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Elizabeth Taylor AIDS Foundation (ETAF)

There is nothing better than friends supporting one another. A few weeks ago Jennifer Hillman of LuxAnthropy asked me if I had met the amazing people over at The Elizabeth Taylor’s AIDS Foundation? The answer was that I hadn’t and to be honest I was completely naive in my thinking about AIDS, that was until I spoke with Joel Goldman who has acted as the Executive Director of The Elizabeth Taylor AIDS Foundation (ETAF) for the past five years. With World AIDS Day here, this Saturday, December 1st, it seemed like the perfect time to share our enlightening and moving conversation.

 

Charity Matters: Joel give us some HISTORY of how the ETAF began?

Joel Goldman: In 1985 Elizabeth Taylor planned a benefit for AIDS Project Los Angeles, that was the same year that Ryan White was banned from entering school for having AIDS. Elizabeth’s friend, Rock Hudson died of AIDS that year along with 12,529 other Americans and Elizabeth Taylor and Rock Hudson’s doctor, Dr. Michael Gottlieb, created the National AIDS Research Foundation, which became AmFar. By 1987 over 40,000 Americans were dead from AIDS and a year later that number jumped to 61,800 deaths. 

In 1991, Elizabeth Taylor sold her wedding photos to People Magazine for one million dollars to begin the funding for the Elizabeth Taylor AIDS Foundation. That same year Freddie Mercury of Queen died of AIDS and by now, one million Americans were infected with HIV. By 1996, the United Nations estimated that 22.6 million people worldwide were living with HIV and by 2002 HIV was the leading cause of death worldwide for people between the ages of 15-59. When Elizabeth Taylor died in 2011 there were 34 million people living with AIDS.

I came to The Elizabeth Taylor AIDS Foundation five years ago to lead this incredible organization without Elizabeth Taylor at the helm. My mission was to take her legacy and build a continued legacy in global health.

Charity Matters: Tell us a little about what the Elizabeth Taylor AIDS Foundation Does?

Joel Goldman: We were established to provide funding and grants to organizations around the globe that offer direct care to people living with AIDS and HIV.  We also focus on HIV education around the globe and advocacy programs.  We work on HIV criminalization reform that still exists in 31 states across our country. We have mobile clinics in Malawi that are treating up to 1,000 people per day.

Charity Matters: What fuels you to keep doing this work?

Joel Goldman: What fuels me to keep doing this work is the global disparity in access to medication. There are over 36 million people globally living with HIV and millions do not have the same access to the medication they need. Our work is to ensure that everyone has an equal playing field.  Part of that work is education and going to Washington DC for AIDS advocacy on Capitol Hill.

Joel Goldman with Elizabeth Taylor’s grandchildren (photo:Sean Black)

Charity Matters: When do you know that you have made a difference?

Joel Goldman: We know we have made a difference with the education and awareness work we fund. We have made an impact on our advocacy laws and in the millions of people we serve with our support services. The ETAF has granted over twenty million dollars to over 675 organizations in 44 countries and 42 states. We make a difference every day in big and small ways.

Charity Matters: What life lessons have you learned from your time at the ETAF?

Joel Goldman: There have been so many life lessons learned during my five years here at ETAF. This was my first time in the Executive Director role and there was an immediate lesson in responsibility and truly caring for an organization and it’s legacy.

I have learned how much better our world would be if we all partnered instead of competed. I learned this when we partnered with a malaria organization in Africa because people were willing to be tested for malaria and afraid of being tested for HIV. Today because of that partnership we treat more malaria in Africa than HIV because we were willing to build a bridge to work together. More than anything, I have learned that if we are going to defeat something we ALL need to come together.

Charity Matters: How has this journey changed you?

Joel Goldman: I was diagnosed with HIV in 1991, the next day I needed to fly to Los Angeles for a job interview from Indiana. I was in shock with my diagnosis and thinking I was going to die of AIDS, I upgraded my plane ticket to first class…thinking why not? On the plane, I ended up seating next to Ryan White’s mom, Jeanne. I thanked her for all she had done and was doing for AIDS patients, not sharing with her my diagnosis. I asked her why she was going to LA. She replied that she was going to give Elizabeth Taylor an award for her work with AIDS.

Five years ago, on my first day at the Elizabeth Taylor AIDS Foundation, they gave me a stack of folders on the history of the organization. The first one I opened was the photo of Ryan White’s mother presenting Elizabeth Taylor with her award. I knew then and know now that I was meant to be here and to do this work. All I can hope is that I have done Elizabeth Taylor proud.

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Project Angel Food

“In every community, there is work to be done. In every heart, there is the power to do it.”

Marianne Williamson

As we enter the month of November, it is time to think about food, hunger, and Thanksgiving, sort of the ying and yang that is life. It is a bit bizarre, that as we begin to think about the feast we are about to have, we somehow become acutely aware of those who struggle to have food or make a meal. A few weeks ago, a friend of mine connected me to an amazing organization called Project Angel Food. As someone who has a strong affinity for angels and who believes in signs, I knew I was being sent there for a reason.  I wanted to know more about the cause before taking my field trip to meet Project Angels Food’s Executive Director, Richard Ayoub.

The organization began in 1989 by the famous author and spiritual trail blazer, Marianne Williamson, as an outreach program of the LA Center for Living. The Center for Living was created to help people with life threatening illnesses and provide services and lunch for those who were too ill to leave their homes.  In response to the growing HIV/AIDS epidemic at the time, Project Angel Food moved into the kitchen of the Cresent Heights United Methodist Church.

