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Snowed in and the kindness of strangers

I am interrupting this regularly scheduled podcast to share a recent story of kindness. Each week we share others stories but this week I thought I would share something that happened to me a couple weeks back. As many of you have seen on the national news that recent snow storms hit our local LA mountains, the San Bernardino Mountains.

My husband’s family has had a home there for years and it is a very special place for us. We don’t spend much time at the lake in the winter but it is always a treat to get away. When we had a call that there was water left on in the house, we decide to make a quick trip up. The thought of bursting pipes with freezing temperatures and a pending storm was big motivation.

Our plan was to go up early Friday morning and head back down on Sunday. We both had flights in opposite directions scheduled for Tuesday. So we wanted to make sure we had time to get ready for our upcoming business trips.  So we grabbed two days of food and put chains on our four wheel drive and hit the road.

The previous storm had left a couple of feet of snow that had yet to be plowed. When we got to the house we were surprised by how much snow we hadn’t been plowed. We were sure that the plows were just backed up and would eventually get to us. So we enjoyed our home, the fire, the s’mores, secured the house and settled in.

However, on Sunday morning when we hadn’t seen the plows and the snow kept piling up at a rapid pace, we got a little nervous. I called our local Fire Department which is about a mile away.  When I asked if they had seen any plows. The fireman said, “ No we haven’t seen them in a few days.  We heard that all of the plowing equipment was sent off the mountain to open the Cajon Pass.”  That’s when we became nervous. If the Fire Department can’t get out to help people then things were worse than we realized.

We shoveled snow off the dock, from around the house and quickly realized we had used up most of our food. That wasn’t our big concern. Rather it was getting down the next day to make our flights. We began reading the local Facebook post with people that were much worse off than we were. People without heat, power, firewood, food, medicine and the list went on and on.

So Monday morning when we had eaten the last of our food we thought we would try to shovel our way out. Well, that didn’t go so well and we got stuck. Once we dug the car out and had it back in the garage, my husband had an idea. He went onto the local Facebook group and asked if anyone had plowed roads within a mile of our home. In addition, he asked, if anyone was going down the mountain and could we get a ride?

That is when this story took a very different turn. Strangers named Debbie and Dustin replied to our online plea. They said that they were leaving in less than an hour if we could get to their home. So we turned off that water, grabbed our computers, our dog and left. We left behind our clothes, our car and hiked out about a mile in hip deep snow towards total strangers.

The second storm had now hit and snow was dumping down. When we got to their car we were told they were taking two cars down in order to pick up family friends coming into LAX the next day. They loaded us in, put a dog bed out for our dog and drove us down the hill and off the mountain. We passed tons of abandoned cars on our way down and saw the carnage from the past week’s storm on the roads.

When we got to the bottom of the hill, in two cars, we saw news crews and so many people detained trying to get back up the mountain. Police had closed the road back up due to the danger. We filled up our new friends car with gas and asked where they were going to stay for the night? They didn’t have a plan for their family that included two teenage boys and two chocolate labs. So we invited them to stay with us and they accepted.

It isn’t every day that you Facebook hitch hike and meet strangers who blindly take you into their cars. Alternatively, I don’t think we have ever invited strangers to sleep over at our house but we did. This experience left such an impact on us both. There is such power in the kindness. We are all so afraid and so nervous to open ourselves up. I am the biggest fraidy cat of them all!  However, this experience made me realize just how walled off we all are and how easy it  can be to open up.

It wasn’t just our situation that brought out the best in everyone, it happened all over the mountain. Neighbors checking on neighbors. People bringing others into their homes, shoveling snow for their elderly neighbors, delivering food and so much more. I’m not sure why it takes the worst situations to bring our the best in all of us, but it does.

We are incredibly grateful for Debbie and Dustin for their extraordinary kindness. If we could all be little more open and loving like our new friends the world would be a much better place.

CHARITY MATTERS.

 

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Episode 55: Grass Roots Grocery

If you have been to the grocery store recently you know how insane food prices are these days. When eggs are $8.99 something isn’t right! When one New York school teacher realized that his students were going without food he decided to step up in a very big way. It turns out that 1 in 4 New Yorkers who are experiencing a food emergency can even access a food pantry.

Join us today to hear the inspirational conversation of one man’s journey from the classroom to major food distribution to serve thousands of meals to his neighborhood. Dan Zauderer is an inspiration for us all in his mission to get all of us to be neighbors helping neighbors.

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what Grass Roots Grocery does?

Dan Zauderer:  Our mission statement is to advance food justice by cultivating a community of neighbors helping neighbors. What that means in action, is it means neighbors coming together, in grassroots service.  Making sure that their fellow neighbors have enough food to eat.

There are two different programs that we do that do but it’s really just founded upon the notion that we all need to come together to to take a bite out of food insecurity. This is not something that big food pantries can do alone. It’s not something that we can just leave up to the policymakers. The  problem is so big, that the only way to really shift it is for everybody to be involved.

Whether it’s by people roping in their corporate workplace, reaching out to their local girl scout troops, taking a couple of hours out of their week  to help make sure that their neighbors are nourished and fed. That’s what this is about. It’s kind of a narrative shift focusing on on bottom up direct action from the people. it’s just basically about operationalizing this notion of neighbors helping neighbors and applying it specifically to the realm of food justice.

Charity Matters: What was the moment you knew you needed to act and start Grass Roots Grocery?

Dan Zauderer:  It kind of begins with me having a career in the startup world, doing sales in New York.  So I set off into the startup world and I loved the element that involves working with people but I just hated the things that I was selling. I decided that I was going to stop everything, move out to Costa Rica, take a life break and teach English. I fell in love with teaching.

So I went back to Columbia University to get my Master’s in teaching English to Speakers of Other Languages. I started working at a school called the American Dream School, in the South Bronx. The student  population is the children of mostly undocumented Central American and Mexican immigrants.  One day, I am walking home and I see one of my students on the sidewalk. Next to my students, I see that there’s this elderly woman who’s digging through trash can dumpster diving.

So, I reached out to my student the next day and I asked him to share about what I saw. He told me that the woman was his grandmother and then this was something  that was a normal activity. When Covid hit, I thought  how can I rally my family and friends around something that would be helpful to my student community?  I decided that we should just raise a bunch of money because I knew it wasn’t just this one student and there were other families who had to deal with food insecurity. We then found out that one out of every four families were cutting down on meals a few times every week in my school community.

Then I learned about community refrigerators, the idea is literally a fridge on the sidewalk put down by an organizer. You place a refrigerator into a local store and you get people to donate food that have extra. Then we rallied together staff, my own family and friends and said, “Alright, let’s start a community fridge in Mott Haven”. That’s the way that this was started  as a teacher’s passion project that ultimately was renamed Grass Roots Grocery.

