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Episode 94: Penny’s Flight

Some stories meet you in the deepest places and still lift you higher. This week, you’ll meet Kate Doerge….wife, mother, builder of community……who turned the unthinkable loss of her daughter, Penny, into a living legacy called Penny’s Flight. What began in a cocoon of love and butterflies has become a national movement of students, families, and friends spreading wings for those living with neurofibromatosis. Kate’s pillars; finding beauty in imperfection, choosing positivity in the face of challenge, and having faith over fear…..these aren’t just slogans; they’re the way she gets up, puts both feet on the floor, and keeps going. You can feel Penny’s light in every word.

Frankie Doerge, Chad Doerge, Kate Doerge, Henry Doerge

If you’ve ever wondered how purpose is born from pain, or how one brave family can transform grief into hope for thousands, this episode is for you. Kate’s story is tender and electric, grounded and soaring….all at once. It will remind you that we always have a choice in how we play the cards we’re dealt, and that a single flutter can change the weather for someone else. Come listen, be moved, and like Penny……leave with a bigger wingspan.

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Penny’s Flight does?

Kate Doerge: Penny’s Flight exists to keep our daughter Penny’s big, beautiful light alive and to change the future for families living with neurofibromatosis (NF). NF is actually the most common genetic condition in the U.S., but it’s also one of the most underfunded. Roughly 1 in 2,500 people are affected, about 150,000 Americans, yet most people have never heard of it. Penny was diagnosed at four months old, and even then we refused to let a diagnosis define her. She lived joyfully for sixteen radiant years.

When Penny passed on November 11th, 2022, our community wrapped us in so much love that my husband and I knew we had to channel that energy into purpose. Within four weeks, we launched Penny’s Flight. Since then, wings have truly spread: we’ve raised close to $6 million, started more than a hundred student-led chapters at high schools and colleges, and rallied teams and towns around “Play for Penny” lacrosse games, “Pucks for Penny” hockey nights, bake sales…..whatever brings people together to shine a light. Our three pillars guide everything: finding beauty in imperfection, choosing positivity in the face of challenge, and having faith over fear. And our mantra, “It’s your wingspan, not your lifespan” is Penny’s message to the world.

Charity Matters: Tell us a little about Growing up? Did you have any role models that inspired you in this work?

Kate Doerge: My role models were my parents from day one. My mom was a dancer and an absolute beam of light….belly dancing, tap, jazzercise……you name it. She taught me how physical strength fuels mental strength and how movement lifts you out of darkness. My dad was a devout Catholic, a former Marine who once studied for the priesthood. From him I learned faith, service, and the belief that there’s something bigger than all of us.

Our home life wasn’t cookie-cutter. My mom might pick me up in leg warmers while other moms wore turtlenecks. We traveled to Haiti and the Dominican Republic in the 1980s, long before “service trips” were common….so I saw early what it meant to help beyond your comfort zone. That shaped me. In my career in PR and fashion, I was always asking, “Where can I make a real impact?” Those seeds of service were planted well before Penny’s diagnosis, and they sprouted the moment we needed them.

Charity Matters: What was the moment you knew you needed to act and start Penny’s Flight?

Kate Doerge: I always return to my father’s advice the night before our wedding: “You will be challenged. It is up to you how you play the cards you’re dealt.” When Penny’s brain tumor, glioblastoma…..accelerated in her last two years, we chose to celebrate her life loudly. During her final week, instead of closing the doors, we opened the windows and invited everyone in. We created what I call a “love cocoon.” There were butterflies everywhere….her sign to us.

After we celebrated her life, my husband and I looked at each other and knew: we have to do something. My background is launching brands; his is finance. Our community was saying, “How can we help?” Four weeks after November 11th, we launched Penny’s Flight. It felt like Penny was our partner in it…..like she was saying, “Keep going.” Even on the day she passed, we took a family walk, got back in the car, turned the ignition, and “Walking on Sunshine”…her song blared from the radio though it hadn’t been on before. That was our first sign: move forward, one step at a time.

Charity Matters: What are your biggest challenges?

Kate Doerge: Grief and logistics don’t take turns. I had two sons, a husband, a home, a community of Penny’s sixteen-year-old friends who had never lost someone, and extended family…..all hurting. I felt a responsibility to lead with light, to model a path that others could follow. Practically, the challenges are familiar to every founder: building infrastructure while building momentum; sustaining funding; making noise in a noisy world. Add to that the complexity of medical research siloed efforts, niche subfields, and the realities of federal funding. Last year, NF’s federal allocation was cut; we went to Capitol Hill and advocated to restore it. It’s back on the bill for review, but advocacy never stops.

And yet the hardest challenge….turning pain into purpose….has also been our greatest teacher. Every day we choose the light. Every day we choose action.

Charity Matters: What fuels you to keep doing this work?

Kate Doerge: Energy can’t be created or destroyed….it transforms. I feel Penny’s energy, and my parents’ too. I feel it in the butterflies, in the serendipities, in the way doors open at the exact moment you need them to. I also feel powered by the next generation. Students reach out constantly: “Can we host a game? A bake sale? Start a chapter?” Watching young people use social media for good….that’s rocket fuel.

Our community fuels me. Media friends like Norah O’Donnell shared our story on CBS within a week of launch, and Oprah Daily invited me to write about “playing the cards you’re dealt.” Brand partners like Veronica Beard, J.McLaughlin, Roller Rabbit asked, “What can we do?” Their platforms amplify NF awareness in ways research labs alone can’t. That collaboration…science, students, storytellers, brands….keeps me going.

Charity Matters: When do you know you have made a difference?

Kate Doerge:Impact shows up as a human story. A mom DM’d us: her four-year-old was just diagnosed with NF; she’d gone down a dark Google rabbit hole. That same day, she opened her mailbox to a J.McLaughlin invite for a Penny’s Flight event and found a different rabbit hole….hope. Months later, she organized a Blackstone Gives Back team, pitched Penny’s Flight, and won $125,000 for NF research. That’s a life changed turning into lives changed.

Another young woman with NF wrote when Roller Rabbit launched their butterfly pajamas for us. She said, “I never thought my favorite brand would support the condition I’ve lived with. I finally feel seen.” That sentence…I feel seen…that is impact.

And then there’s community: our first Penny’s Flight Family Jamboree drew 650 people….blankets on the lawn, kids running, live music on a summer night because Penny loved birthdays. We didn’t just raise funds; we raised each other.

Charity Matters: Tell us what success you have had and what your impact has been? 

Kate Doerge: In two and a half years, we’ve raised close to $6 million, launched 100+ student chapters nationwide, and activated schools and teams through “Play for Penny” and “Pucks for Penny.” We’ve become a marketing engine for NF, partnering with Children’s Tumor Foundation to complement their strong scientific backbone with our storytelling and awareness. We brought leaders together at Cold Spring Harbor Laboratory’s Banbury meeting, a lock-in think tank of global experts because progress accelerates when silos come down.

On the research side, we’re funding work that’s already showing promise. For a disease as heterogeneous as NF, that means convening optic glioma experts next to cognitive researchers, next to tumor biologists, next to data scientists and pushing for shared insights rather than parallel tracks. When we measure impact, we count dollars and chapters and media reach, yes. But we also count new collaborations formed, young advocates trained, and families who no longer feel alone.

Charity Matters: If you could dream any dream for your organization, what would that be?

Kate Doerge: It’s not a dream….I feel it in my bones: we will find a cure for NF. That conviction is why I pour the same determination I once poured into giving Penny the fullest life into this mission. The roadmap is clear: sustained funding, coordinated research, relentless awareness, and a movement of people who believe that wings scattered from a thousand small actions can change the weather.

Charity Matters: What life lessons have you learned from this experience?

Kate Doerge: First, we always have a choice in how we play the cards we’re dealt. That wisdom from my dad has become a daily practice. Choose to move literally. Put your feet on the floor. One step. Then the next. Small, actionable steps carry you through the mud of grief.

Second, look for the signs. They’re real. Butterflies on the window in November. A radio that wasn’t on suddenly playing “Walking on Sunshine.” When you keep your eyes open, you realize our loved ones are with us differently, but powerfully.

Third, collaboration is oxygen. In research, in advocacy, in community building, the magic happens when we invite everyone to the table….scientists, students, brands, media, families. We each bring a wing to the flight.

Fourth, service multiplies. The “butterfly effect” is not just a metaphor….it’s a strategy. A student chapter post turns into a game night turns into a grant turns into a lab experiment turns into a breakthrough. Tiny flutters, big weather.

Finally, positivity is not denial; it’s discipline. Choosing beauty in imperfection and faith over fear doesn’t erase pain. It transforms it into purpose.

Charity Matters: How has this journey changed you?

Kate Doerge: Three years ago, I couldn’t have imagined this life….writing a book, speaking about reimagining grief, launching workshops to help others navigate adversity and midlife reinvention, stewarding a national movement in Penny’s name. I used to search for the “one client” that would let me move the needle; now I see that the needle is people, and the work is love organized.

I am more certain, more grounded, and oddly, more joyful. I feel accompanied by Penny, by my parents, by a community that believes in light. I’ve learned that grief and gratitude can share a sentence. I’ve learned that teenagers can be fierce world-changers. I’ve learned that when you open your doors in the hardest week of your life, you teach an entire community how to love without fear.

