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Charity Matters Inspiration January 25, 2016

What to do when the dream is a reality

We all dream. Sometimes we don’t remember them, sometimes we wake up feeling like we are falling and sometimes we just dream big. But it is those moments when we are awake and realize that our dream is real and really happening…well there just are not words to describe.

That is exactly what happened last friday at Childrens Hospital Los Angeles. The dream became real, not only for me, but for thousands of patients and families that will now have a place to go, to think, to pray, to meditate or just to be. Over twelve years ago we set out to build a non-profit to provide chaplains of ALL faiths 24 hours a day 7 days a week at CHLA, and we did it!

Then once the hospital had chaplains, we realized they didn’t have a chapel that could accommodate more than one person at a time. So a journey began to create a beautiful space where people of all faiths or none at all, could come and be. Patients, families, doctors, nurses, a place for all.

Last Friday morning, as I watched civic and religious leaders from all over Los Angeles, open and bless the new InterFaith Center at Childrens Hospital, I knew the dream was real. It took a village and years to make it happen, but it did. Standing there in that moment, my heart filled with pride in being a tiny part of this incredible legacy of compassion.

I was reminded that dreams do come true, especially when you dream big.

Charity Matters.

Copyright © 2016 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Cancer November 4, 2015

Movember

This week is the beginning of Movember. No, this isn’t a typo but rather a movement. I was reminded last week, when my second son asked me to sponsor his fraternity’s fundraiser in support of the cause. You may recall that last November there seemed to be an unusual amount of facial hair and beards. Those beards and unshaven faces were not by accident, but rather a statement for men’s health.

A statement that all began in 2003, when two mates in a bar ( Travis Garone and Luke Slattery) were having a simple conversation about whatever happened to the moustache or the Mo, as they called it, and a joke about bringing it back. These buddies from Melbourne, Australia decided to talk their friends into growing a Mo for a purpose. They were inspired by a friend’s mom who was raising funds for breast cancer and decided to direct their efforts towards men’s health and prostate cancer. They sent an email titled Are you man enough to be my man? The result was 30 guys willing to take up the challenge and pay ten dollars each, towards their cause and the beginning of Movember.

Their goal started small but never wavered. These four friends wanted to recruit men who would support Movember, who by the way are called MoBros. The Mo Bros, would begin by registering at Movember.Com and start Movember 1st clean-shaven, then grow and groom their Mo, for the rest of the month, raising money along the way. In addition, these men become walking, talking billboards for their cause. Not to exclude the girls, they also started Mo Sistas, who champion their Mo by registering and supporting the Mo Bros in their life.

What started as a fun bar conversation in 2003 and 30 MoBros in Melbourne, Australia has morphed into over 4 million participants globally, who have raised more than $649 million to date. Movember, is more than a month, but rather through the power of the moustache, it has truly become a global movement that is changing the face of men’s health.

Charity Matters.

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Cancer October 21, 2015

Ain’t No Mountain High Enough

photo via: WestFWlifestyle.com

As you know I have been thinking a lot about dreaming big and continuing on my quest living a life full of purpose. When I think about the combination of these two together, my mind immediately goes to thoughts of my amazing friend, Ann Louden. Ann is a breast cancer survivor who took her diagnosis and turned it into a purpose fueled mission. The result is her non-profit TCU Frogs for the Cure.

Ann has worked at TCU for over twenty years and over a decade ago when she heard the words, “You have cancer” she knew she needed to do something. As the ultimate connector, she engaged her Fort Worth and TCU community in finding a cure, supporting those with breast cancer and partnering to support the cross town organization Susan G. Komen Foundation.

Her organization was the first to engage college football with breast cancer and now today you can’t tun on a game in October (pro or college) without seeing pink, it all started with Ann. However that dream wasn’t big enough, she went further in creating inspiring music videos with thousands of survivors to bring everyone together in support for this cause. When the videos are downloaded from itunes, the proceeds go to fight breast cancer.

This years video will debut at the Thursday, Oct 29th at the TCU football game vs West Virginia and is aptly done to the song,”Ain’t No Mountain High Enough.“ I cannot think of a better song to describe Ann Louden and all breast cancer survivors journey to overcome and fight this disease.

Charity Matters.

Copyright © 2015 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Charity Matters Inspiration September 28, 2015

Dreaming Big

I was raised by parents who told me I could do or be anything and somewhere along the line I began to believe them. “No” has never been a word in my vocabulary, for better or for worse. Did I mention that being stubborn is also part of the equation? The result of this is being a bit of big dreamer.