Charity Matters: What are your biggest challenges?

Dan Zauderer: Funding is was a huge challenge.

Charity Matters: What fuels you to keep doing this work?

Dan Zauderer:  A couple of things, one is my amazing girlfriend, my mom, my dad and family.  Having great people in my life is one thing. Another is the amazing community of volunteers. We’ve recruited over almost 3000 volunteers to help out  with this work and they light me up.  Whether it’s little kids, or high schoolers engaging in some kind of direct action to support their neighbors with food justice.

Every Saturday, we have what I call it produce party.  Where we come together with over 100 volunteers in a parking lot in the South Bronx. We unload a truck filled with excess surplus produce that we’ve picked up from the Hunts Point produce market, which is the biggest produce market in the country. Then every Saturday, we work together as volunteers to unload that truck and  to sort through all the food. After that, we load it up into the vehicles of our volunteer drivers. The drivers who come and bring it to our network of community liaisons.  

This past Saturday, I think we had 36 volunteer drivers. Wow. Over 100 people I want to say, and we delivered to I think it was 32 or 34. communities. So far, with not everybody reporting their numbers, we reached over 1000 families in that one Saturday. And I mean, that fuels me.

Charity Matters: Tell us what success you have had and what your impact has been? 

Dan Zauderer:  For example, all of our volunteers that came out this past Saturday, they got an email saying that you moved about 10,000 pounds of excess produce to 34 different communities throughout Harlem, the Bronx, and reached over 1000 families through community leader liaisons. Those liaisons  gave out that food to their neighbors in need in the way that they thought best. So that’s something that every volunteer received. That happens every weekend. 

 This crew of community leaders, I call them grassroots grocers and they all have stories of their own. They’re all doing this work for free because they’re leaders in their community. They want to give food to their people in need and so they’re volunteers.

Charity Matters: If you could dream any dream for your organization, what would that be?

Dan Zauderer: The real dream is to end food insecurity. But that’s not going to be in my lifetime,  although it would be amazing. My dream is for this mindset of neighbors helping neighbors to promote food justice becomes ingrained into the the habit of people’s lives. And it’s already happening. We have families that are that are making sandwiches or that are taking leftover meals and putting them into Tupperware containers and filling the community fridges. People  taking time out of their Saturday once a month to join us in a produce party.

If it just became commonplace, right? It’s this idea that we all need to come together. We can’t just rely on these big food rescue trucks, big nonprofits and the policymakers.  It’s up to all of us, even if it’s just a couple hours a month. That’s really my dream is for that mentality to just wash over the world. 

Charity Matters: What life lessons have you learned from this experience?

Dan Zauderer: The life lesson that I learned and that is just so important is to have meaning in the work that I do.  It’s really important for me to do something that this that that feels meaningful.  I’ve been sober for 12 years, and you know, starting a nonprofit is even harder than getting sober. 

I’m just so lucky that I created that this amazing community of neighbors helping neighbors. The fact that I can do this work and light people up and get people’s kids involved and spread this message. It is just what fills my cup. Centering on meaning and finding a way to remember all of the blessings of the work that you’re doing is what it’s all about.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Episode 54: One Block UWS

Have you ever walked by litter or a pile of trash on a city sidewalk? Most of us have and keep walking, thinking it may smell or what a mess. How many of us would stop and try to figure out how to clean up their neighborhood? I haven’t but today’s guest Ann Cutbill Lenane did just that. She not only saw a growing problem but she rolled up her sleeves to do something about it.

Ann Cutbill Lenane is a very successful residential realtor in the Upper West Side of New York City and is the founder of One Block UWS.  Join us today for an inspirational conversation about one woman’s journey to clean up her neighborhood, employee people in need of jobs and revive a community One Block at a time.

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what ONE Block does?

Ann Cutbill Lenane: One Block is a nonprofit that facilitates the filling of more than 1,000 bags of trash every week on the Upper West Side of Manhattan. We coordinate group events so neighbors can connect and clean their community. In addition we employ three full time workers who were formerly homeless.

Charity Matters: What was the moment you knew you needed to act and start ONE Block?

Ann Cutbill Lenane: Back in 2020 New York City had $106 million dollar budget cut to their sanitation. As you can only imagine NYC was a very scary place to be during the pandemic. During the pandemic, on the Upper West Side where I work as a residential realtor there are three homeless shelters. Eight hundred homeless were moved into hotels during the pandemic on the Upper West Side. People were really upset.

Regardless of that situation, I saw the neighborhood begin to turn in a really bad direction. This neighborhood where I raised my kids and still work was something out of a zombie apocalypse. I saw the neighborhood going in a very bad direction.  In the 1980s, I remembered what Mayor Giulani said about cleaning up neighborhoods. He said, ” If we start by cleaning up the trash and the graffiti then people will feel better about being there and be more respectful towards their neighborhood.” So while I didn’t have a solution for the homeless problem, I figured I could find a way to get trash picked up. I can start with the garbage.

I also had three homeless shelters with people who needed work. So I thought, simple I will hire a few people who need jobs and we will go clean up some garbage. However, it wasn’t that simple. We ultimately reached out to ACE a program that trains unhoused people on the skills needed to help us. The real breakthrough happened when the local neighbors, who were upset by the homeless situation started a Facebook page. It was 2020 and we were all locked up and this Facebook page had 16,000 followers instantly. One day a neighbor on the page said,”Who wants to help sign up to clean up garbage?”

I met with my young neighbor from Texas. We all started signing up and cleaning the neighborhood. Next thing we did was hire an attorney to help us get our 501c3.

Charity Matters: What are your biggest challenges?

Ann Cutbill Lenane: Some of the early things were easier like getting help from an attorney at Gibson Dunn to help us with a 501C3. Our weekly cleanups and communication was easy because of the Facebook page and group. We had great community involvement. Most importantly, I was able to gather our neighbors emails through the Facebook page which Facebook no longer allows. Capturing our communities information was so important so that we could keep everyone informed of our progress. Those things were relatively easy.

As far as challenges, we had people leaving the route because of drugs that we had to fire. We had people selling our trash bags for money. Our employees couldn’t find restrooms in NYC. We gave employees gift cards so employees could get lunch and use the restrooms where they ate. Our employees didn’t have shoes. We went back to our newsletter and asked our neighbors for help to support the people we hired to help clean our neighborhood .

Charity Matters: What fuels you to keep doing this work?

Ann Cutbill Lenane: We have a woman named Jackie who takes care of everyone on our team. The thought that she wouldn’t have a job does fuels me. Each month we wonder if we can go on with our funding. I can’t picture these people without One Block. I want these people to be stable, to be appreciated and to have good lives.