Most of all, I’ve learned that it’s our wingspan…how far we’re willing to reach for others…that measures a life.Penny taught me that. Now it’s my job to help the world learn it too.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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PodcaStars Magazine

Being a cover girl……or even a back cover girl….was never on my vision board. I’m actually laughing as I write this because I have a few girlfriends who were real, honest-to-goodness Cover Girls. You know, the kind with perfect hair, perfect lighting, and perfect poses. Meanwhile, I’m over here absolutely thrilled to be what I’m calling an “Actual Back Cover Girl.” Is that even a thing? Well, I guess it is now…

In full disclosure, discovering that I was featured on the back cover of this month’s PodcaStars Magazine was such an unexpected and truly lovely surprise. It’s one of those moments that makes you stop, smile, and think, Wow, how did I get here? I never set out to be on any kind of cover. I set out to tell stories that matter …. stories about people who give, who serve, who make our world a little better. But life has a funny way of surprising us when we’re busy doing what we love.

A few weeks ago, I received a note from my publisher, She Rises Studios, the same amazing team who published my book Change for Good. They asked if they could interview me about my podcasting journey for their October issue of PodcaStars Magazine. Of course, I said yes ….. I’m always happy to share how The Charity Matters Podcast began and why shining a light on everyday heroes has become one of the greatest joys of my life. What I didn’t expect was to end up on the back cover of the magazine.

Behind this beautiful surprise is a woman whose story inspires me deeply ….. Hanna Olivas, the founder of She Rises Studios. Hanna is a nonprofit founder on a mission to help women find their voice and use it. She’s built an incredible ecosystem of empowerment ……a streaming network, a powerhouse publishing team, and multiple magazines, including PodcaStars. Each one is designed to lift others, to amplify voices, and to encourage women to stand in their power.

But Hanna’s heart for service reaches far beyond media. She also founded The Brave and Beautiful Blood Cancer Foundation, a nonprofit that supports patients and families facing blood cancers. Her organization goes beyond awareness …. it builds personal connections, offers emotional and financial support, and brings hope to families in their darkest moments. Hanna is a mother, a grandmother, a multi-time author, and one of the most genuine, uplifting women I’ve ever met. She is a living, breathing example of what it means to use your gifts to serve others.

So, when someone like Hanna asks you to share your story, you say yes …..because she embodies everything Charity Matters stands for. She believes, as I do, that storytelling has the power to change lives. Every story of kindness, resilience, and compassion has a ripple effect. It reminds us that good still exists …..and that we can all be part of it.

I’ll admit, seeing myself in PodcaStars Magazine made me reflect a little …..  but because it reminded me how far this journey has come. What started as a small blog about philanthropy and purpose has grown into a podcast, a book, and now a movement…..all centered on one simple belief: that giving changes everything.

I know the print is tiny, so if you want to actually see the story, you can grab a digital copy of the magazine here. Or, if you’re like me, you’re probably reading this on your phone or iPad, squinting and pinching the screen to make it bigger. Either way, I’m just so grateful to share this message of service with a new audience.

And of course, I always share everything exciting with you. You’ve been on this journey with me for almost fifteen years …. through family milestones, loss, leadership, and endless stories of goodness. So thank you for being part of this community, for showing up week after week, and for believing in this mission of service.

I often say I don’t have a therapist… I have you. You tell me how you feel, what you love (and sometimes what you don’t!), and you keep me honest, grounded, and true to my mission of helping the helpers. Together, we’ve built something extraordinary …. a community that believes kindness still matters.

So yes, maybe I’m a Back Cover Girl now and I’m pretty sure that won’t make my headstone:) …but more importantly, I’m still right where I’ve always wanted to be: sharing stories that inspire, celebrating those who serve, and reminding us all that the secret to living is giving.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2025 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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How did we get here?

For almost fifteen years, I have been sharing my journey here each week……through life, love, loss, family, faith, philanthropy, and everything in between. There isn’t much we haven’t covered in all of these years. But today, this is a first for me……and for us. A topic we’ve somehow never explored together: marriage and weddings.

This past weekend, our family celebrated one of life’s greatest blessings…..our son’s wedding. Even as I write those words, I can hardly believe they are real. The day felt like something out of a dream, filled with joy, tears, laughter, and a love so pure it radiated through every moment.

As my husband and I stood at the back of the aisle, arm in arm, ready to walk toward our son and his beautiful bride, I looked up at him and whispered, “How did we get here?” He smiled, squeezed my hand, and without missing a beat said, “I asked you on a date.”

And just like that, the tears came. Because he was right. That one question so many years ago set in motion a chain of love that led to this exact moment….our son waiting for his bride, a new family beginning, a new chapter unfolding.

When I began Charity Matters, my three boys were in elementary and middle school. I’m not even sure Google existed back then! During that time, you’ve watched our family grow up right here on these pages. You cried with me through the Last Lunch, The Last Pass and So Many Last.  Every milestone felt monumental, every transition bittersweet. And each time, we asked the same question: “How did we get here?” Followed quickly by, “Wow, that went so fast.”

It’s funny looking back now. Each stage of parenting felt like the summit…..the great challenge that would finally lead us to rest. We thought elementary school was hard until middle school came. Then we thought high school was the finish line….surely, graduation was the final hurdle! I remember turning to my husband that night, tears streaming down my face, and saying, “How did we get here? Weren’t they just born yesterday?”

And yet, as any parent knows, life has a way of humbling you. You realize that the “end” of one season is merely the beginning of another. You send them off to college, thinking your job is mostly done…..only to learn that parenting never really ends, it just changes shape.

In what feels like the blink of an eye, our boys were out of college, working, building lives of their own. We didn’t think much about what came next. We were simply grateful they were healthy, happy, and finding their way.

But here’s the thing I’ve learned over the years…..and it’s one of the hardest truths for parents to swallow: from the moment our children are born, we start writing a script for their lives. We don’t tell them this, of course, and most of the time, we don’t even say it out loud to ourselves. But it’s there….quietly playing in the background of our minds.

In my version of the script, my boys would grow up to be kind and successful, find good friends, rewarding work with purpose, and eventually, someone wonderful to love. My script had a timeline, too. You know the one….finish school, meet someone nice, fall in love, get married, buy a house, have children. Perfectly linear, perfectly planned.

And then, as life does, it laughed at my plan.

There were detours, heartbreaks, and lessons I never saw coming. There were moments when I silently protested, “This isn’t how the story is supposed to go!” But with time….and a lot of prayer…I realized that the story I was trying to write wasn’t mine to write. My children’s lives are their own stories, not chapters in mine.

It took me years to see it clearly, but once I did, it was freeing. My job was never to control the story, but to love them through it….to trust that the Author of all things had a far better script in mind than I ever could. And as I stood in the most beautiful setting this weekend, watching our son waiting for his bride, I could see how true that was.

Because their story….the one they are writing together….is more beautiful than anything I could have dreamed up.

The moment she walked down the aisle, time stopped. I looked at his face, his eyes brimming with tears, and saw not just my son, but the man he has become…kind, compassionate, faithful, and deeply in love. A man ready to build a life with someone who matches his heart. As he said his vows, tears flowed from his brother’s eyes and everyone else’s because their love was just so beautiful, real and palpable.

Our new daughter-in-law is everything I could have ever hoped for him…graceful, grounded, smart, strong and full of light. She fits into our family like she’s been part of it all along. As I watched them exchange vows, I thought about how, all those years ago, when we were the ones standing there saying “I do,” we had no idea what those words would come to mean.

Marriage is not just a day….it’s a daily choice. It’s the decision, every morning, to show up with love, humility, and grace. It’s choosing to grow together through the seasons, to forgive, to celebrate, to serve one another even when it’s hard. It’s the promise that your story is no longer “mine” or “yours,” but “ours.”

As parents, witnessing that moment is indescribable. It’s joy and nostalgia all mixed together….the ache of letting go and the awe of seeing something new begin. I thought about all the nights I tucked him into bed, all the prayers whispered for his future, and how many of those prayers were answered in that moment.

Later that night, as we danced beneath the Tahoe stars, I looked around the room at the sea of faces…family, friends, people who had loved him since he was little….and it hit me again: How did we get here?

How did we get from those early mornings of tying tiny shoes to tying a bow tie? From bedtime stories to wedding toasts? From Legos to love stories? The years have moved like the pages of a book….some chapters long, some heartbreakingly short, all filled with meaning.

When the band played the final song, I held my husband’s hand and whispered those same words we’ve said so many times before: “How did we get here?” But this time, there was no disbelief in my voice….just gratitude. Because the answer was clear.

We got here through love.

Through every sleepless night, every prayer, every football game and scraped knee, every graduation, every heartbreak, every dinner at the kitchen table, every “I love you.”

We got here through grace….through the quiet, unseen moments when we trusted that even when we couldn’t see the plan, there was one.

And we got here through joy…..the kind that sneaks up on you in the middle of a crowded dance floor when you realize that life, in all its messiness and beauty, has led you exactly where you are meant to be.

As the weekend came to a close and we said our goodbyes, I felt a deep sense of peace. Not the kind that comes from everything being perfect, but the kind that comes from knowing that everything is right.

Parenting, I’ve learned, is a lifelong act of surrender. It’s learning to let go over and over again….of control, of expectations, of the idea that we know best. And in that letting go, we make room for something even more beautiful: watching our children step fully into their own lives, their own love, their own purpose.

So yes, once again, I find myself asking, “How did we get here?” But this time, I know the answer.

We got here because of love…..the love that began with a simple date so many years ago, the love that built our family, and the love that now continues through the next generation.