I went down to see what this organization that really rose up to meet the HIV/AIDS crisis was doing today and have an enlightened tour and visit with their fantastic Executive Director, Richard Ayoub.

Richard Ayoub, Derbeh Vance, a volunteer of 20 years and Chef John

Charity Matters: Tell us a little about what Project Angel Food does?

Richard Ayoub: Project Angel Food cooks and delivers over 12,000 nutritious meals each week, free of charge, to the homes of men, women and children affected by life-threatening illnesses. Our vital food and nutrition services, include medically tailored meals, help the underserved people throughout Los Angeles County who are too sick to shop or cook for themselves. We are referred by over 150 agencies and while we were created in response to the HIV/AIDS epidemic, we expanded our mission in 2004 to help our neighbors who are struggling with any life threatening illness burdened by hunger and malnutrition.

Charity Matters: When do you know you have made a difference?

Richard Ayoud: I like to go out and deliver meals to our clients and hear from them. Many of them are very sick and are not super sociable but many of them are craving someone just to talk too. We were visiting with an HIV patient in his fifties and he looked at me and said, “Can I give you a hug?” This man was SO grateful for our work, for his meal, and he held me in the longest biggest hug to let me know just how much our work meant to him. The one universal thing we see with all of our clients is gratitude.

Charity Matters: What fuels you to keep doing this work?

Richard Ayoub: I know I was meant to be here and it was a calling. I was in broadcast journalism , I was a newscaster and yet I always wanted to make a difference more than anything. I believe that I was put here to serve these people. They fuel me to keep going.

Charity Matters: Tell us what success you have had at Project Angel Food?

Richard Ayoub: Project Angel Food sometimes feels like LA’s best kept secret and people do not know how deep our commitment is to make made from scratch, healthy nutritious meals. Our favorite phone calls are when our clients call and say they are healthy and no longer need the meals, please give the food to someone else.

We have just entered into a pilot program with the state of California that is proving food is medicine, proving that we can keep people healthier and the results are amazing. We drive all 4,000 miles of LA County everyday. We believe in all forms of equity and we go the distance for our clients. In the last two and half years we have increased the people we feed by 30%. Our goal is always to feed more people. It costs us $2,000 to feed one person for a year. This year alone we will serve over 500,000 meals with over 4,700 volunteers.

Charity Matters: What life lessons have you learned from this experience and how has it changed you?

Richard Ayoub: I think one of my biggest life lessons is to just believe and to turn it over. The theory of just believing truly works with everything in our lives. In this work, one day you have a grant that you are counting on to feed people and you do not receive it. You want to give up and then out of nowhere you receive unsolicited donations that are even more than the grant. We have a supporter here who calls that “Divine Choreography.” These miracles constantly happen in this work.

This journey feels like my calling and everything I have done prior to this moment has prepared me for this. I am doing something to make the world a better place, even in a small way. This journey with Project Angel Food has brought out the essence of who I am and simply amplified it.

Everyday I walk into this building, I am grateful that I can simply come to work. Our clients dream of going to work, they are home bound and often times forgotten.  They are often times the invisible people of LA and we want them to know we remember them. We want everyone to know that, “you are not alone.” I think it is a message that we all need to hear.

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Adopt Together

Amazing and inspiring people are all around us every single day, and yet somehow we don’t know their stories. These stories and people continue to fascinate and inspire me. I seek them out, track them down and want to shout from the roof tops their stories.

This is the incredible story about a guy named Hank Fortner, who grew up in an amazing family made up of biological children, foster children and adopted children. His family fostered 36 children and adopted six children from five different countries while he was growing up. Friends who wanted to adopt a child began coming to him and telling him how expensive adoption can be, often times up to $50,000 to adopt a child.  He thought there must be a better way to help these children and these families. This is his story…

So, in January 2012 Hank decided to create AdoptTogether which is the world’s largest nonprofit crowdfunding platform for adoption. Think of it as a hybrid version of KickStarter or GoFundMe, except for a nonprofit, where every donation is tax deductible. This is how it works:

However, that wasn’t even enough for Hank. He wanted to go one step further and inquired about a World Adoption Day, it turns out that it didn’t exist. It also seemed that the United Nations was in charge of approving and  sanctioning such a day. Hank was not deterred and on November 9th, 2014 he launched the first World Adoption Day campaign.

Today, AdoptTogether has raised over $17 million dollars for more than 4,000 families in just over six years. Their dream of a world with a family for every child continues.  So this Friday, November 9th celebrate family and the incredible humans that bring us together every single day.

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Charity Matters Inspiration

The Clarity Project

 

Earlier this week I posted about losing legends, well it appears that on Monday, we lost another one. Her name was Claire Wineland and she was 21 years old. Claire was born with Cystic Fibrosis, a disease that creates an overabundance of mucus and ultimately results in respiratory failure. She grew up knowing that she was terminally ill and what we would think of as tragic, she simply used as fuel. Her message and life were truly remarkable.

Claire endured over 30 surgeries in her short 21 years and spent an incredible amount of time in the hospital. About six years ago, after being in a coma for over 20 days, flat-lining twice and being given a less than 1% of survival, Claire survived. She came out of the experience determined to help others with Cystic Fibrosis. From that near death experience began the creation of the Claire’s Place Foundation,whose mission is to relieve families financially with CF, to help with their rent, mortgage, car payments, etc.