Charity Matters: When do you know you have made a difference?

Ann Cutbill Lenane: There isn’t a block that one of our employees is working that people don’t approach them and say, “Thank you.” Putting a face and a name on a person who could easily become invisible in New York City changes that for everyone. 

Charity Matters: Tell us what success you have had and what your impact has been? 

Ann Cutbill Lenane: Sometimes you think life is supposed to go in a certain direction and it doesn’t. I can only help along the way and I know we are making an imprint on these people’s lives. You can only do what you can do. You just never know what your impact is on someones life. The Upper West Side is cleaner, our team has shoes and we keep putting good out into the universe. 

Charity Matters: If you could dream any dream for your organization, what would that be?

Ann Cutbill Lenane: The dream would be to be able to support the people that work for us. Getting them into a stable situation and lift them up. It’s not about One Block and garbage but about the people who need a leg up.

Charity Matters: What life lessons have you learned from this experience?

Ann Cutbill Lenane: I’ve learned the power of one, which becomes the power of many. The impact is huge. I am used to speaking to people everyday and connecting people. What is your super power? You have one and how will you share it? 

Charity Matters: How has this journey changed you?

Ann Cutbill Lenane: . We were blessed by something that felt like the end of the world during Covid. Something great came out of all of this. You have to start with one small act. Many people want to help. One person one block at a time.

CHARITY MATTERS.

To Support One Block UWS

www.oneblockuws.org

[email protected]

Instagram: @oneblockwestside

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Pablove

The world is full of amazing and inspiring humans, they are all around us. When you have a moment to learn someone’s life story, it is a privilege to share it.  Since February 4th was World Cancer Day I thought we would take a look back at the fantastic conversation with Jo Ann Thrailkill, the founder of Pablove.org. Jo Ann founded Pablove to honor her son Pablo and to invest in underfunded cutting edge pediatric cancer research and improve the lives of children living with cancer through the arts.  I know she will warm your heart  and inspire you as much as she did me.

Here are some highlights from  our conversation:

Charity Matters: What was your background before starting Pablove?

JoAnn Thrailkill: In my 20s through my 40s I was a music video producer. I absolutely loved my job and was living a dream. I was a single mother with a fantastic life and career. When I met my husband Jeff, who is also in the music business, and we had our son Pablo, I decided to slow my career down a bit and focus on my family and time with my two sons.

When Pablo was diagnosed with a rare pediatric cancer in May of 2008 everything changed. I went from producing music videos to trying to Executive Produce Pablo’s treatment and care. While Pablo was sick we had so many people who wanted to help, bring food, do something. A co-worker of my husbands, started a PayPal account just so people could do something. We were so involved with Pablo we weren’t really aware of how many people were supporting us through this. 

Charity Matters: When did you realize you were going to start a nonprofit?

Jo Ann ThrailkillWhen Pablo died six days after his 6th birthday we were devastated,bereft and overcome by grief. We were also overcome by people’s kindness and generosity. People really wanted to help us in so many ways, it was overwhelming. When we went to gather pictures for his memorial service, we found so many photos that Pablo had taken with all of our devices. They were everywhere and we had no idea he was such a photographer.

A few months after his death, my husband decided to ride his bike across the country, to deal with his grief and process all that had happened. When he came back, his co-worker asked, “What do you want to do with this PayPal account and the funds?” To be honest we had forgotten about the account and didn’t think it could have had more than a couple thousand dollars. To our total surprise there was over $250,000 and in that moment we felt an overwhelming responsibility to all of these people who had supported us and Pablo.

When my husband said, “You need to executive produce this,” meaning the beginning of Pablove.org, that was the moment.

Charity Matters: Where did you start?

Jo Ann Thrailkill: I went to see Pablo’s doctor, to get a direction and he asked me, ” What would you have wanted that you didn’t have when Pablo was sick?” And my answer was a cure. So I knew we were going to need to invest in research since pediatric cancer research is so underfunded, only 4% of cancer research funding goes towards childhood cancer.

He then asked me what Pablo would have wanted and I knew it was something in the arts and Pablo loved photography. I knew that Pablo just wanted to feel like a kid when he was sick and that his photography had been a form of self-expression. So that is how we began the Shutterbugs program which teaches children and teens with cancer the art of photography.

Charity Matters: When do you know that you have made a difference?

Jo Ann Thrailkill: When the kids tell us that working with a camera and photography has been a life changing experience for them. That is when you don’t want to stop and know you need to keep going. In addition, to know that we have created an organization that is filled with optimism, joy and laughter. 

Charity Matters: Tell us the success you have had?

Jo Ann Thralkill: Our very first year in 2010, my husband did a bike ride across the country again but this time to raise funds for The Pablove Foundation and we raised over $500,000. The momentum continued and we were able to fund a grant our first year. Today, almost ten years later we have thousands of Shutterbugs in 16 cities across the country and have provided seed funding for pediatric cancer.

Since 2010, we have awarded more than two million dollars in Childhood Cancer Research Grants to over twenty institutions worldwide.

Charity Matters: What life lessons have you learned from this journey and how has it changed you?

Jo Ann Thrailkill:  This entire experience has been completely life-altering for me. I think one of the major things I took away from my own family’s cancer experience was that just when you think the world is filled with darkness and hate, you discover that it is actually filled with love.

Things don’t always end up how you hope or plan that they will, but when we were in the trenches of treatment with Pablo we discovered the most amazing support from our community and everyone around us. This gave us not only the financial support but the emotional strength that we needed to start the Pablove Foundation. The experience of starting Pablove has allowed me to always see the light. I am now reminded daily of the love that surrounded me during one of the most difficult times in my life.

charity Matters

 

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Copyright © 2023 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Episode 53: Hearts of Gold

Since this week is all about love and Valentines, it seems only fitting that today our guest is all about love. Her name is Deborah Koenigsberger and she is the founder of the nonprofit Hearts of Gold. So many of us pass the homeless in our cities and keep on walking. Not because we don’t care but because we are afraid and often feel helpless.

Not Deborah! As a young mother, she didn’t pass a homeless woman and child i the park, she stopped. When you hear here remarkable story about the impact one person can make, it will make you think differently. So join us for a remarkable conversation about love and action. Think of this as a belated Valentines Day gift to yourself!

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what Hearts of Gold does?

Deborah Koenigsberger: Hearts of Gold is a 28 year old nonprofit organization that supports homeless mothers and the children in shelters. We do that by what we call adopting shelters that house this demographic. So the shelters already exists. They are run by their city shelters or whomever entity owns the shelters and we go in with all the frills.

When we started it was really about making sure the moms and kids had something in their lives that would give them a good memory. So many of them coming out of domestic violence. We have programs with moms, and we have programs for the kids. Our goal is to basically help them get out of shelter life transition into housing and into permanent housing. We want them to just have a chance at what we all have, which is a normal life.

