As they say, when God closes one door he opens a window. As you all know, my parenting door has closed or at least that chapter in my life when my sons are in the nest has come to an end. As any parent knows that door never really closes. The end of any chapter in our lives begs the natural question of what’s next? What does life without boys underfoot look like?
In some ways it looks a lot the same, except I’m not cooking much and refrigerator is pretty bare. I still run a nonprofit full-time, interview nonprofit founders in my spare time, and I have a few exciting projects that I am starting. “They” you know the proverbial “they”….well they say that this is “my time.” I’m not exactly sure what “my time” looks like since I haven’t had “my time” in twenty-four years!
So, imagine my surprise when I received an invitation from this incredible organization called The Female Founders Collective that celebrates amazing women who have founded businesses. Rebecca Minkoff founded the FFC as its known to create a network of businesses led by women, supporting women. The mission is to enable and empower female owned businnesses to positiveluy impact communities socially and economically.
Who knew that there are more than 11.6 million firms owned by women? The FFC believes that by increasing wealth and opportunties for women-owned businesses we can significantly impact our communities for the better. Since women reinvest their income in their families and communities at a higher rate than men, that means that communities become stronger as well.
If this is “my time” well, I’ll take it. Such a thrill to be included with these remarkable women who make the world better. And by the way, if you see that circle F logo anywhere, think about supporting that business because in turn you are also supporting a ripple effect of goodness.
” Love one another, for that, is the whole law; so our fellow men deserve to be loved and encouraged-never to be abandoned to wander in poverty and darkness. The practice of charity will bind us-will bind all men in one great brotherhood.”
Conrad N. Hilton
Over the years I have written a number of posts about raising philanthropic children. In each story, the key ingredient in raising philanthropic children is modeling the behavior that you want your child to emulate. I can think of no greater example than Conrad N. Hilton and his son Barron Hilton, who followed in his father’s business and philanthropic footsteps.
You may recall a few months back when I did a story on Conrad Hilton’s legacy, well last week, I spent three days at the Conrad N. Hilton Foundation for a seminar they were hosting for the Catholic Sisters Initiative. I happened to be there when the announcement was made that, Barron Hilton had passed away at the age of 91. It was a sad and reverent moment being with all of those who are doing the work daily to ensure that his father, Conrad Hilton’s, last wishes live on through his philanthropy.
Conrad Hilton was always a philanthropic man with a generous heart and kind spirit for all, and his son Barron followed in his father’s footsteps. Barron joined the Navy in WWII as a photographer and set out at age 19 to make it on his own without his father’s help. He began an orange juice packing business and then an oil company. Barron began the first aircraft leasing company and in 1951 and already a self-made millionaire began at the bottom of his father’s hotel company. He married his high school sweetheart, Marilyn, a marriage that lasted over 57 years and produced eight children.
By 1966 when Barron became CEO of Hilton Hotels the company had 50 hotels. In 1960 he bought the LA Charger football team for $25,000 and sold it six years later for $10 million. In 2007, when Barron sold the Hilton Hotel Corporation the chain had grown to 2,600 hotels in 76 countries. He had grown his father’s $160 million in Hilton stock to $2.9 billion. Barron took the Giving Pledge and committed to following his father’s example leaving 97% of his estate to the Conrad N. Hilton Foundation, which now has over $6.3 billion dollars in assets.
Watching the incredible team of people who work hard every day to ensure that the generous legacy of both Conrad and Barron Hilton lives on through the foundation’s work has been a privilege. Since 1944, the Conrad N. Hilton Foundation has given more than $1.8 billion dollars in grants around the world to alleviate poverty, hunger, HIV, homelessness and the list goes on. As Conrad Hilton said, “Charity is a supreme virtue and the great channel through which the mercy of God is passed on to mankind. It is the virtue that unites men and inspires their noblest efforts.” A virtue that a father passed to his son and now will live on to serve those in need.
Tonight millions of people will watch as celebrities walk the Red Carpet for the Emmy Awards. Stars will be wearing designer gowns styled by talented stylist and promoting the designers they are wearing. It is a big business and a huge platform. A few weeks ago I was invited to an event that discussed how do we combine passion and purpose where I met two amazing women trying to change and elevate not only the red carpet but the conversation.
The evening was put together by two incredible women, Carineh Miller and Arianne Phillips, the founders of RAD, which stands for Red Carpet Advocacy. Two amazing women and friends who decided to use their skills and talents (which they have many) to change the narrative on the red carpet by inspiring and activating fans towards social good and promoting cultural relevance through social responsibility. The stars will still wear beautiful gowns but the designers and talent will use the platform for good.
All of this is because two friends got together and said how can we put our talents together to move the needle? And talents they have! Arianne’s talents are legendary, as one of the most creative forces in the fashion and entertainment industry as a visual artist and has worked in film, fashion, theater, music, opera and media. Arianne has worked with Madonna, The Rolling Stones, Katy Perry, Jennifer Lopez as well as received Tony nominations for her costume design and recently styled Quintin Tarantino’s new film, Once Upon a Time in Hollywood. She is legendary for her work and vision. Arianne and her friend Carineh wanted to use their skills for a greater purpose.
The two friends had wanted to collaborate for a long time and knew they would be a dynamic duo. Carineh, graduated from Penn and has been a force in fashion and entertainment from the start. She worked for Prada where she launched and ran their global VIP relations department, one of the first in the industry fostering relationships with celebrities, Hollywood A-listers, stylist and influencers raising brand awareness worldwide. She worked for Dior, Estee Lauder and was VP of Entertainment and Brand Strategies for the entertainment industries largest independent PR Firm.
So after meeting this dynamic duo I knew that I needed to know more. So last week Carineh and I sat down for coffee and chatted about RAD and their mission.
Charity Matters: Tell us a little about what RAD does?
Carineh Martin: What we do at RAD is we rally around talent (celebrities). So when we create partnerships we say to talent, what is really going to inspire social progress is if you are talking about something that is truly meaningful to you. So we are going to create advocacy campaigns around you and we will bring a brand to the table to make a donation to your cause. With the RAD model the money goes directly from brand to cause. That is for two reasons; one for authenticity and two for transparency. The brand can decide if it is public or private. There are three entities within which we work with talent, brands and nonprofits and we connect the dots. We are putting these partnerships together where the brand and the talent can drive impactful social messages. Talent picks the nonprofit and we connect the dots between the three.
We are creating opportunities for talent to use their platforms so that moment when all of their fans are watching them they can talk about something meaningful to them in order to inspire social progress.
Charity Matters: What was the INITIAL Thought process when you were creating RAD?
Carineh Miller: We knew we wanted to work together and we knew what our values were and what we wanted to accomplish. Following the election there were marches and activist and we decided it was time to act. I knew I wanted to dedicate my knowledge, my relationships, my network and everything I have learned along the way I wanted to contribute to this, to RAD. We knew that we had an opportunity to leverage our relationships to contribute to this dialogue.
When we were creating RAD we knew what it would be and we originally thought the best way we could contribute was by being a nonprofit. We talked to a lot of different people who said that being a nonprofit would be more complicated and could actually hold us back. We consider philanthropy as our third business partner.
Charity Matters: What are you’re biggest challenges?
Carineh Martin:We have a lot of challenges. I think our biggest challenge is education. Everyone talks about authenticity but who is actually practicing it? We are doing things differently and not from existing models, so we need to educate people. One example is that we do not do contracts with our partnerships. We are asking talent to do something emotional and that touches on their passion and they continually exceed our expectations. Talent is always being asked to sell products for people and we are coming to talent saying what can we do for you? We want to use their real passion to inspire people because authenticity resonates with audiences. It is an education to get everyone there and once you get there it is super impactful.
Charity Matters:What are those moments when you know you have moved the needle and made a difference?
Carineh Martin: The single moment for me thus far with RAD was when Margot Robbie chose her charity which is Young Care in Australia. We created a partnership with Levis and we said, “Margot, Levi’s is going to make a donation to your charity for this event, what is your charity?” I had to dig to find this small organization in Australia and got to call them and say I have a very big check for you. The CEO called me the next day from Australia and I was able to tell him that Margot Robbie had this opportunity and she chose you…your cause. He called me back the next day in tears and this is exactly why we do this work. That moment was everything.