The foundation became a way to celebrate Claire’s life. She once said,”It is important for people who are sick to feel empowered. It gives them a reason to take care of themselves.” And if that wasn’t enough, Claire decided shortly after in high school to begin a YouTube series called The Clarity Project, where she talks about topics such as how to talk to a sick person or even what it is like to live like you are dying.

Claire moved out on her own, decided not to go to college because she was not sure she would live long enough to graduate. She spent her time sharing her inspirational message doing Ted talks, running her foundation and recently partnered with Zappos to take on project similar to Once Upon a Room by decorating children’s hospital rooms in Las Vegas.

Claire’s message is a reminder to us all. If you give yourself one gift today, listen to Claire’s talk (above). She was a reminder to each of us how precious life is, how blessed we are to have our health and regardless of our circumstances, that someone always has less than we do.

Claire lived her life as an example to each of us. Even in her death her organs were donated to help over 50 people. In her last video Claire said, “Go enjoy your life. I mean really seriously, go enjoy it, cause there are people fighting like hell for it.” Claire’s legacy tells us that we not only have the power to help…. but more than that…..to live our lives fully.

Charity Matters.

 

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Learning Lab Ventures

Last December, I was at a friend’s holiday party and sat next to this amazing woman and we started to chat about philanthropy. The holiday celebration ended and we vowed to continue the lively conversation another time. So, two weeks ago we reconnected to continue the conversation, six months later.  The young woman I met was named Rochelle Gore Fredston and her philanthropic journey was and is inspiring. The last time we met, Rochelle was the mother of two little girls and when we sat down two weeks ago she beamed as we discussed the pending new addition her family.

Rochelle and I discussed how she got into the nonprofit world and the journey she has been on with her incredible work to break the cycle of generational poverty. She is the founder of  the Philanthropic Society of Los Angeles (PSLA) and more recently has taken over Learning Lab Ventures, a nonprofit that is an intensive after school and educational enrichment program that turns underserved students into college graduates. I have to say after our conversation it is official…. Rochelle is truly beautiful inside and out and her passion for making a difference is an inspiration to us all. I hope you enjoy our conversation as much as I did!

charity matters: Tell us a little about your back round and your journey into the nonprofit world?

Rochelle Gores Fredston: My dad came to the United States with very little and worked extremely hard. He taught us that we had to work hard and do better, not just for ourselves but for others. Some my earliest memories were feeding the homeless, as young children in Michigan, where we grew up. My brother has Cerebral Palsy and we were all raised to be involved and supportive of one another and our community.

charity matters: how did you begin the Philanthropic society of los angeles?

Rochelle Gore Fredston: After college, I was moving to Los Angeles and I reached out to a family friend and said that I wanted to get involved in something philanthropic in LA.  Our friend connected me with the Children’s Institute, which is a great organization that provides mental health training and head start programs to over 20,000 children in Los Angeles. At the time I was in my twenties and the group at Children’s Institute was mainly people in their forties and fifties,  so I wanted to get some of my friends involved.

I owned a boutique and have always loved fashion, so I thought it would be fun to have a fantastic fashion show and involve a big group of millineals. I realized that my friends really wanted to do something but didn’t know how to start. So we created a group called PSLA to raise funds and support Children’s Institute. For eight years we very successfully raised funds with our events and each year our PSLA group of about seventy-five was giving their funding to educational projects for the Children’s Institute. We even created a family fund to help families with specific needs.

charity matters: so how did you get from the PSLA to Learning Lab Ventures?

Rochelle Gore Fredston: After eight amazing years with great success, our group at PSLA realized that they still wanted to do more to support education, especially for at risk youth. So we began to explore the idea of funding another organization that was in need but also that had a great success rate. So as fate would have it, in 2017 we connected with Hathaway-Sycamores who were running an after school educational program and they asked if we wanted to take over? That program was Learning Lab and now Learning Lab Ventures.

Charity Matters: tell us about learning lab ventures?

Rochelle Gore Fredston: Learning Lab was founded in 1982 by an amazing man named Simon Gee whose passion is tutoring and mentoring students. Today we still follow the incredible work that our founder began and have built upon his foundation. Our mission is to disrupt generational poverty via an intensive after schools education and enrichment program. We aim to enable underrepresented students to graduate from top colleges equipped with a college degree, skills and experience they need to excel in the workforce and beyond.

charity matters: Tell us about some of your success at learning lab ventures?

Rochelle Gore Fredston: At LLV we take students from age three all the way until their first job out of college. We have 100% high school graduation rate and 95% of our students go to a four year college with scholarships. We have students at Harvard, Ivy League’s and incredible four year colleges. We provide our students with mentors and our hope is to eliminate all the red tape to get them through school and into their first job.

We have focused on our core, education, which is what we do well.  With LLV we have taken an old nonprofit and made it better with great partnerships and resources.

charity matters: How has this journey in philanthropy changed you and what have you learned about yourself from your work in serving others?
Rochelle Gore Fredston: When I began this journey, I was newly married and getting involved in Los Angeles. Over the past decade I have committed myself to helping the most at risk youth in LA, and during this time I also had two beautiful girls. Having children of my own has made this a very personal mission for me and I am grateful that I am able to give back in a meaningful way.
charity matters:

Thank you Rochelle for  your extraordinary commitment to breaking the generational cycle of poverty through education. You told us,”I grew up to do better. Education is how we can do better and it is my job to help them do better.”  Thank you for inspiring us all to do better and be better!

