Tag

ALS

Browsing

Where does a movement begin? The Ice Bucket Challenge

ice bucket challenge

How do trends start? What was the impetus to all of us dumping buckets of ice water on our heads? Who was the inspiration behind this chilly trend?

The answer is simple. His name is Pete Frates and this is his story.

So the next time you are looking at Facebook and/or pouring a bucket of ice on your head, remember why you are doing and for who.  You are doing it for Pete Frates and everyone else who has ALS.  The trend that is changing the face of ALS belongs to one face only and that is of Pete Frates…. an inspiration to us all.

Charity Matters.

Copyright © 2014 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

Augie’s Quest

Augie NietoWhat would you do if you were told you had Lou Gerhigs disease? A disease also known as ALS, which is a disease where parts nerve cells that control muscle cells are gradually lost. I honestly don’t know what I would do but I can tell you what a remarkable man named Augie Nieto did. He got busy!

In March of 2005, at the age of 53 Augie Nieto was a thriving entrepreneur and fitness industry leader. His diagnosis of ALS changed the course of his life and positively inspired thousands of others. Augie’s first reaction was, “My first priority is to spend time with my family. What I learned later in my career is that it is not the quantity but the quality of time you spend that matters.”

His next step was to be part of the solution to find a cure for this disease. “My very first step in fighting back was to partner with the Muscular Dystrophy Association, which offers the best ALS doctors and health care professionals in the country. Together, MDA (Muscular Dystrophy Association) and I formed “Augie’s Quest,” which coordinates fundraising events that benefit MDA’s worldwide ALS research program.”

Augie didn’t start his own non-profit but rather partnered with an existing one and created a contract with MDS, clearly defining his terms. First and foremost was that 100% of the donations he raised went to research and to date that figure is somewhere around the 30 million dollar mark and counting. As if that wasn’t enough, in 2007 he co-authored a book entitled Augies Quest: One man’s journey from success to significance.

It has been over eight years since Augie’s diagnosis and the man who built his empire building other’s people’s muscles, has now lost the use of his own.  Although he has lost the ability to speak his spirit continues to be unstoppable in his quest to find a cure. Success to significance doesn’t begin to describe this journey.

Charity Matters.

Copyright © 2013 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.