Charity Matters: How do you measure your impact?
Carineh Martin: We don’t! Our focus is the public. Everything that we create is towards inspiring the public to give, to be involved and any way we do that is what is important.
Charity Matters: What is your dream for RAD?
Carineh Martin: I want to change the narrative. Do something that is meaningful. My dream is for brands to actually be altruistic about their philanthropy. Be super strategic about everything you do but when it comes to your philanthropy be altruistic about it. I just want to change the conversation and have people be more authentic.
Charity Matters: when we watch that Red CArpet we will see not only a new conversation but a whole lot of good….which is RAD!
We all strive to use our gifts for the greatest good and purpose. We spend a lifetime honing our crafts and talents and usually putting those skills into our careers. For many of the nonprofit founders I have interviewed there is a moment when they realize that their skills and gifts can be used for a bigger purpose, one beyond their job. That is exactly the story of Paige Chenault the Founder of The Birthday Party Project. Paige spent her career as a high end party planner, organizing extravagant weddings and events to create lasting memories for her clients. Last week, I had the opportunity to meet Paige and attend a fantastic party to help support her beautiful mission of bringing joy to children living with homelessness.
Charity Matters: Tell us a little about what the Birthday Party Project Does?
Paige Chenault: The Birthday Party Project is a nonprofit that throws birthday parties for children who are experiencing homelessness. The Birthday Party Project partners with homeless and transitional living facilities and we host birthday parties for the kids that are staying there.
Charity Matters: What was the moment you knew you needed to act and start The Birthday Party Project?
Paige Chenault:I was on an airplane reading a magazine article about kid’s birthday parties and for almost a decade I had been in the party planning business, so I was getting excited about my daughter’s upcoming birthday and the party I was going to throw her. As I flipped through the magazine and saw images of these picture perfect parties thinking that I could totally do this for my daughter Lizzie.
Then I put that magazine down and picked up a Time Magazine with an article about children living in Haiti and the extreme discrepancy between the party that I had envisioned for my daughter and what I saw this child in the article living in every single day. That was the moment that it hit me that I could do more with the gifts and talents I have been given. There were children that were out there that would never know the power of a celebration of people coming together. In that moment I knew that I was the one to do something for these children.
I do believe that we are called into service and absolutely do feel that I was called to this.
Charity Matters: What are your biggest challenges?
Paige Chenault: Some of the biggest challenges that we face has everything to do with the amount of interest we have for people to get involved with our mission and the kids that we are serving and celebrating. Knowing that so many people realize that these children are human beings going through things that are incredibly difficult and traumatic. These are families that are truly experiencing crisis and whether they are in sex trafficking rehabilitation programs or if they are chronically homeless or in a domestic violence agency trying to get help and to stay alive. These families are facing things that we don’t have to face.
In knowing that there are measures in place that allow children and families to feel safe and because of that we have worked really hard on the way we celebrate with kids. Treating people with dignity is our ultimate goal and we have worked very hard with our birthday enthusiasts which is what we call our volunteers to do this. There is a tremendous opportunity for people to get involved with our organization. Yet, we still can’t seem to catch up with the excitement around our mission. We have scaled incredibly fast in these past eight years and to celebrate in fifteen cities is incredible for us. What we do know is that we do things well and unless we can do them in honoring our agencies and shelters and continue to keep up with the excitement and enthusiasm can be a challenge for us sometimes.
I think as founders I think it is really important that we stay true to our core values and that we let those be our guide post. I can see where it could be very easy if someone wanted us to do this and that moment that we begin to do things that don’t align with our values that is the moment when there are tension points. We have worked very hard to honor our core values, be good stewards of the dollars we have been given and that we are serving our kids and families well. These are hard lessons to learn as a young entrepreneur.
Charity Matters: What fuels you to keep doing this work?
Paige Chenault: Our core team of volunteers, our party coordinators, these are volunteers who host parties on our behalf all around the country. For me, those are the people that fuel me the most because when I am so tired and can’t take one more call or email or whatever it is…I have the opportunity to look online and see what they are tackling for us on our behalf and it is so powerful to see the way that they are giving of their time and resources to serve our mission. We are extraordinary in that way because we have 150 party coordinators around the country who show up on our behalf. Some of these people have been doing this work for almost eight years with us.
Our retention rate is really high and we have worked really hard to care for those people because these are the folks on our team who are doing the work. I have a team in Dallas and we call ourselves the support team because we need to support our volunteers/party coordinators.
Charity Matters: When do you know that you have made a difference?
Paige Chenault:I get really energized when my team comes up with great ideas solve a problem, when we get it right and everything goes really well or when I get emails saying that this was the best experience I have ever had volunteering. Those are the moments for me that I am most proud of the work that we do.
We do have stories of impact and the ways in which our kids are impacted. I would say those moments are extraordinary and incredibly special. We have immediate impact with our work but the ripple effect takes ages to come back. Recently, I had the opportunity to truly run into someone who she said to me, “Do you know you celebrated my 14th birthday with me when I was living at a shelter?” I had never met her before and I was at a speaking engagement and she came up to me and she was now the youngest intern ever at this company and for me it was incredibly special and this was my moment. It was everything for me.
For me that was a four year gap before we saw her again and she still spoke so fondly of her party in such detail and to me that speaks volumes to level of work that we are doing making lasting moments that help me over come those hard days of the grass roots building of this organization. We are leaving lasting effects on the children that we are serving and that is what matters. These moments are the greatest gift that have been given.
Charity Matters: Tell us a little about some of the successes you have had?
Paige Chenault: We have celebrated 10,000 children’s birthdays in eight years and we have done that alongside 50,000 children. So we have celebrated 10,000 birthdays with 50,000 children there with us celebrating. We have done that with the help of 38,000 volunteers which we call our birthday enthusiasts, which is extraordinary to me. That is a lot of kids reached, a lot of birthday cakes.
We have done that with our agency partners or transitional living facilities or homeless shelters. The Ronald McDonald House is a prime example of a transitional living facility. Covenant House is a teen living facility and there we celebrate children 17-23 and often these kids revert back to their childhood because they never celebrated a birthday before. We partner with domestic violence agencies, sex trafficking rehabilitation programs and then we have homeless shelters and emergency shelters which are typically 24 hour facilities .
Charity Matters: If you could dream any dream for your organization, what would that be?
Paige Chenault: I think there is an opportunity to go big and give people an opportunity to have experiences that they would never otherwise have the opportunity to be a part of. Yes, I want every child in America to feel celebrated and yes I would love to take The Birthday Party Project internationally but in addition to that there is always room for us to do more for others. I want to partner with people who dream really big. Allowing kids to experience Disneyland, or a movie lot or having a larger than life birthday party in the middle of a field. I just want them to see how creativity can bring people alive.
Charity Matters: How has this journey changed you?
Paige Chenault: I think I am more sure of who I am as a wife and a mother and a leader. I have always been empathetic, compassionate and a giver and I have always expended most of myself for others. I now realize that I don’t have to do it all or be the hero of the story. So for me, the narrative that has switched since this endeavor. It doesn’t have to be about me but it really can be about more and everyone together and thank goodness for that because there are plenty of others who can share in the joy of this. It is like taking off the cape and the in charge mentality and saying people there is plenty to go around.
Charity Matters: What life lessons have you learned from this experience?
Paige Chenault:I think for me the biggest lesson for me is that we gain people’s trust when we operate from a place of authenticity and vulnerability. If I were to continue along this journey with all the answers or needed to be the person with the first and last word, we would have crumbled by now. I think for me it was incredibly important as we brought people into the fold that I was incredibly honest from the beginning that there was a lot that I didn’t know but that I knew we needed to it.
By sharing just who I was and what my strengths and weaknesses were and by being able to share that with the people around us we created a movement. People realized that I didn’t have all the answers but maybe they had a piece of the puzzle and by allowing them to do what they do best and to get out of the way, we were able to build this incredible community of these magic makers that I trust and that trust us.
That has probably been the biggest take away from this experience. When we get out of our own way and rely on the expertise of others that is where community is built and that trust exists in those moments and when you are able to do more. I believe strongly in the power of people but allowing others to find out what they are capable of is even more rewarding.