We got here by walking each step….sometimes with confidence, sometimes with tears…..but always with love.

And now, it’s their turn. Their turn to walk hand in hand, to build a life together, to write their own story.

As for us, we’ll be right here on the sidelines….cheering, supporting, loving and every now and then, still whispering the same words that have followed us through every chapter of this journey:

How did we get here?

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2025 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Episode 93: PopDrop

Some stories grab you by the heart from the very first line. John Snyder’s begins on a first date with his wife, Nikki, when the two of them decided to do something radically simple: instead of sending candy to their toner customers, they’d use that money to feed people experiencing homelessness. That small act became Project Pop Drop. A monthly movement  that rallies “givefluencers” to bring meals, new socks and clothing, and joy-filled experiences to shelters across Los Angeles. Today, Pop Drop is more than a delivery….it’s Easter bunnies and race cars for kids, partners who show up with food and gift cards, and even tiny homes that help families move from encampments into dignity and safety.

What makes John’s story unforgettable is his families full circle story.  I had the privilege of meeting John and his wife Nikki last week and they are a power couple in the best sense of the term. This week’s episode is a shot of hope and action, packed with contagious energy, hard-won wisdom, and tangible ways to help. If you’ve been looking for a reason to believe that giving changes everything…and how you can be part of it…don’t miss this conversation with John Snyder of Project Pop Drop.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Pop Drop does?

John Snyder:  Project Pop Drop Foundation is something my wife, Nikki, and I founded on our very first date. We have a for-profit company…..Platinum International Products & Services…..and someone pitched us one of those “send chocolates and candies to every customer” programs, like Office Depot and Staples. We decided we didn’t want to do that. We wanted to save that money and buy food for people experiencing homelessness. What started as a simple program inside our toner business has blossomed into a nonprofit.

Since 2011, once a month, we go to a different homeless shelter and bring life-saving supplies and partners with us. Bombas donates socks. Whole Foods helps. Raising Cane’s is a big partner—they help feed people and share gift cards so folks can buy food later. Target’s a partner too. We call the people and companies who come with us givefluencers….we trademarked that……because they’re influencing the world by their giving actions.

Over time we’ve evolved. Nikki builds the days into experiences—Easter Bunny visits, race cars for kids living at the shelter, face paint, laser tag……so a hard season can include some joy and smiles. In the early years we’d just drop food. Now our customers and partners come with us, bring supplies, put Pop Drop boxes in their car dealerships and hotels, and give alongside us.

We’ve also grown into housing. We have seven Project Pop Drop tiny homes that are moving families from encampments into safety. Each has a door, a lock; on-site there are washers, dryers, showers, and games. All of this came from deciding not to send M&M’s to toner customers and, instead, to feed human beings.

Charity Matters: What was the moment you knew you needed to act and start  Pop Drop?

John Snyder:  I’m an LA person, big Laker fan. As a kid, birthdays meant my dad took me to the Forum. Once, on the way, I mouthed off……I said something dumb like, “We don’t live that well.” He got mad, drove me to Skid Row, and showed me people sleeping in cardboard boxes. “Dad, people are living in those?” “Yeah. You’ve got it pretty good, don’t you, Johnny?” Right then I said, “When I grow up, I’m going to help those people somehow.”

Years later we did our first Pop Drop at Union Rescue Mission on Skid Row. I told my mom, “We’re going to give back every month” and she started crying. I asked why. She said, “Don’t say anything, but my father was homeless…..at Union Rescue Mission.” I never met him. He had a drinking problem and left when she was 12. I had no idea. We had started Pop Drop at the very place where my grandfather had been homeless. Full circle. That’s when I knew everything was connected and I was on the path I promised as a kid.

On our first date in Century City, Nikki and I said, “Let’s go every month.” Instead of customer gifts, we’d bring food and companies. She asked, “What’s the name?” I said, “I don’t want to show off.” She said, “If you want to expand and get people on board, make the giving pile bigger, you have to name it.” She pushed me. We named it, built donation boxes, and got them into our clients’ businesses. She said, “Make it an experience. You can’t just drop food and leave.” That’s how Pop Drop really began….organically and from the heart.

Charity Matters: What are your biggest challenges?

John Snyder:  We’ve got four kids….triplets and our superstar daughter, Chloe….and we’ve brought them to shelters since they were six months old. In those early nonprofit years, we’d roll the triplets in this long “limousine stroller,” food piled around them, and meet other businesses bringing donations. We’ve been to Skid Row more times than I can count. I’ve had the car swarmed while delivering supplies, people yelling not-nice things through the window while my kids watched. We had to explain: “Don’t take it personally. This is about pain and survival. We’re here to help.”

COVID was the biggest challenge. LAUSD is a big partner; they run donation drives and have our boxes in schools. Suddenly the world shut down. People were told, “Don’t go to shelters.” Meanwhile, shelters are some of the cleanest places you’ll ever see. The whole distribution system, our nonprofit supply chain, broke. We pivoted to Zoom. Students made videos to get donations from families and parents’ workplaces. Wildly enough, during COVID we brought more donations doing it on Zoom than in person. So we kept going.

There was also the noise on social. “Oh, they’re still going to shelters.” “I saw them without a mask.” People were on their couch, and we were out making things happen with Zoom drives, deliveries, feeding people. That pushback actually fueled us. We weren’t going to stop helping people. Period.

Another challenge was resources. People kept saying, “Walmart put your Pop Drop boxes in their stores. Did you know they’ll give grants if you’re a nonprofit?” We became a 501(c)(3) in 2018/2019. That move helped when donations dropped everywhere; Walmart and Target support enabled us to buy more supplies and expand. We never had a grand plan. Things kept falling into place because we kept showing up every month.

Charity Matters: What fuels you to keep doing this work?

John Snyder: I like helping people. I like seeing faces when you help them. I like talking with people, giving hope and showing someone that somebody still cares. I’ve been in rough spots where people helped me, and I know what that means in the moment. It can be everything.

I love that we’re giving back and showing our kids…..and our kids are inspiring other kids. It’s contagious. I love when friends and business associates come with us and afterward say, “John, I’m so thankful we went. We’ve been looking for a way to give back.” People want to help; they just don’t always know how. We say, “Come with us.” That’s givefluencing…..bringing others into the act so the giving pile gets bigger.

And when people tell you to stop doing something you know you’re supposed to be doing? That fuels me too. If everyone had stopped during COVID because they were told to, a lot of people wouldn’t have eaten. We kept going. Educating others fuels me as well…..our online course, Giving While Making a Living, teaches businesses to pick a cause and create a simple monthly social responsibility system. Keep it turnkey: name it, pick the last Saturday at 12 o’clock, show up. If you don’t make it simple, you become a “Thanksgiving and Christmas philanthropist.” We’re about consistent, monthly giving.

Charity Matters: When do you know you have made a difference?

John Snyder:  When customers say, “We know we can buy toner cheaper on Amazon, but we choose you because of Pop Drop,” that’s impact. When companies ask, “How can we get involved?” and then start collecting donations, put boxes in their lobbies, and show up at shelters to make an impact. When a friend or client brings their team and says afterward, “We’ve been looking for this,” I know we made a difference.

I’ve watched kids inspire other kids. I’ve seen donations surge because a middle-schooler made a Zoom video. I’ve seen a day at a shelter turn from “drop and go” into an experience where kids in tough situations are laughing, gaming, and smiling. That’s difference you can feel.

Charity Matters: Tell us what success you have had and what your impact has been? 

John Snyder: Since before we were a nonprofit and now as the Project Pop Drop Foundation, we’ve helped contribute to feeding over 90,000 meals per month to people experiencing homelessness. Every month. That’s a big highlight.

We’ve empowered thousands of businesses “our givefluencers” to give back with us. We’ve expanded partnerships: Bombas, Whole Foods, Raising Cane’s, Target, Dave & Buster’s, LAUSD, and Impact 13. We’ve built seven tiny homes to move families from encampments into safety with a lock, a shower, a washer and dryer, and dignity.

We’ve been recognized along the way. We received a Gold Medal which is the President’s Volunteer Service Award from the White House. We were invited to the Pentagon because they liked Pop Drop. Walmart put our boxes in stores. Each of those moments opened doors to expand the giving.

But the thing I’m proudest of is the evolution from dropping supplies to creating experiences that bring joy and connection. That’s Pop Drop.

Charity Matters: If you could dream any dream for your organization, what would that be?

John Snyder:  My dream is to change the way the world does business. I want every company to start a program within their business…..like we did before Pop Drop was a nonprofit…..where every single month they give back. Do it for the cause that’s close to your heart, homelessness or anything else, but do it monthly. Make it part of your DNA. I’d love to see extra tax credit incentives tied to that monthly commitment. I want a world full of givefluencers…..people influencing the world through giving actions.

Our course, Giving While Making a Living, helps push that into reality. A woman in Wisconsin bought it and finally started the nonprofit she’d dreamed about serving kids traumatized in childhood. I held her hand through it: naming, logo, shirts, accountability. Most people watch a course, get pumped, and Monday morning do nothing. We want action. I want to figure out how to scale that….maybe through something like the SBA….so more businesses step into monthly giving.

We have something special with “givefluencer.” There’s so much we can do to fuel more life from saving supplies and empowering more businesses to give. If we find that one big thinker, that magical person who sees what Pop Drop is and what it can be and helps us expand it. I’m ready to receive that partner.

Charity Matters: What life lessons have you learned from this experience?