Charity Matters: What was the moment you knew you needed to act and start  Hearts of Gold?

Deborah Koenigsberger: There isn’t one moment but three that all built on one another. The first, I would say is a Stevie Wonder song that started it all.  Peace sign is the name of the album and the song is take the time out. the lyrics are, ” take the time out to love someone reach your arms out and touch someone, the king or some homeless one. We are one underneath the sun.” I was 12 when I heard it and it left a huge impact on me. 

What I get from that song is that these people who are homeless on the streets, somebody gave birth to them. One day, there was a joy. Somewhere along the line, life took a left turn. And it doesn’t mean that it couldn’t happen to any of us. It just means that it didn’t happen to us, right? It happened to those people. So if we are not a part of the solution, if we don’t attempt to be a part of the solution, then we really are a part of the problem.

The second thing was on my way between work and home was a woman and her three year old daughter. They were sleeping in a cardboard box in the park. I walked through park and my boys were babies at the time. This was our neighborhood park. I finally approached her and had a conversation with her a few times. She told me that the shelter wasn’t safe and she’d rather take her chances on the streets. This went on for just a couple of weeks. And then she was gone.  She disappeared but she motivates me every night.  She powers my narrative because I know that out there. 

The third part of the trifecta was when my oldest son was a baby, we met Bobby Brown. This was just before Bobby became Bobby Brown THE makeup artists.  She was telling me that she did this volunteer work in a shelter where she would apply makeup to the moms teach them how to do makeup and give them product.  I went with her to the shelter. I did styling Image Consulting so Bobby said, ” Why don’t you talk to the moms about just what to how to put themselves together. and I will do my makeup there.”  So we did this workshop together and she would provide makeup artists.. But in that workshop, the moms came with their kids.

I decided that  Christmas  I literally went out and bought all these gifts for each child. At the time it was just me and that was 1994. I became a nonprofit, because when I approached the shelter saying I wanted to raise money for you to do these events. They said, “We can’t guarantee that that money will do that, which I appreciate it very much. Our challenge is that we have so many emergency things that happen we can’t guarantee the funds will go to your program.”  So I said, “Okay, then I’m gonna do it myself.” 

Charity Matters: What were some of your biggest challenges when you started out?

Deborah Koenigsberger: It’s particularly hard when you realize the problem that you are trying to solve is not solvable.  And you certainly are not going to be the one to fix it.  I believe in the starfish story. Although you couldn’t save every starfish on the beach, the one you threw back today got saved.  That’s what saves me when I would fall down and feel that this is so frustrating.  Then I would look at one of my moms, or get a phone call or a text from somebody, and they will say this happened today. And for me it’s just like joy.  

You’re also realizing the best thing that we can realize as founders is that you have to get help. And you have to accept help to bring in people.  So there are all these learning curves.

Charity Matters: What fuels you to keep doing this work?

Deborah Koenigsberger:  There’s so many ways to educate people out of darkness. Darkness is ignorance. I’m an immigrant, from an immigrant family. The only thing that we know as immigrants is you gotta work. That’s the only reason why you’re here because work is gonna provide something better and different for you. So I know that it’s the American way. Work was what this country was built on.

Charity Matters: When do you know you have made a difference?

Deborah Koenigsberger:   When I met Stevie Wonder in 2001, he said something to me, because I told him why started Hearts of Gold. Stevie said, ” My little song made you do all of that.” Like, do you have any idea? Oh world, and I just thought, that little song wasn’t just words on paper. It was such an invitation to open your heart and see something besides yourself. 

Charity Matters: Tell us what success you have had and what your impact has been? 

Deborah Koenigsberger: Over 37,500 moms and kids helped her impacted children who were the first one in their entire family line to go to college. This Christmas we bought, wrapped and distributed over 5000 toys. I think we should understand that what we’re doing is bigger than all of us and call in our communities.

If you are blessed enough, if you are given the gift of sharing yourself with somebody else in a way that will have impact and change something, you’re blessed.

Charity Matters: How has this journey changed you?

Deborah Koenigsberger: I’ve matured a lot.  I have found and met incredible people along the way who have taught me invaluable lessons. And I’ve learned invaluable lessons from people who weren’t really trying to teach me anything, but I learned it anyway. 

Charity Matters: What life lessons have you learned from this experience?

Deborah Koenigsberger: I learned that a single human being can really affect major change and it all starts with an idea.  I think of myself as a vessel. And I think that I am just there because I have that kind of energy.  We don’t all have the same energy or the same way of thinking about things. Some people have the talent to help you create something, and that’s magical, some people have treasure and that  is immeasurable. Now you have time, talent, treasure, and everybody has a different one of those that they can bring to your to your cause. One of the lessons that I think is really important that I’ve learned is that there are so many kind people out there in the world.  

When we lift one we lift all.

What I’ve learned is that you can’t save all the starfishes  even if you have all the resources in the world because it’s just not possible. But what you can do is get a whole bunch of more people on that beach.  God of the things I’ve learned a lot, there’s so many ways to love people.

 If you’re at the end of your story and you could write that one person’s life was significantly impacted by your being here, walking the earth leaving a footprint.. Then for me, I am full. I am full. 

CHARITY MATTERS.

 

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Season Five Premier: Susan Axelrod CURE Epilepsy

Welcome to Season Five! It is truly remarkable to believe that we launched the Charity Matters Podcast just two years ago. In that time we have introduced you to some of the brightest lights on earth, those who serve. We promise Season Five has an incredible line up of people who will inspire you, give you hope and renew your faith in humanity. These nonprofit founders are not only entrepreneurs but they are problem solvers and doers. Each story gives us hope that we can tackle any obstacle in our own lives no matter how big.

Today’s guest is a perfect example of one woman with a huge goal.  Susan Axelrod is the founder of Cure Epilepsy. She will inspire you with the remarkable story of her journey to find a cure for epilepsy to help her daughter. It is a story you don’t want to miss and the perfect way to start your year and ours.  Susan set out to achieve a goal 25 years ago. Each year Susan and her community  paved the way and ultimately raising ninety million dollars towards epilepsy research. Her work and story should inspire anyone with a goal that feels too big.

 

Here are a few highlights from our conversation:

Charity Matters: Tell us a little about what CURE Epilepsy does?

Susan Axelrod: Cure Epilepsy is singularly focused on funding research in epilepsy. This actually started because I am the mother of a now 41 year old daughter with epilepsy. It started in her infancy and after many sort of tortured years of trying to resolve her problems. I started to meet some other parents and recognize that there was a woeful lack of of dollars and attention to epilepsy, both federal government funds and private dollars. That’s our focus because we want to eliminate epilepsy.