 

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Eric’s Kids

The beauty of Charity Matters is that my friends love to connect me to their inspiring friends and then I turn get to share them with you. A few weeks ago, I had a girlfriend connect me an amazing woman named Jennifer Caspar, the founder of Eric’s Kids. Jennifer has had a remarkable life for someone as young as she is and is the perfect example of someone who has used all of their challenges and gifts to make others lives better. I hope you enjoy our conversation as much as I did.

charity matters: Give us a little insight to your backround before starting Eric’s Kids?

Jennifer Caspar: When my husband Eric and I moved to LA from the East Coast  for his work, it was such an exciting time. I worked in the nonprofit space in affordable housing, loved my career where I could use my entrepreneurial skills, creative abilities and problem solving skills to help support the homeless. We had two young daughters and in January 2009, I left my job. At the same time, my husband Eric decided to follow his passion of education and make a career change. So, for the first time we were both at home together and working on separate projects. It was a very special time for both of us.

charity matters: what was the moment you knew you wanted to start a nonprofit?

Jennifer Caspar: When Eric died unexpectedly on September 1st, 2009 I knew that we needed to do something in his memory. Our girls were ten and thirteen at the time and I knew that somehow we needed to help children who had lost a parent and knew that we needed to do something to honor Eric’s passion for education. We were fortunate that we had life insurance and some financial resources and knew we somehow had to help those that did not.

I reached out to my old boss and asked for her guidance and she pointed me to the California Community Foundation that partners donors and nonprofits. They explained that we could create a donor advised fund under their 501c3 and they could manage all of the administrative work that can be overwhelming for many nonprofit organizations. I was overwhelmed enough and knew this was the right step. Talking this all through we came up with the perfect way to honor Eric, to help grieving children and to support Eric’s legacy with education.

Charity matters: Tell us what ERic’s kids does?

Jennifer Caspar: Eric’s Kids is a nonprofit that provides scholarships, mentoring and grief support to at risk children who have lost a parent and are in financial need. We ensure that underserved kids affected by loss are provided with a quality education and grief support so they will have an equal opportunity to succeed. The fund works to provide financial support and services to children who would otherwise be unable to attend high quality, safe nurturing schools in their central Los Angeles neighborhoods.

Charity Matters: What fuels you to keep doing this work?

Jennifer Caspar: Different things at different times. All of the people who support our work and cause continue to inspire me and knowing that I am not alone in this work really helps.

charity matters: when do you know that you have made a difference?

Jennifer Caspar: When I receive letters from the students we support. When families reach out to me to say how grateful they are that their child can stay in the same school regardless of the loss of a parent. Parents knowing that despite their grief and loss that somehow they are going to be ok gives me great comfort.

charity matters: tell us about your success?

Jennifer Caspar: We work to constantly fund as many students as we can. In eight years we have had seven fundraising events, supported over thirty plus students and funded over 100 years of school.

charity matters: what life lessons have you learned from this experience and how has this journey changed you?

Jennifer Caspar: This journey has changed me in many ways. I’ve learned about leadership and getting other people involved. I’ve learned how to inspire and motivate people in positive ways . The life lessons learned from this journey are all about gratitude and paying it forward. People want to help and be a part of doing something good for the world.

charity matters: what do think Eric would think of your work?

Jennifer Caspar: Eric helped me become myself in our 18 years of marriage. He was always my cheer squad. I think this would make Eric happy. I think he would be proud of how we (myself and the girls) have spent our time and focused our energy these past eight years. This is part of our life. Knowing that Eric was always moved by children who had a hard upbringing and that his legacy now gives kids an opportunity to go to bat would inspire him.

Charity Matters: Thank you Jennifer for inspiring us all. Despite loss, grief and challenges you found a way to honor Eric’s memory and change the lives of so many children and families through your work. You are an inspiration and we are sure that Eric is beyond proud.

charity matters.

 

 

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I Am Waters Foundation

You never know what a lunch invitation is going to lead too…..A few weeks ago a friend of mine reached out and invited a handful of girlfriends to connect with a remarkable woman named Elena Davis for lunch. She was coming into town from Houston and had started a nonprofit organization there serving the homeless in 2009. I of course could not wait until lunch to meet and connected with Elena last week via phone to chat and ask about her journey in beginning I Am Waters Foundation.

I have to say, it was one of the most remarkable stories and amazing conversations.  Elena is truly an inspiration and  I am sure you will feel the same way…

what is the i am waters foundation’s mission?

Elena Davis: I Am Water’s mission is to do one perfect and complete thing: to deliver water. Clean drinking water in a bottle with a message of hope, love and faith to remind the person holding and drinking from the bottle that something important lies beyond physical sight.

charity matters:  there is usually a connection between nonprofit founders and their causes, what is yours?

Elena Davis: My life as it stands now is far from where I started. As one of four kids raised by a single mother on less than three thousand dollars a year and food stamps, my life was lived in extreme need and on the margins of society, with struggle as a constant companion. At the age of fourteen, after having attended over a dozen schools, I started dreaming of a better life than the one into which I was born.  I was introduced to a photographer who took the first shots of me and I began to realize my dream of becoming a fashion model. At the age of 16, having signed with the renowned Ford Agency, I set off to Paris to begin what was to become a lucrative and successful career as a print and fashion model.