Over a decade ago, a friend reached out and asked a group of us girls for help. He was the one of two chaplains at Childrens Hospital Los Angeles. He shared his vision for help, support, families having chaplains of all faiths before surgeries, end of life, celebrations and simply someone trained to listen and provide faith and hope. It was a tall order for a group of women who had never started a non-profit before but a perfect big dream.

Within a year of the launch of The Spiritual Care Guild we had chaplains 24 hours a day 7 days a week. But big dreamers don’t stop at that, they keep going because once one dream is achieved, its time to make the dream bigger. Each year the Spiritual Care Department grew as did its integral role in the hospital, with staff and patient families.

Like all good dreams, they can’t come to an end. Then five years ago, the dream expanded to having a chapel that would accommodate people of all faiths, families, patients, staff and give them a place to pray, to think, to hope and to dream. This was the biggest dream of all, especially in a hospital where real estate is reserved for medicine and all that goes with providing excellent health care to tiny patients.

However, last week that dream became a reality. I stood in the physical space, now a construction site, that will become the new Interfaith Center at CHLA. It was such an amazing moment to see what happens when people come together with a common goal, a big dream and a huge team effort. Dreams do come true and the bigger the dream the better!

Charity Matters.

Copyright © 2015 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Cancer September 4, 2015

A fight song

The other day I went to the dentist for my annual appointment. My dental hygienist, who has become my friend over the past decade of having my mouth held captive, did not look like her usual perky self. I only see her twice a year but she somehow feels like a dear friend every time we visit. I asked her about her children who are the same age as mine and as the tears began to flow, she shared that her college age son was just diagnosed with cancer.

I came home devastated and in shock at how quickly lives are altered by the words, “You have cancer.” As I scrolled through Facebook as a distraction, I came across this and felt compelled to share.

Having spent over a decade at Childrens Hospital Los Angeles, supporting families in crisis, this spoke to me on so many levels. Coincidentally, September is Childhood Cancer Awareness Month. Life can change on a dime, one never knows and it is the power of love, compassion and a fight song that makes it all worth the fight.

Charity Matters.

Copyright © 2015 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Charity Matters Inspiration July 31, 2015

For Max

As many of you have read here, Max Paige (aka Little Darth Vadar) and his family have become dear friends of Charity Matters. Max was born with a congenital heart defect and over the course of the last 10 years has had 9 surgeries. This week Max will undergo yet another surgery on his heart.

His mother Jennifer said, “When Max was an infant, he had an incredible will to live. At age 4, he asked how much surgery would hurt? At 7, he wanted to know why he needed to go through with this and now at 10 he is keenly aware of time and how precious it is.”

Max and his family have used his celebrity and innate goodness as a platform for so many wonderful causes. He is wise beyond his years and he and his brother are two of the most philanthropic young people I have ever had the privilege of knowing, thanks to their inspiring parents.

This is his theme song for the next leg of his journey and I wanted to share it all with you, in hopes that you can send a prayer or kind thought his way in the next few days and weeks.

Max as always uses his experience to make others lives better, even at the tender age of 10. His hope is that if someone is inspired to do something because of his journey, that they would consider supporting a place that has given him so much and become a second home, Children’s Hospital Los Angeles and the Heart Ambassadors program. Max here is to you and the good fight!

Charity Matters.

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Health June 15, 2015

The gift of life

“To know even one life has breathed easier because you have lived. This is to have succeeded.”

Ralph Waldo Emerson

With birthdays come drivers license renewals and the question of whether or not to put that pink sticker on my license indicating that I am an organ donor. For me the answer is simple, yes I am. I am an organ donor because I have heard the helicopter on the roof of Children’s Hospital bringing the precious gift of life to a child.

I am an organ donor because I have watched to family friends suffer while waiting for a donor. The first friend, needed a heart transplant. He received a heart from someone who had died at the craps table in Vegas. He told me once he had his new heart, he unexpectedly found himself wanting to go to Vegas, but wouldn’t dare go by the tables. His new-found spirit was infectious.

Another dear friend of ours, and a young father of two, waited for a kidney for what seemed like an eternity. To see this vibrant man dwindle was devastating for all of us who adore him. When it seemed grim, a miracle occurred. Another’s passing gave the gift of life to our friend and he is thriving. When I saw this video I thought of both our friends.