Charity Matters: What was the moment you knew you needed to act and start CURE ?

Susan Axelrod:  My daughter had been happy, normal, healthy baby until she was seven months old.  And she started to have a seizure, which was terrifying to witness as many seizures are. She was she was blue, I thought she was dying. I took her to the emergency room. While waiting to be seen there, she had another one of these episodes, which I still didn’t know what it was. In 1985, I received a report on an EEG that she had had. The report said something about epileptiform activity, and I panicked. I called her doctor, and I said, “Are you telling me she now also has epilepsy?”

I had started to meet some other parents with epilepsy through a support group, which I got wind of waiting in a doctor’s office, which we spent hours waiting in doctors offices and saw notice for a support group and met a few parents who fast forward a little bit ended up being some of my co founders of cure with.

Lauren, my daughter, had a surgical procedure to try to determine whether there was an area in her brain that they could resect that might help. There was indication for the first time that maybe they’d actually localized the focal point.  So we put her through a pretty horrific and barbaric procedure. They literally bored holes in her skull and  implanted electrodes and the  procedure ended up with nothing.

I sat there with my husband and we didn’t know what to do.  Later that evening, I thought to myself, you know, I can either cry for the rest of my life, or I can just slap myself in the face and do something. That is a really clear memory for me,  just saying that’s it, I’m done. I’m done waiting for anybody to provide answers. It just felt like I had to right this wrong and t was just wrong. 

Charity Matters: When did you know you were on the right path?

Susan Axelrod: We knew we had to raise dollars and that was critical. We were very fortunate in that my husband had done some work with Hillary Clinton when she was First Lady. Towards the end of 1998, he was meeting with her and she asked how Lauren was doing. She said, “Is there anything I can do to help from my position?” 

She agreed to to be the keynote speaker at our first fundraiser in Chicago. January of 1998.  I’ve never put on an event in my life. The First Lady spent the afternoon visiting our hospital and learning about epilepsy.  Then she came and did the event. She spoke just eloquently about epilepsy and about what she learned that day.  Well, we had a lot of people that were there for her, who were just blown away by her. That was a big aha moment. Three months after we founded the organization  people were writing notes and were calling they were telling me that night I had no idea about epilepsy. We thought, okay, if people don’t know about epilepsy, they’re not going to give money to epilepsy. 

photo via: Boston Globe

Charity Matters: What were some of your earlier challenges?

Susan Axelrod: My daughter used to miss about a third of every school year just because of seizures. So there were times when I couldn’t get out of the house. The internet was relatively new at the time and email was like a brand new thing. We were working together and we loved each other. And we loved the work and it gave us hope. If we had an event or mailing to do, we all gathered for a long weekend, and stuffed envelopes and licked stamps. Epilepsy is a pretty lonely diagnosis and this gave us a community.

Charity Matters: Tell us what success you have had and what your impact has been? 

Susan Axelod:  I think the very first thing that we did that was huge and life altering for the epilepsy community was to change the conversation. And that was both between patients, families, and researchers and doctors.  I wanted to know, along with my co founders and other people who were working with Cure Epilepsy, why? Why did I have this seven month old baby, that was fine one day and not fine the next day? Nobody to this day yet has been able to answer that. 

I think we’ve, we’ve really gotten the community away from thinking, let’s just create another drug that’s going to maybe reduce the seizures  50% of the time. In our book, that’s not okay. It’s great. I should say that my daughter responded to a one of these new medications in April of 2000.

We’ve we have funded over 280 research grants around the country.  We have opened up new areas of exploration in terms of what they’re looking at and how it affects epilepsy and the development of epilepsy. Those are areas that we were willing to take risks. So I think that’s another thing that all nonprofit can do because who’s else is going to do it? 

Charity Matters: If you could dream any dream for your organization, what would that be?

Susan Axelrod: The happiest day of my life would be shutting down the office, closing the door, locking it up, because mission accomplished, right? That would be that would be amazing.

Charity Matters: What life lessons have you learned from this experience?

Susan Axelod: I’ve learned the importance of community, the importance of being inclusive, the importance of bringing all players with any sort of potential interest  in your cause together. And that it’s very grounding. It’s very humbling. But I think  it’s been one of the more amazing life lessons and it translates beyond my work with CURE.

Everybody has some value and something to contribute.

CHARITY MATTERS.

 

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The Wait is Almost Over

They say good things are worth waiting for. We promise that this will be worth the wait.  Season 5 of The Charity Matters Podcast will launch next week on February 1st.  Like everyone, we needed to take a little break to celebrate the holidays. A moment to catch our breath, to regroup and to work to bring a great new line up of guests for Season 5.

We are experimenting a little bit this season with how often we post and how many episodes to bring to each month. It is hard to believe that we already have over 50 podcast episodes! As I mentioned earlier this month, we are trying our hands at being podcast guests more regularly and not always host. So we promise to share those conversations with you too. Our mission is to spread the word of service and bringing that message to larger groups is part of the job. You might be hearing more of those conversations this season.

Bringing you amazing guests who inspire you, fill you with hope and renew your faith in humanity is our goal. We are always so excited when our guest end up getting national attention after we interview them . A little shoutout to our friend, Maggie Kane from A Place at the Table. Maggie was just on the Kelly Clarkson Show last week. Way to go Maggie!  If you haven’t read her post or listened to our conversation you can below.  Maggie is so much fun and her work is so inspiring.

Speaking of amazing guest, our Season 5 launch will not disappoint. Next week get excited to meet Susan Axlerod of Cure Epilepsy.  Susan will inspire you with her remarkable story of working to find a cure to help her daughter. It is a story you don’t want to miss and the perfect way to start your year and ours.  Susan set out to achieve a goal 25 years ago. Each year Susan and her community  paved the way raising ninety million dollars towards epilepsy research. Her work and story should inspire anyone with a goal that feels too big.

So join us next week. Take a listen to our conversation with Maggie Kane, if you haven’t yet. Get excited to meet the most amazing people this season.  We can’t wait to keep spreading that message of goodness and hope.

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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I have a dream or two

“Everybody can be great because everybody can serve. You don’t have to have a college degree to serve. You don’t have to make your subject and your verb agree to serve. You only need a heart full of grace, a soul generated by love.”

Martin Luther King Jr.

On Monday, we celebrated the life of Dr. Martin Luther King Jr. with a day of service. It was a rainy day here in LA so not one that I spent volunteering, in full disclosure. Instead I spent the day thinking about dreams, vision, goals and service. All of these things are constants in my life but as the New Year starts how can I create a vision for myself and my work that continues to serve others?