 

 After 15 years of hard work and a successful career as a model, I was able to contribute to alleviating my family’s financial woes . In 1994, I married into one of the country’s more prominent families. Twelve years of marriage and 3 kids later, I had all that I had dreamed of. Or so I thought.   In 2009, while going to pick my kids up from school a homeless woman knocked on my car window. I reached for money and she shoved it back to me and said, “Please, I am so thirsty can I please have your water?” As I handed her the water and felt a jolt, like an electric current. She said, “Thank you and God Bless you.” And she disappeared.

Charity matters: what was the moment you knew you needed to start your nonprofit?

Elena Davis: After meeting that woman, I couldn’t get her out of my mind and I knew that I was being called to do something. I just wasn’t sure what. Then a series of things happened that kept pointing to water and homelessness. I knew I needed to revisit my past and I was scared to face the deeply buried part of myself, my childhood, that I had kept a secret from my friends and the people I knew. Yet, I knew that if we could heal one crucial aspect of the intense need that a person without a home has to deal with daily, by providing water, we could make an impact and so in 2009 we began the I am Waters Foundation.

charity matters: homelessness has so many layers where do you start?

Elena Davis: Did you know the average age of homeless person is 9 years old? We have more than 3.5 million people that are homeless in this country every night and of the 31 million people living in poverty more than 12 million of them are children. We start by providing the most basic human need, water.

charity matters: what keeps you doing this work when The job is never ending and the need is enormous?

Elena Davis: The work is hard but I really believe that I was called to do this. The short answer is God. What are the chances that I was born into poverty and married into a great family? I think I am a bridge between two worlds and this was God’s way of saving me.  Also, my husband has been incredibly supportive through this entire journey.

charity matters: when do you know you have made a difference?

Elena Davis: On a micro level I think we have been able to track people and follow our progress. On a macro level we have worked tirelessly to help change the systems by working with cities, calling out injustices and simply by not giving up. We are excited to be launching a new program I Am Jobs to continue our mission to serve this underserved  population.

charity matters: Tell us the success you have had and your impact?

Elena Davis: We have distributed over 4.1 million bottles of water to the homeless in six states.  We have partnered with countless homeless agencies and 45 shelter partners that we research. We are now working with cities to begin an I Am Jobs program in addition to supplying water and hope to the population we serve. The water continues to be the tool we use to reach people and connect. Each bottle has a phone number that connects us to the individual in need. We have partnered with incredible organizations to help the next steps in the job process. It all starts with the individual person who is asking for help.

charity matters: What life lessons have you learned from this experience and how has this journey changed you?

Elena Davis: Growing up transient I kept to myself. My heart was buried and this journey has cleansed me, given me gratitude and perspective. I have learned that our gifts are tied to our wounds. You need to go down to the core of who we are and face that to move forward to help others.

charity Matters: Thank you for sharing your remarkable story, You truly are an inspiration and more than a super model but a super role model for us all.

 

charity matters

 

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Cancer

The Foundation for Living Beauty

Have you ever seen someone walk into a room that radiates a bright light? That is exactly the impact that Amie Satchu has when she enters the room. It isn’t her physical beauty (which she has) but something bigger within that catches you immediately. When we met through a mutual friend recently at a lunch, I was not surprised to discover that she had founded a nonprofit, most appropriately called The Foundation for Living Beauty.

Amie and I had a chance to catch up earlier this week to discuss her inspirational journey and mission to provide women with cancer emotional, physical and spiritual support throughout their cancer treatment. The Foundation for Living Beauty uses a holistic approach to educate, uplift and empower women dealing with cancer whether newly diagnosed, in mid treatment or beyond.

Charity Matters: What was the moment you knew you needed to act and start your non-profit?

Amie Satchu: In my early 20’s I started  a hair care line that specialized in wigs and hair extensions, that quickly gained notoriety in the ethnic hair care market. With that came hundreds of letters from women telling us that we had transformed their beauty by transforming their hair, many of whom had cancer. So, as a result of those letters I decided to start a nonprofit in 2005 to serve  these women.

The week after we received our 501c3 nonprofit status, my mother was diagnosed with Multiple Myeloma, a terminal cancer and given less than two years to live. I crawled into my mom’s hospital bed and told her we were going to get through this together. The Foundation for Living Beauty truly came out of providing her with a quality of life and each program was built out of her experience.

A few weeks later my mom (who was a social worker) and her two best friends were also diagnosed with cancer. The connection between these three women, the sisterhood and coming together truly formed the inspiration for the women we serve to find a place where they can thrive and heal.

charity Matters: Tell us a little about your work?

Amie Satchu: The Foundation for Living Beauty does over 30 events a year all 100% free to support women with cancer. We do wellness workshops, yoga for cancer patients and sisterhood support events. All of the support services we currently offer, address the complex needs my mother faces along her cancer journey and help women understand that the lifestyle choices they make can help them feel and live better.

charity Matters: What fuels you to keep doing this work?

Amie Satchu: My mother died four years ago and she lived eight amazing years after her diagnosis. I saw her emotional wellness after our events, seeing the impact of our work first hand. My mom is still the guiding light even though she is no longer physically with us. I see the impact from the women we serve, in their renewed sense of hope and well being, and that in turn supports their families through this journey. 

Charity Matters: When do you know you have made a difference?

Amie Satchu: There are so many moments and people that remind me of the difference we have made in hundreds of peoples’ lives. One person that stands out to me is Sandra Yates Thompson (who is in the video below), we were not only able to help her through her battle but to support her and her family in ways that shifted her and all of us. Her heart was so beautiful and it is people like Sandra that inspire us to keep going.