“We don’t stop playing because we grow old; we grow old because we stop playing.”
George Bernard Shaw
It is amazing how life always has a way of coming full circle. Over twenty years ago, I was a young mother who was looking to get involved with an organization that would not only connect me to other young moms but also one that my young toddler sons could be a part of. Lucky for me a hand full of Pasadena women has realized the importance of play and had created a small and innovative children’s museum called Kidspace.
Kidspace quickly became part of my children’s lives and mine. Over the years I volunteered, chaired events, benefits and then lobbied the city to help build the new museum for our community. Who knew that a few women’s idea to provide children an innovative and safe place to play would turn into a nationally recognized premiere Children’s museum? As Kidspace gets ready to celebrate its 40th anniversary, I was thrilled when the museum reached out and asked me to be a part of their celebration and to interview one of the museum’s founders, Cathie Partridge.
Charity Matters: Tell us a little about what Kidspace does?
Cathie Partridge: When we first started out, there was nothing for children in Pasadena. So I thought why don’t we start a children’s museum? We set out to create an exploratory experiential fun place for children to play. It was more than that because we wanted our kids to be able to choose their activity. We didn’t want an academic learning center but an informal place for children to learn. Children need play to develop emotionally and to grow.
Charity Matters: What was the moment that you knew you needed to act to make this idea of Kidspace happen?
Cathie Partridge: I had been teaching school and had worked at the old Pasadena Art Museum with children. I was a member of the Junior League and we had a committee thats job was to dream up ideas for things that we needed in Pasadena. The idea of the children’s museum was chosen from a list of things and I was in charge of this project.
Because I had a back round in education and art, we hired six artist to create some interactive displays for children. We created a show called Making Senses at Cal Tech and Midred Goldberg, who was the wife of the President of Cal Tech, had started the Princeton Junior Museum at Princeton University. She was very pro children’s museum and there were very few children’s museums in the country at that time. Boston had one but there really wasn’t a prototype at the time.
We really didn’t know if anyone was going to come. Our project was a test to see if this is something that should continue and in the first three weeks we had something like 10,000 children come through this basement at CalTech. We knew then that we had something worth going forward with.
Charity Matters: What happened that first day?
Cathie Partridge: It was 1978 and a lot of kids showed up. That first moment they screamed and we knew had something. They just didn’t want to leave. So we knew there was something magical and unique.
Charity Matters: What were your biggest challenges?
Cathie Partridge: The biggest challenge early on was money and to find a location. We needed someone to give us a location. We went from CalTech to the Rosemont Pavillon for six months, where the Rose Parade Floats are built and from there into McKinley School. I loved the concept that the Exploratorium used that hired one artist to create one exhibit and then they kept adding exhibits and I thought we could do that. and eventually we would have a museum. These kids gave us honest feedback. The concept of what the kids did then is still relevant. There was a maze and a glow in the dark treatment, a half of a fire truck and the kids loved it.
At Kidspace there has always been something for everybody. The other challenge has always been measuring how fast to grow? To balance the facility with the budget and the growing number of children. Good challenges to have.
Charity Matters: In those early days when you were a young mom and you had little ones and were trying to get this going, what fueled you to keep going?
Cathie Partridge: We were lucky that we had a team of people from the Junior League and lots of volunteers. We had a great board that really guided us i the beginning. We had definite highs and lows. I never gave up and I am always learning, the staff just gets better and better.
Charity Matters: When did you realize that you had made a difference?
Cathie Partridge: I don’t know if there was one single moment. What I do know that my children’s friends bring their children and while I’m not a grandparent the fun of it is seeing the next generations come through and seeing it continue. The first year we served 10,000 and this year we are close to 400,000. We have served over five million guests since that first day! I always said it was better to have the grass roots. It has been a gathering of the masses to make this happen.
Charity Matters: What do you think you have learned from this journey?
Cathie Partridge: I think I have learned to hang in there. I have learned courage and risk taking. I have been involved with many other organizations and I think the courage to think outside of yourself and what you think you can do for the community is what I learned from Kidspace.
I went to the Lilly Foundation years ago and they said that ninety percent of volunteers come from families that volunteered. I come from a long line of women who have done this work. My grandmother started Save the Bay in San Francisco and she would call me regularly and ask me what am I doing to help society? I think I watched both my mother and grandmother doing this work and that it was modeled for me. For me seeing my own children give back is the greatest legacy.
Charity Matters: When you think about Kidspace celebrating their 40th year which is a huge ACCOMPLISHMENT for any nonprofit, what are you most proud of?
Cathie Partridge: I think I am the most proud of the community we have built. The volunteers, the staff and creating this property into a joyous and fantastic place. We started with a group of seven women called the circle of friends and today we have over a hundred plus women coming together for Kidspace. I’m very proud of the thousands of people that have volunteered and helped to make Kidspace what it is today. Passing this onto the next generation is a great legacy.
Charity Matters: If you had one wish for Kidspace what would that be?
Cathie Partridge: I would like to see us grow internationally where we are sharing exhibits with others from around the world and continue to serve more children. There is always more to do. I am so proud of Kidspace, the staff and the volunteers, I am just a tiny part of this.
“Being perfect is not about that scoreboard out there. It’s not about winning. It’s about you and your relationship with yourself, your family and your friends. Being perfect is about being able to look your friends in the eye and know that you didn’t let them down because you told them the truth. And that truth is you did everything you could. There wasn’t one more thing you could’ve done. Can you live in that moment as best you can, with clear eyes, and love in your heart, with joy in your heart? If you can do that gentleman – you’re perfect!”
Friday Night Lights
Two weeks ago I was in Canada with my husband on a business trip and we grabbed a cab with another couple we didn’t know attending this work event. We began to chat and this amazing couple told us that they had started a nonprofit with their son who is a quadroplegic to support other paraplegic patients with their organization the Be Perfect Foundation. As my husband said, “Heidi only you would share a cab with nonprofit founders.” We chatted with our new friends, the Hargraves, exchanged information and then we went on to take our youngest son off to college.
While we were getting our son settled I reached out to the Hargraves and was connected to their son Hal Hargrave Jr. via email. Hal Jr. and I set up a time to talk the morning I returned home from dropping our son. I was devastated and a mess and wondered why I had agreed to the conversation at that time. I will tell you that God sent this remarkable man into the world to lift us all up and I have thought about Hal Jr. a million times since we spoke. He had a profound impact on me with his incredible unflinching optimism and grace. He reminded me that we each choose our attitude everyday and we all have the power to lift others by choosing to be joyful. I hope our conversation is as impactful for you.
Charity Matters: Tell us a little about what The Be Perfect Foundation does?
Hal Hargrave Jr.: The Be Perfect Foundation is a nonprofit that’s mission is to provide direct financial and emotional aid to individuals living with paralysis.
Twelve years ago I was just graduating from high school and had aspirations of taking over my dad’s business. I was set to go play college baseball at Cal State Long Beach and pursue a business degree and in a wild twist of fate, God had bigger plans for me and put me exactly where I was supposed to be. Some might say that I was physically weak but I was more spiritually and emotionally strong and capable to go out and serve others. I had a huge change of perception of what is important in life and that is serving others.
After a roll-over car accident took my arms and my legs I recaptured my heart and my mind where it was time to go serve. Although I was deemed a quadriplegic, I had never been so capable and able to light the world on fire. Like everybody in this world you have that AH-Ha moment when you identify with things around you and mine was the realization of the lack of support from insurance companies and the inability that many had to fundraise for themselves because of paralysis. That was the need I had identified and I went to my parents and said I think this is what I have been called to do.
My parents said, if you are going to do this you will not expect a dime from this, you will give out of grace and expect nothing in return and as a family, we will support you through this endeavor. The Be Perfect Foundation was kind of born overnight, nine months after my injury in 2007. The mission is to provide direct financial and emotional aid for individuals living with paralysis by providing resources for paying medical expenses, restoring hope, and encouraging personal independence through a non-traditional method of exercise-based therapy.