These are some of the questions I have been asking myself since the New Year. I do feel incredibly grateful that I have a regular outlet to serve with Charity Matters and with my day job running a youth leadership organization.  At TACSC we talk all year to our students about being a servant leader. We teach our students that they can not lead unless they serve. When we ask these middle school students to give us examples of true servant leaders, Martin Luther King is always at the top of their list. We teach that we are never too old or too young to serve, there is always someone in need of a little help.

Most importantly, we teach our students that before they begin anything they must have a goal, vision or a dream. It sounds so simple when we are teaching this and yet, the reality is that these take time. I dream of being a messenger of service but how do I break that dream down into manageable realistic goals? How do these goals and dreams work within my life?

I think when most of us think about service, we wonder where will we find the time? Many of us think charity and we think that people are coming for our wallets. There is nothing wrong with these thoughts but how can we all shift our perspective? When I ask myself, “What things make me feel great?” The answers usually include service, helping others, being with my friends. This year, I am going to try and organize a way for my friends to join me for some sort of service. I’m not sure what that is just yet, but I promise to report back.

At 56, I’m past the halfway point of my time on this planet. There is still so much I want to accomplish with the time I have remaining. I believe the greatest gift we can give the world is a life well lived. Dr. Martin Luther King Jr.’s time on this earth was not long but the life he lived left a legacy of love and compassion. As I work on my dreams, I am thinking of his and asking myself, ” What are you doing in service for others?”

CHARITY MATTERS.

 

YOUR REFERRAL IS THE GREATEST COMPLIMENT,  IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER. If you enjoyed today’s episode, please connect with us:

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New Year, New Dreams and Goals

Happy New Year! It’s that time of year when we catch our breath and begin to really think about what we want in 2023. I’m guessing that you have been pondering this, consciously or subconsciously, for the past week or so. I know I have. Honestly, just getting through the holidays feels like a victory. For some of us we are too tired to think about what we are eating for lunch let alone what we want for the year ahead. If there is one thing I have learned over the years is that those list and intentions become real and it all starts with the dream.

My sons call me Dharma, like the old TV show Dharma and Greg. You know the one, where the kooky Dharma is all about manifesting and the universe. I have to admit that I do have a solid Dharma side to me. The reason isn’t just faith, although that is a part of it. The main reason is that I set goals and that I can begin to see myself making that happen. Some people think this is odd, some call it manifesting, I like to make plans and make them happen. Call it what you want.

Here is a small example, last year one of my New Year’s resolutions for 2022 was to learn to play pickle ball. I talked about it all year and even was sad that most of my friends had already formed groups. Yet, all year I didn’t do anything about it. Nothing. For Christmas my husband gave me a racquet and a membership to a pickle ball place. I played with my son the day after Christmas and am still smiling. Definitely cutting that 2022 New Year’s resolution a little close but I made it just under the wire. It took a nudge to pull the trigger and now that I am setting 2023’s goals, becoming better at pickle ball is definitely on there.

While pickle ball is one tiny example of moving something forward in my life, it gives me such joy and a sense of accomplishment. Those are the feelings that I want to bring into the New Year, joy and accomplishment. So this year, I am taking a little extra time with the 2023 goals. I am breaking them down again this year into categories. Goals for health, relationships, career, our home and travel. Will I achieve them all? Absolutely not. Looking at my 2022 goals, Christmas in Bali so didn’t happen. Not even close. Will it get pushed ahead to 2023, absolutely!

The goals for Charity Matters are also something I am really thinking about. Charity Matters, each of you and the people we  interview fill me with joy, always! What is challenging is the expectation I place on myself and our team to create content each week. More often than not, amazing nonprofit founders cross my path and it is an organic process, which I love. There’s the Dharma again:) Tracking people down, scheduling interviews, and all the time that goes into each episode is a huge commitment. Finding the right balance of posting/creating every other week or every week is challenging. I look to each of you for guidance so please let me know your thoughts?

This year I am really thinking hard on the best way to be messenger for good. We spend so much time creating but we don’t do any PR or self promotion. Trying to find a smart and authentic balance to that this year is definitely one of our goals at Charity Matters. Finding a path for good news and good stories is challenging in the negative news that our media seems to like to churn out. If any of you have suggestions, I am open to any and all ideas. Or if you have any media connections, let me know. This is not my area of expertise so I can use all the help I can get. Another 2022 resolution, ask for help more often. People are always happy to help, we just have to ask.

Thank you all for helping by being beacons of light and believing in goodness. you wouldn’t be here if you didn’t. Each of you sharing these posts, subscribing to our podcast, and sharing our work on social media validates Charity Matters mission of connecting people and causes. So thank you for cheering us on and joining in this quest to be a messenger of goodness. I am running into 2023 with my heart wide open and full of optimism, ready to serve and receive.  Wishing you a magical year ahead filled with love, joy, abundance, fun and much goodness. I know your going to achieve all of this and more with your goals!

CHARITY MATTERS.

 

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The Heroes of 2022

As we say goodbye to 2022 and look ahead to the New Year, it seems like a good time to recognize some of the extraordinary heroes from this past year. Each one of these people has dedicated their lives to helping others and to service. They have committed to a purpose driven life. Many of us are using this week to think about what we want for ourselves next year, well these folks are a good place to start for some inspiration. So if you missed an episode or two or if you are new to Charity Matters this might be the perfect thing to listen to as you put Christmas decorations away and prepare for the year ahead.

Disclaimer: Everyone I interview is miraculous and inspirational but these were some of our extra special conversations this year…enjoy!

Miracle Messages

I have had some pretty amazing conversations in the past ten years. Conversations that really make me think and look at the world around me in a totally different way. The conversation I had a few months back with Kevin Adler, the founder of Miracle Messages was game-changing for me. It’s my hope that it is for you as well. I will never look at the homeless the same after this eye-opening exchange.

Kevin shares the story of his uncle who lived on the streets and how his uncle’s death inspired the creation of Miracle Messages. A nonprofit that not only reconnects the homeless to their loved ones but also provides a social connection through a phone buddy system and provides cash for rent once the unhoused person is ready.

Roots For Boots

Roots for Boots is a nonprofit that serves those who serve, our veterans. Christy Lucus, founder of Roots for Boots is an inspiration and was beyond fun to talk too.  Christy’s journey from a school principal to a nonprofit founder will amaze and inspire you. You will see why her official title is Chief Enthusiasm Officer!

If you love Veterans, teachers, and all who serve then this hero episode is for you. Christy reminds each of us that we all have something to give, even if it is a positive attitude and a smile.

