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Episode 35: Beverly Hills Community Farm

When you think about nonprofits the words Beverly Hills and farm usually are not top of mind. However, after meeting today’s incredible guest, Jennifer Levy you will begin to think differently. Join us for an educational and fascinating conversation about the exciting new ways Jennifer and her nonprofit organization, The Beverly Hills Community Farm is educating and feeding her community with her innovative work.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Beverly Hills Community Farm does?

Jennifer Levy: There’s definitely not a ton of nonprofits who start with the word Beverly Hills. And so we’re hoping to change the narrative a little bit. The three co-founders, myself and two other women, grew up together in Beverly Hills.  We are super excited to be bringing something back to the city that we grew up in.   Beverly Hills is a small town, both population-wise and geographically. So having an urban farm that can grow local food for hopefully a significant portion of the residents, the restaurants, the community was super important to us.

We can make a pretty big impact in a small space by the work we’re trying to do. Our mission is really to be an educational, urban farm, and to cultivate health and well-being while growing local food with hands-on community involvement. So we see ourselves as way more than just a farm, the food is definitely one piece of it. But really, as a space, a gathering space, an event space, an education space, to really provide tips and tricks and education on sustainable ways to grow food. So we don’t get enough of that in the city. Farming is a big part of what we’re doing but education is really at the core of what we’re doing. 

More specifically, we really are passionate about intergenerational education. Including so many different members of the community to learn and grow and be able to teach other members of the community. So we’re kind of all-encompassing. Growing local food is really one of my passions, but equally one of my passions is education. So really, we wanted to figure out a way to kind of combine all those things in the city we grew up in.

Charity Matters: Did you grow up Volunteering or in a philanthropic family?

Jennifer Levy:  I learned a lot from it from my family. Giving to different organizations that they were passionate about, or going to fundraisers things with my family.  And also, through my religious school upbringing. I remember being in kindergarten every Sunday going to Hebrew school and having to bring leftover change or cans for a food drive or coats or shoes or things like that. So I think both between my family and my upbringing from a giving backside, it’s always been a part of what we do.

 I  have always loved volunteering. I started volunteering in high school at both Cedar Sinai Hospital UCLA hospital and I volunteered at a summer camp, Camp Harmony. That’s always been part of kind of my journey. To this day, I think that volunteering is kind of the best job on the planet, right? You get to pick and choose who you want to help out. And there’s no pressure and you just get to go support amazing people doing amazing things. In my later life, I spent a few years in Ohio and I volunteered for a water nonprofit, which led me to my first trip to Africa. So you never really know what’s gonna happen when you kind of put yourself in situations to learn new skills and meet new people.

Charity Matters: What was the moment you knew you needed to act and start Beverly Hills Community Farm?

Jennifer Levy: We launched in January 2020. I am an educator by trade and was a classroom teacher. Then I started a school garden program and got really into gardening and have always been pretty passionate about the environment, specifically water usage. That led me to spend a summer in Ohio working on a farm summer camp there. It was in Ohio that I met all these farmers and all these people doing pretty amazing work.  I finished the next year of teaching here in Los Angeles, and then I moved to Ohio. So I could learn how to farm essentially.

Sometime between coming back from that summer in Ohio, and going back to my job teaching, I realized that I wanted to do more. I wasn’t getting the same fulfillment of education as I thought I could from combining education and farming. I just didn’t know how to farm and had never done it.  So I quit and I moved to Ohio really working and learning to farm.  That brought me to Colorado, where I worked on an urban farm for two seasons.

But knowing that I kind of always wanted to be back, not necessarily in Beverly Hills or Los Angeles, but closer to Southern California. Then trying to think about how I could create a space where I wanted to do all of these different things? It just didn’t really exist here. So clearly, the rational decision was just to start it on my own. Why not?  I never in my wildest dreams had imagined I’d be a business owner or start a nonprofit or kind of even a farmer for that matter. Life definitely took me on so many different kinds of paths. Once my co-founders were involved and we had these conversations, it just felt like we were going to do this.  I couldn’t have predicted any of it.

Charity Matters: What are your biggest challenges?

Jennifer Levy: We launched in January 2020 and then COVID happened.  So we just stopped literally.  We didn’t get accepted from the IRS till 2021. So there were lots of things we thought were gonna go smoothly that did not.  It just took a long time. We worked with an amazing fiscal sponsor, so we could at least start fundraising and kind of get up and running. That was a whole set of different things we had to learn.

We were reading for months, how organizations weren’t getting fresh produce, and there was such a need right now. So January 2021, we opened in a commercial space in Beverly Hills, with 15 hydroponic towers. Since January, we’ve been growing food and donating to three main partner organizations. That has been like the biggest joy for everybody. We’ve just been allowed to use this beautiful space. We get foot traffic, and people are there and they get to see what we’re doing.  I get to teach every day, people who come in and want to hear about hydroponics. More than that, we’ve donated almost 150 pounds of lettuce and herbs, which don’t weigh that much. Actually volume-wise, a lot of lettuce. We’ve impacted over 600 people and we really have formed these relationships with some really amazing partners. So it’s kind of been like a lifesaver.

Charity Matters: Can you explain what Hydroponics is?

Jennifer Levy: We’re using vertical hydroponic towers. So in these towers, essentially, there is a reservoir at the bottom where the water stays and the nutrients go. And there’s a pump that essentially pumps the water to the top, and then it kind of rains down onto the root systems of plants. It’s like this self-contained tower. They’re only about three feet wide by six feet tall, and ours grow 28 plants. Since we’re inside in a commercial space, we have LED lights, but you can have them outside. It’s allowed us to grow and donate this whole calendar year, which has been amazing 

Charity Matters: What fuels you to keep doing this work?

Jennifer Levy: There are a few moments like getting to harvest and deliver hands down is always so fulfilling and everyone is so beyond appreciative. The wins are kind of the education piece, right? So because we’re in a storefront in Beverly Hills, we get a lot of foot traffic. Anytime someone comes in, I get to have these very organic conversations with them about what we’re doing, why we’re doing it, and how they can get involved.

Just over the past couple of months, I’ve been able to go into schools, which is really amazing.  Education is at the core of everything we do. We have a tower in one of the elementary schools locally in Beverly Hills and we actually have two towers in a school in Ohio. Nobody’s seen this technology before.  A lot of people have kind of heard about it,  but really showing people that there are sustainable ways to grow food grow delicious, healthy, like nutrient-rich food. 

Charity Matters: If you could dream any dream for your organization, what would that be?

Jennifer Levy:  I think definitely our vision and dream are to have an outdoor far educational farm. We’re just starting a big campaign to purchase our first shipping container farm, which is hydro-powered built inside a refurbished shipping container. The impact of that is we can harvest over 1000 plants every single week. So the goal is to be able to provide for local restaurants, local grocery stores and start a community-supported agriculture program. Then residents or non-residents can purchase farm-fresh produce directly from us.

Charity Matters: What life lessons have you learned from this experience?

Jennifer Levy: Having passion and being excited is great, but there’s gonna be bumps in the road. So just trust the process. I’m learning as I’m doing this. So just having faith and trusting the process. I’ve learned that you do need a team around you, you need community. Not just the co-founders or our board or kind of our big supporters, but you need people you can call to ask for marketing help or social media help or just to complain to because you can’t do this alone.it won’t work.