The mantra of Be Perfect to me means being the best version of yourself that you can be every single day and that starts with your philanthropic heart. Twelve years later we have raised over seven million dollars for those living with paralysis for things like medical supplies, wheelchairs, vehicles, handicap accessible homes, and keeping people in exercise-based therapy programs.
Charity Matters: What was the moment you knew you needed to act and start The Be Perfect Foundation?
Hal Hargrave Jr.: Post-injury in ICU Care there are over 200 people holding a vigil outside of the hospital room and all I can think is what can I possibly do to repay these people? That answer came about on day five in ICU. A friend of mine named Katie came into my hospital room and she breaks down sobbing. At that moment I realized that every action I take and every decision I make affects somebody around me. I realized at that moment that I could play the whoa is me a card or change my attitude.
I said, Katie what are you crying about? She said, “But your not the same.” I said, But I am the same, Hal. I have a heartbeat, I’m here, I can smile, I can laugh, I can communicate with you. Everything is going to be ok. And in that minute she smiled and hugged me and that was the beginning of me realizing that I and all of us have the ability to have a positive effect on people. My approach to emotional intelligence transcended at that point. I believe we can control two things in life. One is how we feel about ourselves and the other is how we behave.
Charity Matters: Tell us what success you have had? What has your impact been?
Hal Hargrave Jr.:Let me just start with the most important number which is zero. I think our biggest impact has been that we are a one hundred percent volunteer endeavor and that zero dollars go to administrative costs. You will do this to serve others for the rest of your life because this is about other people and it is not about you. I want people to know that this mom-and-pop organization gives 100 percent of funds to those we serve through program services. We have raised over seven million dollars providing over seventy-five wheelchairs for people in need, we have helped over 400 people stay in our exercise-based therapy programs. We meet people in the acute care setting typically within 72 hours of their accident to talk to remind them of the great possibilities that are out there. We also treat people with all types of neurological disorders now outside of spinal cord injuries. Be Perfect is a way of life and we want everyone to try to be a better version of themselves.
In addition, my family owns an outpatient recovery center called the Perfect Step. We went into business twelve years ago with a local gym called the Claremont Club. The gym wanted to know how they could be a part of my recovery. The gym built out the racquetball court and I was the sole client. Now the facility is 7,000 square feet with 100 clients. While my family owns this business 100% of the proceeds go to the Claremont Club. We see 100 clients a week and many of our fundraised dollars go into making it possible for these patients to receive the exercise program. I am the facility director at The Perfect Step and Executive Director of The Be Perfect Foundation.
Charity Matters: What are your biggest challenges?
Hal Hargrave Jr.: I went to the University of LaVerne for my undergraduate degree and then I got my Masters in Leadership. I also met my beautiful wife there as well. We were married last September. The University President asked me to stay and help them fundraise for their annual giving. Through that experience, I realized that our biggest hurdle is from an annual giving perspective of getting those repeat donors. Seeing those dollars and cents in that continuous repetitive transaction create value in people’s hearts. We are also trying to empower others and give them the platform and the voice in the community to raise funds for us.
Charity Matters: If you could dream any dream for The Be Perfect Foundation, what would that be?
Hal Hargrave Jr.: Our intent is to take the Perfect Step national. We want to provide Perfect Steps in every major region across the country so these patients have access to a low-cost recovery model. They are similar to fitness clubs which help our patients with long-term sustainability. We would like for The Be Perfect Foundation to grow in tandem with The Perfect Step. The dream would be to have the nonprofit be able to raise money for local chapters across the country to give patients access to this program. The dream for the Be Perfect Foundation for the next five years is to create an endowment that would sustainthe organization for life. I want to have a broader vision to ensure that our work is carried on for years to come.
Charity Matters: What fuels you to keep doing this work?
Hal Hargrave Jr.:To be quite frank about it, I fear not being on this earth more than anything because I know there is more that I have to give to this world and that I have more in the tank. I have an opportunity to either live life for myself or for others. It is an easy decision every day to live my life for others. The most interesting thing about it is that I am always the benefactor, whether it is a smiling face or a new attitude. It makes me a better and more aware person each time this happens.
There is a level of excitement for me when I wake up every morning because I don’t always know what is going to be. Sometimes something seems negative because not everything in life is rainbows and unicorns in life. When we try to see the good in everything in life, we can always have a positive outcome with what surrounds us. There is a sense every day, philanthropically speaking, that if my face is attached to this foundation then it better be the best and be the most authentic and sincere way possible. At the end of the day, there is one thing that matters to me in life and that is my authenticity and sincerity is what matters. If you are going to be perfect you have to get up and be the best version of yourself every day. God has great plans for me, I need to listen to him and I need to stop talking about all the problems in the world and I need to be a part of the solution.
Charity Matters:When do you know you have made a difference?
Hal Hargrave Jr.: Sometimes as simple as it is, getting a thank you note from someone. Having humility is one of the toughest things to have in this world. There are a lot of takers in the world but when someone comes up to me and says, “How can go out, and can I pay it forward?” When someone wants to know how they can be there for others. When I can get someone to say how can I be involved, I know that is what the intent of this is for, to not only show people how we can be there for them but how they can get back up on the high horse and start being there for others. When we can create a world where everybody is a giver and not a receiver….can you imagine what this world would be like?
Charity Matters: What life lessons have you learned from this experience?
Hal Hargrave Jr.: We live a life with underlying intent. We all believe that we are at the center of our own universe and with everything that is going on around us rather than what is going on within us. We act to take of ourselves and not others. We are hard-wired to protect ourselves first. I have had to learn to get out of my own way and that it doesn’t start with me but with others. I have to remind myself when I’m stressed to remove myself by one degree and say to myself that A) I can handle anything. Nothing has ever taken me down. B) Find a way to put others before yourself. C. Always lead with empathy, go to the depth to find out what is below someone’s surface-level because sometimes we don’t someone’s whole story. Life is about others. D) Everyone can coexist if we always lead with respect. How you treat one person is how you treat every person.
Charity Matters: How has this journey changed you?
Hal Hargrave Jr.: On July 26th, 2007 the morning of my accident the person that I was was driven by dollars and cents. It was all about how I was going to school for me, how I was going into the business school to make money for me, how I was going to make money for myself working for the family business, how I was on a baseball scholarship for me. Everything was me, me, me, me. Today that me word or I word is never used. Today I live for others before myself.
Why seems to be a word on many people’s minds since the tragic and devastating shootings this past weekend. Why? Such senseless and tragic events. It simply doesn’t make sense, all of the insanity in our world. Most days I can barely get myself to turn on the news. While the events themselves are beyond heartbreaking, the shock, anger, sadness followed by the blame, played out like theater in the media, makes it that much more painful for everyone. It is like watching a car accident over and over, simply horrible.
Rather than focus on all the sadness, I choose to focus on the good. The police officers that arrived in seconds, the kindness of people helping each other in that Walmart. I look for the good everywhere I can. I edit out my news each day and truly search for the good in all things. Luckily for me each week I interview amazing humans that remind me of all the goodness out in the world. I, in turn, make sure that you get to meet them as well.
In the past few weeks alone you have met Sara from the Kula Project who is on a mission to empower the people of Rwanda. Officer Jason who is working tirelessly in communities to connect the police, students, people in jail and so many more to create a bridge between police and communities.
You were reintroduced to Jenny Hull of Once Upon a Room, one woman and her daughter Josie on a mission to redecorate children’s hospital rooms transforming children’s spirits and lives. And last week you met Mari, a nurse whose gratitude for all this country has given her, has set out to serve the underserved children and families in her community. And these are just a few of the incredible nonprofit founders you have met.
So when people ask me why? My answer is I believe in goodness. I believe that people are innately kind and goodness always wins over evil. I know this because of the people I meet. I believe that when you choose to focus on the good in this world and when you see the good in people it becomes easier to motivate yourself to be of service to them. When we serve others and give others value we not only make their lives better but over time you tend to get back way more than you ever gave….even if that wasn’t the intention. The result of that is that the people you helped are now inclined to help other people. And so together over time, you create an upward spiral of positive change that grows and grows until it becomes stronger.
So instead of watching the nightly news tonight, I am going to think about those who need our help, our prayers, and our support. I am going to continue to find these everyday heroes to remind each of us how good the world is and I know that when we all come together to help one another we will create that upward spiral of positive change. That is the why that counts.