John Snyder: Everything is connected. You can live within your life’s purpose without it being the only thing you do. It’s perspective: a young punk kid says, “We don’t live that well,” and a dad drives to Skid Row to show cardboard homes; that kid says, “I’m going to help,” and later he does at the exact place his grandfather, who he never met, was once homeless. Full circle.

The lesson is to keep my eye on the giving prize. Name it. Show up monthly. Make it simple so it’s sustainable. Invite others so the pile grows. Remember why you started….people, not programs. Keep it real and keep it consistent, or you drift into being that “Thanksgiving and Christmas philanthropist.” We’ve seen that a simple, turnkey system like “last Saturday of the month at 12” is what actually keeps the giving going.

Charity Matters: How has this journey changed you?

John Snyder: It’s made me a nicer person. In business I used to be “sell, sell, sell”…..numbers, aggressive, go-go-go. We still have numbers in nonprofit, but Pop Drop humanized me. When you start something and discover your mom’s father was homeless in the very building where you began your giving, it’s hard not to see a higher purpose in that. This journey made me more faithful. It shifted me from feeding printers to feeding people, from transactions to connection, from me to we. And I don’t plan on stopping.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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July Fireworks and celebrations

When we think of July we think of summertime, ice cream, fireworks and a time to unwind. The days are hotter and longer and the pace slows down enough for us to catch our breath before we are already packing the kiddos back to school. We need July. It is a time to take a pause, to read that pile of books that has been stacking up and maybe it’s even time for that summer vacation? July is a time of rest and renewal. We give all year and this month is a time for us to recharge, to slow down and to take care of ourselves so that we can continue to take care of others. 

 

Fourteen years ago this month I started Charity Matters. An unlikely birthday for a website and podcast about service. When we allow ourselves to rest and just be amazing things are born. Charity Matters was created to connect great people to incredible nonprofits and the inspirational modern day heroes who have started these organizations. Almost every week for fourteen years we have been sharing their stories with you.

Everyone of these founders was on a life path heading in a certain direction when something completely unexpected happened to them and they changed course radically to help others instead of themselves. Week after week, story after story we learn about people turning pain and loss into causes that serve, heal and help. It never gets old because each story is better than the next!

These nonprofit founders didn’t set out to become heroes, they set out to make a difference. What’s remarkable is not just their resilience, but their ability to transform adversity into action. Whether it’s the loss of a child, a personal health crisis, or a heartbreaking encounter with injustice, their response is always the same: to help someone else avoid the pain they’ve experienced. That instinct to serve is what makes these individuals so extraordinary and their stories are what fuel Charity Matters.

Over the years, what began as a blog has grown into a podcast, a platform, and a purpose. Charity Matters has become a place where stories of service are not just told, they’re celebrated. It’s a space that reminds us that goodness is not only alive and well, but that it exists in the hearts of everyday people who choose compassion over comfort. These stories uplift, encourage, and challenge us to ask, “What can I do?”

And that’s the real magic of Charity Matters. It’s not just about the nonprofits or the people behind them…it’s about all of us. It’s about seeing ourselves in these stories and realizing that we, too, have the ability to create change. Whether that means starting an organization, volunteering at a local shelter, or simply being a little kinder each day, Charity Matters reminds us that giving is not out of reach. It’s right here, waiting for us to take the next step.

So this July, as you soak in the sunshine, flip through books, and maybe even enjoy that long-overdue vacation, take a moment to reflect. Think about what fills your cup and lights your fire. Because when we are rested and renewed, we are better equipped to give. Service doesn’t always have to be grand or public, it can be quiet, personal, and powerful.

Thank you for being a part of this community for the past fourteen years. Thank you for reading, listening, sharing, and most of all, for caring. Your support fuels this mission to highlight goodness and celebrate those who live it out loud. As we pause this summer, let us all remember that rest is not the opposite of service, it’s what makes service sustainable.

Here’s to rest, renewal, and being reminded that charity always matters, one small act of kindness at a time.

 

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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Episode 89: Once Upon a School

As schools are getting ready to close for the summer, today we are talking about what it takes to start a school. This is an inspiring story of heart, hustle, and hope with a guest who turned compassion into action in the most powerful way. What started as a simple realization….a moment of wondering how a mother experiencing homelessness could possibly make it through the day….sparked a movement that’s changing lives and rewriting futures. Kate Kennedy founded a school for children without housing, creating a safe, supportive space where students can rise beyond their circumstances and write their own success stories.

Kate had with no formal title or nonprofit background, took on the impossible by raising millions, building a school from the ground up, and empowering families who are often invisible in our system. Her journey is a testament to the power of listening, trusting yourself, and doing what you know is right, even when the world doubts you. Get ready to be moved, motivated, and reminded that one person truly can make a difference.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what The Ansley School does?

Kate Kennedy:  The Ansley School is a tuition-free private school in Atlanta for children experiencing homelessness. Too often, these kids fall through the cracks of the system, becoming part of staggering statistics. Without a solid education, the path to a successful life is nearly impossible. Our goal is to give these children the opportunity to write their own story of success, one that rises beyond their circumstances.

Charity Matters: When you were growing up did you have a philanthropic family or role models?

Kate Kennedy:  There’s an exercise I’ve done a few times where you map out your life timeline and mark the moments that stand out. Every time, a clear thread of service and community building runs through it. No matter what I’m doing, that piece is always there, and it definitely comes from my parents. When my mother passed a few years ago, people who didn’t know her or me read her obituary and said, “Oh, that’s you. Now I get it.” She was always active in the community, and I guess that spirit of service is just part of my DNA.

Charity Matters: What was the moment you knew you needed to act and start The Ansley School?

Kate Kennedy:  I remember it vividly. I had spent 20 years at home raising my four kids. Before that, I was a television writer and later worked in a church with teenagers, where I became deeply involved in community service around Atlanta, especially with organizations serving the unhoused. Even while raising my children, I continued volunteering and serving on boards.

One of my sons is neurodivergent and has significant learning challenges. Despite having access to resources, networks, and specialized (and costly) programs, I still had to fight for him every single day to make sure he didn’t fall through the cracks. It was exhausting.

One day, driving through downtown Atlanta, I saw a woman sitting on the curb with her head in her hands, surrounded by four young children…one without shoes, another without a shirt. I passed that road all the time, but something about her stopped me. I thought, How does she do it? I was overwhelmed with support, and still barely managing. Then I thought about my son….what if one of her kids had the same challenges? If I could barely keep mine afloat, how could she possibly manage? That moment gripped me. I couldn’t look away. I couldn’t not act.

The school is called the Boyce L. Ansley School, named after Boyce Ansley who was a true force of nature. She was a mentor to me, a remarkable fundraiser, civic leader, and champion for bringing young professionals into philanthropy. One day, I shared my idea with her and said, “Someone needs to build a school for these kids.” She replied, “Yes, you do.” I laughed and said, “No, not me but somebody.” And she said, “If you open the school, I’ll raise every dollar you need.” Because it had to be free there could be no tuition. When Boyce passed away unexpectedly we knew we had to name then school after her because she was such a huge catalyst.

Charity Matters: What are your biggest challenges?

Kate Kennedy: I started talking to parents and quickly realized the challenges. Without an address, they don’t even know what school to go to. And without housing, they often lack access to basic documents like birth certificates and immunization records and everything needed to enroll. Even for those who do get in, their children often face poor sleep, inadequate nutrition, and lack of proper clothing. The barriers were and are everywhere.

It’s incredibly difficult and so many nonprofits fail. I had identified a real need in our community through public school educators, families, and homeless-serving agencies. My final step was to approach the funding community and none of them wanted to touch it. I didn’t have a title or nonprofit experience. I remember one woman asking, “What’s your title?” Flustered, I said, “I’m just a concerned citizen.” She practically patted me on the head and said, “Oh, you’re in way over your head.”

There’s a difference in a do gooder and a change maker. I  think it’s really important a do gooder does good until, until it gets tough, and then they’re like, oh, that’s I’m out. And the change maker, the founder, it keeps on going even when it just looks impossible.

Charity Matters: What fuels you to keep doing this work?

Kate Kennedy: Once the school opened, the families and the children kept me going, because they’re just precious. And you just look at them and you just think, I can’t not do this for you. I just can’t. You know you deserve this. You are just the sweetest thing, and you deserve this. You have worth, you have dignity, and you know, and so it was the relationships that really changed.

Charity Matters: When do you know you have made a difference?

Kate Kennedy: There were many moments, but one story that really sticks with me happened at the end of our first quarter. We had given our students uniforms: white polo shirts with the school logo and navy skorts or pants. They looked sweet and polished, and we thought white shirts made sense because they could be bleached clean.

At our first parent meeting, we asked for feedback about what was working, what wasn’t. At first, no one said anything. Then one mom raised her hand and said, “The white shirts are hard.” It hadn’t occurred to us that families living in shelters or on the street often don’t have regular access to laundry. The shirts were hard to keep clean.

I asked what would work better, and they said navy blue. So I ordered navy monogrammed shirts and handed them out a few weeks later. The reaction from the mothers was overwhelming. One said, “No one ever listens to us. We have no voice.” And it’s true, especially when children are involved, families experiencing homelessness often stay invisible out of fear of losing their kids. That small change by simply listening, shifted the entire mood of the school.

Charity Matters: If you could dream any dream for your organization, what would that be?

Kate Kennedy: It was really hard, but I eventually realized that my dream wasn’t to run the day-to-day operations of a school, it was to start a movement. I want to see schools like the Ansley School across the country, because it’s possible.