Really be committed to what you believe in.  I think that what you believe is important enough for you to start a business then other people will too. Have faith in what you’re trying to do. The work we’re trying to do is going to help so many people in so many different ways. Sometimes it’s harder to remind myself of that. I do trust that what we’re doing is for everyone’s good.

 

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Causes

Episode 34: Saving Tiny Hearts

February is heart month. Heart disease kills over 659,000 people in the United alone each year. In addition to that 40,000 children will be born with congenital heart disease (CHD) this year alone. When Francie Paul’s son Joshua was born with CHD she and her husband Brian decided to make a positive impact for their child and so many others. They founded the nonprofit Saving Tiny Hearts. A nonprofit organization that is determined to put an end to Congenital Heart Disease, which is the number one birth defect of children

Francie was one of my very first interviews over a decade ago and her story and work have continued to inspire me. I recently had a chance to reconnect with Francie and her board chair Dr. Larry Kluge to discuss the incredible work Saving Tiny Hearts is doing. If ever there were two humans with huge hearts to mend all the broken ones it’s Francie and Larry.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Saving Tiny Hearts does?

Larry Kluge: Every day, we’re looking to raise as much money as we can to fund as much research as we can. Nearly every dollar we raise goes to support research. Recognizing how important it is that difference in raising money for research makes in the lives of children. We’ve already found that that was the case, in terms of many of the projects that we have funded have actually changed and improved the lives of children born with congenital heart defects. This is what Saving Tiny Hearts does.

Charity Matters: What was the moment you knew you needed to act and start  Saving Tiny Hearts?

Francie Paul:  On August 11, 2005, we had our first child, a beautiful baby boy named Joshua Bennett Paul. My pregnancy was “normal” and the doctors reported nothing “remarkable” about it.  Four hours after his birth, Joshua was rushed from the local hospital to Children’s Memorial Hospital in Chicago. Joshua was diagnosed with Severe Complex Congenital Heart Disease.

Like many parents in the same situation, we became very angry and considered litigation as a course of action. After meeting with high-profile medical malpractice attorneys, we decided this course of action was not for us. In the elevator on the way out of the attorney’s office, we called Brian’s corporate attorney to find out how to start a public charity. We wanted to channel our energy into something positive instead of negative.  On September 1, 2006, the United States Internal Revenue Service officially recognized the Saving tiny Hearts Society as a tax-exempt 501(c)(3) organization

Charity Matters: What are your biggest challenges?

Francie Paul: Our challenges.  I have a good friend who said it’s her first instinct not to talk about it. And I always say, if we don’t talk about it, the world won’t know that our kids need help. Right?  They cannot yet fix what Joshua has. So I need medicine to catch up faster than what we’re doing.  I wish people knew that the research we fund could save their aunt’s life,  their mother’s life, and could save their life

 Joshua’s heart surgeries are a direct result of ongoing research. There are not yet adult survivors that have had his heart surgery versions. So like every year is a blessing and every year is also a race against the clock for me. I feel like I could shout to the world and say, “Everybody if you knew how much of your money directly goes to the scientists that our medical advisory board decides?” They only pick what is most worthy for Saving Tiny Hearts grants.  If people knew that their money went to actually change the world, by changing medicine and science. How remarkable the future could be.

Charity Matters: What fuels you to keep doing this work?

Larry Kluge: Our motivation remains the same year after year, month after month, day after day, as we struggle to get the word out and raise those urgently needed funds to support more and more research that will ultimately save the lives of children born with CHD.  Our work has just begun and will continue until we can eradicate CHD.

Charity Matters: When do you know you have made a difference?

Francie Paul:  I can but I can share a quick story about a boy. His name was Gray. He collapsed on a hockey rink, and from sudden cardiac death. And it just so happens that one of Joshua’s CV surgery nurses was there. So she ran and people were trying to do CPR. She said,” Call 911 Get me the AED.” She did CPR on him using the AED and saved his life.

We had Gray come to our gala and it happened to be his high school homecoming, so he brought his date. Gray got up there at our gala and said, “You know, I’m one in a million kids this happens to.”  That night we also had a doctor come up whose research we funded. And the doctor said to Gray, ” You’re not one in a million. This happens more than you realize. But I’m coming up with a study that will prevent it from happening to kids just like you.” 

Charity Matters: Tell us what success you have had and what your impact has been? 

Larry Kluge: Success is continuing since 2006 on our mission to fund life-saving research.  Sixteen years have gone by and we are still here committed to raising funds to support life-saving research.  Our Medical Advisory Board continues to review and evaluate all the grants that we receive year after year and determines which ones are most worthy of our funding efforts.  We have raised over 6 million dollars and funded 60 research projects.  Many of the research projects funded have already made a difference in the lives of children born with CHD.  Not only children but today after funding the development of a heart in a lab, an adult has received the first heart transplant from a pig which stemmed from research we have funded.

Charity Matters: If you could dream any dream for your organization, what would that be?

Francie Paul: To eradicate CHD.  To have a world filled with healthy children never to be born again and suffer from CHD.  Live long and healthy lives without fear or restrictions.

Charity Matters: What life lessons have you learned from this experience?

Francie Paul:  It’s been a humbling journey. And I think, through those moments of heartache, you see the goodness in people.  I think you see the goodness and the true heart and passion in people.  When somebody raises money for research for us, and my baby was given a chance… And I can only dream about what the future will be like because of everybody’s helping everybody.  Really when everyone comes together it is just the best. And just, I feel like the best is yet to come. And for lack of a better way of saying it, I only dream for it to only be bigger and better.

Charity Matters: How has this journey changed you?

Larry Kluge: Recognizing how fortunate we are and how we can be of help to others is what we strive for day after day. My personal commitment is to make a difference in someone’s life every day.  To put a smile on a child’s face, to make someone laugh, or just bring some cheer and hope to another individual is what life is all about.  Making a difference.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Health

Having a heart

February is here and with it comes Valentine’s Day, Presidents Day, and of course heart month. In the past decade, we have talked to a number of organizations that focus on the heart. For good reason, one out of for deaths each year is from heart disease. The translation is that over 659,000 people die in the United alone each year from heart disease. These are not just statistics but real people. To visualize this number that is over six huge football stadiums full of people each year. One person every 36 seconds, not to mention the 40,000 children will be born with congenital heart disease this year. So what do we do when are our hearts are broken?

Luckily for us, there are a multitude of amazing organizations working tirelessly to solve and tend to this problem. I thought before the month jumped into high gear we could take a moment to revisit some of the great organizations we have met who are working to reduce those numbers. Some of these go back so far that I felt like I was looking at old friends, I hope you feel the same.

Hopeful Hearts Foundation

A decade ago we talked to the Chez family about their organization, The Hopeful Hearts Foundation. The Chez family had three children all born with Congenital Heart Disease. Tragically they lost their daughter Gracie suddenly at the age of three and created the Hopeful Hearts Foundation in 2008 to keep her memory alive and to help other children suffering from CHD.  The Hopeful Hearts Foundation supports families whose children have CHD and also raises funds to provide research for Congenital Heart Disease.