Like all good fairy tales, it begins with once upon a time…there was a beautiful woman named Jennifer Hull and her heart was so huge that she not only adopted one child but created a non-profit to help hundreds more sick children at children’s hospitals around Los Angeles. Jennifer and I have known each other for a while and a few years back I interviewed her about their incredible cause called Once Upon a Room. A non-profit organization that decorates rooms for children who have long stays in the hospital.
Since that time, Jenny’s daughter Josie, Josie’s best friend Sienna, my son and host of amazing high school students have brightened hundreds of children’s hospital rooms with their work. Now that my son is heading to college in Texas he and his buddies are bringing Once Upon a Room to their local Children’s hospital. This week I thought I would share the magical fairy tale once again…because like all good fairy tales we want to read them over and over.
Charity Matters: Give us a little back round on you and Josie?
Jennifer Hull: A little history about Josie and I…I am the very proud, adoptive mother of Josie. Josie and her sister, Teresa, were born in Guatemala and were conjoined at the head. They came to the US at 9 months old. At 1 year old they underwent surgery done by a 50 person medical team to separate them. After 23 hours in the operating room, our two beautiful girls were rolled out in 2 separate beds.
We were granted a miracle that day and have spent every day since trying to do everything in our power to better the girls’ lives and those around us. As one can imagine our medical journey did not end at separation surgery. There have been countless hospital stays with over 30 surgeries combined and hours upon hours of physical therapy.
We know from first-hand experience when you are in an environment that makes you happy and calm healing is easier to achieve. It was important to Josie and me to help others in medical situations feel better. The main portion of our program is to decorate hospital rooms for pediatric patients going through active medical treatment.
Charity Matters: What was the moment you knew you needed to act and start your non-profit?
Jennifer Hull: Once Upon a Room has a tag line…Every child has a story. My sweet daughter, Josie spends so much time in the hospital. Every time we are inpatient, I noticed her spirits were lifted when we would bring in items that were ours and set up a mini “house” like atmosphere. We have had the pleasure of meeting other patients and families over the years and when we would visit them we would bring something to brighten their room we could see the joyous effect it had.
We wanted to expand our reach and really transform the hospital setting into a personalized, happy environment. Josie and I got excited about the possibility of spreading joy to others in the hospital. We knew we needed to do this. We wanted to serve others and this was such a perfect fit for us.
Sienna, Josie and Ford
Charity Matters: Who along the way has helped you make this journey happen?
Jennifer Hull: Siena Dancsecs is a huge contributor to our success and is one of Josie’s best friends and has been through so many ups and downs with Josie medically. Siena’s passion to help others started to light on fire. At 11 years old she called to tell me that the organization should be named Once Upon a Room. She said that our mission should be to serve pediatric patients in and out of the hospital that was inactive medical treatment.
Siena says, “Through my friendship with Josie I wanted to do more. We do what we do because we can see the long-term impact it makes. I remember getting asked to go to the hospital for the first time. I honestly had no idea what to expect, what I would see or what I would hear. Normally when I think about a hospital I think about all of the needles, medicine and doctors. We get to see a different side of it. When we walk into those rooms we get to brighten this patient’s room with what they like. It becomes all about them in a different way. It’s not all about their disease or injury; it’s about them as a person. That’s what makes it so special. Getting to make these patient’s days just a little bit brighter. And truly it affects not only their environment but also everyone around them. It brings this glow to their surroundings, helping them start fighting a little harder.”
Charity Matters: What fuels you to keep doing this work?
Jennifer Hull: This is an easy question…making other people happy!! As Josie says, “We do this to make other kids happy. I know how hard it is to be in the hospital so I want to help them too.”
We can’t change the medical outcome but we can change how they feel when they are going through this journey. You can’t believe how rewarding it feels to know that you put your heart and soul into doing something for someone else that hopefully makes a difference in his or her life. Every room we do we put ourselves into their shoes for a moment. We do our best to anticipate what they would want or what would bring joy to them.
When we get the theme of the room we try to do the best we can to make it perfect for them. You would think after doing over 500 plus rooms it would be redundant but instead, we try to make each room better and more personalized. Making someone else happy fuels us. Hopefully, that person is the patient, but also the family. Being in the hospital is so stressful for the whole family.
We are one of the few people who walk into the room and can concentrate on the person, not the medical diagnosis. We get to recognize them and their interests. The family gets to be reminded of theperson, not the condition.
The other part that fuels us is the excitement that it brings to the medical staff. You almost see them invigorated. It is so much fun to watch them and their reactions when they are watching a room reveal for one of their patients that they clearly have compassion for. It is a gift to us to make others feel special.
Charity Matters: When do you know you have made a difference?
Jennifer Hull: There is an interesting thing that happens in our group. It isn’t only the patients and families that we affect. Many times it is the volunteers or vendors that we see affected by our work. It is so much fun to go into Target and the cashiers are all excited to see what rooms we are shopping for. It is so rewarding to see the change in our volunteers when they come to help.
Witnessing the love and compassion that kids and teens give to patients is one of the best gifts in my life. We don’t give them enough freedom or opportunities to give to others in a meaningful way. Giving them a positive experience serving others at a young age while hopefully help them remember that feeling when they are adults and they will find a cause that they can make an impact giving to as adults.
Charity Matters: Last question before we end this fairy tale, tell us what success you have had?
Jennifer Hull: Our success isn’t measurable. Success for us is determined by the about of love and compassion we are able to spread to our patients, families, staff, volunteers, and vendors. It is the ability to spread hope and happiness. Our success is based on helping and serving others.
Now that is happily ever after….if ever I have heard one.
“The key to realizing a dream is to focus not on success but significance, and then even the small steps and little victories along your path will take on greater meaning.”
Oprah Winfrey
We never really know where life is going to take us, it is a journey and a process. The beauty of writing is that I can stop along the way and reflect at moments that lead me to this one right now. As we all know, life is about the people we meet along our path and the moments that we share together. When you walk far enough down your path you can begin to see that life’s greatest challenges were the road signs that redirected your course. Those roadblocks are actually road signs screaming, “Stop danger ahead, you must make a drastic turn, now!” Of course when we start our journey’s we are convinced that those roadblocks are the end of the path and our world in that moment. The farther we move ahead, the clearer that obstacle becomes the gift that it is.
When my mom died suddenly in 2002, and my father came very close to death it was a roadblock of epic proportions. That roadblock led a group of us to start a nonprofit providing chaplains of all faiths at Children’s Hospital Los Angeles. The experience of starting and running an organization that asks for money to survive had me questioning who are these modern-day heroes? All 1.7 million of them! And what the heck happened to them to make them want to do this crazy difficult humanitarian work?
That question burned in my mind and honestly still does today. I sent out on a quest in 2011 to find them, modern-day heroes. I needed to know who these people were, what happened to them and why they do this incredibly hard work every day? To say I was and am obsessed would be an understatement. That quest and question lead me to start Charity Matters, which today celebrates its 8th birthday, the same birthday as my moms.
Next week Charity Matters will celebrate its 1,000th post, so hard to believe? This journey has brought some of the most fascinating people into my life who have taught me so much about empathy, kindness, perseverance, purpose, faith, love and friendship. So many of the people I have interviewed have become friends along the way. My life is so much richer than I could have ever expected from the roadblocks and the sharp turns that continue to shape this path.
So, thank you for being a part of this with me. I write this because I am looking for goodness and each week that you read this, you are too. I believe that people are good and that we are all looking for examples. So thank you for validating this quest, for being a part of my journey and for knowing that….
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” Becoming a leader is synonymous with becoming yourself. It is precisely that simple and it is also that difficult.”
Warren Bennis
As many of you know I run a nonprofit that is a youth leadership organization. During the summer we run three separate weeks of leadership camp, where middle school students stay on a college campus for a week away from their parents, learning, having fun and having time to reflect on who they are and where they want to go. This past week we just ended our first session of camp with almost two hundred students transformed by their experience.