Through a providential twist of fate, I was connected with a woman in Pittsburgh who wanted to start a similar school. It’s a long, wild story, but we connected, and I’ve been working with her and her team to help make it happen. As I shared the journey and supported them, I realized this story needed to be told. I started writing and writing and before long, I realized: this could actually be a book people might want to read.

Once Upon a School is my book. The first half of the book is about building the school and about my real dream of supporting children without housing. The children that are going to fall through the cracks in our system. The second half of the book is about how it’s really complicated to be a founder.

Charity Matters: What life lessons have you learned from this experience?

Kate Kennedy:  The biggest lesson that kept coming up was that I needed to trust myself. I didn’t have all the answers, but I knew what I knew and I was aware of what I didn’t. I asked questions, listened, and the school was thriving. We had a $2 million budget, and I raised it almost entirely on my own each year.

Still, people would say, “You haven’t been in the business world,” or “You stayed home with your kids, you don’t know”—all the bless your heart stuff (I’m Southern). which, by the way, is not a compliment in the south. What I was doing was working. I mean, the evidence was all around me. So I look back now and I think I should have trusted myself more.

Charity Matters: How has this journey changed you?

Kate Kennedy: I do, I’ve changed a lot. I have much better boundaries now and trust myself a lot more. I think those are the biggest shifts. I’m also much more aware of the challenges children without housing face when it comes to education. I always knew it was an issue, but now I feel like I can truly be a voice for them because I’ve walked alongside so many families living through it. It’s one thing to understand the problem from a distance but it’s completely different when you’ve lived it up close.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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Refueling

Before Easter I was hanging by a thread. Thank you to all who reached out with wonderful support and kind comments, your emails and thoughts mean more than you know. Truth be told I was simply out of gas. The past few months of running a nonprofit has taken its toll. I don’t usually pause but push through. This time there simply wasn’t enough in the reserve tank to do so. I had no choice but to stop, to wait and to refuel for as long as it took to recharge these very empty batteries.

Easter was so much fun! Our middle son is engaged and his beautiful fiance and her family joined ours for the first time. That was fuel for my tank. A houseful of love and family and laughter. Pure sunshine and joy that reminded me how blessed we are. Then there was actual Spring Break. No, I didn’t leave my desk but since schools were closed the phones didn’t ring and it felt like a retreat of sorts. No in person meetings and a week to dig out was restorative.

Then this past weekend, we celebrated the happy couple’s engagement with bringing so many family and friends together to celebrate these two beautiful people starting their life together. It poured rain all day until an hour before the party. Then the sun came out and it was a glorious day on so many levels. People came from far and wide and the love in the room was palpable. That is the fuel that makes me go, love. It is the best energy source available here on earth and one that is renewable if properly tended.

Then I came home to receive this note from Susie Shaw, who you met last week with her podcast William’s Be Yourself Challenge. Susie said, “I’m truly touched to have the opportunity to share William’s story and the mission behind WBYC with your audience. It was a privilege to connect with you, and I’m so grateful for the thoughtful, heartfelt way you approach your work. I’m excited to share the episode and blog post with our community.  Thank you again for the opportunity and for all that you do to shine a light on service, hope, and impact. It truly means so much.” 

This is why I do this work. Not for the accolades but to know that these conversations matter. Susie went on to share that her community had a devastating loss last week with three teens killed in a car accident. She was able to begin working with grieving families that had helped her in her enormous time of loss. To give back to those that held her up. Hearing about moments like these lifts me up. It refuels my faith in humanity and gives me hope.

To end a full week, on Sunday and Tuesday I spoke to two different groups about Change for Good. It was terrific to hear from people who had read the book and hear how it had inspired them . It was lovely knowing that people who read the book were now buying it for friends and family to inspire them to serve. Hearing from people who had found renewal in serving others also refueled me. Knowing that the message of service as the ultimate silver bullet is resonating with people brings me such joy.

While my tank is more than halfway filled, I am renewed by love, by kindness and by the compassion of others. It is the best way to keep moving forward.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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Episode 86: William’s Be Yourself Challenge

Easter has passed and we are officially into springtime, the season of renewal. There is no greater renewal story than today’s guest Susan Shaw. Susie and her husband lost their nine year old son William in an accident. In the years that followed they have taken that pain and turned into purpose for other grieving families.

Join us today for a powerful conversation about love, loss and renewal. Susie’s journey is one of inspiration and hope that there is always love.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what WBYC does?

Susie Shaw: At WBYC, we empower individuals to embrace their authentic selves with courage and joy. We are dedicated to fostering meaningful connections within our community and supporting grieving families by providing the tools they need to honor their loved ones and navigate their journeys of healing. Together, we create spaces where love, remembrance, and personal growth flourish.

Charity Matters: What was the moment you knew you needed to act and start WBYC?

Susie Shaw: We started the organization shortly after my son William died. He died in 2019, when we were on a family ski trip out in Montana.  William was nine. There was an accident and, as you can imagine, it was one of the most painful and excruciating events that I’ve ever experienced. The beauty that came from my community after he died, was incredible. I live in a very small town, where everybody knows everybody.

 When William died, he was in third grade and the whole town suffered with us.  As time went on, we started  to notice and hear that some of William’s friends and parents were still struggling in their grief.  A year after William had died, my husband and my surviving son, Kai, were getting support. We were going to the grief groups because there are services for people like us there. There aren’t any services for best friends.

If you’re the friend of a little boy who dies, there’s no support group for that right? I was so close with all of these families that I just hated what I was seeing for them.  So a group of moms got together with my permission, and they decided to put on our very first event playing a game William loved. When we saw the excitement and the beauty and the love that all these kids felt for each other while honoring William and they had that agency over their feelings. Williams Be Yourself Challenge spawned out of that inaugural event. We went on to host an educational lecture and brought in a therapist to talk about grieving for the community. 

 I also realized how privileged my family has been in our grief journey and the support that we have received through therapy and our beautiful community. My husband got to take six months off of work. That is not the norm.  We had this unbelievable privilege of him taking those six months and we got to travel as a new family of three to figure out. We were able to create some new memories. All this stuff that happened in the early months after William died was percolating in me. A while after, I thought,” I wish other families could have this. I wish other families could go away, because sometimes home is hard. The bedroom is there, the toys are there.” There’s all these reminders. 

We’re currently raising money to be able to buy a single family home for families who have suffered the loss of either a child or a parent. We want to be able to give 52 families per year a free week-long vacation. I realized that getting away was so incredibly important for our family. Now all I want to do is allow other families to have just a week. Isn’t long enough, but it’s something.

Charity Matters: What are your biggest challenges?

Susie Shaw:  I am an entrepreneur. And that was something I had never done before.  This isn’t me. My first job out of college, I was in the nonprofit space.  I worked for the United Cerebral Palsy of Chicago. I was their events planner, and it was an amazing job. Then I worked at the Museum of Modern Art in New York in their development office and at the LA County Museum of Art. So, I had this past of service and understanding of the world of philanthropy and giving.

Some of my challenges have been being the starter. Before, when I was in nonprofit, I was the worker.  Now I’m telling people what to do. I’m walking that line of not trying not to control too much, but needing help finding the right help. Now we need expertise in real estate and in planned giving.

Charity Matters: What fuels you to keep doing this work?

Susie Shaw: I just think about the families that I want to serve because I know what it feels like to need that support, you know. I’ve walked their path. And I certainly don’t want to insinuate that I know what every grieving family feels like, because every grieving family has their own unique story. However, I do think that some of the things we want to do for these families are universal. You want to be cared for. You want to be seen in your grief. You want to be witnessed in your grief, and know that somebody is looking out for you who understands.

And so that’s what I think about when, when I get off a call with a potential donor who just doesn’t get it or isn’t interested in the project.. It happens. You’re not going to relate to everybody.  Then I go back to the families because I’ve been there and I know how painful it is.

 I just want to be able to give other families that same little bit of hope to know that they’re going to be able to survive. I was so afraid that my family would disintegrate after William died. Instead, we had a ton of support, a ton of guidance and we’re doing wonderfully.  We brought a new child into our life. We have a four year old, Cody and he is just the best thing that we could have done for our family. 

Charity Matters: Tell us what success you have had and what your impact has been? 

Susie Shaw: it’s hard to quantify, because what we’re trying to do is such an emotional experience. We don’t have a program where we’re hiring therapists to execute with immeasurable results. However, I do think about success in getting feedback from a family who spends a week at our house and telling me that it was transformative, that it was healing and that it was important. I also think about those families than telling their friends about it, and maybe those friends then donate to us. That, to me, is a measure of success. Or those guests that come to our house and tell their grief support groups about their experience and create a referral system. That’s a measure of success. The fact that people are recognizing that this is a needed service within the grief space is success as well.  

Charity Matters: If you could dream any dream for your organization, what would that be?

Susie Shaw: if we had a network of grief retreat homes for families.  That would be beyond my wildest dream. Then we could serve double and triple and quadruple the amount of families. With one house, we can serve 52 families a year, if we were to have people there all year. 

Judy’s house is a grief support group out of Denver and they partner with New York Life Foundation.  Both are responsible for sort of quantifying data around bereaved families. Their newest report has just come out. They have found that one in 11 children will suffer the loss of a sibling or a parent before they turn 18. Wow. That is so many families!  52 families to me, sounds like an amazing feat, but that’s barely scratching the surface of how many families need grief support.  If we can have more, let’s have more!

Charity Matters: What life lessons have you learned from this experience?

