“If someone had raised funds for research for us 30 years ago and our baby was given a chance to live. Ten years from now will be a whole different ball game into medicine, science and technology into heart defect research. We don’t want to wait for what doctors say ‘will be….’ we want to fund research to change the future for ‘what can be…’ for all children, like my beautiful Joshua suffering from heart disease. Out of our heartache, there is hope….”
The words above were sent to me five years ago from non-profit founder, mother and champion for families dealing with congenital heart disease, Francie Paul. I spoke with Francie and board chair of Saving Tiny Hearts, Larry Kluge, to see what has happened since they began this journey over a decade ago to bring awareness and research to Congenital heart disease .
CM: What do you want people to know about Congenital Heart Disease?
Francie: I want people to know that twice as many children die from heart disease versus all pediatric cancers combined and that cancer receives five times the funding for research.
Larry: Over a million children are born each year with congenital heart disease.
CM: What is your goal at Saving Tiny Hearts?
Francie: Our goal is to fund a project that will not only save our son’s life but to ensure that no one else should ever have to go through this.
Larry: We have been able to fund over 30 research projects that keep getting us closer to making this a dream a reality. We want to find the answer that makes Saving Tiny Hearts obsolete.
CM: What keeps you going?
Larry: The love, passion and support of our community is extraordinary and the researchers we support.
Francie: People carry you through your darkest days and they have made our journey all the more humbling. It is the heart, hope and passion of our team. We are all a part of this.
As Francie said, five years ago “Out of our heartache there is hope.”
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