Camp Del Corazon

Some of you may remember Lisa Knight, a registered nurse and nonprofit founder of Camp Del Corazon. The camp is a place for children with heart-related health challenges to have fun, make friends and find fellow children going through similar health issues.

Lisa said, ”  I get so filled up by it all.  These kids have survived death, there are no camps for these types of kids due to their medical conditions. It transforms them. You see them show each other their scars. The most rewarding thing is when you hear children call you by your camp name when you see them years later not at camp.  This year our first camper is coming back as a counselor, so to see not only these children grow up and give back but to watch my own 29-year-old daughter getting even more involved as she takes on more responsibility with her role at Camp del Corazon, is so rewarding. “

Mended Hearts

In 2017, we talked to our friends the Page family about their experience with Congenital Heart Disease in our post The Heart of the Matter. In that conversation, we learned about Max Page’s support of the organization Mended Hearts. A nonprofit that was created in 1951 to give peer support to those dealing with heart disease. Dr. Harken asked four of the first four people to ever have open heart surgery to help others facing the same experience. In 2004, Mended Hearts realized that families with children suffering from CHD also needed that same peer-to-peer support and created Mended Little Hearts.

There are hundreds of organizations working tirelessly to do research to cure Congenital Heart Disease. These are just a few of the amazing people working to heal broken hearts. Next week we will continue our look back with Francie Paul from Saving Tiny Hearts in our podcast. I’m so excited to share our conversation about the incredible work she and her team have been doing to help find a cure. Until then, wishing you all a wonderful heart month full of love.

CHARITY MATTERS.

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Causes

Episode 33: Matt Kamin Nonprofit On the Rocks

Each of us walks a path in life that takes us with a multitude of twists and turns. Today’s guest, Matt Kamin is no exception. Matt has lived a life full of philanthropy in so many ways. Before Matt became the host of the popular podcast, Nonprofit on the Rocks...which is how we met and Co-Founder of Envision Consulting, he was a two-time nonprofit founder.

I am so excited to share this incredible conversation with Matt about his multitude of experiences in the nonprofit space. Matt’s story is the perfect example of how one seed of compassion turned into an inspiring life full of service. Matt is truly a ray of sunshine and you won’t want to miss our joyful and uplifting conversation.

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about Your early philanthropic experiences?

Matt Kamin: So that is a really good question. And I also agreed, where does that come from? Why do we take on jobs that pay nothing for more stress and more pressure at work? So I think that my nonprofit passion, the love that I have for this space comes from my grandma.

My grandmother was born with polio, and she moved to LA on her own with two kids. In the 1940s, she put together a booth at Santa Monica Pier. It was like a nickel and a dime machine and she saved her pennies.  She saved and started investing in real estate. This is a woman in the 1940s in LA on her own and she grew this empire, this actual real estate empire. So first off, I’m just beyond impressed by this woman who, who was able to go and make all this happen for her family. right. And as a huge part of that, she gave back.  I would tell you, like 25% of whatever it was that she made, she gave back to nonprofits.

As a child, she used me to raise money. I remember I think the first thing that I ever did was I helped auction off a car. One of her nonprofits was selling a donated car and she used me a six-year-old to sell tickets. That was my first taste and watching her do it and that was it. She also inspired my mom and my dad to also give back they chaired nonprofits as well. So in college when I came out, that was the time, and it was like, Okay, this is time for me. 

Charity Matters: What was the moment you knew you needed to act and start Your first Nonprofit?

Matt Kamin:  I volunteered at the time it was called the Gay Lesbian center.  What we did was we went out on the weekends and talked to kids who were basically selling themselves in the park. The first kid that I talked to, had been kicked out of his home.  I remember looking at him, he was my age and he was on all the drugs you can possibly be on. He had a pimp and he was trying to make money in prostitution.  I  remember saying to myself, how did I get so lucky?   And that was it. That was the switch and when I said this is my life. And so I started a nonprofit at UCLA to bring support networks for gay kids at college. And that’s how my nonprofit career started.

I’m very proud of that college nonprofit because it still exists. They have a multi-million dollar budget, and it’s an international nonprofit.

Charity Matters: Now that you are helping nonprofit Founders, What are the biggest challenges you see?

Matt Kamin: Envision Consulting does both strategy and searches for nonprofits. That’s all we do. So it’s half strategy, half recruiting. On the strategy side, strategic plans, board retreats, mergers are huge things right now. Then on the search side, it’s recruiting for C suite individuals.. I’ll give you an example.  I have a friend who started a nonprofit. And, she has over the last few months, been losing faith in her organization, because she was not able to find the people to fundraise period.  She’s been like beating her head against the wall trying to figure out what to do. And so we’ve, we’ve had many conversations about what she can do.

 What I will say is most important is when you run a nonprofit is that it’s lonely at the top. You have to fundraise, you have to meet the budget, you have to report to your board of directors who are all volunteers. You have to deal with your staff, you have to deal with all kinds of things and especially in COVID, it’s been impossible. Loneliness at the top is what I will tell you is the most challenging part of being an executive director and a founder. 

Charity Matters: What fuels you to keep doing this work?

Matt Kamin: We’ve been talking about this whole year. How do we keep going? How do we stay motivated? It’s hard and the honest answer is there are days that I just want to be done. But it’s really remembering why I do this at the end of the day, why it’s worth sometimes being yelled at by a client, right?

I’ll give you an example of what makes me so happy. We placed a CEO at a domestic violence shelter. We found her. She not only grew the organization but also received a grant for $5 million and just acquired another domestic violence shelter. So now they’re serving that many more victims of domestic violence. Big Wow. She is spectacular in every which way, but that is something that wouldn’t have happened if it wasn’t for us.  So I may not be running a homeless shelter anymore. I may not be making those direct impacts on people’s lives. But she is and she wouldn’t have had that job and be doing this great work if it wasn’t for us.

Charity Matters: What life lessons have you learned from this experience?

Matt Kamin: This country’s become like the rest of the world, we’ve gotten ugly and we’re all politically just so divided. We can all get together no matter where you are, no matter who you are and we can volunteer at a soup kitchen to give out food to people who are hungry. Right, we can all do that?  I think that it’s really important for us in the nonprofit space and for us all to think about giving back.

The thing to remember is, there’s always going to be somebody who has more, but there’s also always going to be somebody who has less. And so what gets me going is remembering that and giving back.  I can always work harder to get the nicer car,  or whatever it is, but I always try to remember why I did this, to begin with.  I think that’s really important.

At the end of the day, that’s what my grandmother has taught me. You get to where you need to be in life and then don’t forget it.  Don’t forget.  Remember how lucky you are to give and give back regardless of where you are.  

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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What Matters?

Giving to oneself

It really is amazing the difference a month can make. The quiet of January is a stark contrast to the insanity of last month. This time of year I find that we all slow down for a number of reasons. First, we are exhausted from going full throttle during December. Secondly, we need the quiet and stillness of January to renew. January is really a month of renewal. It is a time when we give to ourselves.

The past few years we have taken our family vacation in January because after the hustle and bustle of the holidays we all really needed some downtime. The best thing about January travel is that nothing is crowded. It’s as if the world sent a memo that we all need to hibernate for the month. Starting off the New Year with a trip sets a great tone for the year and puts us all in such a great space to begin planning for our year ahead.