Our students do all of the traditional camp activities like talent shows, biathlons, a dance, cheering …you know the drill. What makes us unique is that students also learn a curriculum about becoming a leader. They learn to have a plan, a goal, how to communicate those plans, they learn to be life long mentors to others and most importantly they learn that you can not lead unless you serve. It is truly students teaching students leading by example showing the best of themselves and who they can be.
So often in the nonprofit space, we are running a business like almost any other with budgets, timelines, goals and the list goes on. What makes our work (nonprofit work) different is that unlike a company when your numbers are down, fewer people profit. In the nonprofit world, when you don’t make numbers, someone doesn’t go to camp, get fed, receive medicine and the list goes on. The stakes are real and there is a person affected by each choice, for better or for worse.
The other challenge in the nonprofit space is that you can often feel separated or removed from those you serve. We work all year (our staff of two and 150 amazing volunteers, who will serve over 3,000 students) to send one-third of our students to camp with scholarships. Then the moment happens, we see their faces, we watch them grow and learn all week and our efforts beyond worthwhile. Children who live in the inner-city, who have never been on a college campus let alone stay on one and then to hear them share their experiences….well there simply are not words with how incredible it feels.
Each volunteer gives of themselves to change the life of another. You can feel the love, the kindness, the joy, the gratitude between our campers and our volunteer staff. Regardless of what is happening in the world, I know that our amazing college and high school volunteers are transforming hundreds of children’s lives for the better….renewing my faith in humanity and inspiring me to strive to serve more.
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YOUR REFERRAL IS THE GREATEST COMPLIMENT, IF YOU ARE SO MOVED OR INSPIRED, WE WOULD LOVE YOU TO SHARE AND INSPIRE ANOTHER.
Have you ever heard the expression one thing leads to another? That expression has never been more fitting than with my introduction to the amazing Sarah Buchanan Sasson. You may remember a few weeks back the fantastic conversation with Cause Bar founder, Kristiana Tarnuzzer? Well, Kristiana suggested that I connect with Sarah, who is the founder of KulaProject.org, a nonprofit that focuses on eliminating poverty by developing female entrepreneurs in Rwanda. Sarah’s life is the perfect example of the expression, one thing leads to another. I can’t wait to share her incredible story and journey from suburban Atlanta to Rwanda. Our conversation was as inspirational as she is…..
Charity Matters: Tell us a little about what Kula does?
Sarah Buchanan Sasson: We help women in Rwanda build and grow businesses. We do that with both coffee growers and artisans.
Charity Matters: What was the moment you knew you needed to act and start Kula?
Sarah Buchanan Sasson: In October 2008, I was living in Atlanta and went to a conference that had an African children’s choir. The first moment they started singing I had a come to Jesus moment. A little girl spoke about her hardships but she had such an inner light that was so outward. I remember the moment so clearly. At that moment I knew I had to go to Africa. That day I signed up to go to Kenya through a volunteer program for a mission trip. I didn’t even have a passport.
In April 2009, I was on my way to Kenya. It was my first time out of the country and it was really really hard. I was out of my comfort zone in every way. I went with a dental mission team and had no dental experience. I came back and had expected a transformative experience that didn’t happen. So I just went on with my life. A year later the same volunteer group was going and asked me to join them. I used money as an excuse not to go and shortly thereafter I received a note that an anonymous donor had paid for my trip, so I went back.
One year later, going back to the exact same place and seeing that nothing had changed for these women, I just saw the stagnation of their lives. I realized that poverty was about a lack of opportunity. Growing up in the South you think that people are poor because they don’t work hard. I realized that poverty is not about being lazy but about a lack of access and lack of opportunity, not about not having money. I came home from the trip changed.
After going to Kenya in 2009, I changed my major from pre-law to International Development with a focus on African politics. I never thought about starting a nonprofit but began interning for other nonprofits. So many of the programs I was working with were not engaging the people they were serving. I began looking for organizations that did that and when I couldn’t find one decided that we should start our own. We started Kula in May of 2012.
I originally thought the more places we were in the more legitimate we were so we had programs in downtown Atlanta with homeless communities, Jamacia and in Kenya. Not a single one of those programs worked. I sold my car to fund the program in Jamacia and the program failed. I was working two jobs to try to fund all of these projects across the globe. Two years in and we were ready to quit. Since we had sold everything and were planning on leaving the continent of Africa forever, I suggested we take one last trip on our way out of Africa to Rwanda. I remember thinking that this was going to be the greatest adventure of my life.
Charity Matters: Why Africa? More specifically, why Rwanda?
Sarah Buchanan Sasson: I had taken a class called Global Issues where we had an entire segment on the Rwandan genocide. It blew my mind about what I was learning about the genocide and how little we discussed it in the United States. I had always wanted to go to Rwanda and thought we should go since this would probably be our last time on the continent. I had this image in my mind that it was a place of destruction and then we got there and it was beautiful. It reminds me of Southern California. The food was great, the restaurants were great and I remember being so shocked and then feeling so guilty that I had had this horrible vision of this beautiful place. I honestly couldn’t believe what these people had overcome on their own.
We met with a coffee company that took us out for a few days. We were meeting with all of these incredible women who told us their stories survival and during the genocide. They had overcome these things that most people can not imagine to be true. Now all they wanted was to grow more coffee and better coffee to have an opportunity to sell it so they could afford to educate their children. These women believe that if they educate their children there will never be genocide again. That for me was my real moment. I knew my quitting wasn’t an option. At that moment I knew that if these women can survive what they have been through then I could too.
That was when we realized we needed to focus on women and to listen to what they needed. From that moment on all of our programs were designed by the women the programs were intended to effect. That is why our first two years had failed. We went into communities and told them what we thought was best for them. All those early mistakes we had made are the only reason our programs are working today, those mistakes are what taught us how to be successful. We relocated the Kula Project to Rwanda and now we have a staff of 23 and only three are American and we give all of our success to our Rwandan staff.
Charity Matters: What are your biggest challenges?
Sarah Buchanan Sasson: I think like all nonprofits, fundraising. It is really hard to compete, it’s hard to stand out and everyday everyone thinks there is a new problem that we need to be addressing. We are constantly trying to find ways to break through all the noise and to become sustainable on our own. We work with women who make baskets and grow coffee, they already have a product so let’s sell it. We are looking more and more about getting into the coffee space, hoping we can stand out with our story. When we sell our coffee directly to roasters our hope is that one hundred percent of the purchase would go back to Kula and fund the ladies that grew the coffee. Our goal is to be fifty percent sustainable by the year 2021 on our own.
Charity Matters: What fuels you to keep doing this work?
Sarah Buchanan Sasson: The work is hard. I have one thousand women and their families who depend on me to send their children to school and to eat. You feel guilty because you’re tired and you are working to support people who survived the genocide. I’ve learned that I can’t compare my life to theirs. Burnout is real when you give and give. I have learned that in order to keep giving I need to find a way to recover and to differentiate myself from the organization.
We have been doing this work for seven years and I have learned that I need to take solo road trips and love being out by myself inspired by nature. It really refuels me and gives me space to be inspired and feel in awe of nature. That gives me new ideas for our business and I have come up with some of our best campaigns.
Charity Matters: When do you know you have made a difference?
Sarah Buchanan Sasson: I feel that most of us in the nonprofit space have a hard time celebrating those moments when all we usually see is what we need to do that is ahead. I am really working on trying to pause and celebrate our wins. I know we have made a difference when I listen to the women tell stories of their lives. We have very clear goals for everyone in the program. We give these women skills to make a living we also do so much more. We train them, then they complete financial planning, family health and nutrition, gender equality, mentorship, business management, and community leadership classes. After that, the women submit a business plan and we invest in those who have invested in themselves and then measure our impact.
When the women talk about things that we didn’t set out to change I am always surprised. One unexpected impact was a huge drop in domestic abuse. We do a number of in-home training and one woman told me that the more we come to visit her the more her husband stops beating her. That story created gender equity training for all the men in the households and while we do not set out to change the culture this one we needed to put an emphasis on. Being able to be a part of this changing conversation was something we really didn’t expect.
Charity Matters: Tell us what success you have had? What has your impact been?