I will be putting a new sticker on my license stating I am organ donor. I will tell my family, so that they know my wishes and you have this post as a back up. I think Emerson simply said it best, “To know even one life has breathed easier because you have lived.”

Charity Matters.

Copyright © 2015 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Cancer May 29, 2015

Without words

I have to say that in almost four years of blogging, I have rarely been at a loss for words. I sat down to write the other day and there just wasn’t anything there. I mentioned this challenge at our family dinner table and my sons said, “You don’t have to write Mom, its ok if you take one day off.” A thought that truly had never occurred to me.

I had resigned myself to the fact that with two graduations next week and a very full plate at work, I would take today off. However, the universe had different plans, no sooner had I made that decision, when a friend sent me this video…which of course I needed to share with you.

Tired or not, seeing compassion in action, simply never gets old. It is moments like these that inspire me to do more, give more and use my time showing the world that it is actions not words, that really matter.

Charity Matters.

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Charity Matters Inspiration April 29, 2015

World Wish Day: Make a Wish Foundation

Today is World Wish Day. World Wish Day is organized by Make-A-Wish to commemorate the anniversary of the wish that inspired the creation of what is now one of the world’s leading children’s charities. Seven-year-old Chris Greicius’ wish to be a police officer was granted in Phoenix, Arizona by volunteers on April 29, 1980.

The Wishes give these children and families something to look forward to, to dream of and a slice of hope. One of my favorite wishes was the little boy from the Bay Area that wanted to be Batman. Never underestimate the power of a wish.

Since Chris’ wish in 1980, more than 300,000 children around the world have had their fondest wishes fulfilled by the Make-A-Wish Foundation. Make A Wish Foundation’s mission is to “enrich the human experience with hope, strength and joy.”

Every 37 minutes, Make-A-Wish grants the wish of a child with a life threatening medical condition somewhere in the world. Today the Make-A-Wish is active in 35 countries. All of this began, with just a simple wish.

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Cancer April 8, 2015

Let it Be

Just hearing the words, Let it be I begin to hear the song..speaking words of wisdom, let it be…let it be. Sometimes letting it be is the most difficult thing of all. Those words were the singular wish of a young girl named Karla Rosen who was diagnosed January 7th, 2005 with a rare brain cancer. Her heartfelt desire was to “just be.”

During that year, their community rallied around their family to take care of meals, Karla’s two siblings, yard work, and all of life’s task that shift in the wake of a child’s health. The community support was overwhelming, wrist bands were made and sold to help pay the medical bills. After a year of fighting this horrible disease, Karla Rosen lost her battle with cancer on February 5th, 2006. She was 15 years old.

Her parents, found a letter in her room shortly after her death that said, “I have only known two other people with my condition: one passed away, and one has been struggling for life in the hospital for many months. I now know, because of what I am able to accomplish once again, what miracle God wanted me to pass on – the miracle of life. Thanks to my cancer, I now do not sweat the small things in life and live it to its fullest.”

With the help of the community, within months of Karla’s death, her family decided to celebrate what would have been Karla’s 16th birthday with the creation of the Let it Be Foundation. Their mission is to provide ongoing support and services to families and children diagnosed with life threatening illnesses throughout the child’s treatment, with a focus on the entire family.

The Rosen family has taken their unbearable loss and turned it into a legacy of compassion for others. As the song says, “there will be an answer, let it be…let it be…..”

Charity Matters.

Copyright © 2015 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Childrens' Causes March 18, 2015

Walking Strong Foundation

A few months back my sister-in-law emailed me to tell me about a conversation she had with her childhood friend, Valerie. who was starting a foundation. In 2011, Valerie received some extremely sad news that her then, seemingly healthy 5-year-old son was in fact, not healthy and was diagnosed with Duchenne Muscular Dystrophy. What began with sore leg muscles was in fact a disease that is the most common fatal, genetic childhood disorder, which affects approximately one out of 3500 boys each year and has no cure.

Valerie and her husband Jorge were told that most Duchenne boys are diagnosed between the ages of 3 and 5 and are in a wheelchair between 10-12 years old. The disease is associated with respiratory failure, heart failure, and debilitating orthopedic complications. Up until just few years ago – upon a diagnosis of Duchenne, neurologists offered no hope for the families and told them just go home and love their boys as long as possible. Most Duchenne boys die in their late teens and twenties. The worst of all there has never been a survivor.