Now that our vacation is behind us and Season Three of our Charity Matters Podcast has launched, I’m thinking about self-care.  A week or two to slow down the pace, read a little more and reflect on what’s ahead. I’m not sure about you but for me, the path forward is unclear right now. Sure, I have goals and plans but how exactly all of the dots are going to connect is truly a mystery. Things feel a bit fuzzy or slightly out of focus. I can see where I want to go but am really not sure the steps forward to get there.

Rather than forge ahead, like a bull in a china shop, I am going to pause. Take a breath, recharge, and make sure my tank is full so when the fog lifts I’ll be ready. Until then, you’ll find me reading, listening to our podcast, walking the dog, and enjoying the quiet pace of January….while it lasts.

 

CHARITY MATTERS.

 

New episodes are released every other Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Causes

Welcome to Season 3! Episode 32: Diveheart

Welcome to Season Three of the Charity Matters Podcast! We are so excited to introduce you to another incredible season filled with amazing heroes. Today’s guests are the perfect way to dive into this new season. As a lifelong recreational scuba diver, I know how scared I am every time I enter the water. So many things are out of my control, the fear of not being able to breathe followed by the peace, stillness, and beauty of the ocean. Overcoming that fear every time leaves me feeling recharged and accomplished. So when I heard about the nonprofit Diveheart.org that works with people with disabilities to live better lives, I knew they were the perfect organization to launch Season Three of our podcast. So let’s dive in!

We are so excited to introduce you to Jim Elliot the Founder of Diveheart.org and their Executive Director, Tinamarie Hernandez. Join us for a fun and inspirational conversation about what can happen with a positive can-do attitude, a scuba tank, a body of water, and a passion for making people’s lives better. You won’t want to miss this one!

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what Diveheart does?

Tinamarie Hernandez: Diveheart is an organization that works with people with disabilities, physical and cognitive. We’re also a training agency for people who want to work safely with people with disabilities in the water. And we use scuba diving as a therapy.

So we start people in a pool, we get them to where they’re comfortable.  We see a lot of stuff, self-improvement in the people that we work with. They get the confidence and a renewed vigor of life. Some of the people we work with might have been in an accident. We also work with people who’ve dealt with their condition their entire life.

And it’s one of those moments where they’re like, I’m getting a win, this is a winning day for me. And that’s something I tell parents and family members, you know because they’re nervous. I guarantee your loved one is going to leave with a win today. They’re going to be proud of themselves for something. So that’s what we do, we don’t cure ailments. What we do is help people live a better life.

Charity Matters: What was the moment you knew you needed to act and start Diveheart?

Jim Elliot: I’m a media guy by trade. I’m a journalist. I took diving because I thought if I ever meet someone like Jacques Cousteau, I better know how to scuba dive.  I had a burning desire to learn how to dive and fell in love with it. As you know, it’s a great equalizer. It’s like being an astronaut in inner space. It’s amazing.

So during the 80s, I was in the media business and helped startup a TV station. I was also on these nonprofit organizations’ boards. And in the mid-80s, I started guiding and teaching blind skiers because my eldest daughter is blind.  I saw how that helped people and said, “You know, you can only ski at certain times of the year in certain places in the world, but there’s a pool in every community. So what if I were to do what I’ve been doing for decades in skiing, and taking people out of wheelchairs and putting them in the water and having them fly, learn to be an astronaut.” And that was kind of the premise of the whole idea. That was 2001 that we incorporated and this is our 20th anniversary.

Charity Matters: What are your biggest challenges?

Tinamarie Hernandez: The challenges are to evolve and to keep our finger on the pulse of what is changing. As a nonprofit that needs help with funding, all of our pool programs are free. So we need people to give us  99% of the money that we need to help us run our programs.  It’s about getting the word out and letting them know that, yes, you’re giving us money so that we can help people in the pool because even though it’s free for them, it’s not always free for us.  So that’s a challenge to keep going. 

Jim Elliot: We have a documentary called TurningPpoint that was done and airs on PBS every now and then. And we had somebody from Southern California call us and say, “You know, my husband and I watched turning point last night and we cried, where do we send a cheque?” Five years later, that donation (knock on wood )has increased every year. We just make sure she knows everything, all the good stuff that we’re doing. So she knows that her investment or donation is going places.

Charity Matters: Tell us what success you have had and what your impact has been? 

Tinamarie Hernandez: We have one particular individual with who we’ve been working with her since she was three months past her very life-changing. accident.  She’s now a complete quadriplegic and was injured at 19. You don’t know what you’re going to do with your life at 19, right? But when we met her she was still in her anger phase, which is understandable. She was a very decorated athlete before this accident.

This last week, she announced that she is going to finish her degree. I can’t say Diveheart did all the work. We didn’t but we helped get her that spark. I know we did. She’s worked with us and her whole life has changed. She’s been inspiring people with disabilities to get certified. They’re like, well, wow, I didn’t want to get certified or get in the water until I saw her.

Seeing this young woman coming up out of the water with a smile on her face with her energy makes others think, ” Maybe I am missing out on something.” Those are the impact moments. I can’t measure that impact. That person’s life is better. I know and I hope we can reach as many people as we can. 

Charity Matters: When do you know you have made a difference?

Jim Elliot: I think you hit the nail right on the head when you said ripple effect. Because what we do, and what’s really cool about what we do is that it can happen so fast.  The first pool session can be so powerful because it’s not natural to breathe underwater. It happens to everybody that puts their face in the water and breathes it off that tank. And it changes the way they think and the way they really experience life.

We like to do to say that we take the unrealized human potential, and we create a paradigm shift. So now it’s not Johnny in a wheelchair, it’s Johnny, the scuba diver. Then what we do is, once they have this new identity, we point them towards being a good steward of the environment.  You know, get into marine biology or just be a helper and do good in the world. Then we try to help them go in that direction. In turn, they inspire people around them, like you said, the ripple effect. And this girl that Tina was talking about. She came to us and said, “You changed my daughter’s life. Thank you so much. “

Charity Matters: What life lessons have you learned from this experience?

Jim Elliot: One of the things that keep us going and able to adapt is when we are hit with an obstacle.  We take lemons and make lemonade, basically. What action do we take, that’s going to really be meaningful at this moment? Where we can just stay with it and then persevere, take that obstacle and turn it around. And we’ve been successful doing that many times. As the book says, the obstacle is the way.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Non-Profit Heroes

Winter Break

I hope that 2022 is off to a terrific start. Our incredible crew here at Charity Matters (Emma, Jack, and Ana Sofia) have worked so hard pushing out stories all last year. It seemed like a great time for all of us to take a winter break. We are taking a little hiatus to rest, regroup, and hit the reset button. We are getting so excited for Season Three of the Charity Matters Podcast that will be out later this month.

In the meantime, I encourage you to catch up on old episodes and tune back into your favorite episodes of our podcast this month! If you have any favorite nonprofits or know a nonprofit founder that you think would make a great guest for next season don’t hesitate to send us an email or DM us on Instagram. We love all of your suggestions.