Susie Shaw:  I’m grateful for every moment.  There’s no rush in any of this. Let’s just be really intentional about what we decide to do today or this week or this month, and that’s really helped me slow down in everything.  I just feel like I’m a better human being.

Charity Matters: How has this journey changed you?

Susie Shaw: When William died, my entire life changed 100%.  I am a mother and I have two living children as well.  I identify as a bereaved mother. Sometimes first, because it has changed me so much more than even becoming a mother. Losing a child has changed me more than giving birth to three children.

I think I’m a better person. I really do. And I talk a lot with other bereaved moms. There’s a similar sentiment among many of us. I mean, we were just cracked open.  Everything just came pouring out….The good, the bad, all of it and I guess I just feel like I’ve grown so much in my empathy and for all types of people. Especially with my little four year old, I am so much more patient because I view motherhood in a new way…… that we all just need to slow down.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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Episode 82: ICL Foundation

What does Clive Davis, Novak Djokovic and civic leadership all have in common? The answer is today’s guest, Kirk Spahn who is a dynamic educator and nonprofit founder. Kirk tells us his inspirational story of combining his passions of sports, his friends, education and a deep civic duty to create what is now the twenty year old ICL Foundation.

Join us for a fun and super interesting conversation to learn how one 23 year old set out to help in a small way and today is transforming education by teaching thousands of students how to learn and lead. One person can make a difference and Kirk’s story and passion are proof. If you are looking to be inspired this New Year this is the perfect conversation to get you going.

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what The ICL Foundation does?

Kirk Spahn: The ICL Foundation, stands for the Institute for Civic Leadership. The word civic had sort of become almost an antiquated, somewhat dirty word, where people think of civics class selling something. Yet, when you break down what civic leadership is the true definition it’s building a prosperous community. It’s about helping others, and it’s something that I’d felt has been lost for a long time. I think coming back to the roots of civic engagement and civic leadership should be a pillar and a cornerstone of all education for all youth. So that’s why the Institute for Civic Leadership was created over two decades ago.

Charity Matters: Tell us a little about your early signs of philanthropy?

Kirk Spahn: My parents are teachers.. My father used to always say that when you support the next generation, you’re building the leaders of tomorrow. My grandfather coined an expression that I use all the time, which is finding the spark of genius in every child. Our job as educators was always to find what people are passionate about and sort of help support that and then make sure that there was always a purpose to giving it back. So I think at the same time, my mother  was always running nonprofits so my entire life was always about giving to the community. Her entire essence was just about selflessness and giving to others. 

I never said I wanted to run a school or found a nonprofit, but from very, very early it was, what can you do to help people? So I think it was ingrained. I had no idea when, how, why, where….

Charity Matters: What was the moment you knew you needed to act and start The ICL Foundation?

Kirk Spahn: My father said that after I graduated college, try to play your sport if you can become a professional great but look at the next couple years as your survey course and create experiences that you think will lead you to find what that is. And so I was in the strangest place when that catalyst for starting the ICL happened.

I was working for a record label, and I have no musical talents, but I love music. I was working for Clive Davis, we had had a lot of meetings with Tom Freston, who was the founder of MTV Networks, and he was running VH1.  I happened to be living in New York on my own with two NFL linebackers for the New York Giants.

The sad catalyst for ICL was actually the tragedy of September 11th.   I was in New York working a record label. After September 11th, there was a movement of like, what can we do? I was living with people that had a platform and I was in these meetings with these artists who were big time celebrities and I said, “What can these artists do?

  I met with my father and a reverend, and I brought in these people from Saudi and we had a round table and said, “How can we get youth engaged?” And everyone looked around, and said Kirk, “What do you think?” And I said, I’ve seen the power of celebrity but nobody knows what their journey was. No one saw the work they put in to become one.

The idea was, why don’t we put together a conference on Martin Luther King Day, and we’ll call it the Dare to Dream Conference. It’ll be supported by MTV and at the Museum of Natural History, where my mother was a board member.  The museum said, that sounds great. Because we were in education, we had a directory of 1000s of schools, and we said we’ll put on a free event. And the goal was just to share the journey of these celebrities, but to really show the common themes of sort of oneness of what we can do.  Youth can make an impact and helping them find a passion and a purpose.   Big words for us was always passion and purpose to help build a better world, and it has to be something that comes within. January 17, 2002 was the inaugural Dare to Dream Conference. 

Charity Matters: What are your biggest challenges?

Kirk Spahn:  Looking back at the transformation and metamorphosis of the ICL Foundation, the spark and the mission stayed the same. Everything evolved in good ways. It was kind of going to be a one and done, and here we are.

The challenges looking back were very clear. 100% as most nonprofits will say, comes around funding. It is not fun to ask other people for money.  I can never go toe to toe and say this organization is more important than that organization.

Charity Matters: What fuels you to keep doing this work?

Kirk Spahn: There’s no doubt that the greatest joy was just being with the kids.  It’s so cliched, but to see transforming kids lives forever and then it may come back. You may not know it at the time, because kids don’t say thank you. They’re not like, Oh, thanks so much for this opportunity. But the kids that we impacted, it happened fast, and the appreciation  we could see was the impact. So I think that keeps motivating the parts I didn’t know on the icky days.

Charity Matters: Tell us what success you have had and what your impact has been? 

Kirk Spahn: So impact is really hard to qualify and quantify, and that’s been a challenge for two decades. What I think is great about ICL is that we’ve created scorecards. We call them impact reports and we like to think of ourselves as a multiplier effect.  When you’re helping to fund an ICL fellow or a program that we’re doing.

We evolved from conferences into what we really saw was missing in education was a focus on service, leadership, and character. Today they refer to it as social emotional learning, there was no SEL in the early 2000s but we knew.  We could show that students that had gone through leadership training for others, character, self awareness, becoming kind of their own coaches, where they’ve tried to start their own nonprofits have started from an early age. They were performing better in school and had become school leaders. We could see pretty soon how these kids were having an impact on the rest of their schools.

So we started by creating an award winning curriculum, and that was the hardest thing to qualify and quantify, social emotional learning. We were very fortunate after that first Dare to Dream Conference to have access to celebrities.  I’m a big believer that when athletes, performers, business leaders, politicians, actually take the time off the record to share their journeys. It inspires kids, and just hearing the story and not the end result, gets them motivated. 

 That really became the idea that you promote engagement, application and mastery and to support these kids who would then become the leaders of their school,  leaders of their community and became the models that people wanted to follow.

Charity Matters: If you could dream any dream for your organization, what would that be?

Kirk Spahn:  My goal is to transform education.  The problem with a lot of nonprofits is you’re reliant on others. So I said, “Why don’t we create an accredited school?” It’s called ICL Academy. We have 1000 students that were doing their academics, but we were also giving the mentorship. We call it a pyramid. There’s physical, mental, emotional and academic. Are all parts of what feeds a great leader, and all of the pieces need to be fueled. Imagine you have if you’re a tennis player and Monica sellers and Novak Djokovic are actually speaking to you and inspiring you. What does that do to your grades? If you can relate what you’re passionate about to your curriculum, what does that make you more engaged? What about the idea of starting your own nonprofit young, or starting a cause? 

Charity Matters: What life lessons have you learned from this experience?

Kirk Spahn: It goes back to being mission driven, and the idea that when you inspire someone, and someone gets inspired, you want to take action right away.

I have a concept in education that we use at ICL that says, respect tradition, but embrace tomorrow.  I believe that teachers and mentors are still what motivates people. But I think a great teacher and a great mentor is not just someone who makes a subject matter come alive to inspire you. It’s also on the flip side, someone that believes in you as an individual, that the world might see the potential in you, and that doesn’t have to be in the same person. So at ICL Academy, we started looking at how  we teach life skills? How do we get more engagement? How can kids apply things to the real world and things they’re passionate about to make a difference.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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Charity Matters Inspiration

Season 8 Premier! Episode 80: Change for Good

Welcome to Season 8 of the Charity Matters Podcast Premier! It is really hard to believe that this is already Episode 80 which truly blows my mind. We took a little longer hiatus between seasons than anticipated but having never written a book before I truly had no clue what the process of a book launch entailed. It turns out it takes as much or more time than writing one, who knew? Live and learn.

We have some fantastic people lined up this season that I am thrilled to introduce you to. For today’s episode, I am doing my second solo podcast. In our very first episode I spoke about what we hoped to achieve with our Charity Matters Podcast. Looking back it is amazing to see the change and growth in the rearview mirror. We are in the top 5% of podcasts in our category which has some pretty impressive people. Join us today for a shorter episode as we talk book and all things Change for Good.

This is my first time reading aloud from the book and sharing a little about the journey. Most of you have come along the way for much of it. Since Giving Tuesday was yesterday and we are officially in the season of giving it seemed like the right message at the right time. I hope it gives you some food for thought as we kick off the holidays.

I will be getting into the holiday spirit myself with the Change for Good New York City book launch. I am really looking forward to meeting so many incredible people I have interviewed over the years and never met in person. You may remember a few of them; Natalie Silverstein of Simple Acts Guide, Ian Sandler of Riley’s Way, Daniel Zauder of Grass Roots Grocery and Becky Fawcett of Help Us Adopt just to name a few. Each of these incredible people have given their life to serve others. They are the best of humanity and many of their stories are in the book as well. My holiday gift to myself is to give them huge hugs for being so incredibly generous sharing their journeys with us.

