Nonprofit founders are some of the most inspiring entrepreneurs on the planet. They see a problem and create a solution. Today’s guest, Drew Long is no exception. Her first entrepreneurial journey was to create a shopping cart for her disabled daughter, Caroline. Drew is an Alabama mom with a big heart, a thick skin, and the kind of determination that changes systems. After solving that problem for millions of families she went on to solve another. Drew founded Caroline’s Cause, a scholarship nonprofit created for the typical siblings of children with special needs. In the middle of caregiving, life, and all the messy real-world logistics, Drew looked at those overlooked siblings and said, “We see you.” That simple sentence becomes a force in this conversation.

Drew is that she’s the real deal. She is equal parts tenderhearted and tough, honest about how hard this life can be, and hilarious in the way only someone who’s been through it can be.  In our chat, Drew shares the moment she realized there were scholarships for everything and yet nothing for students growing up with a special needs sibling. So she built it. Her dream is simple: no unfunded scholarship, ever. If you want a story about grit, love, community, and what it looks like to take a hard card in life and turn it into change for good….press play.

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Caroline’s Cause does?

Drew Long:  Caroline’s Cause is a nonprofit that awards college scholarships to entering freshmen who have a special needs sibling. To qualify, students come from families like mine—families where there is one child with significant needs and other children who are “typical.” In those families, the dynamic is real and unavoidable: the special needs child requires more time, more attention, more resources. That doesn’t mean you love the other children less. It simply means the needs are different.

In our home, my daughter Caroline has seizures, she doesn’t walk, she wears a diaper, and she needs full-time care. My other children grew up knowing that Caroline needed more of Mama’s time. They stepped back quietly and selflessly. And there is almost nothing out there that recognizes those siblings….the ones who take the back seat without complaint. Caroline’s Cause was created to say, we see you. We want to thank you for being such a great brother or sister. We want to honor that sacrifice and that love.

Charity Matters: What experiences did you have as a child that influenced this work?

Drew Long: I grew up with a special needs aunt, my mom’s sister had cerebral palsy. Looking back, I really believe that was God’s way of softening my heart and preparing me for a life I had no idea was coming. I was always tender toward special needs families, even before I fully understood what that life meant.

And I’ll say something that took me a long time to admit: nobody wants a special needs child and that’s okay to say. That doesn’t mean you don’t love your child. It means that as parents, we all have hopes and dreams for our kids, and when you face a diagnosis like I did, those dreams crash and burn. My heart had been prepared early on, not through nonprofits or philanthropy, but through proximity through seeing special needs up close and watching families navigate it.

Charity Matters: What was the moment you knew you needed to act and start Caroline’s Causes?

Drew Long: The moment came when my oldest daughter was getting ready for college. Like every parent, we started looking for scholarships and we found everything under the sun. If you’re left-handed, there’s a scholarship. If you have a tiny percentage of Irish ancestry, there’s a scholarship.

So I said, “Surely there’s a scholarship for students who have a special needs sibling.” There wasn’t. Not one.

That’s when I knew. I told my husband, “I have a great idea,” and he practically shut me down, until I said, “It’s not a product. It’s a nonprofit.” I thought that would make it easier. It didn’t. But it was born out of a real need, this time for my typical daughter, and for families like ours everywhere.

Charity Matters: What are your biggest challenges?

Drew Long: Honestly, my biggest challenge has been my own naïveté and strangely, that’s also what’s sustained me. I truly believed both my business and this nonprofit would be easy. Had I known how hard either one would be, I might never have started.

With the business, my husband and I ended up funding it with our retirement something we never planned or intended. With the nonprofit, I assumed that because it wasn’t a product, everyone would love it as much as I did. That hasn’t been the case. If I had sat down early on with seasoned nonprofit leaders and heard everything that could go wrong, I probably wouldn’t have done it. So not knowing what was around the corner actually worked in my favor.

Charity Matters: What fuels you to keep doing this work?

Drew Long: Award day. Every single time.

When I call the families and the moms are crying, telling me this was the only scholarship their child received…..that’s what fuels me. We don’t look at ACT scores. We require a 3.0 GPA and base everything on need. I lived the ACT nightmare with my own kids, and I don’t believe it’s a good measure of potential.

These kids often wouldn’t qualify for academic scholarships, but they are absolutely deserving. That moment when they realize, I got a scholarship, when they get to stand with their peers on awards day and that sense of pride is everything. It’s not just financial. It’s validation.

Charity Matters: When do you know you have made a difference?

Drew Long: I know we’ve made a difference because I stay in touch with the families. Our first scholarship recipients are graduating this spring. Parents tell me that we lifted a burden during that first year and that initial push made college possible.

And it goes beyond money. It’s confidence. It’s pride. It’s knowing someone believed in them. One of our recipients went to welding school, and his mom told me she applied on a whim. We were proud to support that because trades matter. AI isn’t replacing welders or plumbers. We need to normalize that path again.

Charity Matters: Tell us what success you have had and what your impact has been? 

Drew Long: So far, we’ve awarded 13 scholarships and each one is $5,000. People told me that was too much, but I wanted to move the needle. College is expensive. Five thousand dollars can cover a year at junior college. It’s enough to matter.

The impact isn’t just the number. It’s the pride these students feel. It’s families who thought college wasn’t possible suddenly seeing a path forward. That’s success to me.

Charity Matters: If you could dream any dream for your organization, what would that be?

Drew Long: My dream is simple: to never have an unfunded scholarship. Last year, we had 78 unfunded applicants. That number still sits with me.

Caroline’s Cause is my give-back. I don’t take a salary. If someone gives $5,000, it goes in and goes right back out as a scholarship. I want donors to know exactly where their money goes. People work hard for their money, and transparency matters.

Charity Matters: What life lessons have you learned from this experience?

Drew Long: Do not take no from someone who can’t say yes. Corporate America turned me down when I pitched the idea for a special needs shopping cart. Had I not lived the daily reality of this community, that cart wouldn’t exist today.

You cannot be afraid of hard. You have to be willing to put it all on the line. It’s terrifying. It’s risky. I never thought I was a risk-taker but that’s what it took. You may be asked to walk a path you never imagined, and you have to say yes anyway.

Charity Matters: How has this journey changed you?

Drew Long: You can’t go through years of financial and emotional uncertainty and come out unchanged. Being a special needs parent gives you thick skin. You learn to advocate. You learn to fight. That prepared me for business and for this nonprofit.

I’ve heard “no” more times than I can count and I’m still hearing it. But you keep going. Failure is part of the journey. Community is everything. Nothing I’ve done, neither business nor nonprofit, happened alone. It was people rallying together to solve a problem.

Caroline’s legacy lives through this work. And if there’s one thing I know for sure, it’s this: just keep going.

CHARITY MATTERS.

 

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