Until then, know that we are excited for what’s ahead in 2022 and can’t wait to introduce you to some inspirational humans who make our world better. Hope you are as excited as we are…

Charity Matters

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Charity Matters Inspiration

A Little Fear Come New Year

Happy New Years everyone! I hope you had the best of holidays and are off to a great 2022. I’ve been thinking a lot these past few days about the New Year. I am historically someone who can’t wait to make my list of resolutions, excited by a blank piece of paper, goals, and a list. Type A all the way. Sad but true.

However, this year I don’t feel that way and it’s been perplexing. Why would I not get excited and hopeful about a new year and a chance to start anew? Honestly, I think the answer is that I am afraid. Afraid of having hopes, wishes, and dreams squashed. If you don’t dream them then they can’t be taken away, right? If you don’t write them down then maybe you don’t have to work so hard trying to achieve them. These past two years have definitely taken their toll in that department.

In late November of 2019, I was on the cusp of achieving something I had dreamed of for a decade. It was a pinch-me sort of moment and in an instant, something totally out of my control, temporarily suspended the dream. That was tough but still okay because 2020 was coming and we were going to relaunch this dream in March of 2020. Well, we all know how that went. I think for many of us big dreamers 2020 was a time for us to really throw ourselves all out. We were so sure that the new decade and year was going to be our year, THE one.

Last year, I admit I was a little gun shy in the New Years’ resolutions department. My attitude was a bit like control what you can control and let the rest go. I did that. We launched the Charity Matters Podcast, which was great. However, last year felt like a transition year. A transition from what to what remains to be seen but that is how it felt.

Now, here I am again with the blank piece of paper in front of me and 360 some odd days in this New Year and I am gun shy. Nervous, tentative, and a little scared. That is life, it is scary and not being in control for us control freaks is the scariest. If I learned anything from the last two years it is that I am not in control of anything but my decisions. As a result, I am deciding to face my fears and jump back into the ring in 2022.

This year, I am going to pursue my dream yet again. I am going to sit down and see what goals I can achieve, strive for, and work to make happen. I will do my best, celebrate the small steps forward and most importantly enjoy the journey of it all. At the end of the day, our resolutions are not about a list but they are a road map for the lives we want. If we don’t write down those maps then it is much harder to know the direction of our dreams.

Afraid or not, 2022 I’m coming for you. Hopes, wishes, and dreams. I hope that each of you is envisioning a joyous and magical New Year filled with everything you wish for. Happy happy New Year!

Charity Matters

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Cancer

The Real Heroes of 2021

As we get ready to say goodbye to 2021, I wanted to take a moment to look back at what we accomplished at Charity Matters this year. Last January we launched our podcast, which in itself was a huge accomplishment.  In the past year, we have interviewed 31 extraordinary humans. Each story was a lesson in faith, resilience, courage, and compassion. These amazing nonprofit founders are the real heroes of our world in their quest to make life better for others.

While I have adored every conversation this past year, a few stood out especially from Season Two. I thought before we take our holiday break to get ready for Season Three we would take a moment to share a few stories that really touched our hearts this year. So let’s look back at some of the real heroes of 2021….

Love Not Lost Founder: Ashley Jones

Ashley Jones is the founder of Love Not Lost. Ashley shares her journey through grief with the loss of her young daughter and her transformational experience from loss to creating a remarkable organization that provides family photoshoots for the terminally ill. Her honesty and candor about grief are anything but sad.  You will leave this episode inspired by the joy and purpose found from an unbelievable loss.

The Bumble Bee Foundation Founder: Heather DonaTini

Heather Donatini, aka Queen Bee of the BumbleBee Foundation. Heather and her husband Jason, established the Bumblebee Foundation in 2011 in memory of their son Jarren who was diagnosed with rare liver cancer at the age of three. Their mission is to inspire hope, faith, and the overall well-being of pediatric cancer families.  Heather and her husband work tirelessly to serve pediatric cancer families. She is a lesson in resiliency and faith. She is truly remarkable and the work they do is just as inspirational.

The Be Perfect Foundation Founder: Hal Hargrave Jr. 

I have been privileged to meet hundreds of truly amazing humans over the years. There are always a few that are so dynamic, charismatic, passionate, and wise that you can never forget them. One of those people is the remarkable Hal Hargrave. You may remember his story from a few years back. Hal was involved in a tragic accident that left him paralyzed fourteen years ago. He used that experience to serve others suffering paralysis with his nonprofit the Be Perfect Foundation. A conversation that is better than caffeine. If you have read Hal’s story and not heard his passion, you need to take a listen. Trust me, this will be a gift you give yourself today. The man is pure light and inspiration.

Pancreatic Cancer Action Network President and CEO: Julie Fleshman

I have to admit I was a little intimidated meeting Julie Fleshman knowing what a huge organization she and her team had built.  Under Julie’s leadership, PanCAN grew from one employee to 150. PanCAN has funded over $149 million dollars in research for Pancreatic Cancer and created a platform that has fueled incredible change for the Pancreatic Cancer community. Despite my fears, Julie was beyond amazing, passionate and so much fun to talk to. Join me to meet this inspirational leader and learn about her incredible journey in changing lives.

Raise The Barr Foundation Co-Founder: Lori Barr

Lori Barr is no stranger to inspirational seasons because much of her life has been based around her now-famous son’s inspirational football seasons. Lori is the proud mother of NFL Minnesota Viking’s outside linebacker, Anthony Barr. However, it is much more than his football career that makes her proud, it is Anthony’s work to serve others with their nonprofit, Raise The Barr that is truly inspiring. Lori Barr talks about her journey as a single mother to nonprofit founder and shares her story of raising Anthony as a young single mother.  Learn how they decided to give back to help other single moms finish their education and support their families. Lori is pure sunshine and inspiration. This is a conversation you don’t want to miss.

There are millions of everyday heroes all around us. These five are just a small example of the millions who work in the nonprofit space and give their lives to serving and helping others. Each person is a reminder for us all that we get so much more when we give. As we look back at 2021 and reflect on what we accomplished at Charity Matters, we find ourselves asking what more can we do for our neighbors and communities in 2022? Thank you all for being a part of this wonderful community of caring compassionate people. We are so grateful for you all and wish you a most joyous New Year!

 

If you enjoyed today’s episodes, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2021 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Causes

Ways to help families in Kentucky

Growing up in Los Angeles, we really don’t think much about tornadoes. Yes, there are earthquakes but most people don’t worry about them because they catch us all by surprise. This past weekend, all of us were caught off guard by the extreme magnitude of loss in Kentucky and the surrounding states and counties from the devastating tornadoes. There truly are no words to imagine what these families are going through right now. One minute they were preparing for the holidays and the next moment they have lost everything.

As broken and sad as our country may be right now, one thing Americans have done since they arrived on this land was helping one another. It is in our DNA and who we are. I can think of no better time of year than now to lend a hand. I came across this list in USA Today and wanted to share it here. Maybe just donating a few dollars you have to help a family in need? Perhaps you want to help a family for the holidays or give that as a gift to someone you care about? I thought it was worth sharing with each of you, some of the kindest and most compassionate people I know. Please feel free to share it and thank you in advance for doing what we do best, care for one another.

West Liberty, Ky., March 19, 2012 –Little remains standing of this historic church in downtown West Liberty. FEMA is working with Commonwealth and local officials to remove debris and demolish condemned buildings. Photo by Marilee Caliendo/FEMA

A few ways to help …..