It should be a terrific trip. I am also excited to be speaking to a remarkable group of women at Impact 100. These amazing women have created an incredible giving circle where they give generous grants to nonprofits all over New York City. So as we pack up those pumpkins and pull out those holiday lights, let’s take a moment to think about how we can change for good by making this season one of meaning, kindness and love in action.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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Charity Matters Inspiration

She Said Yes!

Thirteen years ago when I started Charity Matters when our sons were sixteen, fourteen and ten. Today, they are 29, 27 and 23 so time has flown by.  Each of you has walked this journey of service and parenting with me for all these years. I am beyond grateful to each of you. It feels like yesterday that I shared the story of our middle son, Henry’s, last football game, called The Last Pass.  Followed by the story of the The Last Lunch . There were so many last before Henry left for college. Again, you followed  along on my love letter called , A Mother’s Sendoff .

It has been such a priviledge to share our son’s journeys with you. I am thrilled to share that Henry got engaged this past weekend to his amazing fiance Shelby. We are on cloud nine seeing two people we love so dearly are so incredibly happy. These are the moments we live for, remember and cherish.

This week we are celebrating with Shelby’s family and enjoying summer and our precious time together. Thank you for walking this journey with our family and for understanding that our Season Eight is going to be a little late. We will be busy smiling and celebrating just a little bit longer.

 

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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Charity Matters Inspiration

The Barron Prize for Young Heroes

Have you ever picked up an old photo album and come across memories and before you know it you have been transported down memory lane? Last week that happened to me when I went looking for interviews to include in my book. Before I knew it I was years into Charity Matter’s post and it felt like finding old friends.

This post from 2018 struck me because the past few weeks, I have been speaking to hundreds of school principals for TACSC. My message for all of these schools is that when we tie a child’s shoe, we don’t help them, as intended. Instead, we tell the child by our action that they can’t tie their shoe. That they are not capable. Our mission at TACSC is to empower these students and tell them they can be anything and do anything they set their mind to. So when I came across this old post it felt just as relevant and worth a re-share. I did update the numbers served, so those are current.

A few years ago, a young lady that has helped start and run a local nonprofit asked me to write her a recommendation for The Barron Prize for Young Heroes, which I happily did. This high school girl is extraordinary and I was thrilled to help.  More than that, I was  excited to learn about this incredible award and nonprofit that inspires and encourages students between the ages of 8 and 18 to use heroic qualities like courage, compassion and perseverance to make a positive and significant impact on the world.

The prize was started by New York Times best selling Children’s author, T.A. Barron seventeen years ago and named after the author’s mother. His hope was to inspire children that could make a significant difference in the world. The founder’s fear was that  perhaps, they wouldn’t be able to find these children. However,it was just the opposite, hundreds and hundreds of applications would begin to come in.

Twenty-three years later, the Barron Prize for Young Heroes has honored over 575 young heroes who have  all done remarkable things. One prize winner is Alexa, who created a nonprofit called Bags of Books, which she started at age 10. Her organization distributes gently used and new children’s books in free pop-up stores in underserved communities. She has donated more than 120,000 books and inspired hundreds of volunteers to distribute books in homeless shelters, children’s hospitals and after school programs.

One  young prize winner founded NY is a great place to Bee! to educate the public about bees about the importance of healthy bee populations. She built a team of volunteers and they have educated over 14,000 students about ways to protect bees through her advocacy.

Another inspiring change maker,  Jahkil, founded Project I Am to help the homeless in Chicago. In one year Jahkil and his team distributed more than 3,000 Blessing Bags filled with toiletry items, towels, socks and snacks through his drop off sites and bag stuffing parties all at the age of nine!

While I could go on with hundreds more of these incredible young nonprofit founders and budding philanthropists, these 575 Barron Prize for Young Heroes winners have combined raised over 28.5 million dollars for their causes in the past twenty-three years. The real winners of this prestigious award are the incredible communities served by these extraordinary young leaders and their enormous compassion to serve. Each of them give us hope for a brighter future of kindness, caring and service.

 

charity matters.

 

Sharing is caring, if you are so moved or inspired, we would love you to share this to inspire another.

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Causes

Episode 77: Filling In the Blanks

Did you know that there are over 13 million children in the United States who live with hunger? One in five children does not know where or if their next meal will come. Those facts are shocking to anyone who hears them. However, it is the rare person or people who actually act when hearing those numbers. Today’s guests not only experience food insecurity they have acted to create a nonprofit called Filling In Blanks.

Tina Kramer (left) and Shawnee Knight (right) Founders of Filling In the Blanks

Join us for an inspirational conversations about two next door neighbors who are changing lives and the face of hunger.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Filling In the Blanks does?

Tina Kramer: Shana and I started Filling In the Blanks 11 years ago. And what we do is we provide food on the weekends to children that are struggling with food insecurity. So we provide a bag of food for the kids ages preschool through high school, that receive meals during the week at school, but don’t have anything over the weekend. So we’re covering that weekend meal gap.

Charity Matters: Did Either of you grow up in families that were very involved in their communities?

Shawnee Knight:  My family was always thoughtful of other people, but we didn’t do a lot in terms of being out in the community as much as Tina and I are now. I grew up in a single family household and so I kind of understood.  I was on the free and reduced lunch and so I understand the pressures that these families are facing. I think that really was kind of one of my main motivating factors for starting Filling In The Blanks. Being in Fairfield County, CT there’s so many different volunteer opportunities and ways to give back. 

Tina Kramer: I grew up in a similar household as Shawnee with a single mom who works all the time. My grandmother pretty much raised me. So there wasn’t really an opportunity to give back to the community at that point in time. When we moved to Connecticut, there are so many volunteer opportunities and that’s where I really learned about volunteering.  We decided that we wanted to do something together and  that’s how we founded it Filling in the Blanks. 

Charity Matters: What was the moment you knew you needed to act and start Filling In the Blanks?

Shawnee Knight: We were riding with a friend into the city,  and we were just talking about sports and our kids. And my friend was saying,” The other students on the opposing team don’t often have snacks. So they would bring snacks for the other team.” I was kind of like,” Wait a minute. There’s kids in Fairfield County that don’t have food. Like how I don’t understand that? That can’t be possible. Look at where we live?”

I think Tina and I were at the age where our kids were getting a little bit older. So we were both trying to find something to do, we were next door neighbors.  We did some research and learned that there really are food insecure children in our community. And for us, the thought of a kid going without food is just shameful. It’s just wrong.

Tina Kramer: So we saw an article in a magazine about a nonprofit that was a national organization that provided food on the weekends to children. So we became program coordinators. That was our first step and we did the fundraising. We did all the purchasing, but the national organization was more of the parent company.

We would give them our fundraising efforts and they would reimburse us. And we are very type A, we are very gung ho about projects we work on.  We decided after probably two or three weeks to use the information from the national organization structure on how to run a nonprofit because neither one of us had ever run a company or any kind of nonprofit before. So that was our stepping stone to the blank.

So we learned how to incorporate our trademark, our logo, articles of incorporation and bylaws. We surround ourselves with good people to help us structure all these things. We started packing bags in my house for 50 kids. We’re tying grocery bags, going to the dollar stores, Costco and loading our Suburbans up which we’re dragging on the floor. And we just learned as we went, and it was so very grassroots in the beginning. 

Charity Matters: What are your biggest challenges?

Shawnee Knight: I think definitely finding food suppliers and finding families. and reaching more families. We needed to get a warehouse because we had outgrown Tina’s living room. We had too many kids, and you have to store these bags. We just needed more of a structure for that. And so I think there were challenges, just in doing and getting things done. Realizing people don’t get things done as quickly as we wanted them to get done. 

Some of the biggest challenges we face now are reaching more parents.  There’s definitely still a lot of parents who don’t know about us and our services.. And I think procuring food, and food costs rising because we purchase all of our food. So we’re fundraising to buy food and with food costs going up,  we have to fundraise even more.

Charity Matters: What fuels you to keep doing this work?

Tina Kramer:  I don’t think we mentioned this earlier but Shawnee and I are both volunteers. We don’t get paid to run Filling in the Blanks.  We have a real desire to help the kids because we both at some point in our lives dealt with food insecurity, one of us in our childhood, the other in our adult life. That really fuels us because we know what these parents are struggling with, and how hard it is. Just to wonder, can I feed my child today? Or do I have to pay the electric bill? So it’s really ingrained in who we are.

We have a great staff that surrounds us and a great group of volunteers. We have a leadership committee of about 10 people, mainly women. Then we have 11 full time employees that really help with the day to day. Besides the bags were packing, we have 7000 volunteers come through our doors on a yearly basis. Wow. So it’s not just Shawnee and I, and our desire, it’s our community. We’re all lifting up our community and the surrounding communities. And that’s really what fuels us. 

Charity Matters: Tell us what success you have had and what your impact has been? 

Shawnee Knight:  We do a lot of surveys, to the families,  the children, parents,  the social workers and teachers at the schools. So we’re able to measure some of those outcomes for students. Then we track the number of meals and we’ve served over 3 million meals. Every week we have 7500 kids that get our weekend meal bags. We’ve launched our Mobile Food Pantry, fresh food on the move. We’ve been distributing about 20,000 pounds of food at each site, which they operate twice a month.