However, after grieving and processing this incredible news The Llauro Family decided to get to work in search of a cure. After learning about some breakthrough treatment drugs that are being developed which may be available soon, they decided to create the WalkingStrong Foundation to dramatically increase Duchenne awareness and support scientists in funding their research.

They said, “We are determined and hopeful that our son, Alexander, continues WALKING STRONG. We founded Walking Strong to solidify our determination and commitment in making our son and other Duchenne boys – the first ever survivors. Duchenne parents are living on a time clock. As most parents make plans and look forward to their children’s future, Duchenne parents, fear the future. We fear what lies ahead for our boys. The time is now, for breakthrough treatments for these boys

Charity Matters.

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Childrens' Causes February 23, 2015

And the Oscar goes to….

I have to admit that I love the Academy Awards, it is my Superbowl Sunday. While we all love to see the celebrities, the red carpet fashions and the after parties. What we don’t always realize is how many fundraisers and charitable events these stars have been supporting this past week. There were more than a few winners before the academy awards even began….

It kicked off last Wednesday with a Vanity Fair event to support Oxfam, an organization that addresses the elimination of global poverty. Thursday was a A lister’s event called Unite4Good, which honored celebrities for their philanthrophy…who knew? Hallie Berry received an award for her work with the domestic violence non-profit the Jennesse Center, Jeff Bridges for his work with No Kid Hungry and Ewan McGregor for his commitment to Unicef. Friday, celebrities dashed to an Alfa Romeo luncheon in support of the non-profit Girl Rising. By Saturday, it was time for the big Night Before Party in support of The Motion Picture and Television Fund. That was simply the week before!

Last night, the biggest fundraiser was Elton John’s Annual Aids Foundation Dinner which has raised more than $321 million for the treatment and prevention of HIV/AIDS since its inception in 1992. So while we all wanted to hear from the winners, the real winners of last nights Academy Awards were the incredible causes that benefitted from all that star-dust.

Charity Matters.

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Charity Matters Inspiration February 2, 2015

Max Page and his Force

As millions of us watched the Super Bowl yesterday and of course those very pricey ads. I thought it might be worth revisiting the one of my favorite philanthropic friends. His name is Max Page and you might remember Max from his starring Super Bowl ad as Darth Vadar, a few years back.

Max has been a patient at Childrens Hospital Los Angeles many times in his short life for multiple heart surgeries. I met Max and his family, a few years ago, as we worked together to launch the Junior Ambassador Program at CHLA . The Page family are some of the most philanthropic people I know, and have used their situation and celebrity to the benefit of others time and time again.

Last week Max revisited his friends on the Today Show but didn’t get to share what he is up to these days. Max continues his acting and his passion for philanthropy, At the wise old age of 10 he is a spokesperson for the non-profit GenerationOn.Org which inspires children and teenagers to get involved in making a difference. Max’s heart may have been defected once upon a time, but today it is his heart and use of the Force that continues to inspire us all.

Charity Matters.

Copyright © 2015 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Cancer November 3, 2014

To live like you are dying

What would you do if you were told you had just a few months to live? I’m not sure any of us really know that answer. We may think we do but our lives are simply too busy to think about such morbid thoughts, until we are faced with such a moment.

We all rush through life as if it is a race, a place where someone wins and yet life isn’t about any of that. It is the moments with ones we love, the beauty all around us and in finding joy in the things that matter.

That is the choice that Brittany Maynard made when she was diagnosed with terminal brain cancer. She chose to live and to choose the day of her death as well. Her story and her message is as much about life as it is about death.

There isn’t much to say that hasn’t been said right here but when you see something like this story, it causes you to pause, to cry and to shift. With treatment, the disease’s median survival time is around 14 months, meaning that half of those live for longer than 14, and half live for less. Brittany was given six months. Doctors explained that her death would be slow and painful as her tumor grew — a worsening progression of headaches, nausea, vomiting, weakness, and seizures. Brittany wanted to use this a starting point for a conversation, she did that with The BrittanyFund.org

As she said, “Seize the day, the world is a beautiful place, travel has been my greatest teacher, my close friends and folks are the greatest givers. I even have a ring of support around my bed as I type … Goodbye world. Spread good energy. Pay it forward!”

Brittany chose to live her life on her terms, to use her experience to help others understand and to live like she was dying. Godspeed Brittany.

Charity Matters.

Copyright © 2014 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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