Team Western Kentucky Tornado Relief Fund 

Gov. Andy Beshear has established a fund to assist tornado victims and begin rebuilding. Donate at secure.kentucky.gov/formservices/Finance/WKYRelief or by sending a check to Public Protection Cabinet, 500 Mero St., 218 NC, Frankfort, KY 40601.

American Red Cross 

Visit redcross.org, call 1-800-RED-CROSS, or text REDCROSS to 90999.

Aspire Appalachia 

Send donations to [email protected] or PO Box 1255, Jackson, KY 41339.

CARE

The nonprofit based in Atlanta is partnering with Louisville’s Change Today, Change Tomorrow to distribute food, water, and cash vouchers to affected families. Donate to the tornado relief fund here.

Global Empowerment Mission

The disaster relief nonprofit based in Miami is sending trucks of supplies to western Kentucky, in partnership with Racing Louisville and Louisville City Football Club. Donate funds at globalempowermentmission.org/mission/kentucky-tornadoes/.

Global Giving 

The D.C.-based nonprofit has established a Midwest US Tornado Relief Fund at globalgiving.org/projects/midwest-tornado-relief-fund/.

Kentucky Counseling Center

The organization is collecting donations that counselors and social workers in Graves County will distribute to affected families. Donate at kentuckycounselingcenter.com/mayfield-fund/.

Kentucky Tornado Relief Fund 

The University of Kentucky College of Medicine has established a GoFundMe page collecting donations at gofundme.com/f/ukcom-student-effort-for-tornado-relief-in-ky.

Kentucky Volunteer Organizations Active in Disasters 

Visit kentuckyvoad.org/.

Mayfield Graves County Tornado Relief 

Mayfield-Graves County United Way has set up a GoFundMe to collect donations at gofundme.com/f/mayfield-graves-county-tornado-relief. Find other verified fundraisers at gofundme.com/c/act/tornado-outbreak-fundraisers.

Marshall County Fund 

The Marshall County Nonprofit Foundation has established a Venmo account to take funds at @MCNPF.

Mercy Chefs

The nonprofit that serves meals following natural disasters has set up at His House Ministries, 1250 KY-303, Mayfield, Kentucky, and will distribute food over the next few days. Donate funds at https://mercychefs.com/donation.

Relevant Church 

The church in Mayfield, Kentucky, is taking donations for a tornado relief fund at wearerelevant.churchcenter.com/giving/to/mayfield-tornado-relief.

Rise and Shine 

The mutual aid group in Bowling Green is taking donations through Venmo at @riseandshinebgky.

Salvation Army 

Visit helpsalvationarmy.org and donate to the Salvation Army Western KY Disaster Relief Fundraiser on Facebook.

United Way of Kentucky 

The agency has set up a donation site specifically for tornado victims. Visit uwky.org/tornado.

Western KY Tornado Victims

Bremen resident Courtney Cozee has established a GoFundMe at gofundme.com/f/western-ky-tornado-vitamins.

Western Kentucky Red Cross Disaster Relief Fundraiser 

Find the online fundraiser on Facebook.

Donate supplies

Green River Distillery

Owensboro residents who want to donate supplies can take them to Green River Distillery, 10 Distillery Road, beginning at 10 a.m. Monday. Most needed items include water, baby formula, diapers, sanitizing wipes, sanitizer, gloves, and trash bags.

Jefferson County Public Schools

The largest school district in the state is holding a “Stuff the Bus” event to collect donations for western Kentucky residents. Drop off donations in front of the VanHoose Education Building, 3332 Newburg Road, from 7:30 a.m. to 4:30 p.m. every day this week.

Lyon County Courthouse

People with supplies to donate in Lyon County can drop them off at the courthouse, 500 W. Dale Ave., Eddyville. Officials are requesting trash bags, coffee, disinfectant wipes, work gloves, safety glasses, and gift cards.

Marshall County Tornado Disaster Relief  

Call 270-703-2706 or 270-252-6530 to donate food, water, toiletries, cleaning supplies, and other items.

Veteran’s Club Inc.

Veteran’s Club Inc. will be collecting donations to send to Western Kentucky from noon to 7 p.m. Monday at Fern Creek Christian Church, 9419 Seatonville Road.

Suggested donations include “water, medical supplies, non-perishable food, heaters, warm clothing, large tents, and pet food.”Donations will be transported to Mayfield.

Clayton & Crume

The leather goods company, which began a decade ago in a Western Kentucky University in Bowling Green, is accepting donations via its website to support people and organizations in Bowling Green that need assistance. Any remaining donations will go to the American Red Cross.

Green River Distillery

The Green River Distillery in Owensboro is serving as a drop-off point starting at 10 a.m. Monday for locals looking for ways to help support tornado relief efforts in Western Kentucky.

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Causes

Episode 31: Raise The Barr

As we wrap up Season Two of our podcast, I can think of no greater guest than todays to conclude this inspirational season. Lori Barr is no stranger to inspirational seasons because much of her life has been based around her now-famous son’s inspirational football seasons. Lori is the proud mother of NFL Minnesota Viking’s outside linebacker, Anthony Barr. However, it is much more than his football career that makes her proud, it is Anthony’s work to serve others with their nonprofit, Raise The Barr that is truly inspiring.

Photo cred- Janae Johnson photography

Join us today for an incredible conversation with Lori Barr about her journey as a single mother to nonprofit founder. Lori shares her story of raising Anthony as a young mother and how they decided to give back to help other single moms finish their education and support their families. She is pure sunshine and inspiration, it is a conversation you don’t want to miss.

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what Raise The Barr does?

Lori Barr:  Raise The Barr’s mission is to increase opportunity and economic mobility for single parents, students, and their children through education. What that looks like, is providing holistic resources and support to low-income single parents, students who are in pursuit of a post-secondary degree training certification. The end goal of securing a career that offers a family-sustaining wage. We know that education is one pathway out of poverty. So that’s the road that we’ve taken because it was inspired by our own experiences.

Charity Matters: What was the moment you knew you needed to act and start Raise The BARR?

Lori Barr:  It’s kind of a combination of a whole lot of things and an intersection of all these life experiences that brought us to this point. Growing up Catholic, we were always taught very, very early on that when the basket passed that we put a little something from our own piggy bank into the collection plate. As a result, that very early experience of helping your neighbor and paying attention to the experiences of others.

Then all this stuff happens through life and I end up getting pregnant at the age of 19.  I was going into my junior year at St. Mary’s College in South Bend, Indiana. So, I kind of had to reprioritize my life and figure out how I was going to take care of myself and my small child. Those experiences kind of fueled the vision for Raise The Barr. 

In 2014, when Anthony was drafted in the top 10 of the NFL Draft, we held a youth football camp.  It was free and for the local community to get to meet Anthony.  He was kind of a local star and he wanted to bring all these people together. It was an amazing day, we had over 300 Kids, 150 volunteers, and all of these people coming together. After that experience, he and I sat down and said, “Wouldn’t it be cool if we could harness this energy, and this enthusiasm, with your platform to really do something big and have a big impact on families like ours?” That’s where Raise the Barr was born.

It really started from our own stories and experiences. What we originally thought was let’s just start a scholarship fund for single moms like me, who are trying to do something to support their family but they may need a little support. We thought that support looked like a scholarship. Although that is still part of our overall programming, that isn’t even the tip of the iceberg of what single parents need in order to persist through post-secondary, it’s just one part of it.

