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Having a heart

February is here and with it comes Valentine’s Day, Presidents Day, and of course heart month. In the past decade, we have talked to a number of organizations that focus on the heart. For good reason, one out of for deaths each year is from heart disease. The translation is that over 659,000 people die in the United alone each year from heart disease. These are not just statistics but real people. To visualize this number that is over six huge football stadiums full of people each year. One person every 36 seconds, not to mention the 40,000 children will be born with congenital heart disease this year. So what do we do when are our hearts are broken?

Luckily for us, there are a multitude of amazing organizations working tirelessly to solve and tend to this problem. I thought before the month jumped into high gear we could take a moment to revisit some of the great organizations we have met who are working to reduce those numbers. Some of these go back so far that I felt like I was looking at old friends, I hope you feel the same.

Hopeful Hearts Foundation

A decade ago we talked to the Chez family about their organization, The Hopeful Hearts Foundation. The Chez family had three children all born with Congenital Heart Disease. Tragically they lost their daughter Gracie suddenly at the age of three and created the Hopeful Hearts Foundation in 2008 to keep her memory alive and to help other children suffering from CHD.  The Hopeful Hearts Foundation supports families whose children have CHD and also raises funds to provide research for Congenital Heart Disease.

Camp Del Corazon

Some of you may remember Lisa Knight, a registered nurse and nonprofit founder of Camp Del Corazon. The camp is a place for children with heart-related health challenges to have fun, make friends and find fellow children going through similar health issues.

Lisa said, ”  I get so filled up by it all.  These kids have survived death, there are no camps for these types of kids due to their medical conditions. It transforms them. You see them show each other their scars. The most rewarding thing is when you hear children call you by your camp name when you see them years later not at camp.  This year our first camper is coming back as a counselor, so to see not only these children grow up and give back but to watch my own 29-year-old daughter getting even more involved as she takes on more responsibility with her role at Camp del Corazon, is so rewarding. “

Mended Hearts

In 2017, we talked to our friends the Page family about their experience with Congenital Heart Disease in our post The Heart of the Matter. In that conversation, we learned about Max Page’s support of the organization Mended Hearts. A nonprofit that was created in 1951 to give peer support to those dealing with heart disease. Dr. Harken asked four of the first four people to ever have open heart surgery to help others facing the same experience. In 2004, Mended Hearts realized that families with children suffering from CHD also needed that same peer-to-peer support and created Mended Little Hearts.

There are hundreds of organizations working tirelessly to do research to cure Congenital Heart Disease. These are just a few of the amazing people working to heal broken hearts. Next week we will continue our look back with Francie Paul from Saving Tiny Hearts in our podcast. I’m so excited to share our conversation about the incredible work she and her team have been doing to help find a cure. Until then, wishing you all a wonderful heart month full of love.

CHARITY MATTERS.

 

 

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Causes

Looking back and looking ahead

“People get up, they go to work, they have their lives, but you will never see a headline that says,’Six billion people got along rather well today.’ You will have a headline about the 30 people who shot each other.”

John Malkovich

I love this quote above from John Malkovich because it perfectly explains what Charity Matters tries to accomplish every week….highlighting the extraordinary everyday heroes who make our world better.  The world is focusing on those few that don’t get along, when in reality we should be celebrating all the beautiful work happening in our world everyday. I am heading out of town for a few day of R & R, some time to relax and think about goals for the New Year. Before I look ahead, I wanted to take a moment to look back at some of the remarkable people we met this year.

It was a year with some personal milestones with our oldest graduating college and reflections on motherhood. A year spent thinking about gratitude and goodness. A year with remarkable people who showed us by example what it means to serve. We covered topics from education to cancer, human trafficking to homelessness, AIDS and so many more.

We began the year meeting Lisa Knight of Camp del Corozon who began a camp for children with heart disease and others who set out to help those with cancer. The Foundation for Living Beauty’s Amie Satchu showed us how her organization gives hope to women living with cancer while the tenacious Alisa Savoretti inspired us with her commitment to serving women who could not afford reconstructive surgery after their mastectomy with My Hope Chest.  One of the highlights for me this year was the incredible conversation with Myra Biblowit of the Breast Cancer Research Foundation or BCRF. She amazed me and taught us about the power of friendship with her dedication to her work and friend Evelyn Lauder.

We discussed difficult topics like human sex trafficking with two nonprofits ,Saving Innocence and The Well House. We met famous super models turned homeless advocates with the stunning Elena Davis of I Am Water Foundation. We learned more about AIDS with the wonderful humans from Project Angel Food and the inspiring work done by the Elizabeth Taylor Foundation.

If that wasn’t enough, I met a few new friends with the beautiful Rochelle Fredston whose work with Learning Labs Ventures is transforming children’s lives through education. And Jennifer Hillman, the genius entrepreneur who found a way to combine philanthropy and shopping with her brilliant LuxAnthropy. Each person who crossed our path was a gift, a lesson in kindness, compassion, service to one another and love. 2018 was a magical year and I am grateful for each of you joining me on the journey to tell the story of the billions of kind, good and loving people who walk this earth each and everyday. Here is to more joy, love and kindness in 2019!