Sarah Buchanan Sasson: We started in Rwanda five years ago, and our first year we planted 5,000 coffee trees. These coffee trees take three years to produce, it is such a long term investment. We planted over 100,000 coffee trees in the first five years. By the end of this year, it will be 170,000 trees that we have planted. We have done over 4,000 one on one training and over 3500 hours of one on one trainings. We took all that we had learned and put it into a fifteen-month fellowship program where they learn about coffee farming and artisan training in addition to all their classes, having access to formal banking and a multitude of training and classes. This class is our first official graduating class.
We launched our first impact analysis and discovered that before the Kula Project of the 474 women we spoke to zero of them had a savings account and now 87% of the women have savings accounts. We conducted pre and post analysis and learned that before Kula 12% of women were afraid to speak their mind and now 93% of these women feel confident enough to speak their mind. It is the biggest compliment.
Charity Matters: What life lessons have you learned from this experience?
Sarah Sasson: The biggest life lessons I’ve learned is that what was supposed to be feared is what is supposed to be learned. Travel changes what is true. You think things are the way they are until you see them in person.
Charity Matters: How has this journey changed you?
Sarah Sasson: I would have never considered myself a tenacious person but when I looked at trying to empower the success of others you look at your ability to not to quit differently. I do not think I am not the same in any way since I started. There is nothing about myself that is the same. My views have changed. How I see the world, how I see people struggle and how I understand poverty all of that is different from being in it so much.
Charity Matters: What is your Wish for Kula Project?
Sarah Sasson: I want to see a generation of Rwandans doing great things. We want our ladies to know that a better future is possible and we believe in them and we believe that will directly translate to their children. My biggest dream is that in twenty years I am at University graduation with one of our ladies who was able to put her children all the way through university because we empowered her. That we not only helped her build a business but that we helped her create a vision that she even believed that was possible for her family. I think that the ultimate wish is to watch the next generation of Rwandan girls not even have to be told they can do it because they were raised in the very beginning believing that was possible.
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“The secret of change is to focus all of your energy, not on fighting the old, but on building the new.”
Socrates
Yesterday I celebrated another lap around the sun, as with any moment in life, at least at this stage, comes reflection. The past three weeks we have celebrated one son’s college graduation, another son’s high school graduation, a funeral celebration of life and now another birthday. It has been a time of huge joy, celebration, change, and loss all rolled into three crazy weeks. More than anything it is a reflection of what life is all about. The ups, the downs, the roadblocks and embracing the joy while enjoying the journey.
Like all good journeys, there have to be a few bumps in the road. Those bumps ultimately define us, shape us and redirect our paths. A few weeks back I wrote about my roadblock and setback with the trolling photo attorney. Well, I am happy to report that he went away with great legal counsel and a huge groundswell of support from so so many of you, so thank you. Crisis averted, lessons learned and so many friends that rallied around that I somehow knew that everything would be ok and it was. The lesson learned was that no matter how big that roadblock may appear, with people you love around you-you can get through anything.
I guess that is the gift of getting older, you begin to see the lessons, the connections and the stories that each new direction presents along the path. There is a great quote I came across from R.M.Drake that says, “In the end, she became more than what she expected. She became the journey, and like all journeys, she did not end, she just simply changed directions and kept going.”
So, as this new year starts today it is another opportunity to be grateful and to keep going. I am going to begin to write the book I have said I would write, continue to challenge myself to grow and to learn from the incredible people I bring to you each week.
Savor the joy, the moments with friends, family, children and know how blessed I am to have the gift of another birthday and another chance to keep trying to get it right.
Charity Matters
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Have you ever had a friend that keeps telling you, “you need to meet so and so.” Well, a friend of mine has told me for years that I needed to meet her friend, Marcella Johnson, who is the founder of the nonprofit The Comfort Cub. The stars finally aligned and we had a conversation last week that was supposed to last for forty-five minutes and when I looked at my clock and saw that two hours had passed I was in awe. She was beyond worth the wait and such an inspiration.
In 1999, Marcella’s fourth child, George died shortly after he was born from congenital heart disease. Marcella used her grief as fuel to help others who were suffering from broken heart syndrome and trauma in her creation of the nonprofit the Comfort Cub.
Charity Matters: Tell us a little about what The Comfort Cub does?
Marcella Johnson: The Comfort Cub is the world’s very first weighted therapeutic teddy bear. After I lost my newborn son George in 1999 due to congenital heart disease we developed the Cub to help other mothers who suffered from the loss of their infant. The Comfort Cub is specially weighted and is intended to simulate the weighted comfort of cradling a newborn. While the initial intent of The Comfort Cub was for child loss, research now shows it provides profound relief for any traumatic event. This includes having to leave the hospital while your baby is still in the NICU, the loss of a spouse, parent, loved one or beloved pet. It has also been effective for occupational & autism therapy, adoptions and those experiencing divorce or traumatic loss. Due to deep touch pressure, holding The Comfort Cub triggers the brain to release the neurotransmitters dopamine, serotonin and oxytocin, which causes the body to relax and feel comforted.
Charity Matters: What was the moment you knew you needed to start The Comfort Cub?
Marcella Johnson: Leaving the hospital empty handed, with nothing in my arms was one of the worst parts of the whole experience of losing a child. It was doubly heartbreaking because when it was time to be discharged my husband took all my things and went to get the car. I was in the elevator next to a woman both of us had just delivered and she had balloons, flowers, her baby boy and I had nothing to hold, it was so painful. Then when we were both wheeled outside to pick up her husband has the video camera, the balloons, and the joy. I just wanted to die. Then my husband pulled up and to see his pain looking at this happy new family was so hard, watching him suffer. We just drove off in silence.
What happened when we got home was that the emotional pain felt like an open wound. My chest literally hurt and my arms ached and no massage or Tylenol made it go away. There was a dull ache in my heart and I thought I was losing my mind. Twenty years ago people didn’t know about Takotsubo Syndrom, also known as broken heart syndrome, but research eventually proved that I wasn’t alone.
A week after the funeral I asked my dad if he would meet me at the gravesite and he had this beautiful pot of flowers to leave at the grave. When I held the pot the aching in my heart and arms went away. I was sure I was losing my mind. Then I began doing my own research on grief and discovered women who were grieving would hold sacks of flour or carried a pineapple wrapped in a blanket and realized that the pot was about the weight my child would have been.
I had asked people to donate teddy bears instead of flowers in baby George’s name that we would bring to the local Children’s Hospital. We had a lot of teddy bears and about four months after the funeral I saw a Build a Bear and I went to the manager and told him my story and that I wanted to try to create a comfort bear for other women like me. He told me he would help me after work and to go and buy all the split peas that I could find. We opened up the bears and filled them with 6.7 lbs of lentils (baby George’s weight) until we got the weight just right. The following year we started the organization because I was determined that I am not going through this in vain and if I can help just one other woman than I will be satisfied.
Charity Matters: Tell us a little about How you started The Comfort Cub after the prototype?
Marcella Johnson: Helping to me is second nature. I wanted to make sure that no woman in San Diego left the hospital the way that I did. My husband and I started a fund with the money that we would have spent on baby George. So instead of the money to buy diapers and formula, we bought teddy bears, ribbons and spilt peas. A hospice organization asked for ten bears and the Children’s Hospital asked for twelve. I got my girlfriends together and we started an assembly line.
I realized early on that this doesn’t belong to me but I am simply a steward of this. The way people have responded to this bear is so much bigger than me. The reaction from parents and people who have gone through trauma has been so inspiring. Unfortunately, when there has been a tragedy we have sent the bears. My sister lived near Sandy Hook and showed up at the office with the bears. The office manager said they had received 60,000 teddy bears and didn’t need another bear. When she told my story the office manager said she would hand deliver each Comfort Cub to tall of the parents of Sandy Hook victims. Then the parents of the teachers who were killed at Sandy Hook Elementary requested the bears. We made three hundred cubs for the grief group of the Vegas tragedy and just this past week we delivered bears here in San Diego for the recent shooting at the temple.
Charity Matters: What are your biggest challenges?
Marcella Johnson: Our biggest challenge is to get people to understand. Twenty years ago people didn’t know about the physical effects of grief and Takotsubo Syndrome. People can sometimes feel overwhelmed by helping women who have lost children and they either get it or they don’t. The Comfort Cub isn’t about sadness but about hope and healing. People are much more interested in talking about trauma than death. Why it is uncomfortable for many of us to try and find the words for people who lost someone we can not turn our backs on those who are suffering.