Charity Matters: What are your biggest challenges?

Lori Barr: Right, it is hard work. I think that recognizing what your limitations are, is humbling.  It puts you in a place to realize that we need to kind of stay in our lane. For us, it was recognizing that one of our biggest challenges was diverse revenue sources.  Our biggest funder could not be Anthony.  We needed to be sustainable and we really had to dig to create diverse revenue streams.

Our second biggest challenge would be brand awareness. It really is about folks learning about you and coming up with a plan of how you’re going to market your product. In order for people to get engaged, you have to start with building a relationship and building trust. That’s brand awareness, trusting who we are. When you see our logo, when you hear tackling poverty, we want you to think about Raise the Barr.

Charity Matters: What fuels you to keep doing this work?

Lori Barr: The families we serve, the relationships that we’ve built, and the belief in our mission. Also,  knowing that this works and that we are having an impact.  Seeing the results of our early work, that’s what keeps us going. That’s what when I’m lying awake at night thinking, oh my God, I need to do blah, blah, blah, and I remember why we’re here. It is one step at a time. And, you know, we’re doing good work and we keep that in mind every step of the way.

Charity Matters: Tell us what success you have had and what your impact has been? 

Lori Barr: 99% of our scholars have earned a degree or graduated.  When we talk about increasing economic mobility, the annual income on average of an applicant, when they come into the Raise The Barr family is about $15,000 annually. Upon leaving and securing a career, the average income is $64,000 a year. So there’s a huge increase, and they can now support themselves and their family moving towards true prosperity.

For us, it’s totally about the stories and where they are now.  A real quick story of Tanya. She is a Native American single mom who grew up in poverty. Father in prison,  a mother struggling to make ends meat and college was not in her plan.  She became a mom at a young age. And, like me, she decided she better get into school and figure something out. She went through community college and ended up transferring to a university. Today, she is now being invited by the American Indian Science and Engineers Council to speak and present at their conference. She is a chemist and will graduate this December. Her son is a fourth-grader, he’s achieving above grade level, three grades above with reading and math. Those are our success stories. That’s the impact that we’re having.

There are so many more stories like Tanya that we have and that we really celebrate because these are lives that are changed. That we can be a little part of that change, and create hope and opportunity to me, that’s a huge success.

Charity Matters: If you could dream any dream for your organization, what would that be?

Lori Barr:  I think mine would be so similar to so many other small nonprofits out there. The dream is that we have all the resources that we need to do the work that we do. Our dream would look like us being able to really provide the resources needed to single parents, students everywhere, so they could succeed.  That might look like something practical, like an endowed scholarship, that also might look like having strong partnerships with post-secondary partners.  There are little things like that, which I think would help us continue this work, and really have an impact and really start to crack generational poverty.

Charity Matters: What life lessons have you learned from this experience?

Lori Barr:  I’m a teacher at heart, that’s what I was trained to do, and I went on to pursue a master’s degree in counseling and psychology.  So, I would say that I think I’m a pretty good listener. This has taught me to listen more, and talk less. And it’s taught me to really be more thoughtful about how I approach my own life. I think about the experiences of others. Somebody else’s experience is just as valuable, if not more than our own, and so listening, thinking, and letting that help our decision-making. 

As a sports mom,  I always use a sports analogy but really learned to focus on how to build a championship team.  Bringing the right people on board,  all with different skill sets. As a single parent, so often I carry the burden completely on my own, and decision-making all by myself.  It was not really, within my experience for 29 years to say, I need to bring others into this to really help us have a great impact. And that’s changed for me.

I’m just happy for folks to inquire and to share what we’re doing.  A big part of increasing our impact is raising that awareness and really building that championship team.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

Copyright © 2021 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Holidays and Holiday Giving

A Season of Giving

 

“Remember that the happiest people are not those getting more, but those giving more.”

―H. Jackson Brown Jr.

Yesterday was Giving Tuesday which means officially that the season of giving is upon us, a time of year when we feel kindred spirits towards our fellow man.  City streets are decorated and the clanging of the Salvation Army bell fills us with joy as we drop a few dollars in the shiny red bucket. For about forty days a year, we are called upon to be charitable. Why is giving only expected just once a year? More than that, how can we incorporate a little holiday season throughout our entire year?

Why We Give

We give gifts to those we love throughout the holidays for a number of reasons. First, we want to show those that we love by giving them something that will make them happy. Another reason we give gifts is to acknowledge our appreciation to someone such as a business associate,  a neighbor, the dry cleaner, or anyone who makes your life better. When we give these gifts it is typically the gift giver that receives the most joy in the giving. Charity is no different. It is the giver of a gift that feels the resounding joy and goodwill from making another’s life better.

Where to begin?

For many of us, we want to help but often don’t know where to begin. While dropping a few dollars in a red bucket at the holidays is nice it is not a long-term solution to incorporating charity into your life. Like any lifestyle change, it takes a few things to begin. First and foremost, is your goal or intention. What do you hope to accomplish? Do you want to find a like-minded group of people to volunteer with? Perhaps something has happened recently in your life and you would like to find a way to help an organization that helped someone you care about.  Maybe you have been the recipient of someone’s kindness and would like to pay it forward. Or perhaps you are trying to be an example for your children. Think about what you would like to accomplish. There is no wrong answer.

The next step is to identify a cause or nonprofit organization. With 1.5 million charitable organizations in the United States alone, it can be overwhelming. First, find the area of interest, is it education, health, military? Fortunately, there is an abundance of online resources.  For volunteering, there are great sites like VolunteerMatch.org or CatchAFire.org that match you with nonprofits based on your interest and location. PointsofLight.org offers a variety of online or virtual volunteering opportunities.

Make giving part of daily life

For people looking to incorporate giving more into a habit, there is a host of apps for your phone. The app Daffy helps you make giving a habit by setting up daily, weekly, or monthly giving goals and delivers the funds to your cause of choice. Other options are incorporating apps like Roundup App that round up your change and donate it to your favorite cause on purchases you make throughout the year. There is even an app that helps you shop finding sustainable products and brands called the Good Human App.

Here are a few tips to remember as we approach the season of giving:

  1. Set a goal or intention for what you want to achieve. Volunteering, giving back, raising philanthropic children
  2. Find an area of interest. Think about what is important to you? Health, education, military?
  3. Do your homework. Utilize online resources and apps to find ways to incorporate giving into your daily life.
  4.   Make giving habitual by being consistent. Whether it’s a holiday tradition, something you do at birthdays, or every day, be consistent. Establish giving as a tradition and habit. The more you participate the easier and more fun it becomes.
  5.  Emphasize the joy and the experience of giving rather than money. Philanthropy is about being a part of something bigger than yourself. Make it a joyful experience and something that makes you feel great.

This holiday season; enjoy the process of giving in whatever ways you decide to participate. Ultimately, we get so much more when we give. With a few simple changes, you can experience the season of giving all year long.

CHARITY MATTERS.

 

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Charity Matters Inspiration

Thankful this Thanksgiving

Today is the day that we take time to be thankful. This year, this day and this moment I am grateful for many things, my guess is for many of the same things you are;  health, family, friends and for all the amazing nonprofit founders who continue to inspire and teach so many invaluable life lessons.