Each life we touch reminds me of the importance of our work. We had a client named Cassandra who was a single mother, and an attorney who was such an inspiration that we had a donor create a Cassandra fund to help single mother’s with cancer.

Charity Matters: Tell us what success you have had? What has your impact been? Number  of people impacted, funds raised?

Amie Satchu: Our success is truly about each life we touch, whether the woman with cancer or her family. We currently serve 650 Living Beauties that are a part of our program. These women can attend over 30 events for free that focus on increasing their physical wellness and emotional stability while coping with cancer. 97% of our participants gain a new understanding of their body and immune system and 92% of the women we serve agree that they have more tools to strengthen and heal their body because of our program.

Amie with Olivia Fox, who was diagnosed with cancer in her early 20s
charity Matters: How has this journey changed you?  What life lessons have you learned from this experience?

Amie Satchu: This journey has changed me in so many ways. The exchange between the women we serve reminds me to live only in the present. Bringing hope into others lives, learning to be open and to make everyday count are invaluable experiences that have changed me. When I do those things I feel my mother’s presence and know this is where I want to be.

The life lesson I have taken from this journey is that what really matters in this lifetime are the connections you have with other souls. The positive things you do in this life are the only things you take with you and the only things that are truly important. Being with my mom at the end of her life for her last breath is a daily reminder that love is all that we have and all that matters.

charity matters.

 

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Dollies Making a Difference

Do you remember that childhood toy that you treasured and cherished? A stuffed animal or doll that you carried everywhere, that made you feel safe and loved? I think most of us can conjure up an image of that one special toy we loved as a child and more importantly how it made us feel. So, a few weeks ago when a mutual friend told me about the work that Dollies Making A Difference was doing, I knew I needed to find out more about the inspiration behind this amazing and very special organization.

Earlier this week I had a fantastic call with Co-Founder, Cindy Simon, who told me the heart warming story of this amazing organization that simply believes that to give is to receive.

Charity Matters: When and how did you start Dollies Making a Difference?

Cindy Simon: In 2010, I was back east and had just read an article about a group of women who had gotten together to sew some dolls for the children suffering from the earthquake in Haiti. These east coast women were inspired by Dianne Sawyer’s coverage of the earthquake and knew the moment  they saw Dianne Sawyer pull a doll from a pile of rubble and say, “Look some little girl has lost her dollie.” that they needed to act.

The article about these women inspired me to act. I called them up, went over to see what they were doing, learned their process and said I wanted to help. When I got back home to Los Angeles, I called some friends to ask them to help me make 500 dolls for the children of Haiti. My dear friend, and non-profit co-founder, Dorothy Miyake, was the first to help. She had a large group of friends that were crafty and we decided to meet every Wednesday in my dinning room to make these dolls.

Charity Matters: What was your goal when you started Dollies Making a Difference?

Cindy Simon: The mission was simply to help the boys and girls in Haiti by providing homemade dolls and teddy bears but we quickly learned that what we were doing was not about a doll and was so much more. Our mission is that to give is to receive and we quickly learned that with the Three Cs:

Community, the group of women who sit around my dinning room table every Wednesday for over a decade sharing, caring for one another. We have gone thru  health issues, death, birth and life together. We are a community.

Connection, we don’t send our dolls and teddy bears through huge organizations. We find Ambassadors that can be people we know or small nonprofit or church organizations. We request that each of our handmade toys is delivered by hand from an Ambassador to a child and that the human connection is what makes the experience special for both the child and the person delivering the dolls.

Comfort, is what the child receives from having and holding their own doll or teddy bear.

Charity Matters: When do you know you have made a difference?

Cindy Simon: We know we have made a difference when we make a child smile, when the person who delivers the doll is moved and this had made a difference for all of us making these dolls.

Charity Matters: What fuels you to keep doing this work 10 years later?

Cindy Simon: This work has given me a passion, a purpose, I feel worthy and relevant. It is fun to be connected to wide variety of people and organizations around the world. More than that it renews my faith that there are a lot of good people in our world who are helping people they will never know.

Charity Matters: Tell us about your success and impact?

Cindy Simon: What started out as a small project has turned into over 13,000 hand-made dolls and teddy bears being hand delivered to over 300 organizations around the globe. In addition, we have given over $107,000 away to other nonprofits in grants with the funds we raise. 

Charity Matters: What life lessons have you learned from this experience?

Cindy Simon: Everyday I am reminded of how many good people and organizations are out there in the world. I think I underestimated the power of community and what goes on with the connection and community we have in making the dolls, it is the sharing that just happens.

This journey has made me more compassionate to all the needs out there. I have learned that we can all be of help to others and especially to those who we will never meet.

charity Matters.

 

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A camp with heart

While I know it is February and summer and camp seem to feel like a million years from now, I had an incredible conversation last week with an amazing human named Lisa Knight, who runs a camp (Camp del Corozon) for children who are living with heart disease. Since February is National Heart month this seemed like the perfect time to discuss our mutual challenges of running nonprofit camps but more specifically Lisa’s incredible work as a registered nurse and nonprofit founder, serving children with heart disease. I hope you enjoy our conversation half as much as I did.

Charity Matters: What was the moment you knew you needed to start Camp Del Corozon?