A Place At the Table

When you think about hunger and homelessness the first thing that pops into your mind is rarely a restaurant. Instead you probably visualize tents, soup kitchens and a host of  images. Maggie Kane has created an amazing community and a wonderfully unexpected solution for homelessness. Her nonprofit, A Place at the Table, provides community and good food regardless of means. Her delicious Raleigh, North Carolina cafe is a cozy, warm, friendly cafe with great food and everyone is welcome.

Like Maggie this is a fun, high energy and inspirational conversation about food, community, hunger and the unhoused. Maggie’s warmth, passion for making a difference and southern hospitality will make your day! So join us for A Place at the Table.

Free Wheelchair Mission

Did you know that there are 75 million people on this planet in need of a wheelchair? Can you imagine being disabled  and not having access to get around? That is only one of the amazing insights I learned from Don Schoendorfer. Don is the founder of Free Wheelchair Mission. His story is incredible, as is his work in providing over one million wheelchairs to people in need.

Learn how a MIT Biomedical engineer changed his life and millions of others. You won’t want to miss this amazing conversation. Don Schoendorfer is a truly special human who is an inspiration for all with his journey of service.

Drink Local Drink Tap

One of the questions I always love asking our guest is did you grow up helping others? It is always fascinating to see where and when the seed of compassion took root in all the incredible people who do nonprofit work.  Erin Huber has an incredible life experience of serving others that started at age 12. She founded her first nonprofit at 16 and continues to this day with her award winning nonprofit, Drink Local Drink Tap.

Join us for an inspirational conversation about what one person can really do to change the world. Erin Huber has been changing it for decades. Her work ethic, passion for helping others and amazing life journey is an inspiration for us all.

I hope you have enjoyed meeting so many heroes this past year and re-visiting these special few today. As you look ahead to 2023 and ask yourself what kind of life do you want?  What will your legacy on this plant be? These five people and everyone we interview at Charity Matters are outstanding examples of kindness, compassion, empathy, love and service. At the end of the day isn’t that really the legacy we all want to leave?

Wishing everyone peace and joy in the New Year! Happy New Year!

CHARITY MATTERS.

 

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Merry Merry 2022

“Gifts of time and love are surely the basic ingredients of a truly Merry Christmas. “

Peg Bracken

As we round the home stretch until Christmas, I wanted to take a moment to pause. A deep breath of stillness amongst the noise. My gift to you is one I hope you can give to yourself right now. Stop and think of all of those you love. See their faces, hear their voices and feel your heart swell with joy. That is Christmas. The love we have for one another and the way we share that love.

As we try to get all of those last minute details wrapped up, remember what matters. Those you love and the time spent with them . Treasure that because it is all that matters.

Wishing you all of the love and joy the season brings.

Merry Merry Christmas everyone…

 

CHARITY MATTERS.

 

 

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Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

 We would love to hear from you and stay connected:
  • www.Charity-Matters.com
  • On IG @Charitymatters 
  • Post a screenshot & key takeaway on your IG story and tag me @heidijohnsonoffical and @Charitymatters so we can repost you.
  • Leave a positive review on Apple Podcasts and don’t forget to subscribe to get new episodes 

Be my guest, be my guest, put your service to the test

It is always nice when the tables are turned and rather than ask the questions we get to answer them. So when I received an outreach from across the pond, from Global Comment, I was excited to chat about Charity Matters.  It was fun to sit in the passenger seat for a change. Today, I thought rather than ask the questions I would share some of our answers.

Who is your ideal listener? Who loves your show?

Heidi Johnson: Our ideal listener is someone who is tired of negative noise and looking to hear about all the amazing good happening everyday in our world. It is a person who cares about making their community / our world better and is inspired by those who do just that, everyday.

If you love stories where the good guy is the hero then you will love and be inspired by Charity Matters.

What made you start this podcast?

Heidi Johnson: After starting a nonprofit almost twenty years ago, I became fascinated by who does this work? It is always hard to start any business, let alone a business that relies on the kindness of others to survive.

About twelve years I began interviewing non-profit founders for my blog, also called Charity Matters, to share these modern-day heroes with the world. I realized that we were having these incredible conversations and our thousands of blog subscribers didn’t get to hear them, only read them…which just isn’t the same.

I wanted them to know these unbelievable humans better by hearing their stories first hand. We decided to create the podcast and as a result, have garnered an entire new audience, which has been fantastic!

What have you learned about your subject thanks to this podcast?

Heidi Johnson: Every week I am inspired by the human spirit’s resilience. Each guest has undergone incredible loss or adversity. Rather than be angry, they decide to use their situation as fuel for good. They want to be a part of a solution to whatever happened to them or their loved one.

Each founder’s tenacity and passion is simply the best of humanity.

What has your experience of podcasting been? What do you love / hate about the process?

Heidi Johnson: My experience in podcasting has been overall great. I love being able to share these conversations and podcasting has been such a great platform to do that.

To be honest, technology and equipment is never something that I enjoy. It is the people that make podcasting magical for me, our incredible guests and our amazing listeners.

If someone wants to start listening to your podcast, which episode would you recommend they start with? Why?

Heidi Johnson: Hmm. I should say the first episode because that really explains my why and personal story to service. I shouldn’t – and don’t – have favorites. However, I will say Episode 36 with Miracle Messages was a really inspirational and eye-opening conversation about the homeless.

Anytime someone makes me look at a problem in a different light and solves a problem in a unique way as Kevin Adler is doing, reuniting the homeless with their families. it is pure sunshine.

Which other podcasts do you love listening to?

Heidi Johnson: I really enjoy NPR’s How I built that because, like Charity Matters, it tells the struggles of entrepreneurs building incredible organizations. The only difference is that Charity Matters tells the stories of entrepreneurs who want to solve humanities biggest challenges rather than make a profit.

I have to confess love a good Super Soul Sunday, who doesn’t love Oprah?

 

CHARITY MATTERS.

 

 

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Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

 We would love to hear from you and stay connected:
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Raising Philanthropic Children

Raising philanthropic children 2014

I am always so amazed that is the same time each year that I find people asking for suggestions on raising philanthropic children. Once again, it’s worth sharing.

While my sons are far from the poster children for philanthropy, they certainly do a lot to help others. I am proud that each of our sons has found different ways to give back and share the gifts that they have been given. Now in their twenties their giving is changing yet again. Time is now a rare gift so the older two are giving funds while our youngest is still involved in volunteering for his favorite cause.

Each year at Thanksgiving, we sit down as a family and decide what our family will do this season to help others. We have adopted soldiers for a year, adopted families over the holidays that could not have Christmas, we have wrapped gifts at local Childrens Hospitals and voted on which non-profits we want to support. Each person trying to convince the others why their cause is most worthy.

The reality is that there is no simple answer to this question and that raising charitable children is an ongoing process. A study from the Women’s Philanthropy Institute at Indiana University said, “the research showed that talking to children about giving increased by 20 percent the likelihood that children would give.”