We’ve partnered with Stanford Health to provide various health and wellness wraparound services, so we’re able to see how many people they register for or how many flu shots they gave out. It is really hard because we don’t have access to kids grades, so it’s hard to measure that. But we do measure things like the teacher saying that the child is less disruptive in class.. We’ve had a teacher tell us a story of this. One child she had that just was out of sorts at school and she kind of made him in charge of helping her with the backpack club as they call it, which is when they get their bags. And she said, that she noticed a change in his personality and his self confidence was improved. So we hear little antidote or things like that. Then from our pre-programmed surveys and post-program surveys, we see an increase in happiness or of the child’s well being.

Charity Matters: When do you know you have made a difference?

Tina Kramer:  It’s a simple concept that everyone should have access to food and healthy food items. Our volunteers are little kids to adults. We make sure that we can create volunteer opportunities for them to create an impact within Filling in The Blanks.. We’ve created snack bag programs, in addition to our regular weekend meal program. So the younger kids can have a packing event at their home and pack little snacks in a little brown bag that gets distributed to the kids too. So we’re trying to make sure that our volunteers feel the impact that they are creating.

As Shawnee mentioned, we just started a mobile pantry back in October, and we’re serving 1000s of families through that initiative. Through that we’re able to communicate directly to the families and the parents. They tell us the impact that the 50,000 pounds of food they get at the mobile pantry has on their family. Many turned around and now want to know how they can volunteer with us, and how they can give back and how they can help. And that’s just so rewarding. It comes full circle.

Charity Matters: If you could dream any dream for your organization, what would that be?

Shawnee Knight: For us to be out of business.

Tina Kramer: This year alone we will serve over a million meals and the need is not not going away. We’ll probably serve about 10,000 kids this year, every weekend. We created a year round program for all. Our big dream is potentially it’s on the back burner  but I’ll put it out there. We would like to franchise to other states or communities, or do some drop shipping/fulfillment centers to have food delivered directly to the schools. We  would take away the need for additional trucks and drivers. We’re trying to figure out how do we replicate or duplicate our program outside of our like immediate area. 

Charity Matters: Do you have a Phrase or Motto that you live by?

Tina Kramer:One of our board members always said, “If you can, you should.” And that  kind of really encompasses Filling in the Blanks. Because really, anyone, a little kid to a senior citizen can make a difference here, it’s packing the bag, spreading the word, liking something on social media, it doesn’t have to be dollars, it could just not just it can be your time, even if it’s five minutes. 

Charity Matters: How has this journey changed you?

Shawnee Knight:  I think so. I think we were nervous when we first started this. We didn’t know what to expect. You never know how much pressure you can take or how much weight your shoulders can hold. So I think we’ve grown a lot in that sense. I mean, we’re running a really big nonprofit with a big operating budget and expenses. You never know how much of that stress you can take and I think we’ve learned to stomach quite a bit of it.

Tina Kramer: We’re the perfect ying and yang. I think it’s given me a lot more confidence than I had before. I never thought I could run my own business and didn’t know how to read a spreadsheet. And now we’re dealing like Shawnee said, with a multimillion dollar budget. It’s given me confidence in who I am, not only here, but in normal life and at home. It’s just been a great learning experience over the past 11 years.

Charity Matters: What life lessons have you learned from this experience?

Tina Kramer: That people are good. And they want to do good.  I come from nothing and I’m not used to being encompassed or embraced by our community. This community that we’ve created together, really has shown me how good people are and how they’re always willing to help. It’s just a beautiful thing.

Shawnee Knight:  If you build it, they will come.

 

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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Autism

Episode 66: You, Me and Neurodiversity

The power of inspiration and motivation can come at any age and anytime in life. Today’s guest is an old soul doing remarkable work for the Autism community. Inspired by her younger brother, Alyssa Lego set out at age 14 to help him by creating lesson plans. Before long that work turned into creating her first nonprofit.

Today, Alyssa is joining us to share about her latest work with Autism and her new project called You, Me, Neurodiverstiy. Join us as Alyssa shares her inspiring journey from big sister, college student and nonprofit founder.

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what You, Me, NeuroDiversity does?

Alyssa Lego: Our mission is to embrace neurodiversity and autism acceptance in ways that really haven’t been done before. I am such a firm believer that education creates change. And I’m such a firm believer in the fact that that starts with our youngest generations. 

So when I was 14, I actually started a lesson plan program with a fourth grade teacher of mine, it was called Friends Who are Different and it was in all the school districts in my area. And it was all about autism acceptance and inclusion. But a lot of things have changed since then. You, Me Neurodiversity has really brought me back to creating content, visiting classrooms. And again, starting with that sentiment of motivating our younger generations to accept autism, embrace neurodiversity, and really become catalysts of change. So the human neurodiversity movement donates 100% of our proceeds to autism focus charities, with each book purchase, each purchase that somebody makes is making a difference. 

Charity Matters: What was the moment you knew you needed to act and start Your Organization?

Alyssa Lego: This really all began from my relationship with my younger brother.  I learned pretty early on that the world just was not designed for autistic people. We have a long ways to go in terms of true autism acceptance, rather than just awareness. And there were so many moments that just broke my heart as a young girl. I remember instances of sheer bullying because my brother couldn’t communicate. He communicated in a different way just because his brain was wired a certain way. He was discriminated against in school and in the community.

As that older sister, I wanted to do whatever I could to make the world a better place for my brother and people that were experiencing the world in a similar way to my brother. And for me, I love to write and I love to speak. So that’s how the lesson plan program started all those years ago.

Charity Matters: what or who influenced you to start giving back at such an early age?

Alyssa Lego: I was raised in a home that really embraced volunteerism and giving back to your community. My earliest introduction to volunteerism was with the Special Olympics.  I volunteered as an ambassador with the Special Olympics from I think the time I was nine years old  until I was maybe about 14. So I would fundraise for the organization and I got the chance to attend events. 

The Special Olympics was the first time where I actually delivered a motivational speech. I was 12, at one of the Special Olympics events, and I remember just thinking to myself, this is a space where I can use that force for good.  I believe that is really where it all started. I remember I hosted, with a lot of help from my parents, an ice cream social to benefit the Special Olympics when I was in the fifth grade. Everybody came out my whole school came out all my teachers.  But I think even at that young age, I realized wow, I am part of something so much bigger than myself. Then as I got older, I started to realize that I really want to see what these proceeds and what these funds are doing. That’s what led me to create things like You, Me and Neurodiversity. I could really see where that money was going, and feel that impact and continue making those connections firsthand.

Charity Matters: What are your biggest challenges?

Alyssa Lego: I think I’ve really seen ageism in action a lot. Being 14, my mom was in the back because I was a minor, pitching to the Board of Education for why they should put my lesson plan in schools at that young age. So I really, I have seen a lot of ageism, and people just just not understanding that young people can be the change. Young people can start great things and be a part of great things. And unfortunately, I think that’s something that deters a lot of young people away from volunteerism or starting their own organization. They think that’s for people who already have established careers or who already have X amount of years doing certain things.

I think another challenge that I still face day to day is just time management. Being a full-time college student, the creator of You, Me, Neurodiversity,  being involved in school,  reserving time for family and friends and of course taking care of myself it’s definitely not easy.  By being disciplined with myself, and taking care of myself allows me to kind of fill all of those buckets.  I’ve really learned the importance of teamwork and communication. Time management is a skill that I’m continuing to develop as I get older. It’s just been such an incredible journey and I’m so grateful for all of the people that have really helped me get to this point and inspire me to continue on.

Charity Matters: What fuels you to keep doing this work?

Alyssa Lego: My brother, it just goes back to the initial inspiration.  I actually just became one of my brother’s legal guardians because he just turned 18 years old. That is one thing that certainly keeps me up at night but also continues to inspire and motivate me.  Just the prospect and the idea of my brother, being able to live a thriving, a fulfilling life in a community that supports him is what inspires me. This is what motivates me to write that social media post when I don’t really feel like doing it, or change the dimensions of the book for the 7,000,000th time.

I think that’s the most magical thing about founders and about the nonprofit space because everybody has that story. Everybody has that. It’s almost like a duality between the vision, and what makes you tick. Seeing the present, seeing the past, but then knowing what the future can be and knowing that you’re a part of that. Knowing that you’re writing that story,  in my case, literally writing that story is just incredibly inspiring. And then of course, knowing that I don’t walk alone is another thing that really inspires me as well.

Charity Matters: If you could dream any dream for your organization, what would that be?

Alyssa Lego: I would love to turn You Me Neurodiversity into a household  name for reading about autism acceptance. I really would love to continue developing our interactive activity books and  just taking all of these great experiences that kids have in the classroom and making them inclusive.  I really do believe that we could do that with our books and programs. And I’m hoping to partner with more schools, speak with the children and really have them understand what it means to be an ambassador of acceptance. Then one day pass the torch on in the hopes of creating a more inclusive world.

Charity Matters: What life lessons have you learned from this experience?

Alyssa Lego: I think listening as much as you speak is one of the greatest lessons that I’ve learned.  I think I’ve really learned the great power of teamwork and of listening as a tool for leadership.  It’s really not about having the loudest voice in the room, but making sure that everybody else in the room feels like they have a stake in the conversation and feels like they’re being heard.

 I think another great lesson that I’ve learned is listening to the communities that you serve. I am  big on self advocacy, and amplifying autistic voices. It’s in itself, it’s such a powerful tool. That is one piece of advice that I would give to any founder. Really listen to the communities you serve to understand those nuances. Because if you’re in a space where you can really affect change, you want to make sure you’re going you’re using your passion for a purpose. One of the most important things that really guides everything I do is listening to the communities that I’m serving.

CHARITY MATTERS.

 

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