Lisa Knight: In 1995, I was working with Dr. Kevin Shannon with pediatric heart patients and we had a mother who came in to see us. Her son had multiple heart surgeries and was depressed. He didn’t want to go to sleepover or PE class because he was embarrassed about all of his scars and he didn’t feel like a “normal kid.” I suggested to Dr. Shannon that maybe we should try to send him to camp and began to look for a camp that could manage his health challenges or that would take him. There was only one, it was very far away and very expensive. So I suggested that we try to create our own.

Dr. Shannon loved the idea. I reached out to my friends in Catalina that had a camp and asked if we could come for a week with some heart patients, they agreed. We asked all our doctor and nurse friends to volunteer and within two months we had 49 heart patients and 100 volunteers coming to camp for free.

Charity Matters: What challenges did you have?

Lisa Knight: We had NO money, We maxed out credit cards, were not totally sure what we were doing but we were sure we should be doing this. Then we had a surgeon named Jerry Bucklin, who gave us $5000 to make it happen and we did.

Charity Matters: What fuels you to keep doing this work?

Lisa Knight: I get so filled up by it all.  These kids have survived death, there are not camps for these types of kids due to their medical conditions. It transforms them. You see them show each other their scars. The most rewarding thing is when you hear children call you by your camp name, when you see them years later not at camp.  This year our first camper is coming back as a counselor, so to see not only these children grow up and give back but to watch my own 29-year-old daughter getting even more involved as she takes on more responsibility with her role at Camp del Corozon, is so rewarding. 

Charity Matters: Tell us about your successes at Camp del Corozon?

Lisa Knight: I think our successes is that thousands of children have been able to come to camp, to make friends, become more confident and just feel like regular kids.I think back to when we began and am so proud that it is continuing and going on. I get joy out of all our success, each child, each camp. This summer we will have close to 400 campers who will come to camp for free. Twenty-three years later that feels pretty amazing.

Charity Matters: What life lesson have you learned from this experience? 

Lisa Knight: I’ve learned so much, how to dream dreams, connect the dots and make things happen. I have learned gratitude after having so many struggles and I have learned that there is nothing better in life than service, you simply cannot be happy without it.

Charity Matters: How has this changed you?

Lisa Knight: I feel that Camp del Corozon was just supposed to be. This is my whole life. I feel that I am on a chess board and God just pushes me in the direction I am supposed to go.”

Charity Matters.

 

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Charity Matters Inspiration

Dear Rosalynn

Last Friday, was the most amazing and unexpected day. It wasn’t because it was 85 degrees in February that made it so glorious, but rather the invitation to celebrate Rosalynn Carter’s 90th birthday at the Rose Bowl in Pasadena that made it unforgettable. This wasn’t just any invitation, it was a love letter from one friend to celebrate another’s birthday in the most spectacular way.

These friends were not just any friends, but a remarkable man, author and school principal named Dan Horn and his dear friend, former First Lady Rosalynn Carter. Dan wanted to celebrate this special friendship in an exceptional way. A morning filled with performances from his amazing students at St. Genevieve’s School at the Rose Bowl and his special birthday gift, a documentary film made by his students for over four years of Rosalynn Carter’s truly extraordinary life. It was a love letter to a woman who has quietly changed our world.

The story all began with a letter written over 30 years ago from a young man named Dan Horn, who had read Rosalynn Carter’s biography and reached out to her via a letter saying that he would like to meet her. To his surprise Rosalynn replied, the two had lunch and as Dan said, “Lunch was life changing and I just had a hunch that we were going to be friends.”

Flash forward a few decades and here we all were in the Rose Bowl watching the world premiere of this documentary about this beautiful friendship between a former First Lady, one very special school and a principal. In the hour hundreds of us sat and watched the story together, we were inspired, elevated and simply blown away by what the Carters have accomplished in their lives.

Photo courtesy: The Carter Center

This soft-spoken mother of four has truly had a remarkable life. Helping her widowed mother raise her younger siblings at age 13 and putting them all through college. Supporting her husband in her roles as First Lady of Georgia and of the United States. It was learning about the depth of her humanitarian efforts that were truly inspirational. Her tireless work for Equal Rights, the creation of the nonprofit The Carter Center, whose mission is to promote human rights the alleviation of human suffering.  Rosalynn’s passionate work in eliminating the stigma of mental health, the couples work with Habitat for Humanity that put the organization on the world’s stage and the creation of the Rosalynn Carter’s Institute for Caregivers, to name a few.

One post is not enough to cover the tireless, bold and beautiful work this First Lady and author of five books has accomplished. In her words, “we just planted a few seeds.” but as the film and students of St. Genevieve said, so beautifully, “Thanks to the Carters we know we are all capable of changing the world.” Based on what we all saw last Friday, I do believe they will.

 

Charity Matters.

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Looking back, a year in review

As we begin to wrap up the year and look back at what we accomplished in 2017, I am always amazed by the incredible nonprofit founders we met this year. Their hardships, determination and passion to turn their journey into an organization that gives to others…. simply an endless source of inspiration.

So before we look ahead, lets take a moment to recall some of these extraordinary people we talked to in 2017:

Katie Quintas with Here to Serve showed us that in the face of adversity of having a husband and a son with cancer, she would create an organization to serve families whose children have cancer. Katie combines technology , her ability to connect and compassion to help families with items from food, to groceries to medical expenses.

Francie Paul with Saving Tiny Hearts, took her experience having a newborn with congenital heart disease to create an organization that funds research to save these tiny babies born with congenital heart disease. One of the loveliest humans with the biggest hearts I have ever spoken too.