This year has been a challenging one for me personally with more loss than I was prepared for. Yet, every time
I have a conversation with one of these inspiring founders its as if someone hit a reset button for me that leads me to gratitude. Each founder has sacrificed their life to make others lives better. Every one them remind us all what really matters and just how much we have to be grateful for each and every day.

So  today, I am grateful to each person who has come into my life and for all of the lessons they have taught.  Most of all, I am grateful to each of you who continue to inspire, teach and motivate on this journey. To each and all of you, I wish you and your families a very joyous and Happy Thanksgiving!

 

Charity Matters

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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Causes

Bisous for Léo

The world is a small and amazing place. More than that, the world is full of good people. One degree of seperation connected me to one of those exceptionally good people, Emily Rogath Steckler. Emily had a career in public relations when her best friend’s son, Leo, was diagnosed with a rare disease changing the course of so many lives.

Join us for a beautiful conversation about love, friendship, hope, and the incredible journey to find a cure to INAD for five-year-old Léo. Learn about the work that Emily and her best friend Deborah are doing to help millions with their amazing organization Bisous for Léo.

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Bisous for Léo does?

Emily Rogath Steckler:  Bisous for Léo is an ancillary arm of the Inad Cure Foundation. This is the only United States-based foundation set up to try to treat and cure a rare disease called infantile neuroaxonal dystrophy or INAD. In layman’s terms, it’s a cross between Parkinson’s, Alzheimer’s, and Lewy body dementia. The children who have Inad share a gene mutation with some forms of Parkinson’s and have the same parthenogenesis as those adults who have Alzheimer’s. It’s an ultra-rare disease where there are probably between 150 to 200 children worldwide who are currently affected. But because of the genetic links, the hope is that by treating the children who were affected, we could in turn help treatment and cure options for those who have Alzheimer’s, Parkinson’s, and Lewy body dementia.

Charity Matters: What was the moment you knew you needed to act and start Bisous for Leo?

Emily Rogath Steckler:  Leo is the son of my best friend Deborah.  Deborah and I went to high school and college together.  We’ve just gone through life together.  Deborah ended up winning this unbelievable internship for an interior designer in Paris. That led to her finding love at this firm and marrying this unbelievable French man named Anton. And together they had Leo.

 Leo developed normally for about two years. After that, he started showing extreme signs of regression. All the skills he had learned from walking to talking, to feeding himself, and cruising, literally, everything began to deteriorate. So eventually, they turned to a geneticist, who was able to diagnose him with this ultra-rare disease called Inad. When he was diagnosed, we started doing the research to figure out what it actually meant, because admittedly no one had ever heard of this disease.

There are 50 million adults worldwide who are affected by Parkinson’s and Alzheimer’s, Lewy body dementia, and neurodegenerative diseases.  As soon as that genetic link was made, we realized we had to take action. Actually, in 2007, my grandmother had passed away of Lewy Body dementia. It was horrible watching her deteriorate.  To think that children would suffer the way that I saw her suffering,  it’s inconceivable. As soon as you understand that these children are genetically linked to 50 million adults who are actively suffering currently from these neurodegenerative diseases. Why isn’t everyone not rallying around the children? So we founded Bisous for Leo three years ago.

Charity Matters: how Did you get The Name for your organization?

Emily Rogath Steckler: We had a trip scheduled to visit Deborah the day after Leo was diagnosed. We went to their apartment and almost instinctively,  I think my daughter Chloe picked up that something was off.  So we walked into the apartment and she went right over and gave Leo a kiss. I snapped a picture.  I just sat there looking at them thinking, if only we could kiss this thing and make it better. At the moment that the photo was taken, I didn’t even know what the thing was, but I knew somehow kisses would need to be involved in helping the cause. Bisous is the French word for kisses.

Charity Matters: What are your biggest challenges?

Emily Rogath Steckler: Getting people to listen long enough to understand that by treating the rare disease, we can potentially help so many millions of people worldwide. I think people’s attention spans are pretty short these days. When you think back to when aids came onto the scene, there was an education factor. You never really think of a pro when talking about a deadly disease. But the pro in that instance is that so many people were affected by AIDS, that they had to pay attention. 

In this instance, there are only a couple hundred children who are affected. Once you are able to understand that the children are the purest form of this mutation. The adults who have early-onset have experienced more life, they have more environmental factors, they have sun exposure, they’ve consumed alcohol, they have caffeine, and you know, these children are pure. So getting people to understand that and me relaying it in as few words as possible, is really a clutch thing.

Charity Matters: What fuels you to keep doing this work?

Emily Rogath Steckler: We haven’t achieved our goals yet. So until there is a treatment or cure, I have no intention of stopping. These children are the missing puzzle piece of this larger neurodegenerative equation, and it is scientifically proven.

Charity Matters: When do you know you have made a difference?

Emily Rogath Steckler: There’s so many, and I consider every victory, big or small to be a victory. I mean, this podcast is an example, you’re using your platform to help me get the word out, which is really half of the challenge. It’s education, and it’s funding.

Charity Matters: Tell us about your success and your impact? 

Emily Rogath Steckler:  I’d say the biggest impact has been the awareness raised and generated through our Kisses for Leo campaign  Prior to the launch of it, there were very limited resources. We’ve had so many wonderful celebrities who have lent their voice and their kisses to the cause. Everyone from  Lady Gaga to Eva Longoria and Laura Dern. They’ve all taken a minute to post their kisses on social media, send their kisses in, and it every kiss posted furthers this awareness factor. They obviously have much larger platforms than we do. The fact that there is such grace that they would take a minute to lend their voice and say this cause is valid. And with this kiss, I support this work and educate you. I mean, that’s a huge impact.

Charity Matters: If you could dream any dream for your organization, what would that be?

Emily Rogath Steckler: Obviously to eradicate the disease entirely.  I would love for a larger organization to want to work with us to help further the science.  Again, there is such a proven link between Parkinson’s and Alzheimer’s and Lewy body dementia. If any of the larger foundations that are working on those causes said,”Yes, we agree that these children are important to the work that we are currently doing.”  It would be such an immense help because as you said, the funding is a huge issue.  Every dollar raised we put back towards medical advancements. If a larger organization or foundation said we understand why these children are so vital and we would love for them to be a part of our work. I mean, my heart would just explode. It would be so good.

Charity Matters: What life lessons have you learned from this experience?

Emily Rogath Steckler: .  I’ve learned so much but really not to take health for granted. I’d say that’s the biggest thing, I am guilty of probably having taken it for granted in the past. Now every day that I wake up and I’m healthy and my family is healthy and my children are healthy. It’s no longer just a small thing that I take in stride. I’m very grateful for that.

Charity Matters: How has this journey changed you?

Emily Rogath Steckler:  I have more perspective. I feel how short and tragic and beautiful life can be. This is obviously a horrific thing for any family to face but I have found such beauty in humanity. I’ve been so comforted that I have received calls from friends from high school who I haven’t spoken to in 20 years.  So I have had my faith in humanity restored.

CHARITY MATTERS.

 

New episodes are released every Wednesday!  If you enjoyed today’s episode, please connect with us:
YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.

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