Here are a few tips to remember as we approach the season of giving:

Six Tips for Raising charitable children:

  1. Start early, as early as 4 or 5 years old. Giving becomes a habit.
  2. Talk to your children about what causes interest them and bring causes to their attention.
  3. Be intentional by involving your children in your own charity endeavors.
  4. Use online tools to research organizations to involve your children
  5. Be consistent. Make charity a part of your traditions, the holidays and birthdays.
  6. Emphasize the joy because giving feels great.

Benefits of raising charitable children:

  1. Opens children’s eyes to the fact that others are not as fortunate as they are
  2. Develops empathetic thinking
  3. Fosters an appreciation for what they have
  4. Enhances self-esteem
  5. Correlates to improved performance in school

While this topic is relevant for the holidays, it is important to remember that giving does not just happen once a year. Teaching the gifts you receive from giving should become a way of life not seasonal. Once your children feel how great it is to give, their lives will forever be altered in wonderful ways.

Charity Matters.

 

Copyright © 2022 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

 

Episode 51: Free Wheelchair Mission

Did you know that there are 75 million people on this planet in need of a wheelchair? Can you imagine being disabled  and not having access to get around? That is only one of the amazing insights I learned from today’s guest, Don Schoendorfer. Don is the founder of Free Wheelchair Mission. His story is incredible, as is his work in providing over one million wheelchairs to people in need.

Join us today to learn how a MIT Biomedical engineer changed his life and millions of others. You won’t want to miss this amazing conversation. Don Schoendorfer is a truly special human who is an inspiration for all with his journey of service.

 

Here are a few highlights from our conversation:

 

Charity Matters: Tell us a little about what Free WheelChair Mission does?

Don Schoendorfer: We’ve designed and learned how to manufacture an inexpensive, durable functional wheelchair that we provide for free to people in developing countries who need a wheelchair. World Health Organization’s estimates that there are 75 million people in need of a wheelchair around the world.

Charity Matters: What was the moment you knew you needed to act and start Free Wheelchair Mission?

Don Schoendorfer: My father worked in a railroad for 49 years as a machinist. One of my older brothers was a chemical engineer and the other one’s a civil engineer.  I just knew from the way we operated at home, always taking things apart and putting them back together, that I would be an engineer. I always knew I was going to do something to help people.

About twenty years ago, we went on a vacation to Morocco.  The first day we were in a very old part of the city, Toronto, probably built during the Crusades. There were dirt roads, buildings close to each other just wide enough for a wagon and donkey to get by. Between the legs of people commuting back and forth on foot, we saw a woman drag herself across the dirt road. She was using her fingernails for traction. And she’s looking at her hands. She’s not looking at anything else but her hands and she’s very careful about how she places them. Her feet were just dragging behind her. Like, they’re just connected to her and they’re not functioning in any way.  She was  bleeding, very filthy and her clothes are torn.

 It was our first trip in a developing country and we were shocked. Shocked at her appearance, but also shocked at the fact that people were just basically just stepping over her. Like she was some kind of garbage and not helping her. We went home and got on with our lives. That’s what I did for 20 more years. Every now and then something would remind me or in the middle of the night. I  would wake up and I’d be thinking about that woman and the struggle she had just to keep alive. 

Charity Matters: What Happened 20 years after you saw that woman?

Don Schoendorfer: A call from God in the middle of the night, in 2001.  He said, “I need to talk to you”  What about? He said, ” Why are you wasting your time? “And I said, “What do you mean?” God said,”Why don’t you use the gifts I gave you to do something for the Kingdom?”   I don’t want anybody to misinterpret, I do not have that kind of relationship with communicating with God. But if I summed up what was going through this was really what I came up with, “Hey, I’m an engineer, I’m an inventor, I can do this stuff.”

I thought, where do I focus my energy?  All of a sudden, there’s this woman crawling across the dirt road. What’s the need, what does she need? I go to Toys R Us and I get some bicycles.  Then I go to Home Depot and I get some white resin lawn chairs.  Then I spend five or six months trying to figure out how to effectively connect them together. And, it’s a white resin lawn chair with mountain bike tires. It doesn’t, it doesn’t look like a wheelchair. But I’m thinking that woman probably would have loved to have something like this. 

Charity Matters: When do you know you have made a difference?

Don Schoendorfer: When I saw this family change.  Can you imagine if you were carrying your 11 year old son with cerebral palsy?  Can you imagine that this boy’s parents had carried him every day of his life. His parents can’t work, and therefore they can’t make enough money to live on.

When they got their son a wheelchair it changed their life. The parents could work and  take their son with them. They could move him to the shade of the rice paddies where they worked. Now, they could both work and they can make enough money to advance a little bit in their economy. Even better they now have the freedom.

Of course, they didn’t know what was going to happen after we put their son in the chair. They probably thought we’re going to take take some pictures and then take it away from him. Instead, we drove away at the end and left that chair to them. We didn’t come back and take the chair. 

These people are already happy. When you give them a wheelchair, it’s so profound. You can just see how hard it is for men to express their gratitude, some are just choked up and they can’t get the words out. They’re just crying and smiling at the same time. The whole family  doesn’t have to carry anyone anymore. He can go by himself. 

Charity Matters: Tell us what success you have had and what your impact has been? 

Don Schoendorfer: Over these last 22 years, we’ve given out over 1.3 million wheelchairs in 94 different countries, developing countries. We don’t give them away in developed countries because there’s usually options for a wheelchair. In the developing world, there’s no option.  If we don’t give him a wheelchair, they’re going to live their life without one. We’ve got partners who actually give the wheelchairs away for us.

So we work through these distribution partners, and we ship them to the closest ocean port, and then they take it from there. At first I was focusing on just the individual, the woman crawling across the road in Morocco, right? And I didn’t see her family, but she probably has one because there’s no way she could keep alive without having a family. After you’ve given away a few wheelchairs you see how it impacts the family because they are the wheelchair.


Photo credit: Ralph Alswang

Charity Matters: How has this journey changed you?

Don Schoendorfer:  The people I associate with changed. I’m more associated with people that are in this field of humanitarian efforts.  Most of my best friends are in developing countries and I rarely get the chance to see them.  I always think about them. These are the people that totally live on faith. They don’t know where the next meal is gonna come from. Yet, if they met somebody who needed a shirt, they would take their shirt off and give it to him. And that’s the way they live.

Charity Matters: What life lessons have you learned from this experience?

Don Schoendorfer: There’s so many other things we can do. Think about what you’re good at. Maybe you get the call from God. Or maybe you don’t. Ask yourself,  what am I really good at? And is that what I’m doing to help people? Am I using those tools to help people?  

CHARITY MATTERS.

 

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