Rebecca Pontius of the Do Good Bus. Rebecca and her friends decided that doing good together is fun and makes the world better, so she created a nonprofit that brings groups of people together to volunteer and do good. A fun way to serve, connect and make a difference.

Andy Goodman of the The Goodman Center shared how to use the power of storytelling as a tool to impact the world.

Two amazing women, Yasmine Johnson and Jules Leyser of Alliance of Moms created an organization to break the intergenerational cycle of teen mothers in foster care and inspired me with their incredible organization. These two women are beautiful inside and out and ones to watch for sure!

Ford and Heidi Johnson, Jennifer Hull, daughter Josie and Sienna Dancsecs

Jennifer Hull and daughter Josie, founders of Once Upon a Room, transform hospital rooms for the sickest children, think Extreme Home makeovers on hospital rooms. Their story is beyond inspirational and one for all to see.

Hand to Hold‘s Kelli Kelly inspired us all with her story of being the mother of a premature baby and the struggles that ensued. The result is her incredible organization that supports families through this challenging time. A beautiful story of love and compassion.

Hope and Comfort‘s Jeff Feingold’s amazing story of taking his child’s birthday party and turning it into a nonprofit that provides soap, toiletries along with  Hope and Comfort to thousands of children in the Boston area.

Annie Cannons The incredible story of Laura Hackney and Jessica Hubley’s remarkable adventure to end human trafficking in the United States. A nonprofit that not only teaches women how to write computer code but gives them skills, an education, hope and the ability to break the cycle and create change for others. Two of the most inspiring women and the most brilliant organization that is approaching a horrific topic in a fresh and empowering way.

JoAnn Thrailkill of Pablove showed us that even when your loss is overwhelming, there is love and hope. JoAnn shared the tragic story of losing her son, Pablo and creating a lasting legacy of hope for children with cancer. JoAnn’s  words haunt me, “The experience of starting Pablove has allowed me to always see the light. I am now reminded daily of the love that surrounded me during one of the most difficult times in my life.”

It is people like JoAnn and all the other incredible people we met this year that will inspire me moving forward into 2018. The sources of inspiration are endless, the people awe-inspiring and there are so many others we met this year that I hated not including. My dream for the New Year is to share as many of these heroes as possible with the world. It is obvious to me that we simply need more heroes.  They are all right here, every week, sharing their challenges, journey, humanity and hope for us all. Thank you for subscribing via email to a little soul and inspiration this year, for liking our Facebook page, commenting or sharing a post. It takes a village to spread the word of light, hope, goodness and charity.

Wishing each of you blessings in the New Year filled with love, gratitude and kindness to all.

Charity Matters.

 

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Charity Matters Inspiration

A Year Full of Surprises

I hope everyone had a wonderful Christmas holiday and time with friends and family. As I begin to look back at this past year, I am truly inspired by the incredible people I have met and the amazing journey that Charity Matters continues to be. The surprises constantly take my breath away. Yesterday, I received one that has truly left me in awe.

I have been called many things in my life but being named a Woman Warrior of 2017, by HoopLaHa is truly an unexpected  honor. HoopLaHa highlights Good News Only, and we are kindred spirits of sorts in telling stories of people making our world better. So, to be mentioned in the same breath as Annette Ross, author of  Where Fairy Tales Go and Karen Shayne of the nonprofit,  Women Survivors Alliance is beyond humbling.

As we begin looking back at 2017, I can say that I am proud of the work we are doing at Charity Matters. Grateful to each of you for following, subscribing, sharing and knowing that our world needs heroes and people to show us the way. These non-profit founders are my heroes and it is such a privilege to be considered amongst them as Woman Warrior of 2017.

Charity Matters.

 

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Wreaths Across America

“You can give without loving, but you can never love without giving.”

Robert Louis Stevenson

ARLINGTON, Va. (AFPN (U.S. Air Force photo by Master Sgt. Jim Varhegyi)

Apologies for the delayed post this week but Christmas and a cold set me back a bit. As usual things happen for a reason because last night as I watched the evening news I came across this beautiful story, that was more than worth a share.

The story is about a couple, Morrill and Karen Worcester from Maine, who own a Christmas wreath business. In 1992, their Worcester Wreath Company found that they had an 5,000 extra wreaths that year. Morrill remembered a childhood visit to Arlington National Cemetery and had always believed that his good fortune and success was in large part due to the values of this country and the Veterans who made the ultimate sacrifice for our freedom. This visit was the inspiration for his idea of what to do with the extra wreaths.

Merrill wanted to place a wreath on every grave site at Arlington National Cemetery. So he reached out to his Senator to make arrangements to place the wreaths at Arlington in an older section of the cemetery. This went on for a number of years until in 2005, when the image above of the snow-covered wreaths  went viral and suddenly thousands of people wanted to help. In 2007, Wreaths Across America received their nonprofit status.

In December 2014, Wreaths Across America achieved its goal of placing 226, 525 wreaths at Arlington National Cemetery. Earlier this week on December 16th, close to one million wreaths were laid at 1,000 locations across the United States and beyond. From Bunker Hill, to Valley Forge and to the September 11th site, thousands of fundraising groups, wreath makes, truckers, corporate sponsors  and volunteers contributed  to make this possible.

The Worcester’s hope is that their gesture will inspire us all to remember our fallen veterans, honor those who serve and teach our children the value of freedom.

Charity Matters.

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