation for Parkinson’s with GBA, The Silverstein Foundation. Our mission is to fund research to find a cure for Parkinsons but more specifically for Parkinson’s with GBA. 

Charity Matters: Tell us what success you have had and what your impact has been? 

Natalie Silverstein: Since March of 2017, we have made 35 research grants being made through partnerships with biotech and pharmaceutical companies to find a cure for this disease. My husband had worked in healthcare venture capital,  mostly focused on funding companies that were doing research into rare diseases. He could have taken this news and just feel sad but we also became sort of energized.

We said, “If there’s a solution to be had, if we can accelerate research into finding a cure, why would we not do that?”  There are so many of these stories where people are faced with this very, very difficult news. They could turn that inward, and they could get sad and feel sorry for themselves. Or you could turn it outward and say, “What small thing what, what kind of legacy might I leave, if I could move the needle, even a couple of inches?”

Charity Matters: How did you go from nonprofit founder to Author?

Natalie Silverstein: Let’s just be really honest, life is what happens while you’re making other plans. When my kids were little and I’m here trying like hell to raise them to be grateful, grounded empathetic kind people. At the end of the day, that’s the most important thing that we can do as parents. I was desperate to find opportunities to volunteer in our community. We live in New York City.  So I was just flabbergasted that there weren’t a lot of nonprofits that were welcoming us with open arms.

 I decided to figure out a way to create a database or a listing or something to help families like mine. And I partnered with an organization called Doing Good Together. They’re based in Minneapolis. I reached out to the founder and said,  “I’m flabbergasted that I can’t find opportunities here in New York City. Just like a straight listing of places that would accept us. And I want to start doing that.”

She said, ” I’ve been dreaming of sort of franchising this idea and sending, Doing Good Together branches all over the country, and you would be the first. So sometimes, there are no coincidences.  I launched the first regional branch of Doing Good Together.  I’ve been doing that for nine or 10 years, and I curate a listing of family friendly volunteer opportunities, that is pushed out to subscribe 1000s of subscribers every single month. It’s how I learned about organizations and volunteer work that we can do in the five boroughs of Manhattan of New York.

So I said to myself after I became this lady in my community, this kind of free resource. “Hmm, seems like there’s a book here”. If you look out in the world of literature of parenting guides and things, there really aren’t very many. I did a little competitive analysis and I’ve always been a writer. So, I put together a proposal and somebody bought it. The first book kind of magically happened in 2019. Now my second book, Simple Acts: A Busy Teen’s Guide to Making a Difference.

Charity Matters: What do you hope your book accomplishes?

Natalie Silverstein: I hope that we can teach the importance of service to the next generation. There’s so much research around this that it is kind of staggering. We know that volunteers live longer, they are happier, they are less depressed and they are more connected. Young people who volunteer are more likely to stay in school.  They’re more likely to do well academically and  they’re less likely to engage in risky behaviors.

Young people who volunteer with friends are more likely to continue to want to do that. Young people, children and young adults who volunteer with their families are more likely to do that, as adults with their families.  We also know that when you do something nice for another person, even if that person doesn’t acknowledge it, or doesn’t know that it’s you, you get an endorphin rush. There is literally an adrenaline endorphin rush, it is similar to a runner’s high. They call it the helpers high, and it’s a real, physiological experience.

I don’t know why we wouldn’t want to give that gift to our children, and to our teens. Particularly right now, in terms of social isolation. Volunteering is a real way to connect with other people to look a person in the eye and have a conversation and learn about their life experience. It gives kids a worldview. It is just so vitally, vitally important. I can’t I can’t stress enough the benefits.  I don’t think there are any downsides.

Charity Matters: How has this journey changed you?

Natalie Silverstein: I think that I have a lot more gratitude for my life. Certainly, and I appreciate so much the work that people do. You know, I’m also part of a couple of giving circles one here in New York City called the Impact 100. NYC which is a women’s giving circle.  I am just blown away by the nonprofit’s that come to us with grant applications. We get to review and  visit and then we give out one or two transformational grants of $100,000 each.

Over and over and you see this through your work on this podcast, that a person has a dream a person has an idea a person has a passion, something they’re concerned about something that has impacted them personally. Then they say what can I do to help?  Somehow, they just make it happen on a shoestring with no money and no resources and no place.  Regularly,  I am blown away  by the nonprofits that I have met through the giving circle, through my work with Doing Good Together, through my research from my books and through the organizations that we’ve personally gotten involved with as a family. When I look at these nonprofits that I’ve learned about over these years of doing this work, they give me hope.

 

Charity Matters: What life lessons have you learned from this experience?

Natalie Silverstein: You know, you mentioned earlier, we’re living in a really tough time. It is a very, very sad, sad world that we’re living in and so much that feels very helpless and hopeless. And you think to yourself, “What can I possibly do to affect any change and make this any better? ” 

 I hope if I can inspire even one teenager to say, “You know what, there is something I can do.  I can’t change the whole world. But maybe there is one person that I can help today.”  That could impact that person’s whole day, their week or their life.  I just want people to know that they can do that, we call can.

CHARITY MATTERS.

 

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Causes

The wait is almost over

The days are long and the years are short. That is exactly how I feel about summer. There are moments that the long hot days feel never ending and yet in the blink of an eye summer is practically gone. Some  schools are actually back in session! It truly is a wonder.

Summer is a crazy time for me, especially with TACSC. Our summer youth leadership programs are the pinnacle of our year.  As a result, Charity Matters takes a brief vacation. So thank you all for your patience. We are excited to launch Season Four of our Podcast next week and we have been busy these past few weeks gathering some amazing stories for you.

It’s hard to believe that we already have four seasons under our belt. We are so grateful for all of you who have subscribed  and left reviews, we are grateful for every last one! We had thought about launching Season Four today because it is National Nonprofit Day. 

What is National Nonprofit Day? It is a day set aside to recognize the immense effort nonprofits put into impacting their communities across the globe. We decided to give everyone another week to get settled and back to school. New episodes of Charity Matters  celebrating all the incredible humans who work tirelessly everyday to make your world better through the nonprofit organizations they create. It is all cause for celebration. So happy end of summer, happy back to school and Happy National Nonprofit Day!

CHARITY MATTERS.

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Charity Matters Inspiration

Love Your City

It is always so nice when the tables are turned, being a guest is always much easier than being a host. So when Bob Dalton, the founder of Love Your City, podcast reached out it was an easy yes. Bob is an amazing entrepreneur who founded the socially conscious company Sackcloth and Ash. His business follows the Tom’s Shoes model that you buy a blanket and give a blanket to the homeless. His mission is to blanket America.

In addition to Sackcloth and Ash, he has launched a new venture called Love Your City. His goal is to connect people to their  local grassroots nonprofits to get them to donate, volunteer and advocate for their communities.  He is highlighting this work  by interviewing nonprofit founders across the country who are doing great work. Sound familiar? If you like Charity Matters than you will most definitely enjoy Love Your City. 

Here is the link to our fantastic conversation. It was so fun chatting charity, good people and our mutual journey of finding them. Take a listen and make sure to check out Love Your City.

Thank you again for continuing to join us on the journey for good people doing amazing work.

CHARITY MATTERS.

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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