There have been times when this work has been hard. When the economy changed and we had the financial crisis in 2008 funding became more challenging. I had three other children, was making the bears, distributing them and it was a lot. We had a Comfort Cub hotline where we offered them for free to anyone in the United States who had a need. The San Diego Hospice group ran the hotline and funded much of the program in the beginning until a few years ago when they closed down. In 2013, I officially started running everything and in 2015 we became our own nonprofit.
Charity Matters: What fuels you to keep doing this work?
Marcella Johnson: This work is internal and in my heart. It is in my soul and I feel called to do this work. There are so many people that are grieving out there and we need to help them. I believe that I am supposed to be doing this work.
Charity Matters: When do you know you have made a difference?
Marcella Johnson: There are so many ways….I hear from the hospital all the time the comfort and peace the cubs give to so many. The people who write on our Facebook page about what an impact the cub has made. I find out second hand because I do not directly distribute the comfort cubs. However, a few years ago I received an award and they brought out a woman who had lost a child and she was carrying something that looked like the velveteen rabbit, it was so worn and loved. I realized as she began to speak about what the comfort cub had done for her that she the loved thing she as holding was her comfort cub. It is just wow to realize the difference we have made and it takes your breath away.
Charity Matters: Tell us what success and impact you have had?
Marcella Johnson: Since we began we have given over 15,000 Comfort Cubs. So often we learn that these cubs are usually passed on to at least three people. People want to give their cub to someone else who is hurting and now needs it. When you do the math that is touching almost 45,000 lives. I have a friend who is a nurse practitioner and she was recently doing a physical exam. The woman undressed and had a comfort cub tattoo. My friend asked about her tattoo and the woman explained that she had lost a child and that the comfort cub literally saved her life and she wanted it tattooed to always have it with her. That was an impact that I never expected.
Charity Matters: What life lessons have you learned from this experience?
Marcella Johnson: Before losing a child I always thought it was best not to mention a person who has died’s name. I have learned that you do not want a loved one to be forgotten. I make it a point to always tell people that whoever they lost, mattered. Also, the more you can do to help someone who is grieving the better, it doesn’t have to be anything grand but just to let them know you care.
Charity Matters: How has this journey changed you?
Marcella Johnson: My son’s passing changed my life forever. I wanted to know when he died where did he go? Where is my child? His death sent me on a quest to know more about my faith. It made me realize that we are not in control of anything. Life is short and we need to enjoy and celebrate all the goodness in our lives. Let’s go to the birthday parties, let’s go to the graduation parties and see our children in their plays. You need to tell people who are meaningful in your life that you love them and what they mean to you because it is fleeting. This is my journey and this is my life….
Charity Matters.
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Inspiration comes in many forms, as does making a difference. When a girlfriend told me she had just met an amazing human who was approaching philanthropy in a fresh and exciting new way, I knew I needed to know more. A few weeks ago, I had a fantastic conversation with Kristiana Tarnuzzer, the founder of The Cause Bar. In her previous life, Kristiana was involved in mission trips to third world countries, co-founded a nonprofit in NYC and was the go-to girl for all things philanthropic from events to fashion that gave back. A move to LA from New York inspired Kristiana to look for a one-stop place where she could find ways to make a difference in her new city. Once she realized it didn’t exist she decided to create it…The Cause Bar.
Charity Matters: Tell us a little about what The Cause Bar does?
Kristiana Tarnuzzer: The Cause Bar is a social media-driven destination for empowering, inspiring and educating on how to live a more cause focused lifestyle. We do that by highlighting for purpose brands, changemakers, people who incorporate charity in a unique way and ways to volunteer.
People can give through attending an event, some people like to roll up their sleeves and get dirty and others want to drink wine at an event. The Cause Bar is morphing into a community where we give light to people doing great things.
Charity Matters: What was the moment you knew you needed to start The Cause Bar?
Kristiana Tarnuzzer: I think what opened the door for me to do this was a little bit like a force. We moved from NYC to LA in 2018 for my husband’s career and dream job. I have lived in New Jersey and New York my entire life and had been a full time working mom in NYC. My career didn’t exist on the West Coast and I basically had a mid-life crisis leaving my life behind to move to the west coast with my husband and two young children.
Once we moved, the only thing I knew and had was this idea of The Cause Bar. It wasn’t anything new for me, because it was essentially the way I had always lived my life. I have always been involved with charitable works from a very young age. I had co-founded a nonprofit in my twenties, to going on mission trips in my thirties and people have always asked me how to find volunteer opportunities.
Once I had children it became, how am I going to lead my life by example for them? How can I raise these two children to be the next generation of philanthropists? How do I leave the world better than I found it? I saw so much interest in my own personal network from my philanthropy. People kept asking me how to find volunteer opportunities because it is overwhelming. I became a personal resource because of the way I lived my life. So many people want to give but are busy and don’t always know how. So I thought what if I put this concept out to the larger world, maybe there will be others that are interested in this? I initially launched The Cause Bar as an Instagram, I knew no one and immediately started getting traction. I let it ride for six months and knew that if other people are honoring this then I knew I had to commit to The Cause Bar.
Charity Matters: What are your biggest challenges?
Kristiana Tarnuzzer: My biggest challenge is figuring out what the perfect next stage of the model will be. How can I make this the most impactful? How do I get my mission and the work that I do every day and how can we multiply my life exponentially? How can I do more than just do this myself? How can others do this alongside me and how do I bring that to life?
Charity Matters: What fuels you to keep doing this work?
Kristiana Tarnuzzer: I couldn’t imagine going back and sitting in an office for something else after really being in this world. Something happened to me in my thirties and forties knowing there is so much more to be done and I want to sit on this side of it. I want this to be more. The move was one of the harder things in my life and it turned out to be the door that opened.
Charity Matters: When do you know you have made a difference?
Kristiana Tarnuzzer: I call these my green lights. When I realize that we raised thousands of dollars for a nonprofit. When I overhear someone talking about something The Cause Bar has done. When we get online feedback about the products people are buying, the events they are going to, the connections that are being made and the support being given to nonprofits is when I know we are a part of moving the needle. Those moments are my green lights.
Charity Matters: Tell us what success you have had and What your impact has been?
Kristiana Tarnuzzer: We are 100% self-funded. The humble brags are things like the “the site is beautiful” or “we thought you have been around a long time.” Being an entrepreneur is so different from my old life of getting constant feedback from a team. Our feedback comes online and I know we are successful when we have impacted nonprofits and the way people live their lives.
Charity Matters: How has this journey changed you?
Kristiana Tarnuzzer: I have always had a tribe. I never had to even think about a support group, people, family or my resources. I have always had a team and been part of a team in life and in my career. In doing this move and The Cause Bar I had to rely on myself, trust my gut and it was just me.
Charity Matters: What life lessons have you learned from this experience?
Kristiana Tarnuzzer: I have learned to try to love myself more and to adapt. I’ve learned to give myself the grace and the space to become and to enjoy the journey.
Charity Matters: What is your wish for The Cause Bar?
Kristiana Tarnuzzer: I wish that giving back becomes more a part of everyone’s lifestyle and that we are a big part of that. There are so many benefits to giving back and it is not just for ourselves but for what we can do for others.
Charity Matters
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Tonight millions of people will watch as celebrities walk the Red Carpet for the Emmy Awards. Stars will be wearing designer gowns styled by talented stylist and promoting the designers they are wearing. It is a big business and a huge platform. A few weeks ago I was invited to an event that discussed how do we combine passion and purpose where I met two amazing women trying to change and elevate not only the red carpet but the conversation.
Why seems to be a word on many people’s minds since the tragic and devastating shootings this past weekend. Why? Such senseless and tragic events. It simply doesn’t make sense, all of the insanity in our world. Most days I can barely get myself to turn on the news. While the events themselves are beyond heartbreaking, the shock, anger, sadness followed by the blame, played out like theater in the media, makes it that much more painful for everyone. It is like watching a car accident over and over, simply horrible.