Charity Matters.

 

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Copyright © 2018 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Causes

A camp with heart

While I know it is February and summer and camp seem to feel like a million years from now, I had an incredible conversation last week with an amazing human named Lisa Knight, who runs a camp (Camp del Corozon) for children who are living with heart disease. Since February is National Heart month this seemed like the perfect time to discuss our mutual challenges of running nonprofit camps but more specifically Lisa’s incredible work as a registered nurse and nonprofit founder, serving children with heart disease. I hope you enjoy our conversation half as much as I did.

Charity Matters: What was the moment you knew you needed to start Camp Del Corozon?

Lisa Knight: In 1995, I was working with Dr. Kevin Shannon with pediatric heart patients and we had a mother who came in to see us. Her son had multiple heart surgeries and was depressed. He didn’t want to go to sleepover or PE class because he was embarrassed about all of his scars and he didn’t feel like a “normal kid.” I suggested to Dr. Shannon that maybe we should try to send him to camp and began to look for a camp that could manage his health challenges or that would take him. There was only one, it was very far away and very expensive. So I suggested that we try to create our own.

Dr. Shannon loved the idea. I reached out to my friends in Catalina that had a camp and asked if we could come for a week with some heart patients, they agreed. We asked all our doctor and nurse friends to volunteer and within two months we had 49 heart patients and 100 volunteers coming to camp for free.

Charity Matters: What challenges did you have?

Lisa Knight: We had NO money, We maxed out credit cards, were not totally sure what we were doing but we were sure we should be doing this. Then we had a surgeon named Jerry Bucklin, who gave us $5000 to make it happen and we did.

Charity Matters: What fuels you to keep doing this work?

Lisa Knight: I get so filled up by it all.  These kids have survived death, there are not camps for these types of kids due to their medical conditions. It transforms them. You see them show each other their scars. The most rewarding thing is when you hear children call you by your camp name, when you see them years later not at camp.  This year our first camper is coming back as a counselor, so to see not only these children grow up and give back but to watch my own 29-year-old daughter getting even more involved as she takes on more responsibility with her role at Camp del Corozon, is so rewarding. 

Charity Matters: Tell us about your successes at Camp del Corozon?

Lisa Knight: I think our successes is that thousands of children have been able to come to camp, to make friends, become more confident and just feel like regular kids.I think back to when we began and am so proud that it is continuing and going on. I get joy out of all our success, each child, each camp. This summer we will have close to 400 campers who will come to camp for free. Twenty-three years later that feels pretty amazing.

Charity Matters: What life lesson have you learned from this experience? 

Lisa Knight: I’ve learned so much, how to dream dreams, connect the dots and make things happen. I have learned gratitude after having so many struggles and I have learned that there is nothing better in life than service, you simply cannot be happy without it.

Charity Matters: How has this changed you?

Lisa Knight: I feel that Camp del Corozon was just supposed to be. This is my whole life. I feel that I am on a chess board and God just pushes me in the direction I am supposed to go.”

Charity Matters.

 

Sharing is caring, if you are so moved or inspired, we would love you to share this to inspire another.

Copyright © 2018 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.

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Heart Disease

Camp del Corazon, camp for more than broken hearts

Have you ever been invited to an event when someone is being honored? I was recently invited to something for a friend of mine, who is one of those very generous souls that does so much with no attention to himself. He is being honored by Camp del Corazon.

As I am beginning to think of my children’s summer plans, I wanted to know more about this place. This camp isn’t just for anyone but for children who have congenital heart disease and typically can not experience camp or exercise in many cases.  My friend knows about this first hand as his child has also had multiple surgeries.

[youtube=http://www.youtube.com/watch?v=Si3qHoSRPCM&feature=related]

Camp del Corazon (Camp of the Heart) was inspired by a patient, of Dr. Kevin Shannon, who had undergone an operation that dramatically improved the function of his heart but he was still suffering from emotional pain. He was back in school, back in little league baseball but he was so embarrassed by his scars that he wouldn’t remove his shirt.

Dr. Shannon felt that if his patient could spend time with other kids who’d had heart surgery, he’d be less self-conscious. When Dr. Shannon discussed the situation with Lisa Knight, R.N., her solution was simple: “We can do that.” And so they did.

This doctor and nurse set about fund-raising to ensure that the medically-supervised summer camp would be free for children ages 7-17 who had heart disease. When Camp del Corazon began in 1995, they had 49 campers on beautiful Catalina Island , today the camp has  close to 300 campers. Camp del Corazon is staffed completely by volunteer counselors, nurses, and physicians who give of their hearts to help these special kids.

Camp del Corazon has grown into a non-profit dedicated to providing programs for children and families living with heart disease. A camp that more than lives up to its name, just like those that support it. Big hearts all the way around.

Charity Matters.

Copyright © 2012 Charity Matters. This article may not be reproduced without explicit written permission; if you are not reading this in your newsreader, the site you are viewing is illegally infringing our copyright. We would be grateful if you contact us.


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